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morning agony
Hi I’ve not posted for a long time I’m still suffering badly with my ibs and 5 other stomach issues. Does anyone wake up with abdominal pain and constant bowel movements in the morning and terrible pain after. I’m at my wits end the doctors just want to give me more tablets I literally can’t take anymore.Amber
Hi I’ve not posted for a long time I’m still suffering badly with my ibs and 5 other stomach issues. Does anyone wake up with abdominal pain and constant bowel movements in the morning and terrible pain after. I’m at my wits end the doctors just want to give me more tablets I literally can’t take anymore.Amber
Oscar091
in
IBS Network
3 months ago
PSA rising after my 4th chemo
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
Maxone73
in
Advanced Prostate Cancer
7 months ago
Rectal Pain
I've had rectal pain after bowel movements for 2 years. Pain lasts around 4-5 hours.No Dr. knows what's wrong. MRI was normal. I can't sit over 1 hour and I and when I stand for over an hour I feel like mu insides ar falling out of my vagina. I do not have Hemorrhoids. I do have a 2cm Retrocele but Drs
I've had rectal pain after bowel movements for 2 years. Pain lasts around 4-5 hours.No Dr. knows what's wrong. MRI was normal. I can't sit over 1 hour and I and when I stand for over an hour I feel like mu insides ar falling out of my vagina. I do not have Hemorrhoids. I do have a 2cm Retrocele but Drs
swanzie
in
Pelvic Pain Support Network
3 months ago
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B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
3 months ago
Angular Cheilitis?
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Haz58
in
NRAS
3 months ago
Ferritin and Iron
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
Summer194
in
Restless Legs Syndrome
3 months ago
metistatic castrate sensetive bone Marrow prostate cancer
had bone marrow biospsy and the mCSPC has spread bone marrow. They are recommending thaat I stay in hospital replace Abiraterone with Xtnandi. Thoughts? 2nd question my red blood 2,38 and platelets 23. have plummeted, they want me in hospital. How can I manage the red blood and platelets outside the
had bone marrow biospsy and the mCSPC has spread bone marrow. They are recommending thaat I stay in hospital replace Abiraterone with Xtnandi. Thoughts? 2nd question my red blood 2,38 and platelets 23. have plummeted, they want me in hospital. How can I manage the red blood and platelets outside the
TMcgee
in
Advanced Prostate Cancer
7 months ago
Anyone tried LGG probiotic Diclofor?
I took it for dairy allergy and wondering if it gave me Constipation! ? Seems hard to buy brands here without prebiotics in them also, anyone know any other brands? Mine was made by Bayer!
I took it for dairy allergy and wondering if it gave me Constipation! ? Seems hard to buy brands here without prebiotics in them also, anyone know any other brands? Mine was made by Bayer!
LFHell
in
IBS Network
3 months ago
For ILC or Lobular ladies
This video was released within the last 10 days from by LBCA (Lobular Breast Cancer Alliance). Highlights of 2023 International ILC Symposium. The video is about 2 hours long with a lot of info. I want to listen again because of all the info. A couple things I initially took away all or almost all
This video was released within the last 10 days from by LBCA (Lobular Breast Cancer Alliance). Highlights of 2023 International ILC Symposium. The video is about 2 hours long with a lot of info. I want to listen again because of all the info. A couple things I initially took away all or almost all
ba5083
in
SHARE Metastatic Breast Cancer
7 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
2 months ago
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
3 months ago
'Headspin'
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
Vindicatrix
in
CLL Support
7 months ago
First time Colonoscopy
I have my first colonoscopy on Thursday the 14th. I have been given Picolax. I am concerned about the prep as my friend told me you don't have time to get up the stairs to the toilet, and I should stay upstairs after taking the prep solution; is this correct? I'm really not sure about the sedative
I have my first colonoscopy on Thursday the 14th. I have been given Picolax. I am concerned about the prep as my friend told me you don't have time to get up the stairs to the toilet, and I should stay upstairs after taking the prep solution; is this correct? I'm really not sure about the sedative
Lesleyr14
in
Colon Cancer Connected
3 months ago
Is there anyone on this forum on Aromatase Inhibitors?
I am taking AI (letrozole) as adjuvant therapy for last six years . Would like to know protocol for AI, duration and bisphosphonate injections. Thankyou.
I am taking AI (letrozole) as adjuvant therapy for last six years . Would like to know protocol for AI, duration and bisphosphonate injections. Thankyou.
gspsad
in
Breast Cancer India
7 months ago
Help I don’t understand
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
Jadaboo4
in
LUPUS UK
2 months ago
Indigestion symptoms
Hi … I’m still waiting on results of colonoscopy biopsies- it will be 3 weeks on Monday - I’ve chased results with secretaries and results were in last week so waiting on appointment with gastro consultant. Secretary said she will send email for me as I am having really bad symptoms that are sometimes
Hi … I’m still waiting on results of colonoscopy biopsies- it will be 3 weeks on Monday - I’ve chased results with secretaries and results were in last week so waiting on appointment with gastro consultant. Secretary said she will send email for me as I am having really bad symptoms that are sometimes
Lastboyscout6
in
IBS Network
3 months ago
B12 Manufacturing Process
I was reading a post about an Etsy shop offering injectable B12 doses so I decided to research where B12 is manufactured. I found this really interesting site and thought others might also find it interesting. https://quadram.ac.uk/case_studies/an-environmentally-friendly-vitamin-b12-production-method-that-makes-manufacture-more-affordable
I was reading a post about an Etsy shop offering injectable B12 doses so I decided to research where B12 is manufactured. I found this really interesting site and thought others might also find it interesting. https://quadram.ac.uk/case_studies/an-environmentally-friendly-vitamin-b12-production-method-that-makes-manufacture-more-affordable
MoKayD
in
Pernicious Anaemia Society
3 months ago
Bad urgency with little result
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
AGB111
in
IBS Network
3 months ago
Starting on Verzenio
Hello all my fellow thrivers! After taking Piqray + monthly shots of Fulvestrant and Zoladex for more than a year, my latest pet scan revealed progression and found new mets in liver, lymph nodes and bone. Therefore, my oncologist is starting me on Verzenio 100mg next week while keeping my Fulvestrant
Hello all my fellow thrivers! After taking Piqray + monthly shots of Fulvestrant and Zoladex for more than a year, my latest pet scan revealed progression and found new mets in liver, lymph nodes and bone. Therefore, my oncologist is starting me on Verzenio 100mg next week while keeping my Fulvestrant
hopeoflife
in
SHARE Metastatic Breast Cancer
7 months ago
Paclitaxel and hair loss
hi everyone, I have just had my 3rd paclitaxel today, I am on weekly doses via IV and have no signs of my hair falling out? Not even a slight bit? I’m concerned that it means it’s not working, has this happened to anyone else or does the hair loss come a little later down the line?
hi everyone, I have just had my 3rd paclitaxel today, I am on weekly doses via IV and have no signs of my hair falling out? Not even a slight bit? I’m concerned that it means it’s not working, has this happened to anyone else or does the hair loss come a little later down the line?
RachH20
in
SHARE Metastatic Breast Cancer
7 months ago
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