Search
Search
About
Log in
Join
Experiences with
Hives and angioedema
Posts
Communities
37,519 public posts
Filter results
Information
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
paul456
in
Ataxia UK
1 month ago
Olaparib hasn’t worked for me . Anyone had this happen and had success with another PARP?
Hi everyone, I’m back of Chemo for 3rd line, this time with Carbo and Caelyx. This is just a year after 1st recurrence, Chemo reduced cancer to nearly NED, 7 months of Olaparib and then CT scan showed new tumour on spleen. CA125 36. Oncologist mentioned later trying another PARP possibly Rucaparib
Hi everyone, I’m back of Chemo for 3rd line, this time with Carbo and Caelyx. This is just a year after 1st recurrence, Chemo reduced cancer to nearly NED, 7 months of Olaparib and then CT scan showed new tumour on spleen. CA125 36. Oncologist mentioned later trying another PARP possibly Rucaparib
Towergirl
in
My Ovacome
6 months ago
Reversing Out
Good day friends. I need some help and advice. I was diagnosed with autoimmune atrophic gastritis, I have started EOD B12 injections about 1 month ago. My symptoms have gotten worse, first it was muscle twitches that have now gotten better But stomach issues are worse, I am starting to have what
Good day friends. I need some help and advice. I was diagnosed with autoimmune atrophic gastritis, I have started EOD B12 injections about 1 month ago. My symptoms have gotten worse, first it was muscle twitches that have now gotten better But stomach issues are worse, I am starting to have what
Canadian77
in
Pernicious Anaemia Society
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
ATM gene mutation
I just received results from genetic testing that I have a ATM gene mutation. I am currently not on any meds and my last PSMA pet scan was negation. I am scheduled for a follow up PSA test mid march based on rising PSA after 5 years undetectable. Based on the ATM finding will this change any future therapy
I just received results from genetic testing that I have a ATM gene mutation. I am currently not on any meds and my last PSMA pet scan was negation. I am scheduled for a follow up PSA test mid march based on rising PSA after 5 years undetectable. Based on the ATM finding will this change any future therapy
Rfs1975
in
Advanced Prostate Cancer
6 months ago
How long before vitamin B tablets out of system to take blood tests
My son had some blood test taken privately. Was supposed to be Active B12 and MMR folliwng borderline serum B12. The results came back middle of the range and I started him on some vitmain b tablets that include B12 to see if that helps. Anyway. I have just found out that they did total B12 test not
My son had some blood test taken privately. Was supposed to be Active B12 and MMR folliwng borderline serum B12. The results came back middle of the range and I started him on some vitmain b tablets that include B12 to see if that helps. Anyway. I have just found out that they did total B12 test not
Hectorsmum2
in
Pernicious Anaemia Society
3 months ago
Ketogenic diet alters the epigenetic and immune landscape of prostate cancer to overcome resistance to immune checkpoint blockade therapy.
Overall, this strikes me as too hypothetical for us to apply, but what do I know? "Overall, these findings illuminate a potential clinical path of using HDACi and optimized KD regimens to enhance ICB therapy for PCa." HDACi = histone deacetylase inhibitor [To date, four HDAC inhibitors, Vorinostat
Overall, this strikes me as too hypothetical for us to apply, but what do I know? "Overall, these findings illuminate a potential clinical path of using HDACi and optimized KD regimens to enhance ICB therapy for PCa." HDACi = histone deacetylase inhibitor [To date, four HDAC inhibitors, Vorinostat
cigafred
in
Fight Prostate Cancer
3 months ago
Any insight into # platinum chemo cycles?
