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Merry Christmas Despite Progression
Hello all! Today I’m supposed to be with my family in my hometown but found out Monday I have progression in my spine, ribs, pelvis and liver so spent this week in the hospital getting bone cement injection to repair a compound fracture in my spine and begin radiation. Thankfully I was released yesterday
Hello all! Today I’m supposed to be with my family in my hometown but found out Monday I have progression in my spine, ribs, pelvis and liver so spent this week in the hospital getting bone cement injection to repair a compound fracture in my spine and begin radiation. Thankfully I was released yesterday
Saltandlight
in
SHARE Metastatic Breast Cancer
6 months ago
Does anyone have this IBS’s symptoms ?
3 moths age and daily I wake up with severe pain in my stomach like I feel very hungry . My endoscopy was negative of any thing . My question does anyone suffer from this symptoms who has IBS please ? Thank you.
3 moths age and daily I wake up with severe pain in my stomach like I feel very hungry . My endoscopy was negative of any thing . My question does anyone suffer from this symptoms who has IBS please ? Thank you.
Raneena
in
IBS Network
3 months ago
ANA test results
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
PurpleKoala24
in
LUPUS UK
21 days ago
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long term omeprazole use
I was taking omeprazole for about 15 years and stopped in December last year, as I had done some research and found out it can affect stomach acid. No one told me to stop taking it. I don’t even know why I was put on it in the first place, up I think it was for IBS. I haven’t had any acid reflux or indigestion
I was taking omeprazole for about 15 years and stopped in December last year, as I had done some research and found out it can affect stomach acid. No one told me to stop taking it. I don’t even know why I was put on it in the first place, up I think it was for IBS. I haven’t had any acid reflux or indigestion
Chickens44
in
Pernicious Anaemia Society
3 months ago
Need Help For My GP…
I am having an ongoing discussion with my GP about giving me the dose I need for my deficiency (EOD). It has been mainly positive so far, during my appointment yesterday he did acknowledge that he knew little about this malady, he would also need to chat to his partners and get advice from a specialist
I am having an ongoing discussion with my GP about giving me the dose I need for my deficiency (EOD). It has been mainly positive so far, during my appointment yesterday he did acknowledge that he knew little about this malady, he would also need to chat to his partners and get advice from a specialist
B12again
in
Pernicious Anaemia Society
3 months ago
carbo/gem
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
NewtonEmma1900
in
My Ovacome
3 months ago
Any thoughts please
Hello. After a 5 day stint in hospital for hypercalcemia and kidney stones and a whole host of xrays and scans which have shown nodules on my thyroid, I've now been referred to an endocrine surgeon. Any thoughts on why they've made that referral. I'm new to this and totally confused because of lack
Hello. After a 5 day stint in hospital for hypercalcemia and kidney stones and a whole host of xrays and scans which have shown nodules on my thyroid, I've now been referred to an endocrine surgeon. Any thoughts on why they've made that referral. I'm new to this and totally confused because of lack
ScubaBlue
in
Thyroid UK
6 months ago
Has anyone tried pulsed electric magnetic field therapy for PMR relief?
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
lsplumb
in
PMRGCAuk
3 months ago
virtual appointment
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
0range5520
in
British Liver Trust
3 months ago
Iron and ferritin advice requested
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
MrVimes
in
Restless Legs Syndrome
3 months ago
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Suffering_sunny
in
Pernicious Anaemia Society
3 months ago
SMYD3 enzyme involved in metastases
From msn Fullscreen button SMYD3 loss impedes PCa progression.(A) Expression of SMYD3 mRNA from TCGA [GTEX normal (n = 105), TCGA tumor adjacent normal (n = 49), primary tumors (n = 495)], Gulzar et al. [normal (n = 35), primary tumor (n = 43)] (30), and Ross-Adams et al. [normal (n = 73), primary
From msn Fullscreen button SMYD3 loss impedes PCa progression.(A) Expression of SMYD3 mRNA from TCGA [GTEX normal (n = 105), TCGA tumor adjacent normal (n = 49), primary tumors (n = 495)], Gulzar et al. [normal (n = 35), primary tumor (n = 43)] (30), and Ross-Adams et al. [normal (n = 73), primary
Derf4223
in
Advanced Prostate Cancer
6 months ago
New Normal
Good morning beautiful ladies 😀 This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Good morning beautiful ladies 😀 This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Kcap430
in
SHARE Metastatic Breast Cancer
6 months ago
unknown rash
hi everyone! Last week I posted pictures of my son’s face rash asking if it looked like cutaneous lupus. For those who are just reading now, he had this rash for about two months now— started on his ear which was raw red then went away. A few weeks later the rash developed bright red spots on his face
hi everyone! Last week I posted pictures of my son’s face rash asking if it looked like cutaneous lupus. For those who are just reading now, he had this rash for about two months now— started on his ear which was raw red then went away. A few weeks later the rash developed bright red spots on his face
Demaso33
in
LUPUS UK
29 days ago
IBS. Possible internal bowel prolapse,inturrssusception or bowel / bladder intracele
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
Beakybird58
in
IBS Network
3 months ago
can stress anxiety cause a flare up?
mum diagnosed GCA 4 years ago totally blind due to doctor negligence and in the meantime we’ve dealt with her having lung cancer (2 years ago) the lung cancer has reared its ugly head got results from CT scan last week a week before the results she was complaining of headache so I contacted her rheumatologist
mum diagnosed GCA 4 years ago totally blind due to doctor negligence and in the meantime we’ve dealt with her having lung cancer (2 years ago) the lung cancer has reared its ugly head got results from CT scan last week a week before the results she was complaining of headache so I contacted her rheumatologist
Daughters2
in
PMRGCAuk
6 months ago
*Long Read Warning* How do you know if you’re getting better mentally?
Just need to vent, if you read this and commented thankyou, it helps getting another perspective on the situation. Male, 20 Parents went through a divorce in 2022 and it was ugly to say the least. (Mom was an alcoholic, dad was a cop and emotionally distant due to his Mexican culture and upbringing
Just need to vent, if you read this and commented thankyou, it helps getting another perspective on the situation. Male, 20 Parents went through a divorce in 2022 and it was ugly to say the least. (Mom was an alcoholic, dad was a cop and emotionally distant due to his Mexican culture and upbringing
Bear2024
in
Above & Beyond
1 month ago
Lymphocytic infiltration
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
cartwheels
in
CLL Support
6 months ago
Almost there
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Pumukkale
in
PMRGCAuk
6 months ago
Is inconsistent bowel and urine part of the Prostate cancer? Also almost like dementia?
The last two months my husband has wet himself many times and almost many more times in the last week he has solid himself 3 times when we were out. He doesn't have diarrhea he says he can't tell he has to go until he HAS to go than it's to late. Also in the last two months he has done things like point
The last two months my husband has wet himself many times and almost many more times in the last week he has solid himself 3 times when we were out. He doesn't have diarrhea he says he can't tell he has to go until he HAS to go than it's to late. Also in the last two months he has done things like point
Bo1948
in
Advanced Prostate Cancer
6 months ago
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