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Experiences with
Hydroxycarbamide
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Vitamin d deficiency
I have pv and taking
hydroxycarbamide
and warfarin due to portal vein thrombosis. Has anyone out there had the same problem and is it possible the deficiency could be caused by the pv.
I have pv and taking
hydroxycarbamide
and warfarin due to portal vein thrombosis. Has anyone out there had the same problem and is it possible the deficiency could be caused by the pv.
poly2
in
MPN Voice
4 years ago
Hydroxyurea dosage
I'm 32 with ET jak2 pos. My doctor recently left to work in a different area. I've been given a new doctor. The new doctor seems to be alot more aggressive. My old doctor had me on 1 pill (500mg) a day leaving my platelets around 590. The new doctor keeps upping my dosage. My first visit I was put on
I'm 32 with ET jak2 pos. My doctor recently left to work in a different area. I've been given a new doctor. The new doctor seems to be alot more aggressive. My old doctor had me on 1 pill (500mg) a day leaving my platelets around 590. The new doctor keeps upping my dosage. My first visit I was put on
Jbone636
in
MPN Voice
4 years ago
Does Hydroxycarbamide affect your teeth?
I have been taking hydroxy for 5 years. I have always had really good teeth, brushing twice a day and after anything sweet and also using a water pik to remove plaque but since using hydroxy I have noticed my gums are receiving, more gaping between the teeth and toothache on all 3 remaining molars. I
I have been taking hydroxy for 5 years. I have always had really good teeth, brushing twice a day and after anything sweet and also using a water pik to remove plaque but since using hydroxy I have noticed my gums are receiving, more gaping between the teeth and toothache on all 3 remaining molars. I
jillydabrat
in
MPN Voice
4 years ago
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New hydroxycarbamide dosage
Wanted to update everyone who advised and supported me when I asked for advice when six months into my diagnosis and treatment on aspirin and
hydroxycarbamide
I was suffering from nausea, dizziness, stomach pain and sickness.
Wanted to update everyone who advised and supported me when I asked for advice when six months into my diagnosis and treatment on aspirin and
hydroxycarbamide
I was suffering from nausea, dizziness, stomach pain and sickness.
Ozziepig
in
MPN Voice
4 years ago
If flu vaccine is needed
I have been diagnosed with ET in 2018 and jack 2+ .taking
hydroxycarbamide
and aspirin daily.i can’t decide if I have to get a flu vaccine this time because of this pandemic.I haven’t had any flu vaccine before.hope to hear from you.thanks and take care x
I have been diagnosed with ET in 2018 and jack 2+ .taking
hydroxycarbamide
and aspirin daily.i can’t decide if I have to get a flu vaccine this time because of this pandemic.I haven’t had any flu vaccine before.hope to hear from you.thanks and take care x
Marimar05
in
MPN Voice
4 years ago
Just a newbie but desperate for independent information and experiences!
I am now under pressure to start
Hydroxycarbamide
but I don't like the look of the side effects, plus I already take a chemo drug for RA (MTX). Also I travel a lot to the Tropics and on this drug I would have to keep out of the sun!
I am now under pressure to start
Hydroxycarbamide
but I don't like the look of the side effects, plus I already take a chemo drug for RA (MTX). Also I travel a lot to the Tropics and on this drug I would have to keep out of the sun!
Quercus53
in
MPN Voice
4 years ago
Does anyone know if it’s okay to take a COvid vaccine while on hydroxyurea? I have ET with Jack.
Does anyone have information on taking a COvid vaccine while on hydroxyurea? I have ET and am Jak positive. Thanks J
Does anyone have information on taking a COvid vaccine while on hydroxyurea? I have ET and am Jak positive. Thanks J
Joankalus
in
Fight MPN
4 years ago
Hydroxycarbamide
Can this be the
Hydroxycarbamide
.? Has anyone experienced this. Yvonne
Can this be the
Hydroxycarbamide
.? Has anyone experienced this. Yvonne
YBSx
in
MPN Voice
4 years ago
Should we shield again if we are given another letter? What’s the current advice from MPN experts now we are seven months into the pandemic?
