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Hughes syndrome.... very anxious
Also will
heparin
make any difference to me if I'm to start it as soon as I have a positive??, I feel that may be too late. Sorry to babble on, I'm so confused and have little understanding on the whole diagnosis. Thank you for reading Rachel
Also will
heparin
make any difference to me if I'm to start it as soon as I have a positive??, I feel that may be too late. Sorry to babble on, I'm so confused and have little understanding on the whole diagnosis. Thank you for reading Rachel
Rachel-c
in
Hughes Syndrome APS Forum
7 years ago
Heparin hit
I think regulars on here are aware of my recent health issues and hospital stay. This morning I had what is known as a Anti X Tena Assay blood test. The results have shown I have reduced platelets so the hospital have arranged another test on Tuesday. They seem quite
I think regulars on here are aware of my recent health issues and hospital stay. This morning I had what is known as a Anti X Tena Assay blood test. The results have shown I have reduced platelets so the hospital have arranged another test on Tuesday. They seem quite
Jillymo
in
Hughes Syndrome APS Forum
7 years ago
Baby is here!
Heparin
and aspirin truly are amazing. Blessed to have our 2 miracles. Never hesitate to contact me for any support on the journey to becoming a mum. It's been a challenge but so worth the perseverance!
Heparin
and aspirin truly are amazing. Blessed to have our 2 miracles. Never hesitate to contact me for any support on the journey to becoming a mum. It's been a challenge but so worth the perseverance!
Hopingforababy
in
Hughes Syndrome APS Forum
7 years ago
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Apixaban
Hi diagnosed with DVT 2 weeks ago had two shots of
heparin
and been on APIXABAN since, been advised about bleeding so far so good, no adverse symptoms as of yet only mild symptoms is lightheadedness every so often, My only anxiety is it feels like a ticking time bomb, Consultant and his pharmacist
Hi diagnosed with DVT 2 weeks ago had two shots of
heparin
and been on APIXABAN since, been advised about bleeding so far so good, no adverse symptoms as of yet only mild symptoms is lightheadedness every so often, My only anxiety is it feels like a ticking time bomb, Consultant and his pharmacist
Bazaafc
in
Anticoagulation Support
7 years ago
Vertigo bppv ectopics beats anxiety Severe depression please help!
, Get ready for an essay as im desperate. Im 35 so about roughly in my early 20s developed dizzys in my sleep. It would wake me. Closed eyes would make it worse. Yrs passed i decided to see a neurologist. Head scans were fine was told it was bppv. Few urs later i developed graves disease.. the torment
, Get ready for an essay as im desperate. Im 35 so about roughly in my early 20s developed dizzys in my sleep. It would wake me. Closed eyes would make it worse. Yrs passed i decided to see a neurologist. Head scans were fine was told it was bppv. Few urs later i developed graves disease.. the torment
Contra21
in
Thyroid UK
7 years ago
Im newish on here & 15 yrs of vertigo/bppv on and off & ectoptics. Ive had enough its taken over my life. :(
Hi all, Get ready for an essay as im desperate. Im 35 so about roughly in my early 20s developed dizzys in my sleep. It would wake me. Closed eyes would make it worse. Yrs passed i decided to see a neurologist. Head scans were fine was told it was bppv. Few urs later i developed graves disease.
Hi all, Get ready for an essay as im desperate. Im 35 so about roughly in my early 20s developed dizzys in my sleep. It would wake me. Closed eyes would make it worse. Yrs passed i decided to see a neurologist. Head scans were fine was told it was bppv. Few urs later i developed graves disease.
Contra21
in
Tinnitus UK
7 years ago
Tinnitus GONE! A chance for everyone?
I am new to this forum. Amazingly I am no longer plagued with the nightmare of tinnitus. After suffering for more than ten years it is under absolute control. Here is my story. I had read in a local newspaper of the work of Dr Cunningham of Newcastle University who had been recognised for his successful
I am new to this forum. Amazingly I am no longer plagued with the nightmare of tinnitus. After suffering for more than ten years it is under absolute control. Here is my story. I had read in a local newspaper of the work of Dr Cunningham of Newcastle University who had been recognised for his successful
NoTinitus
in
British Tinnitus Association
7 years ago
Prof Graham Hughes Monthly Blog - September 2017
She was admitted to hospital and treated initially with
heparin
. “To my amazement, I could read, my eyes were totally clear”. She recovered from the heart attack, but went on to suffer episodes of pain between the shoulder blades, sometimes in a ‘tight band’.
She was admitted to hospital and treated initially with
heparin
. “To my amazement, I could read, my eyes were totally clear”. She recovered from the heart attack, but went on to suffer episodes of pain between the shoulder blades, sometimes in a ‘tight band’.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
👂Ear, Ear 👂 Yay, it's fixed!
