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Experiences with
Hydroxycarbamide
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Hydroxycarbamide
Hello I’m taking
Hydroxycarbamide
500mg daily for the last 3 years for ET jak2 positive. Yesterday 4 of my fingernails came away from the skin bed…… so sore and painful. I have asked Doc Google who says this can be caused by long term chemotherapy medication.
Hello I’m taking
Hydroxycarbamide
500mg daily for the last 3 years for ET jak2 positive. Yesterday 4 of my fingernails came away from the skin bed…… so sore and painful. I have asked Doc Google who says this can be caused by long term chemotherapy medication.
YBSx
in
MPN Voice
3 months ago
Hydroxycarbamide
Has anyone experienced similar feeling and could the
Hydroxycarbamide
be a possible cause after 6 years? Kind regards
Has anyone experienced similar feeling and could the
Hydroxycarbamide
be a possible cause after 6 years? Kind regards
Edinburgh1953
in
MPN Voice
3 months ago
Should I change my medication
Has anyone out there changed from
hydroxycarbamide
to Anagrelide with success.
Has anyone out there changed from
hydroxycarbamide
to Anagrelide with success.
Lilbert
in
MPN Voice
2 months ago
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rash on feet
anyone else have problems with itchy rash on feet whilst taking
hydroxycarbamide
?
anyone else have problems with itchy rash on feet whilst taking
hydroxycarbamide
?
HazeBlue
in
MPN Voice
29 days ago
High platelets due to ET or MF is anyone on anticoagulants such as Clexane or Heparin?
Are any of you also on
hydroxycarbamide
too?
Are any of you also on
hydroxycarbamide
too?
jointpain
in
MPN Voice
1 month ago
Hydroxicarbamide for PV - UK
Diagnosed late 2018 soon after started on
Hydroxycarbamide
+ Rivaroxyban 10mg daily. In the last year,
Hydroxycarbamide
has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640.
Diagnosed late 2018 soon after started on
Hydroxycarbamide
+ Rivaroxyban 10mg daily. In the last year,
Hydroxycarbamide
has been increased slowly every few months. I am now taking 2000mg 4 days a week and 1500mg on 3 days a week because my platelet score is 640.
RedEye21
in
MPN Voice
2 months ago
ischaemic heart disease with E/T
hi all I’m 68 male had splenectomy in 2014 started
hydroxycarbamide
in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily
Hydroxycarbamide
I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
hi all I’m 68 male had splenectomy in 2014 started
hydroxycarbamide
in 2015 high risk E/T and PV I’m on lots medication and 1500 mg daily
Hydroxycarbamide
I recently had a heart angiogram which shown high calcification in my main LAD heart artery moderate to severe They put me on Apixiban and atorvastatin
Phil1955
in
MPN Voice
2 months ago
Hydroxycarbamide Dose
Thank you to every one that replied with help and advice regarding my question about the dose increase , it’s always so very helpful to ask questions on here and get the answers from you all with your own experiences. I am very grateful and it’s much appreciated . I wish you all the very best on your
Thank you to every one that replied with help and advice regarding my question about the dose increase , it’s always so very helpful to ask questions on here and get the answers from you all with your own experiences. I am very grateful and it’s much appreciated . I wish you all the very best on your
Yoganana1
in
MPN Voice
3 months ago
medication choices
After complaining about feeling constant headaches, fatigue and generally feeling very unwell, my
hydroxycarbamide
was reduced to one every other day The day after not taking
hydroxycarbamide
my symptoms reduce a little bit, but then the day after taking
hydroxycarbamide
my symptoms come back with
After complaining about feeling constant headaches, fatigue and generally feeling very unwell, my
hydroxycarbamide
was reduced to one every other day The day after not taking
hydroxycarbamide
my symptoms reduce a little bit, but then the day after taking
hydroxycarbamide
my symptoms come back with
Greengolfer
in
MPN Voice
5 months ago
Treatment Change, question
I'm in the process in changing my medication from
hydroxycarbamide
to Pegasys. I'm currently on both whilst still taking the
hydroxycarbamide
I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
I'm in the process in changing my medication from
hydroxycarbamide
to Pegasys. I'm currently on both whilst still taking the
hydroxycarbamide
I am introducing the interferon at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good.
