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A Wish Fulfilled, and a Legacy
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being
Bestbird
in
SHARE Metastatic Breast Cancer
9 months ago
Progression of BC Mets
I have had a good run of my Ibrance, (in different dosages), and Letrozole combination since 2017 after 1st Mets diagnosis. (History ER+ Her2- BC) Now I have progression and I'm not sure my doctor is going down the right road. She is suggesting Kisqali and Faslodex. From what I've read, Kisqali would
I have had a good run of my Ibrance, (in different dosages), and Letrozole combination since 2017 after 1st Mets diagnosis. (History ER+ Her2- BC) Now I have progression and I'm not sure my doctor is going down the right road. She is suggesting Kisqali and Faslodex. From what I've read, Kisqali would
SpicyChick
in
SHARE Metastatic Breast Cancer
9 months ago
Omeprazole/Lansoprazole on methotrexate
Hi,I'm on 20mg mtx and 200mg hydroxy. I've been having some difficulties swallowing tablets the last 6 months or so plus acid reflux/ dyspepsia discomfort at night so saw GP recently. I've had an endoscopy today and have got a telephone call with said GP on Tuesday, although I doubt he'll have any results
Hi,I'm on 20mg mtx and 200mg hydroxy. I've been having some difficulties swallowing tablets the last 6 months or so plus acid reflux/ dyspepsia discomfort at night so saw GP recently. I've had an endoscopy today and have got a telephone call with said GP on Tuesday, although I doubt he'll have any results
Circledancer
in
NRAS
8 months ago
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Schwannoma or Lymphoma
Hi All, I am still waiting for the Biopsy of the neck, and CT neck Scans, as well as a full body scan.. The dates are 4th September, for the neck scan, and full body scan, and the 14th September for the Ultra Sound Biopsy, both side of the neck. It seems that I either have a separate small tumour,
Hi All, I am still waiting for the Biopsy of the neck, and CT neck Scans, as well as a full body scan.. The dates are 4th September, for the neck scan, and full body scan, and the 14th September for the Ultra Sound Biopsy, both side of the neck. It seems that I either have a separate small tumour,
Vindicatrix
in
CLL Support
9 months ago
mesenteric tumour?
Hi, I have posted on here before but I’m having trouble navigating the site and can’t find my posts,, so I apologise if I am repeating myself. I have been diagnosed with stage 4 HG ovarian/ peritoneal cancer (they aren’t able to say which). Original scan revealed cysts on one ovary and the other
Hi, I have posted on here before but I’m having trouble navigating the site and can’t find my posts,, so I apologise if I am repeating myself. I have been diagnosed with stage 4 HG ovarian/ peritoneal cancer (they aren’t able to say which). Original scan revealed cysts on one ovary and the other
Beaver54
in
My Ovacome
9 months ago
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis.
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
PhysAssist
in
MPN Voice
3 months ago
seeing as it’s nearly Halloween, here’s a horror story
Hello all, I bumped into an old friend in the supermarket that I hadn’t seen for a while and passed pleasantries, told him he was looking well (much better than when I had last seen him 2yrs prior). We were both in a hurry though so went on our separate ways. Today my brother told me that he too had
Hello all, I bumped into an old friend in the supermarket that I hadn’t seen for a while and passed pleasantries, told him he was looking well (much better than when I had last seen him 2yrs prior). We were both in a hurry though so went on our separate ways. Today my brother told me that he too had
EyesWideNow
in
Pernicious Anaemia Society
8 months ago
Going To Self Inject -Questions
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
B12again
in
Pernicious Anaemia Society
8 months ago
Any Tips re recovery from Peritonitis, ruptured caecum, appendicitis
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Barnclown
in
Crohn's and Colitis Support
8 months ago
any tips
I have the worse anxiety/ panic disorder that has restarted up in the last two weeks and the most severe it’s ever been. Any suggestions on what to do. I was recently prescribed lexapro have read horrible reviews and I have pharmaphobia and agoraphobia. Can this eventually go away without meds
I have the worse anxiety/ panic disorder that has restarted up in the last two weeks and the most severe it’s ever been. Any suggestions on what to do. I was recently prescribed lexapro have read horrible reviews and I have pharmaphobia and agoraphobia. Can this eventually go away without meds
Brycenkenz
in
Anxiety and Depression Support
6 months ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
LFCLove
in
MPN Voice
3 months ago
bile ducts
I had a blood test few weeks back result was Alp 177and Alt 50. GP repeated them and they came back Alt 30, Alp 139 BUT GGT 105 which wasn’t tested previously. I paid to have an ultrasound scan which showed intrahepatic bile duct dilation of 3.6mm. Everything else was ok in terms of liver gall bladder
I had a blood test few weeks back result was Alp 177and Alt 50. GP repeated them and they came back Alt 30, Alp 139 BUT GGT 105 which wasn’t tested previously. I paid to have an ultrasound scan which showed intrahepatic bile duct dilation of 3.6mm. Everything else was ok in terms of liver gall bladder
Watersk
in
British Liver Trust
6 months ago
Anyone experienced horrible insomnia as a side effect of Buspar?
