Search
Search
About
Log in
Join
Experiences with
Hydroxycarbamide
Posts
Communities
1,147 public posts
Filter results
PTG-300 Clinical Trial Status
Unfortunately I did not meet parameters for the PTG-300 clinical trial for PV treatment. You have to have had a minimum of 3 phlebotomies in 28 weeks. While my past history included phlebotomies every three weeks even when on hydroxyurea, my recent history is no phlebotomy for 14 months, then two in
Unfortunately I did not meet parameters for the PTG-300 clinical trial for PV treatment. You have to have had a minimum of 3 phlebotomies in 28 weeks. While my past history included phlebotomies every three weeks even when on hydroxyurea, my recent history is no phlebotomy for 14 months, then two in
hunter5582
in
MPN Voice
3 years ago
Restless Legs / Body
She takes
Hydroxycarbamide
(500mg - 10 tablets / week) and Rivaroxaban (1x10mg tablet each day) for the condition. Her Haematologist says her spleen is enlarged to its maximum.
She takes
Hydroxycarbamide
(500mg - 10 tablets / week) and Rivaroxaban (1x10mg tablet each day) for the condition. Her Haematologist says her spleen is enlarged to its maximum.
PFR1937
in
MPN Voice
3 years ago
Side effects from Hydroxicarbamide
Hi began
Hydroxycarbamide
8 weeks ago and have an increasingly sore mouth,shin pains and sore fingers and hands.Is there anyone who has also experienced these symptoms. Thank you
Hi began
Hydroxycarbamide
8 weeks ago and have an increasingly sore mouth,shin pains and sore fingers and hands.Is there anyone who has also experienced these symptoms. Thank you
Hidden
in
MPN Voice
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
update after seeing a specialist
Its been awhile so I just wanted to give an update and maybe I can help someone else. I was diagnosed back in September with ET CALR type 1. I was asymptomatic with platelets in the 600's (now 700's) found on a routine blood work up. I saw two local hematologists that I was not comfortable with so
Its been awhile so I just wanted to give an update and maybe I can help someone else. I was diagnosed back in September with ET CALR type 1. I was asymptomatic with platelets in the 600's (now 700's) found on a routine blood work up. I saw two local hematologists that I was not comfortable with so
mother2britton
in
MPN Voice
3 years ago
Can anyone help with itching problems associated with taking Hydroxycarbamide
I was diagnosed with ET and prescribed
Hydroxycarbamide
500 mg one tabled per day which I started mid December 2020 just a week ago.
I was diagnosed with ET and prescribed
Hydroxycarbamide
500 mg one tabled per day which I started mid December 2020 just a week ago.
Pierreg
in
MPN Voice
4 years ago
Hydroxyurea or Busulfan
Hello MPN community I was diagnosed with PV in 2020. I am JAK2+ and am currently being treated with Phlebotomies as needed and baby aspirin . I am thinking about going on low dose Busulfan 2mg per day or 500mg Hydroxyurea.I would appreciate any input on side effects . Does it help fatigue or add to it
Hello MPN community I was diagnosed with PV in 2020. I am JAK2+ and am currently being treated with Phlebotomies as needed and baby aspirin . I am thinking about going on low dose Busulfan 2mg per day or 500mg Hydroxyurea.I would appreciate any input on side effects . Does it help fatigue or add to it
Ridenez
in
MPN Voice
3 years ago
Lack of information given by the medical profession
Over a period of ten years my husband was subjected to being given \
hydroxycarbamide
without any information being given to him regarding side effects etc and not being given a Consent form to agree to him taking them. Life insurance companies, i.e.
Over a period of ten years my husband was subjected to being given \
hydroxycarbamide
without any information being given to him regarding side effects etc and not being given a Consent form to agree to him taking them. Life insurance companies, i.e.
1219Smokey
in
MPN Voice
3 years ago
Low white blood count
She has told me to not take my
hydroxycarbamide
for 3 days and to have another blood test in 3 weeks. I have been diagnosed and on hydroxy for 8 years, I am 72 years old.
She has told me to not take my
hydroxycarbamide
for 3 days and to have another blood test in 3 weeks. I have been diagnosed and on hydroxy for 8 years, I am 72 years old.
Hydrox
in
MPN Voice
4 years ago
Hair colouring (dying) and Hydroxyurea
Vanity question Has anyone dyed their hair while on Hydroxyurea? I've been on it for 4 weeks and haven't noticed any issue with my hair, but dying isn't usually recommended on chemotherapy drugs, which I thought hydroxywas.
Vanity question Has anyone dyed their hair while on Hydroxyurea? I've been on it for 4 weeks and haven't noticed any issue with my hair, but dying isn't usually recommended on chemotherapy drugs, which I thought hydroxywas.
nightshadow
in
MPN Voice
3 years ago
E mail from Matt Hancock
I received a very long e mail from a Matt Hancock yesterday regarding the new instructions due to being clinically extremely vulnerable due to suffering PV and taking
hydroxycarbamide
and aspirin.
I received a very long e mail from a Matt Hancock yesterday regarding the new instructions due to being clinically extremely vulnerable due to suffering PV and taking
hydroxycarbamide
and aspirin.
