Grrr...12+ years of RLS : Have changed... - Restless Legs Syn...

Restless Legs Syndrome

21,483 members15,160 posts

Grrr...12+ years of RLS

Scott_alter profile image
4 Replies

Have changed pills many times, first rope, then pramipexole, then gabapentine, and now horizant. I can’t sleep...take my pills as used, go to bed, and either left or right gets its normal 30sec-a-go-go. Maybe, I can sleep 2-3am for 3/4 hours, but it’s horrible.

Read many posts...maybe I need do try iron or magnesium?

Thanks!

Written by
Scott_alter profile image
Scott_alter
To view profiles and participate in discussions please or .
Read more about...
4 Replies
LotteM profile image
LotteM

Hi scott, yes, go back to basics first. And that is not taking iron or magnesium, but getting a blood panel to get your values first. Incidentally, ask for a full panel and also an assessment of b- vitamines and vit-d. And ask for a copy of the results, 'normal' is often not enoufh for us, people with RLS. Eg. ferritin should be high in the range, at least above 75 or 100. So here's your first next step.

Just to second what Lotte says, it's best to see if your RLS is due to any deficiencies before trying to correct deficiencies which you don't have

Blood tests.

Scott_alter profile image
Scott_alter

The last week, with either gabapentin or horizant, I will try to sleep but 90% of my right leg will hit me every 20-30 secs. Maybe I can sleep in 3/4 hours, and get 2-3 hours. With horizant, I take it at 7/8pm. What do I do at 2pm and my legs are jumping? Today my leg has been jumping since 1pm, just right calf.

BeachGolfer profile image
BeachGolfer

Just an FYI , I had severe insomnia from Gabapentin and Horizant. It’s one of the not common side effects. I wish you well.

You may also like...

My 12 year old son has RLS

Severe RLS for 40 years

don't like the sound of that either. Some nights I can go to bed and sleep ok, other nights I am in...

RLS relief after MANY years...

I have suffered for many many years with RLS and now at the age of 41 I think I have come across the

2 year old Toddler with RLS

ferritin level was 3, after 8 months of daily iron is now 28. His iron, top limit 94, so very high....

RLS. Sufferer for over ten years

some anxiety and expectation that it’s going to disturb my evening. It’s a vicious circle both...