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Vaccines
Could I get some feedback on Vaccines that were recommended to me by a general practitioner? Recommended were Pneumovax 23, influenza, Tdap, Shingles( not a live vaccine) and possibly Mmr vaccine . Ive had PV - jak2 617f positive in April of 2018 diagnosed . Im 57 year old female being treated with
Could I get some feedback on Vaccines that were recommended to me by a general practitioner? Recommended were Pneumovax 23, influenza, Tdap, Shingles( not a live vaccine) and possibly Mmr vaccine . Ive had PV - jak2 617f positive in April of 2018 diagnosed . Im 57 year old female being treated with
pvgirl
in
MPN Voice
5 years ago
Methotrexate and constant infections
Does anyone suffer with the same problem . Since I have been taking mtx I seem to pick up any infections that are around. Every time I visit my grandchildren I bring something home with me. Back in January whilst I was visiting my four year old grandson went down with bacterial pneumonia and I managed
Does anyone suffer with the same problem . Since I have been taking mtx I seem to pick up any infections that are around. Every time I visit my grandchildren I bring something home with me. Back in January whilst I was visiting my four year old grandson went down with bacterial pneumonia and I managed
Nanabrodie
in
NRAS
5 years ago
HRT
Had a RCA STEMI on Sunday night just gone. I’m now home and starting to process everything. Saw my GP today and he’s taken me off my HRT. Said I could now have free flu jab tho! I would rather have the HRT, do I definitely have to come off it? Looking online just reflects the ever changing stances on
Had a RCA STEMI on Sunday night just gone. I’m now home and starting to process everything. Saw my GP today and he’s taken me off my HRT. Said I could now have free flu jab tho! I would rather have the HRT, do I definitely have to come off it? Looking online just reflects the ever changing stances on
Sillyfroggy
in
British Heart Foundation
5 years ago
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Early side effects from ADT + radiation
Hi there. I was hoping for some insight into early experiences form starting ADT and radiation treatment. Dad literally had his first hormone shot 6 days ago, and just started radiation to one spine met and also his prostate bed 5 days ago (prostate removed in 2010). The treatment has already knocked
Hi there. I was hoping for some insight into early experiences form starting ADT and radiation treatment. Dad literally had his first hormone shot 6 days ago, and just started radiation to one spine met and also his prostate bed 5 days ago (prostate removed in 2010). The treatment has already knocked
Mish80
in
Advanced Prostate Cancer
5 years ago
Precipitating factors
Maybe I’ve missed it, but I haven’t seen much discussion regarding what people think may have triggered their PMR. I realize I likely have the genetic make-up that allows my immune system to flip into overdrive, causing PMR. But I believe it doesn’t just occur; there is a triggering event. Clearly to
Maybe I’ve missed it, but I haven’t seen much discussion regarding what people think may have triggered their PMR. I realize I likely have the genetic make-up that allows my immune system to flip into overdrive, causing PMR. But I believe it doesn’t just occur; there is a triggering event. Clearly to
Joblow
in
PMRGCAuk
5 years ago
When’s the best time to get your flu shot?
Why we should get the flu shot each year, when to get it, when is it too late and much more by Ian Barr, Deputy Director, WHO Collaborating Centre for Reference and Research on Influenza: https://theconversation.com/whens-the-best-time-to-get-your-flu-shot-114978 Note this article was written for the
Why we should get the flu shot each year, when to get it, when is it too late and much more by Ian Barr, Deputy Director, WHO Collaborating Centre for Reference and Research on Influenza: https://theconversation.com/whens-the-best-time-to-get-your-flu-shot-114978 Note this article was written for the
AussieNeil
Partner
in
CLL Support
5 years ago
Flu and Flare-up
In early March I caught the flu. I completely lost my appetite. I didn't want to eat anything. On March 8th I felt so bad that I requested a home visit from the GP. She said that this year in the local community the flu seemed to be worse in the patients who had had the flu jab. She prescribed Tamiflu
In early March I caught the flu. I completely lost my appetite. I didn't want to eat anything. On March 8th I felt so bad that I requested a home visit from the GP. She said that this year in the local community the flu seemed to be worse in the patients who had had the flu jab. She prescribed Tamiflu
lfu2
in
Vasculitis UK
5 years ago
I can't explain how much your support means to me...... home with not doing great.