Hughley
in
MPN Voice
4 years ago
New JAK2 diagnosis
Hello everyone, I have just just been diagnosed with JAK2 after bloodtests showed a high platelet count ( over 1000). My other counts were elevated but not overly high. I have Polymyalgia Rheumatica for the last 7 years, on Prednisone for 6, so I joined that forum here when just diagnosed with JAK2,
Hello everyone, I have just just been diagnosed with JAK2 after bloodtests showed a high platelet count ( over 1000). My other counts were elevated but not overly high. I have Polymyalgia Rheumatica for the last 7 years, on Prednisone for 6, so I joined that forum here when just diagnosed with JAK2,
Androg
in
MPN Voice
3 years ago
Starting hydroxyurea and scared
Hi everyone, My platelets have risen from 530 to 728 in the last 12 months and heme called and told me I should be on 500mg Hydroxurea twice per day and start a blood thinner, such as coumadin, right away. I have only been taking low dose aspirin till now and am 67 with really no symptoms. I told
Hi everyone, My platelets have risen from 530 to 728 in the last 12 months and heme called and told me I should be on 500mg Hydroxurea twice per day and start a blood thinner, such as coumadin, right away. I have only been taking low dose aspirin till now and am 67 with really no symptoms. I told
Olmstmg
in
MPN Voice
3 years ago
Covid 19 vaccine
Can anyone tell me if the vaccine produced for covid 19 in Germany which is meant to be out soon is a live one as I have been told by my haematologist that I cannot have live vaccines I suffer from PV and take
hydroxycarbamide
and aspirin. Thankyou
Can anyone tell me if the vaccine produced for covid 19 in Germany which is meant to be out soon is a live one as I have been told by my haematologist that I cannot have live vaccines I suffer from PV and take
hydroxycarbamide
and aspirin. Thankyou
Hughley
in
MPN Voice
4 years ago
Patches missing eyebrow hair
Wandered if anyone else has had similar on
Hydroxycarbamide
? Seems to be only my eyebrows. I will get it checked seeing haematologist but curious others had similar experience
Wandered if anyone else has had similar on
Hydroxycarbamide
? Seems to be only my eyebrows. I will get it checked seeing haematologist but curious others had similar experience
Dovme
in
MPN Voice
4 years ago
Ruxolitinib
Hi Folks I am about to start on Ruxolitinib does anyone have any advice for me please.I am already on
Hydroxycarbamide
and aspirin. Thanks
Hi Folks I am about to start on Ruxolitinib does anyone have any advice for me please.I am already on
Hydroxycarbamide
and aspirin. Thanks
Big-Ted
in
MPN Voice
4 years ago
Hydroxyurea and Septic System maintenance
I wonder if anyone has had problems with septic system failure due to contamination with HU? If so, what is the solution? I have read that chemotherapy or even antibiotic use long-term can kill off enough of the good bacteria in the system to cause failure. Some sites advocate from more frequent
I wonder if anyone has had problems with septic system failure due to contamination with HU? If so, what is the solution? I have read that chemotherapy or even antibiotic use long-term can kill off enough of the good bacteria in the system to cause failure. Some sites advocate from more frequent
Planti
in
MPN Voice
3 years ago
Hydroxycarbamide side effects?
Can I ask as the doctors want to put me on
Hydroxycarbamide
but I’m reluctant because of the side effects that are claimed by using the drug. I had COVID in March and since then all has gone down hill with hair shedding etc. and my platelets increasing..
Can I ask as the doctors want to put me on
Hydroxycarbamide
but I’m reluctant because of the side effects that are claimed by using the drug. I had COVID in March and since then all has gone down hill with hair shedding etc. and my platelets increasing..
Waterwoman
in
MPN Voice
4 years ago
Switching to pegasys
If moving from
hydroxycarbamide
to pegasys, are they taken in combination initially until the effect of pegasys is known?
If moving from
hydroxycarbamide
to pegasys, are they taken in combination initially until the effect of pegasys is known?
muriell
in
MPN Voice
4 years ago
Worried about Hydroxyurea side effects.
Hello. I am in USA and diagnosed with PV in July 2020.Currently on baby aspirin and Phlebotomy as needed. I meet with my Haemo in two days and thinking he will put me on HU. I am worried about side affects and any replies appreciated.Thank you.
Hello. I am in USA and diagnosed with PV in July 2020.Currently on baby aspirin and Phlebotomy as needed. I meet with my Haemo in two days and thinking he will put me on HU. I am worried about side affects and any replies appreciated.Thank you.
Ridenez
in
MPN Voice
4 years ago
Christmas with the dogs, newly on Hydroxyurea
New diagnosis of High Risk ET (JAK 2 V617F Pos) and reluctantly started on Hydroxyurea two days ago. In the night (when I do my best thinking) it came to me that if HU is cleared by the kidneys that means it will also be secreted in body fluids, tears, saliva, sweat and more. So now, one of life's small
New diagnosis of High Risk ET (JAK 2 V617F Pos) and reluctantly started on Hydroxyurea two days ago. In the night (when I do my best thinking) it came to me that if HU is cleared by the kidneys that means it will also be secreted in body fluids, tears, saliva, sweat and more. So now, one of life's small
Planti
in
MPN Voice
4 years ago
1
...
25
26
27
...
58
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
1094 results
Leukaemia Support
11 results
Sickle Cell Society
10 results
View top 10 communities
Sort by
Most Relevant
Newest