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CA125 rising steadily
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Hello everyone, I’m looking for people’s thoughts please . I was diagnosed with HGSOC in July 2022. Had 5 cycles of chemo ( 1 of carboplatin and taxol - allergic response to taxol , 4 of carbo) debulking operation in Jan 2023 , followed by 2 further rounds of carboplatin. I have been receiving Avastin
Norelo8
in
My Ovacome
2 months ago
A warrior’s journey, QOL, wisdom?
From initial diagnosis through every lab test, imaging study, and treatment decision, this journey took enormous physical, emotional and spiritual fortitude. No matter the course or the length, hold your loved ones close, continue to plan adventures, and never give up hope. My husband used to say “
From initial diagnosis through every lab test, imaging study, and treatment decision, this journey took enormous physical, emotional and spiritual fortitude. No matter the course or the length, hold your loved ones close, continue to plan adventures, and never give up hope. My husband used to say “
MaxWife
in
Advanced Prostate Cancer
6 months ago
Upper left pain …gastro update
Just a quick update which hopefully helps others. I’ve just had an upper endoscopy and this showed mild gastritis. I’m very fortunate to have a great NHS doctor who listened to my concerns and supported me gaining assurances that there is nothing seriously wrong. I’ve still got the upper left quarter
Just a quick update which hopefully helps others. I’ve just had an upper endoscopy and this showed mild gastritis. I’m very fortunate to have a great NHS doctor who listened to my concerns and supported me gaining assurances that there is nothing seriously wrong. I’ve still got the upper left quarter
Dh19
in
IBS Network
2 months ago
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Anecdotal, but running could boost immunity
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
PeggySusi
Graduate
in
Couch to 5K
6 months ago
additional comments on second pathology
Hello, I just received additional comments on second opinion surgical pathology. I was wondering if you can provide feedback because I don’t understand. I am seeing PA on Friday so I need to ask the right questions. Please help me understand this. I have Gleason 3+4 (40% 4) plus intraductal. Negative
Hello, I just received additional comments on second opinion surgical pathology. I was wondering if you can provide feedback because I don’t understand. I am seeing PA on Friday so I need to ask the right questions. Please help me understand this. I have Gleason 3+4 (40% 4) plus intraductal. Negative
Granolaberry
in
Prostate Cancer Network
6 months ago
Could Gluten Intolerance lead to RLS?
After watching the video about what can cause Parkinson’s that was posted on this website, I started thinking about inflammation, and inflammation of the body and gut. I found this website from the gluten free society who have found correlation between gluten and rls. My husband who has had RLS for
After watching the video about what can cause Parkinson’s that was posted on this website, I started thinking about inflammation, and inflammation of the body and gut. I found this website from the gluten free society who have found correlation between gluten and rls. My husband who has had RLS for
Sandalsforever
in
Restless Legs Syndrome
3 months ago
Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
6 months ago
In vivo: nanocarriers to deliver precision chemotherapy
A bit premature, but... Tests verified the ATP-modified PLGA nanoparticles were well tolerated in mice upon multiple systemic injections. They were able to recruit dendritic cells, the immune cells that recognize tumor antigens and bring specialized immune cells to fight off tumors. "Moreover, the
A bit premature, but... Tests verified the ATP-modified PLGA nanoparticles were well tolerated in mice upon multiple systemic injections. They were able to recruit dendritic cells, the immune cells that recognize tumor antigens and bring specialized immune cells to fight off tumors. "Moreover, the
Maxone73
in
Advanced Prostate Cancer
6 months ago
Adenmyosis and Constipation
I found out recently that adenmyosis can cause bad bouts of constipation, which explains a lot for me. However all the dr’s do is plug me with laxitives and tell me to eat prunes (which I have explained doesn’t help) because (and I apologise if this is TMI) my stools aren’t hard, it’s not a fibre intake
I found out recently that adenmyosis can cause bad bouts of constipation, which explains a lot for me. However all the dr’s do is plug me with laxitives and tell me to eat prunes (which I have explained doesn’t help) because (and I apologise if this is TMI) my stools aren’t hard, it’s not a fibre intake
SmallTalk
in
Endometriosis UK
3 months ago
Accuracy of PSMA PET scan?
