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Hoyeraal-Hreidarsson syndrome
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suffer of RLS most of my life
Long before requip became the go-to drug for RLS I started out with tramadol 50 mg every 4 hours until I reach 200 mg luckily for me I had a doctor who kept up with the new drugs coming out. As soon as requip came out on the market I was put on it and over the years I was able to withdrawal totally from
Long before requip became the go-to drug for RLS I started out with tramadol 50 mg every 4 hours until I reach 200 mg luckily for me I had a doctor who kept up with the new drugs coming out. As soon as requip came out on the market I was put on it and over the years I was able to withdrawal totally from
fred6113
in
Restless Legs Syndrome
5 years ago
Mid cycle spotting 😳
I'm on day 14 of my cycle, I start buserelin for down regulation for my FET next month and am also having an endometrial scratch this Thursday. I've started spotting, I've noticed I've been getting pre period spotting for my last 3 cycles, it's just been pink/brown and very slight, I'm using ovusense
I'm on day 14 of my cycle, I start buserelin for down regulation for my FET next month and am also having an endometrial scratch this Thursday. I've started spotting, I've noticed I've been getting pre period spotting for my last 3 cycles, it's just been pink/brown and very slight, I'm using ovusense
Sarah_a_2018
in
Fertility Network UK
5 years ago
Sclerederma versus scleredema?
Hello I am new to this site and hope to hear from others with my condition. I have an Autoimmune disease that mimics scleroderma and was originally diagnosed with deep morphea. A biopsy has shown that I actually have a rare condition called Scleredema Buschke. *Note the missing r. There is not much data
Hello I am new to this site and hope to hear from others with my condition. I have an Autoimmune disease that mimics scleroderma and was originally diagnosed with deep morphea. A biopsy has shown that I actually have a rare condition called Scleredema Buschke. *Note the missing r. There is not much data
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
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Hi everyone, I’ve just joined today. It’s been the longest 10 months of my life. I’m 46 and was diagnosed in January this year. I am on ropinirole 1.5mg every night. I started on 0.5mg but it’s had to be increased every few months. I have got low iron and am currently on tablets for that also. I’m
Hi everyone, I’ve just joined today. It’s been the longest 10 months of my life. I’m 46 and was diagnosed in January this year. I am on ropinirole 1.5mg every night. I started on 0.5mg but it’s had to be increased every few months. I have got low iron and am currently on tablets for that also. I’m
Tilly73
in
Restless Legs Syndrome
5 years ago
Anyone had a mmc with a fresh and moved on to a fet and it work ???
Anyone had a missed miscarriage with a fresh and gone on to there 1st fet and it work? I be having 2 top grade 2.2A 5day blasts transfed next Friday 25th Oct cant wait but praying it works as this will be our last go.. had my 10day scan yesterday to check my lining and they said it was 12 which hopefully
Anyone had a missed miscarriage with a fresh and gone on to there 1st fet and it work? I be having 2 top grade 2.2A 5day blasts transfed next Friday 25th Oct cant wait but praying it works as this will be our last go.. had my 10day scan yesterday to check my lining and they said it was 12 which hopefully
Mishmash12
in
Fertility Network UK
5 years ago
Dr Winkleman Dr Buchfuhrer
Hi Restless Team Just wondering what the difference in care is between the 2 specialist Dr Winkleman and Dr Buchfuhrer. We are on route to NYC and hoping to get appointment with Dr Winkelman in Boston . I have sent all my paper work but still awaiting contact from liaison officer . If he cannot
Hi Restless Team Just wondering what the difference in care is between the 2 specialist Dr Winkleman and Dr Buchfuhrer. We are on route to NYC and hoping to get appointment with Dr Winkelman in Boston . I have sent all my paper work but still awaiting contact from liaison officer . If he cannot
Shumbah
in
Restless Legs Syndrome
5 years ago
Ropinirole vs Pramipexole
Guys - I've previously been on pramipexole and hated the way it made me feel during the day, I had tiredness, brain fog and difficultly from it (2x0.088MG). I have since came off this and am trying gabapentin today is my first day on this. I also met another RLS suffer today who mentioned they were on
Guys - I've previously been on pramipexole and hated the way it made me feel during the day, I had tiredness, brain fog and difficultly from it (2x0.088MG). I have since came off this and am trying gabapentin today is my first day on this. I also met another RLS suffer today who mentioned they were on
gentoorax
in
Restless Legs Syndrome
5 years ago
How many Dopamine meds have you had
I have had Pramapixole Requip Xl Ropineral and the patch , Pregablin Gabapentin Tramodol and Amatriptyline
I have had Pramapixole Requip Xl Ropineral and the patch , Pregablin Gabapentin Tramodol and Amatriptyline
beady3
in
Restless Legs Syndrome
5 years ago
Fibro or Chronic Fatigue Syndrome
Doctor said i have suspected Fibromyalgia. Symtoms are general tiredness/fatigue/dizzyness/clumsiness/lack of concentration I don't have muscle aches/ pains/ feeling unable to move. Everyone with fibro seems to have these pain/muscle related symptoms. Can anyone shed any light on this. Is it more likely
Doctor said i have suspected Fibromyalgia. Symtoms are general tiredness/fatigue/dizzyness/clumsiness/lack of concentration I don't have muscle aches/ pains/ feeling unable to move. Everyone with fibro seems to have these pain/muscle related symptoms. Can anyone shed any light on this. Is it more likely
CharmingMan
in
Fibromyalgia Action UK
5 years ago
Taking Prolia & Knee replacement
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Bernieisinthe
in
NRAS
5 years ago
Does Anyone Have Expanded Bile Ducts?