Hi family it's Fancy here. I made it home this past Thursday night but honestly I'm not doing well. I wanted to drop a line to thank you all for the loving, caring, and supportive posts I got from you. You don't know how very much it meant to me to hear those words from so many friends and family in
Hi family it's Fancy here. I made it home this past Thursday night but honestly I'm not doing well. I wanted to drop a line to thank you all for the loving, caring, and supportive posts I got from you. You don't know how very much it meant to me to hear those words from so many friends and family in
Fancy1959
CommunityAmbassador
in
My MSAA Community
5 years ago
Autoimmune hepatitis diagnosis
Newby here. Looking to see how other people found the process of diagnosing Autoimmune Hepatitis? I had liver biopsy and was started on meds. But by time im going back for biopsy results ill have went from high does to low dose. I was kinda expecting to be monitored on the reducing to see how it was
Newby here. Looking to see how other people found the process of diagnosing Autoimmune Hepatitis? I had liver biopsy and was started on meds. But by time im going back for biopsy results ill have went from high does to low dose. I was kinda expecting to be monitored on the reducing to see how it was
Daisy-duck
in
British Liver Trust
5 years ago
I had PMR age 60, resolution after 1 year of prednisone. Now, 9 years later, it’s back.Any others with a long interval between episodes?
First time was after shingles vaccine; resolved and was able to taper off meds. Absolutely no problems for 9 years- thought it was gone for good. This time no obvious trigger except maybe stress.
First time was after shingles vaccine; resolved and was able to taper off meds. Absolutely no problems for 9 years- thought it was gone for good. This time no obvious trigger except maybe stress.
Joblow
in
PMRGCAuk
5 years ago
Waiting for biopcy.
Hi everybody, i am new here and very happy that i found this network. Dont know what i would do without reading your positive posts. I am 44 , female and living in Netherlands. 2 month ago i did blood test( occationally, have no complaines and my liever enzyms were very hight. Hepatitis B, C - negative
Hi everybody, i am new here and very happy that i found this network. Dont know what i would do without reading your positive posts. I am 44 , female and living in Netherlands. 2 month ago i did blood test( occationally, have no complaines and my liever enzyms were very hight. Hepatitis B, C - negative
Belgium22
in
British Liver Trust
5 years ago
Insulin Resistance (POCS) and Adrenal Problems (thyroid too). Need help on advice on how to tackle adrenals.
Hi all See attached saliva test. RBC ALL OK Sodium 139 mmol/ml (range 133-145 mmol/ml) Optimal 142 (a little low but Good)? Potassium 4.1 mmol/ml (range 3.5-5.5) Optimal 4.2 or higher (a little low but Good) Calcium 9.4 mg.DL (range 8.4-10.6) Good Creatinine 0.6 (0.5 - 1.2) BUN 8 (6.22) ALT
Hi all See attached saliva test. RBC ALL OK Sodium 139 mmol/ml (range 133-145 mmol/ml) Optimal 142 (a little low but Good)? Potassium 4.1 mmol/ml (range 3.5-5.5) Optimal 4.2 or higher (a little low but Good) Calcium 9.4 mg.DL (range 8.4-10.6) Good Creatinine 0.6 (0.5 - 1.2) BUN 8 (6.22) ALT
Crunchieeagle
in
Thyroid UK
5 years ago
Results for a close friend. Severe PCOS & Insulin Resistance, and adrenal fatigue. Will tackle thyroid later. Any advice please ?? Thanks
Hello there. I was wondering if anyone can help. Sorry there is alot of lab information here This close friend has had the same issues as me in the past . Chronic side effects from medications. So at first she saw a doctor for the first time in years, that would do some blood testing and said everything
Hello there. I was wondering if anyone can help. Sorry there is alot of lab information here This close friend has had the same issues as me in the past . Chronic side effects from medications. So at first she saw a doctor for the first time in years, that would do some blood testing and said everything
Crunchieeagle
in
Thyroid UK
5 years ago
The happy end of a long road 😊
Hello all, not been on for a bit, hope you're all well? My elastography results came back as f1, which is fantastic! 😁 I don't know what the rep and Dr were arguing about 🤷♀️. My alt is still down in normal realms, though high end, my ferritin is where it should be and the main thing is I'll always