Swim360
in
MPN Voice
3 months ago
Hydroxycarbamide Dose
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
Yoganana1
in
MPN Voice
3 months ago
malaria
Unfortunately I cannot help although I have taken anti malaria pills in the past it was before I was on
hydroxycarbamide
Unfortunately I cannot help although I have taken anti malaria pills in the past it was before I was on
hydroxycarbamide
grandpa101
in
MPN Voice
3 months ago
HU side affects
Hi all , I’m on 10 pills a week , and can anyone best vitamin for hair and nails my Dr confirmed it’s the
Hydroxycarbamide
that’s doing it ! I’m already on long term vit D and ferrous fumate one daily Thank you for any advise
Hi all , I’m on 10 pills a week , and can anyone best vitamin for hair and nails my Dr confirmed it’s the
Hydroxycarbamide
that’s doing it ! I’m already on long term vit D and ferrous fumate one daily Thank you for any advise
Birdlady2021
in
MPN Voice
14 days ago
Insect bites
Wondering if
hydroxycarbamide
has anything to do with that. I would have thought that smart mosquitoes would stay away from my blood!! Has anyone experienced the same? Have a good day
Wondering if
hydroxycarbamide
has anything to do with that. I would have thought that smart mosquitoes would stay away from my blood!! Has anyone experienced the same? Have a good day
Cokopops
in
MPN Voice
3 days ago
A bit of advice please.
Hello Everyone I have ET JAK2 and currently taking
Hydroxycarbamide
. I have be reading about ruxolitinib and wondered if anyone out there takes this medication to treat ET JAK2 ?
Hello Everyone I have ET JAK2 and currently taking
Hydroxycarbamide
. I have be reading about ruxolitinib and wondered if anyone out there takes this medication to treat ET JAK2 ?
YBSx
in
MPN Voice
2 months ago
Transitioning from HU to Ruxolitinib
I am hoping that people here can give me the benefit of their experience of switching from
hydroxycarbamide
to ruxolitinib. I had a consultation today with Prof Mead at the Churchill hospital Oxford and he is suggesting that such a switch would be a good move.
I am hoping that people here can give me the benefit of their experience of switching from
hydroxycarbamide
to ruxolitinib. I had a consultation today with Prof Mead at the Churchill hospital Oxford and he is suggesting that such a switch would be a good move.
friendofpiglet
in
MPN Voice
2 months ago
Hydroxycarbamide
hello everyone I have ET JAK2 positive and take
Hydroxycarbamide
. I take this in the evening. My haematologist nurse has informed me this should be taken in the morning. What time of day do you take your. I understood that the evening is better so any affects are while you sleep.
hello everyone I have ET JAK2 positive and take
Hydroxycarbamide
. I take this in the evening. My haematologist nurse has informed me this should be taken in the morning. What time of day do you take your. I understood that the evening is better so any affects are while you sleep.
YBSx
in
MPN Voice
6 months ago
Malaria tablets
Am on
hydroxycarbamide
and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
Am on
hydroxycarbamide
and daily aspirin with a diagnosis of ET. Has anyone taken malaria tablets with such a condition? TIA.
SazzaC
in
MPN Voice
3 months ago
Platlets
Hiya just recovering from gall bladder infection which was quite severe been on two lots of antibiotics still got a couple of days left my platlets are usually around 600 hundred marker they are 1000 from yesterday blood test I take one
hydroxycarbamide
one day and two the next is this normall
Hiya just recovering from gall bladder infection which was quite severe been on two lots of antibiotics still got a couple of days left my platlets are usually around 600 hundred marker they are 1000 from yesterday blood test I take one
hydroxycarbamide
one day and two the next is this normall
Annma
in
MPN Voice
16 days ago
Sore mouth
I am currently on 1000 mg of
hydroxycarbamide
daily. I have been experiencing a very sore mouth and tongue which is making eating and drinking uncomfortable.
I am currently on 1000 mg of
hydroxycarbamide
daily. I have been experiencing a very sore mouth and tongue which is making eating and drinking uncomfortable.
Lilbert
in
MPN Voice
5 months ago
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