I have ET which is well controlled with
Hydroxycarbamide
and Aspirin and I am nearly 62 years old. Thanks, Suzy
I have ET which is well controlled with
Hydroxycarbamide
and Aspirin and I am nearly 62 years old. Thanks, Suzy
SDJD
in
MPN Voice
4 years ago
Fatigue from ET or hydroxycarbamide
I was diagnosed with ET over 10 years ago. My main effect of ET is fatigue. This is very variable. Some days I feel fine but on other days it is a bit of a struggle to keep going. This seem to happen mostly on the 2 days a week when I have to take 2 hydroxy tablets. Although I am retired, I do a lot
I was diagnosed with ET over 10 years ago. My main effect of ET is fatigue. This is very variable. Some days I feel fine but on other days it is a bit of a struggle to keep going. This seem to happen mostly on the 2 days a week when I have to take 2 hydroxy tablets. Although I am retired, I do a lot
Caryopteris
in
MPN Voice
4 years ago
Hydroxycarbamide and Dentistry
Hello, just wondering if any of you have had any dental issues while on
Hydroxycarbamide
? My Haem. specialist advised there are not many problems. I need two fillings and he advised I can have the fillings while on HU, just would have to stop aspirin approx 5/7 days prior. Thank you
Hello, just wondering if any of you have had any dental issues while on
Hydroxycarbamide
? My Haem. specialist advised there are not many problems. I need two fillings and he advised I can have the fillings while on HU, just would have to stop aspirin approx 5/7 days prior. Thank you
lorikeet
in
MPN Voice
4 years ago
High lymphocytes and low red blood cell count
I’m on
hydroxycarbamide
1500 mg daily and already had a splenectomy in 2014 Worried regarding lymphocytes turning into Leukemia
I’m on
hydroxycarbamide
1500 mg daily and already had a splenectomy in 2014 Worried regarding lymphocytes turning into Leukemia
PhilReade
in
MPN Voice
4 years ago
Taking Vitamin D with ET
Just wondering if it’s alright to use a 10mcg Vitamin D spray into your mouth while taking
Hydroxycarbamide
, this way it misses the stomach which I have had problems with when taking in Tablet form the spray goes straight into the bloodstream.
Just wondering if it’s alright to use a 10mcg Vitamin D spray into your mouth while taking
Hydroxycarbamide
, this way it misses the stomach which I have had problems with when taking in Tablet form the spray goes straight into the bloodstream.
Superwoman
in
MPN Voice
4 years ago
Monocytes increase
I haven’t written for awhile although I read posts every day. I have ET with MPL mutation. I take Hydroxyurea. Does it increase monocytes percentage? I had blood work done recently...I don’t see hematologist for another month so I haven’t gotten a chance to inquire from him but notice monocytes percentage
I haven’t written for awhile although I read posts every day. I have ET with MPL mutation. I take Hydroxyurea. Does it increase monocytes percentage? I had blood work done recently...I don’t see hematologist for another month so I haven’t gotten a chance to inquire from him but notice monocytes percentage
Cookiebaker
in
MPN Voice
4 years ago
Viagra and hydroxycarbamide?
Can you take viagra if you are taking
hydroxycarbamide
for PV
Can you take viagra if you are taking
hydroxycarbamide
for PV
CountySteve
in
MPN Voice
4 years ago
ET and Hydroxycarbamide side effects
Hi. Has anyone ever developed a dry and wheezy cough with the treatment? I’ve had this on and off since April but not sure if it’s some weird rare side effect. In other news, my mouth ulcers have gone - yay!
Hi. Has anyone ever developed a dry and wheezy cough with the treatment? I’ve had this on and off since April but not sure if it’s some weird rare side effect. In other news, my mouth ulcers have gone - yay!
LightOfErendil
in
Leukaemia Support
4 years ago
ET Progression?
My diagnosis was quite by accident (a blood test for my prostate cancer) and I'm now on low dose aspirin and 1000/500
hydroxycarbamide
alternating daily. I have my bloods checked every 3 months and have had some issues with low haemoglobin and low MCV(not really sure what this is?).
My diagnosis was quite by accident (a blood test for my prostate cancer) and I'm now on low dose aspirin and 1000/500
hydroxycarbamide
alternating daily. I have my bloods checked every 3 months and have had some issues with low haemoglobin and low MCV(not really sure what this is?).
Trueblue8
in
MPN Voice
4 years ago
Starting hydroxycarbamide and scared!
Just looking for reassurance from any of you on
Hydroxycarbamide
. Thank you in advance , it really helps being part of this special group. Best wishes Tmg59
Just looking for reassurance from any of you on
Hydroxycarbamide
. Thank you in advance , it really helps being part of this special group. Best wishes Tmg59
Tmg59
in
MPN Voice
4 years ago
Hydroxycarbamide side effects
I have Jak2+ET and have been taking aspirin and
hydroxycarbamide
since diagnosis 6 months ago. I think I have been quite lucky with minimum side effects but recently have been experiencing dizziness, nausea,mild sickness and stomach discomfort which is having a big impact on my life.
I have Jak2+ET and have been taking aspirin and
hydroxycarbamide
since diagnosis 6 months ago. I think I have been quite lucky with minimum side effects but recently have been experiencing dizziness, nausea,mild sickness and stomach discomfort which is having a big impact on my life.
Ozziepig
in
MPN Voice
4 years ago
Red spots under skin
I have prv jak 2 and portal vein thrombosis and taking
hydroxycarbamide
and warfarin. Yesterday I noticed i have small red spots under the skin on my legs but not itchy. I have Dr googled and know i shouldn't but rather concerned that it could be petechiae. Has anyone else had this problem.
I have prv jak 2 and portal vein thrombosis and taking
hydroxycarbamide
and warfarin. Yesterday I noticed i have small red spots under the skin on my legs but not itchy. I have Dr googled and know i shouldn't but rather concerned that it could be petechiae. Has anyone else had this problem.
poly2
in
MPN Voice
4 years ago
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