I’m taking 7.5 mg 3x a day along with 10 mg of Lexapro which I take in the morning. Ive taken Lexapro before without it effecting my sleep drastically. I am desperate to figure out why I am waking up anywhere from 2-4 am and tossing and turning. It has been happening for one month which coincides with
I’m taking 7.5 mg 3x a day along with 10 mg of Lexapro which I take in the morning. Ive taken Lexapro before without it effecting my sleep drastically. I am desperate to figure out why I am waking up anywhere from 2-4 am and tossing and turning. It has been happening for one month which coincides with
Melly4
in
Anxiety and Depression Support
6 months ago
Ovarian mass
Just diagnosed with a multiocular cystic structure in the right ovary extending to 7.0 x 5.6 cm. The anterior most component is made of several small size and a possible tubular. The posterior most component is composed of a larger cyst measuring 5.4 x 4.3cm. There is no nodular enhancement post administration
Just diagnosed with a multiocular cystic structure in the right ovary extending to 7.0 x 5.6 cm. The anterior most component is made of several small size and a possible tubular. The posterior most component is composed of a larger cyst measuring 5.4 x 4.3cm. There is no nodular enhancement post administration
Ova104
in
Endometriosis UK
9 months ago
Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
8 months ago
Help getting B12 injections
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
A few years ago it was discovered that I had very low B12. The gp prescribed liquid but I wasn’t absorbing orally so he changed it to injections. The loading dose made such a difference and thereafter i had a B12 injection every 13 weeks. Then it all just stopped. The surgery decided they were
Flowers2
in
Pernicious Anaemia Society
8 months ago
Transformation of Richter's Transformation Treatment to combination targeted therapy - tislelizumab +zanubrutinib (ASH 2023)
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
AussieNeil
Partner
in
CLL Support
6 months ago
EMDR therapy what is it and dose it help
I'm curious about EMDR therapy and if it's a direction I should go in?
I'm curious about EMDR therapy and if it's a direction I should go in?
LostNormality
in
Anxiety and Depression Support
3 months ago
Updates on my father
My father was scheduled for a simple robotic prostatectomy which turned in a partial cystectomy .. The surgeon found a well oval encapsulated mass in the bladder in the size of 14 cm which he removed it . He also did a simple prostatectomy , his prostate was enlarged but not as big as the doctor thought
My father was scheduled for a simple robotic prostatectomy which turned in a partial cystectomy .. The surgeon found a well oval encapsulated mass in the bladder in the size of 14 cm which he removed it . He also did a simple prostatectomy , his prostate was enlarged but not as big as the doctor thought
naples2021
in
Advanced Prostate Cancer
10 months ago
Getting worse
Things are falling apart I have a therapist factor nothing is working I have a boyfriend that says I am embarrassment and I am I don't do anything to better I don't move this fear j havd my mom cries I still can't snap out of it . I am glued to my bed!!°°°°°° I pray znx pray I get up and then I look
Things are falling apart I have a therapist factor nothing is working I have a boyfriend that says I am embarrassment and I am I don't do anything to better I don't move this fear j havd my mom cries I still can't snap out of it . I am glued to my bed!!°°°°°° I pray znx pray I get up and then I look
Hidden
in
Anxiety and Depression Support
6 months ago
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