Hello all, not been on for a bit, hope you're all well? My elastography results came back as f1, which is fantastic! 😁 I don't know what the rep and Dr were arguing about 🤷♀️. My alt is still down in normal realms, though high end, my ferritin is where it should be and the main thing is I'll always
Porphyriamaniac
in
British Liver Trust
5 years ago
MRI Results
Had my appointment with neurologist. Hadn't seen him in almost two years. NO NEW LESIONS!! Seems apparent the relapse (call it pseudo or whatever you want) was from the shingles vaccine. While I was there doc talked for an hour about anti-inflammatory diet. Gave me both Overcoming ME and Wahls Protocal
Had my appointment with neurologist. Hadn't seen him in almost two years. NO NEW LESIONS!! Seems apparent the relapse (call it pseudo or whatever you want) was from the shingles vaccine. While I was there doc talked for an hour about anti-inflammatory diet. Gave me both Overcoming ME and Wahls Protocal
Karen-x
in
My MSAA Community
5 years ago
Music Therapy
Hey Everyone. In all the time we spend together here, I have realized that there is so much we dont know about each other. I wanted to share a bit about me. Some know I have been a musician my whole life. I taught, I toured, I wrote, I produced, I played my heart out. Sometimes I hear a song that I just
Hey Everyone. In all the time we spend together here, I have realized that there is so much we dont know about each other. I wanted to share a bit about me. Some know I have been a musician my whole life. I taught, I toured, I wrote, I produced, I played my heart out. Sometimes I hear a song that I just
Hidden
in
British Liver Trust
5 years ago
Fibroscan
Had my test done and it said I have advanced liver scarring and cirrhosis due to hep c and I had a ct scan with contrast and it said my liver looked normal so my dr put all my info together to send in for my hep c meds to take to get rid of virus. I dont know what scan to believe but I have to have to
Had my test done and it said I have advanced liver scarring and cirrhosis due to hep c and I had a ct scan with contrast and it said my liver looked normal so my dr put all my info together to send in for my hep c meds to take to get rid of virus. I dont know what scan to believe but I have to have to
jackpot61
in
British Liver Trust
5 years ago
Hep c :-/
Hello Just wondering I have hep c, have a scan on the 25/4/19 as my liver in larged...my bf was injecting me for 4 years... just come out of rehab.. and been for all health checks.. 2 years ago he went for tests, and it came back he had fought it off, so was I the carrier? Really stressing. Appreciate
Hello Just wondering I have hep c, have a scan on the 25/4/19 as my liver in larged...my bf was injecting me for 4 years... just come out of rehab.. and been for all health checks.. 2 years ago he went for tests, and it came back he had fought it off, so was I the carrier? Really stressing. Appreciate
Buddy20
in
Hepatitis C Trust
5 years ago
Hope and great help for everyone experiencing behcet disease
Hi everyone, this behcet is breaking me down, it's not easy for me to bear, I feel everyone of you, here is what I do, I'm always on colchicine, but I don't have insurance so, I take fruit, like strawberry , cut it and add honey to it,eat it it's help great, also I drink Apple cider vinegar half a cup
Hi everyone, this behcet is breaking me down, it's not easy for me to bear, I feel everyone of you, here is what I do, I'm always on colchicine, but I don't have insurance so, I take fruit, like strawberry , cut it and add honey to it,eat it it's help great, also I drink Apple cider vinegar half a cup
Graciously
in
Behçet's UK
5 years ago
Advice please
Hello everyone my dad is one of the blessed people who survived bacterial meningitis. He had it from 19th December 18 and after doctors ignored me yelling that my dad needs help they let his deteriorate in a and e. His so lucky to be alive as when they started to help him his oxygen was on 11. His lost
Hello everyone my dad is one of the blessed people who survived bacterial meningitis. He had it from 19th December 18 and after doctors ignored me yelling that my dad needs help they let his deteriorate in a and e. His so lucky to be alive as when they started to help him his oxygen was on 11. His lost
Kamik84
in
Meningitis Now
5 years ago
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