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Important caveat regarding estrogen therapy
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
janebob99
in
Prostate Cancer Network
7 months ago
second recurrence
Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentation as I complained of ongoing back pain had,had MRI and CT which had all been clear. Until the most recent scan showed a lymph node under my breast. They have not been able to biopsy it as I have just had a DVT and so I am
Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentation as I complained of ongoing back pain had,had MRI and CT which had all been clear. Until the most recent scan showed a lymph node under my breast. They have not been able to biopsy it as I have just had a DVT and so I am
Hota
in
My Ovacome
7 months ago
Iron and ferritin advice requested
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
MrVimes
in
Restless Legs Syndrome
5 months ago
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Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
IBS. Possible internal bowel prolapse,inturrssusception or bowel / bladder intracele
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
Beakybird58
in
IBS Network
5 months ago
New Malecare AI Assisted PCa Search
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
dmt1121
in
Advanced Prostate Cancer
7 months ago
nephrectomy
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
higham23
in
MPN Voice
7 months ago
Short-term vs Long-Term ADT for High Risk Men
Here's a review of a recent presentation at ASCO 2023 by Artera.ai regarding the use of Artificial Intelligence analysis of biopsy slides to predict which high-risk men do or don't benefit from short-term ADT vs long-term ADT. Their findings are summarized here: [i]"Based on these results, it appears
Here's a review of a recent presentation at ASCO 2023 by Artera.ai regarding the use of Artificial Intelligence analysis of biopsy slides to predict which high-risk men do or don't benefit from short-term ADT vs long-term ADT. Their findings are summarized here: [i]"Based on these results, it appears
janebob99
in
Prostate Cancer Network
7 months ago
Strange sensation
Hi guys.I've been having some constipation and gas issues. I read massaging the abdomen can be helpful, so I did. When I got around the hip area I felt sharp pains , very uncomfortable , on both sides. It could possibly be gas ? Just thought I'd ask if anyone has felt this type of pain. The massage
Hi guys.I've been having some constipation and gas issues. I read massaging the abdomen can be helpful, so I did. When I got around the hip area I felt sharp pains , very uncomfortable , on both sides. It could possibly be gas ? Just thought I'd ask if anyone has felt this type of pain. The massage
Gizmo6
in
IBS Network
5 months ago
Ferritin
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
Hidden
in
Thyroid UK
5 months ago
Neurofibroma
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Huskyy
in
Thyroid UK
5 months ago
Feeling like Chemo is too Hard
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
delia2
in
My Ovacome
5 months ago
First blood test after starting Peg 17/12/2023
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Carol0925
in
MPN Voice
7 months ago
Mutations
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
Healthplus1
in
SHARE Metastatic Breast Cancer
7 months ago
Ovarian cancer advice
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
PaumicB123
in
My Ovacome
7 months ago
new model for bone marrow behavior is a hope for finding bone metastasis remedies!
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
Maxone73
in
Advanced Prostate Cancer
7 months ago
Newly diagnosed Stage 4
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
life2990
in
SHARE Metastatic Breast Cancer
7 months ago
How to Know When Disimpaction is Complete
I'm doing disimpaction for my 7 year old. She's been constipated and on laxatives for years. I did 2 weeks of the sachet schedule and then 6 days adding bisacodyl tablet at night & suppository morning. She's had very watery stool (sometimes clear or light brown with just tiny bits spraying out, sometimes
I'm doing disimpaction for my 7 year old. She's been constipated and on laxatives for years. I did 2 weeks of the sachet schedule and then 6 days adding bisacodyl tablet at night & suppository morning. She's had very watery stool (sometimes clear or light brown with just tiny bits spraying out, sometimes
Maplelover
in
ERIC
5 months ago
worried
Hi there, I’ve been struggling with constipation for a few years but recently every 2-3 weeks when I actually need to go I get shocking pains that feel like I’m in labour but am constipated for ages and then awful runs that have blood. I have a niggly right hand pain, feel full very quick and not eating
Hi there, I’ve been struggling with constipation for a few years but recently every 2-3 weeks when I actually need to go I get shocking pains that feel like I’m in labour but am constipated for ages and then awful runs that have blood. I have a niggly right hand pain, feel full very quick and not eating
Sarah1611
in
Crohn's and Colitis Support
5 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Prostate Cancer Network
7 months ago
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