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
skiingfiend
in
Advanced Prostate Cancer
5 months ago
Not about PCa but interesting: GLP-1 Receptor Agonists help with colorectal cancer
"A research letter recently published in JAMA Oncology has provided some promising insights into the potential of Glucagon-like peptide 1 receptor agonists (GLP-1 RAs) in lowering the risk of colorectal cancer (CRC) among patients with type 2 diabetes. The study involved a national retrospective analysis
"A research letter recently published in JAMA Oncology has provided some promising insights into the potential of Glucagon-like peptide 1 receptor agonists (GLP-1 RAs) in lowering the risk of colorectal cancer (CRC) among patients with type 2 diabetes. The study involved a national retrospective analysis
Maxone73
in
Fight Prostate Cancer
6 months ago
breathing and health anxiety
Hi all. Much like yourselves it’s a long dotted history with IBS. I’m back dealing with a bout following a stomach bug and work stress. My whole system locked up and slowly became almost unbearable. This time it’s feeling as if my breathing is being placed under pressure as I’m so bloated. The odd times
Hi all. Much like yourselves it’s a long dotted history with IBS. I’m back dealing with a bout following a stomach bug and work stress. My whole system locked up and slowly became almost unbearable. This time it’s feeling as if my breathing is being placed under pressure as I’m so bloated. The odd times
Loftytopping
in
IBS Network
3 months ago
Which Treatment for These Biopsy Results?
I now have my biopsy results Gleason 3 + 4 ie 90% of 3 and 10% of 4 Grade 2 The consultant said it was Intermediate but at one point used the term Low intermediate. Is this latter term valid given the stats? T2a NO MO - but I am puzzled about this because although it was mostly all on the left side
I now have my biopsy results Gleason 3 + 4 ie 90% of 3 and 10% of 4 Grade 2 The consultant said it was Intermediate but at one point used the term Low intermediate. Is this latter term valid given the stats? T2a NO MO - but I am puzzled about this because although it was mostly all on the left side
Nordman
in
Advanced Prostate Cancer
6 months ago
is this cancer?
i’ve posted on here once for a scare, i’m back again. i’m 24 years old, and my poop has just not been super normal since i have had the thought it could be colon cancer. i have a spot on my lower left abdominal area, right below belly button, i assumed it to be a hernia. my doctor sent me for an ultrasound
i’ve posted on here once for a scare, i’m back again. i’m 24 years old, and my poop has just not been super normal since i have had the thought it could be colon cancer. i have a spot on my lower left abdominal area, right below belly button, i assumed it to be a hernia. my doctor sent me for an ultrasound
imscaredofcancer
in
Colon Cancer Connected
3 months ago
psoas Muscle Tumors
my OVCA metastasized to my Psoas muscle 6 years after preliminary OVCA diagnosis. Various chemo and immunotherapy are helping keep it contained. Has anyone had surgery for removal of a psoas tumor? I’d love to hear from you. Thank you.
my OVCA metastasized to my Psoas muscle 6 years after preliminary OVCA diagnosis. Various chemo and immunotherapy are helping keep it contained. Has anyone had surgery for removal of a psoas tumor? I’d love to hear from you. Thank you.
Leniko
in
My Ovacome
6 months ago
New diagnosis
I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.
I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.
Miacaro45
in
Fibromyalgia Action UK
3 months ago
Update
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
Numptybrain
in
PMRGCAuk
3 months ago
What is the next step
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
old64horn
in
Advanced Prostate Cancer
6 months ago
Important caveat regarding estrogen therapy
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
janebob99
in
Prostate Cancer Network
6 months ago
Lower Right Abdominal Pain
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
bianco9685
in
IBS Network
5 months ago
second recurrence
Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentation as I complained of ongoing back pain had,had MRI and CT which had all been clear. Until the most recent scan showed a lymph node under my breast. They have not been able to biopsy it as I have just had a DVT and so I am
Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentation as I complained of ongoing back pain had,had MRI and CT which had all been clear. Until the most recent scan showed a lymph node under my breast. They have not been able to biopsy it as I have just had a DVT and so I am
Hota
in
My Ovacome
6 months ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
2 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
1
...
47
48
49
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3341 results
My Ovacome
2917 results
Thyroid UK
2853 results
View top 10 communities
Sort by
Most Relevant
Newest