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Covid recovery and steroids
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
Yellow-dog
in
PMRGCAuk
5 months ago
shingles
I havnt posted for ages mainly because I’m generally very fit and well and do vast amounts of excercise but hoping for some possible explanations. Diagnosed 01/18 aged 71 now I had shingles 12 yrs ago but wasn’t very ill with it I arranged my first shingles jab for end Sept 23 No side effects but
I havnt posted for ages mainly because I’m generally very fit and well and do vast amounts of excercise but hoping for some possible explanations. Diagnosed 01/18 aged 71 now I had shingles 12 yrs ago but wasn’t very ill with it I arranged my first shingles jab for end Sept 23 No side effects but
Coffeejenny
in
CLL Support
3 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
5 months ago
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What is an ICM?
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
An Insertable Cardiac Monitor (ICM) is a small thin device that is inserted under the skin on your breastbone to record the activity of your heart. It can remain in place for up to 3 years. The device will capture and record 'episodes'. The recorded data will be collated and assessed and help to diagnose
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
3 months ago
Update: x-ray shock 😲
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Kristi74
in
British Heart Foundation
5 months ago
Sezary Syndrome.
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with Venetoclax, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings? I greatly
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with Venetoclax, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings? I greatly
Champlain
in
CLL Support
3 months ago
A suggestion that is working well, for me at least. AT least for now.
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
lauraflora
in
Restless Legs Syndrome
5 months ago
CHANGING Room CHAT...WEEK 3.... Taking time out...to...
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Oldfloss
Administrator
in
Strength & Flex
5 months ago
denosumab
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
Any one had experience of denosumab after 1st line CLL treatment? My gp is suggesting these jabs but he's new and as I've read that it can cause immunocompromised I'm wondering if it's such a good idea.. Help
RosettaClapp
in
CLL Support
3 months ago
Menopause and covid
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Dham
in
Menopause and Perimenopause Support
6 months ago
COVID
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Guinness4822
in
CLL Support
6 months ago
Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
TiredTavern
in
Myalgic Encephalomyelitis Community
6 months ago
Sputum
I noticed that when my chest infection is clearing I get tiny blackish speckles in my sputum ,anyone else ever notice this in there sputum ,my infections are usually the haemophilus bug
I noticed that when my chest infection is clearing I get tiny blackish speckles in my sputum ,anyone else ever notice this in there sputum ,my infections are usually the haemophilus bug
Alice70
in
Lung Conditions Community Forum
3 months ago
Covid vaccine decision time…
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
Samazeuilh2
in
Atrial Fibrillation Support
6 months ago
JeffMiller54
Google CFS - Chronic Fatigue Syndrome. A definite side affect of Elagard! Some of you will be blown away!
Google CFS - Chronic Fatigue Syndrome. A definite side affect of Elagard! Some of you will be blown away!
Skinner54
in
Advanced Prostate Cancer
3 months ago
Living with Long Covid but now Tinnitus too!
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
santosha72
in
Tinnitus UK
6 months ago
Help. Icu
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Joccelyn
in
ICUsteps
3 months ago
Covid and prednisone
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
perceptual63
in
PMRGCAuk
6 months ago
Most know the story. Something I can't figure out.
Most people here know my wife's story and went to the hospital with Eshauphageal erosion, but a typo on her Chart (Fibrosis vs Cirrhosis) had a dramatic impact. Doctors thought they were dealing with Cirrhosis vs NASH with Fibrosis. That was tracked down to a dictaphone error. In reality, two weeks
Most people here know my wife's story and went to the hospital with Eshauphageal erosion, but a typo on her Chart (Fibrosis vs Cirrhosis) had a dramatic impact. Doctors thought they were dealing with Cirrhosis vs NASH with Fibrosis. That was tracked down to a dictaphone error. In reality, two weeks
ceward204
in
British Liver Trust
6 months ago
PMR & Cellulitis
Hi, some of you may remember that I posted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left leg
Hi, some of you may remember that I posted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left leg
GreatGranny4
in
PMRGCAuk
3 months ago
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