According to my last several imaging tests I have an expanded bile duct. Is this normal for the disease? I am scheduled for an endoscopic ultrasound in a few weeks to take a better look at it. Does anyone have any experience with this? Is there any thing they can do for it? Or are we just spending
According to my last several imaging tests I have an expanded bile duct. Is this normal for the disease? I am scheduled for an endoscopic ultrasound in a few weeks to take a better look at it. Does anyone have any experience with this? Is there any thing they can do for it? Or are we just spending
4pjx__
in
PBC Foundation
5 years ago
Opioid dosage
Hi friends Last night I increased my slow release oxycodone codiene to 20 mg what a relief from 15 it made a massive difference from a pain and definitely calm legs My question is this afternoon I had to take 7.5 mg of Endone fast acting at 4 pm to go to the movies If I take 20mg oxy tonight and
Hi friends Last night I increased my slow release oxycodone codiene to 20 mg what a relief from 15 it made a massive difference from a pain and definitely calm legs My question is this afternoon I had to take 7.5 mg of Endone fast acting at 4 pm to go to the movies If I take 20mg oxy tonight and
Shumbah
in
Restless Legs Syndrome
5 years ago
Knee Replacement Surgery and Prolia
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Bernieisinthe
in
NRAS
5 years ago
Sjogrens and weather-related fatigue
For those diagnosed with Sjogrens, do anyone of you experience extreme fatigue before it rains; the barometer falls? And if so, how do you deal with it? In my part of Canada this year it is getting to be almost tropical at least rainwise (summer temps were OK too, but we are now into fall).
For those diagnosed with Sjogrens, do anyone of you experience extreme fatigue before it rains; the barometer falls? And if so, how do you deal with it? In my part of Canada this year it is getting to be almost tropical at least rainwise (summer temps were OK too, but we are now into fall).
SamTheTurtle
in
The Australian Sjögren's Syndrome Association
5 years ago
I took these supplements before I wandering if anybody in this community takes these.
I take 2250 of collagen because Predisone takes away collagen . I take 3 tablets of Omega 3's and I take magnesium 500 mgs various times during the day magnesium at night and turmeric in capsule form at night I find I can add 45 minutes on to my sleep. Anybody else do this. Will be asking doctor on
I take 2250 of collagen because Predisone takes away collagen . I take 3 tablets of Omega 3's and I take magnesium 500 mgs various times during the day magnesium at night and turmeric in capsule form at night I find I can add 45 minutes on to my sleep. Anybody else do this. Will be asking doctor on
susieq051
in
PMRGCAuk
5 years ago
Knee Replacement surgery while taking the drug Prolia?
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Has everyone had experience of Knee Replacement surgery, while taking the drug Prolia ? My Doctor said I could have the knee replacement surgery six weeks after I started taking Prolia shot.
Bernieisinthe
in
NRAS
5 years ago
Grrr...12+ years of RLS
Have changed pills many times, first rope, then pramipexole, then gabapentine, and now horizant. I can’t sleep...take my pills as used, go to bed, and either left or right gets its normal 30sec-a-go-go. Maybe, I can sleep 2-3am for 3/4 hours, but it’s horrible. Read many posts...maybe I need do try
Have changed pills many times, first rope, then pramipexole, then gabapentine, and now horizant. I can’t sleep...take my pills as used, go to bed, and either left or right gets its normal 30sec-a-go-go. Maybe, I can sleep 2-3am for 3/4 hours, but it’s horrible. Read many posts...maybe I need do try
Scott_alter
in
Restless Legs Syndrome
5 years ago
Pip update and dry eyes, mouth😵
Hello a while ago I posted about a PIP assessment.... Thank you any one who replied...sorry I didn't say 'thanks' back then. So I am waiting for them to decide whether I can still have PIP. Here's hoping🙄 On another note does any one have any thoughts on this - I am on the biologic tocilizumab. In recent
Hello a while ago I posted about a PIP assessment.... Thank you any one who replied...sorry I didn't say 'thanks' back then. So I am waiting for them to decide whether I can still have PIP. Here's hoping🙄 On another note does any one have any thoughts on this - I am on the biologic tocilizumab. In recent
Mouseling
in
NRAS
5 years ago
Neurology update
Good morning all. Yesterday I saw a very nice neurologist who gave me a full neurological exam (including sticking pins into me) . His conclusion was that a) I'm not a witch, and, b) I have no discernable neurological problems. He was somewhat surprised to hear that the rheum had diagnosed fibromyalgia
Good morning all. Yesterday I saw a very nice neurologist who gave me a full neurological exam (including sticking pins into me) . His conclusion was that a) I'm not a witch, and, b) I have no discernable neurological problems. He was somewhat surprised to hear that the rheum had diagnosed fibromyalgia
Linda3009
in
PMRGCAuk
5 years ago
Opiod withdrawal advice please
I'm currently rotating codeine and tramadol approximately every 4 or 5 months without any withdrawal symptoms. However I only ever use them for 5 days a week. I am considering using them every night but I'm concerned about possible withdrawal symptoms when I need to change drug.Has anyone experienced
I'm currently rotating codeine and tramadol approximately every 4 or 5 months without any withdrawal symptoms. However I only ever use them for 5 days a week. I am considering using them every night but I'm concerned about possible withdrawal symptoms when I need to change drug.Has anyone experienced
Jumpey
in
Restless Legs Syndrome
5 years ago
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