What would you venture to guess is the accuracy of the PSMA PET scan? How many of you showed "no spread" with your PSMA scan, but then learned via surgery or otherwise that there WAS spread which wasn't detected with the PSMA scan? And, how much better is the new Posluma scan vs Pylarify? My husband
What would you venture to guess is the accuracy of the PSMA PET scan? How many of you showed "no spread" with your PSMA scan, but then learned via surgery or otherwise that there WAS spread which wasn't detected with the PSMA scan? And, how much better is the new Posluma scan vs Pylarify? My husband
Adendino
in
Advanced Prostate Cancer
6 months ago
Be your own case manager
I was diagnosed with Behcets in 2018 followed by breast cancer in 2022. (Interesting to note inflammation in biopsy even for that). It was all fairly well controlled but I was not thriving as such and Nov 23 showed a new symptom - eye inflammation. Basically I read about a study in Birmingham where a
I was diagnosed with Behcets in 2018 followed by breast cancer in 2022. (Interesting to note inflammation in biopsy even for that). It was all fairly well controlled but I was not thriving as such and Nov 23 showed a new symptom - eye inflammation. Basically I read about a study in Birmingham where a
SCMW
in
Behçet's UK
3 months ago
Post laparotomy
Hello dear ladies, I am 5 days post my debulking surgery which went quite well. So far I have not had major issues… except bowel problems. Now they are talking about post op ileus or intestinal paralysis. Has anyone experienced this complication? What was done to treat it
Hello dear ladies, I am 5 days post my debulking surgery which went quite well. So far I have not had major issues… except bowel problems. Now they are talking about post op ileus or intestinal paralysis. Has anyone experienced this complication? What was done to treat it
Lara1
in
My Ovacome
3 months ago
Flagyl ( Metronidazole) Side Effects
Hi my friends, I was given Flagyl to treat my digestive system after an episode of food poisoning but this medicine caused a lot of annoying side effects like heartburn and bloating. Did any one had this medicine and how did you feel. Many thanks
Hi my friends, I was given Flagyl to treat my digestive system after an episode of food poisoning but this medicine caused a lot of annoying side effects like heartburn and bloating. Did any one had this medicine and how did you feel. Many thanks
Shoosh_kw
in
IBS Network
3 months ago
Mild TI inflammation
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Sunita77
in
Bowel Disease Support
5 months ago
Post Op
Done my liver resection on 14 March 2024 coz found tumour in it since 2023. Went through Y90 treatment to shrink the tumour. Doc removed the tumour via keyhole with a drainage wound. After the op, stayed in hospital for 7 days till I’m stable and independent enough to walk on my own so wouldn’t be
Done my liver resection on 14 March 2024 coz found tumour in it since 2023. Went through Y90 treatment to shrink the tumour. Doc removed the tumour via keyhole with a drainage wound. After the op, stayed in hospital for 7 days till I’m stable and independent enough to walk on my own so wouldn’t be
SunnyShoe
in
British Liver Trust
6 months ago
Ivermectin Vs. Broccoli, etc. Video
I thought this was interesting and recently was posted. At the end 10:54, he mentions that versus IVM there are other perhaps more targeted to various pathways with natural phytochemical found in vegetables and fruits like Resveritrol (grape skins), Curcumin, EGCG (Green Tea), Quercetin (Apple skins
I thought this was interesting and recently was posted. At the end 10:54, he mentions that versus IVM there are other perhaps more targeted to various pathways with natural phytochemical found in vegetables and fruits like Resveritrol (grape skins), Curcumin, EGCG (Green Tea), Quercetin (Apple skins
Nwdx
in
Fight Prostate Cancer
3 months ago
Pluvicto Question
Hi Fellow Warriors! Six months of Taxotere failed miserably. After 8 rounds, I was done. After chemo, my second PSMA-PET showed additional bone mets and a spread to the lymph nodes. My MO told me I was a good candidate for Pluvicto, so, three months after finishing Taxotere, I started that therapy
Hi Fellow Warriors! Six months of Taxotere failed miserably. After 8 rounds, I was done. After chemo, my second PSMA-PET showed additional bone mets and a spread to the lymph nodes. My MO told me I was a good candidate for Pluvicto, so, three months after finishing Taxotere, I started that therapy
MJCA
in
Advanced Prostate Cancer
6 months ago
Diagnosed with Richters
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
Louie_CC
in
CLL Support
1 month ago
Dutasteride Reduces Tumor Volume by 30% after 6 months.
This chart compares prostate cancer tumor volume measured by MRI, at baseline and at 6 months, comparing placebo to Dutasteride. This was a randomized, double-blind, placebo-controlled clinical trial. The cohort included Low and Intermediate Risk men, GS-6-7, baseline PSA = 6-7, median age 64 y.o,
This chart compares prostate cancer tumor volume measured by MRI, at baseline and at 6 months, comparing placebo to Dutasteride. This was a randomized, double-blind, placebo-controlled clinical trial. The cohort included Low and Intermediate Risk men, GS-6-7, baseline PSA = 6-7, median age 64 y.o,
janebob99
in
Prostate Cancer Network
6 months ago
CGA and urogram
Hi All good advisers. Have been on pred for CGA since July 2023, starting at 60mg. now at 12 mg with very slow taper. I am having a kidney urogram this April. I am also on metformin 3 x daily 500 mg. I have read that I should stop taking metformin before this procedure. How many days before should
Hi All good advisers. Have been on pred for CGA since July 2023, starting at 60mg. now at 12 mg with very slow taper. I am having a kidney urogram this April. I am also on metformin 3 x daily 500 mg. I have read that I should stop taking metformin before this procedure. How many days before should
Groda
in
PMRGCAuk
6 months ago
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