I just wanted to give a quick update as I had so many messages of support when I had hearing loss to the one ear that I can usually hear with last Friday. I had a bit of a panic as my other ear is profoundly deaf, and I was struggling to hear at all. My GP referred me back to the fabulous ENT department
I just wanted to give a quick update as I had so many messages of support when I had hearing loss to the one ear that I can usually hear with last Friday. I had a bit of a panic as my other ear is profoundly deaf, and I was struggling to hear at all. My GP referred me back to the fabulous ENT department
Razouski
in
Couch to 5K
7 years ago
Heparin
Hi all, I have managed to brake my ankle while on holiday, not able to explain I may have pbc, they have given me
heparin
to stop any blot clots but I'm not sure I should use it. Does anyone know if it's ok? Bearing in mind I will be flying home in 4 days. Thanks Sylvia
Hi all, I have managed to brake my ankle while on holiday, not able to explain I may have pbc, they have given me
heparin
to stop any blot clots but I'm not sure I should use it. Does anyone know if it's ok? Bearing in mind I will be flying home in 4 days. Thanks Sylvia
sylviaj
in
PBC Foundation
7 years ago
Group B Strep meningitis
Hi folks, have just found this page so this is my first post. I wanted to share our story.. My daughter was diagnosed with meningitis at 8 days old, due to group b Strep. It was something we had never heard of, despite having another child, so it was all a bit of a blur. Not knowing it was something
Hi folks, have just found this page so this is my first post. I wanted to share our story.. My daughter was diagnosed with meningitis at 8 days old, due to group b Strep. It was something we had never heard of, despite having another child, so it was all a bit of a blur. Not knowing it was something
Bigbirddawn82
in
Meningitis Now
7 years ago
Hi...new to the forum
Hi, I'm Cassie, I've just discovered the forum and am hoping to tap into your expertise! I'm still learning how it works so please bear with me! I'm a 36 year old Londoner, with one son (aged 9) and work as a breast cancer nurse. I first developed Tinnitus about 2.5 years ago. I ignored it for a few
Hi, I'm Cassie, I've just discovered the forum and am hoping to tap into your expertise! I'm still learning how it works so please bear with me! I'm a 36 year old Londoner, with one son (aged 9) and work as a breast cancer nurse. I first developed Tinnitus about 2.5 years ago. I ignored it for a few
ckingswell
in
British Tinnitus Association
7 years ago
APS how it changed my life.
After being treated for 3 days with
heparin
and Coumadin the pain in my legs went away. The weakness also started to improve and my mind became clear and sharp again! I was having TIAs and the muscles in my legs were suffering from vascular congestion which was the real cause of my leg pain.
After being treated for 3 days with
heparin
and Coumadin the pain in my legs went away. The weakness also started to improve and my mind became clear and sharp again! I was having TIAs and the muscles in my legs were suffering from vascular congestion which was the real cause of my leg pain.
NorrieW
in
Hughes Syndrome APS Forum
7 years ago
Alice's story newborn
My Daugher Sophie had her second baby on 14 th August . On their first day home Sophie became ill. She was admitted into hospital and was diagnosed with acute sepsis. Baby Alice had been a quiet baby a little yellow she was not passing urine often with these niggley things and with a very poorly mummy
My Daugher Sophie had her second baby on 14 th August . On their first day home Sophie became ill. She was admitted into hospital and was diagnosed with acute sepsis. Baby Alice had been a quiet baby a little yellow she was not passing urine often with these niggley things and with a very poorly mummy
Saks
in
Meningitis Now
7 years ago
Hey
I have been struggling to medicate as my heamotologist discovered I am some what resistant to warfarin, so have been injecting myself daily for the last 7 years with
heparin
(clexane) I have notice some new symptoms recently and as none of my family suffer and I don't know anybody who does, I thought
I have been struggling to medicate as my heamotologist discovered I am some what resistant to warfarin, so have been injecting myself daily for the last 7 years with
heparin
(clexane) I have notice some new symptoms recently and as none of my family suffer and I don't know anybody who does, I thought
Rosiek90
in
Hughes Syndrome APS Forum
7 years ago
Long term Clexane or any form of heparin
Hi guys , On july 25th of last year i was diagnosed with several small blood clots in my lungs . I have no blood disorders or genetic conditions. After a deep ultrasound of my legs they could never find where the clot came from or the cause . I am 32 dont smoke , dont drink not overweight so mine was
Hi guys , On july 25th of last year i was diagnosed with several small blood clots in my lungs . I have no blood disorders or genetic conditions. After a deep ultrasound of my legs they could never find where the clot came from or the cause . I am 32 dont smoke , dont drink not overweight so mine was
Joncostarica
in
Hughes Syndrome APS Forum
7 years ago
Hyperthyroidism?extream dizzy? Ligheaded? Extream weakness. Weight loss
Really strange and nightmare health turn. all stated during trip to Cincinnati Ohio trip on may 12 I felt really bad and very weak like flu. So bad that took to wheelchair. But did hit back of head in soft spot on table as I was laying back on air mattress. Was fweling bad before though.Went to er on
Really strange and nightmare health turn. all stated during trip to Cincinnati Ohio trip on may 12 I felt really bad and very weak like flu. So bad that took to wheelchair. But did hit back of head in soft spot on table as I was laying back on air mattress. Was fweling bad before though.Went to er on
Chrs1863
in
Thyroid UK
7 years ago
APS & Pregnancy - Being induced early - Advise
My pregnancy was planned so I had already switched prior to becoming pregnant from warfarin to Tinzaparin (
heparin
injections) 14,000 per day and 75mg aspirin daily. They have said from the very start that I won't be allowed to go full term and will be induced at 36 weeks.
My pregnancy was planned so I had already switched prior to becoming pregnant from warfarin to Tinzaparin (
heparin
injections) 14,000 per day and 75mg aspirin daily. They have said from the very start that I won't be allowed to go full term and will be induced at 36 weeks.
Louise_Davies
in
Hughes Syndrome APS Forum
7 years ago
Anticardiolipins false positive
I am pregnant again, they put me on aspirin low dose 100mg but no
heparin
shots.I am very worried they are wrong :( my hematologist said the first blood test was just too close from pre eclampsia so not accurate. She also said that going from 48 to 1.2 in 12weeks is too fast for someone with APS.
I am pregnant again, they put me on aspirin low dose 100mg but no
heparin
shots.I am very worried they are wrong :( my hematologist said the first blood test was just too close from pre eclampsia so not accurate. She also said that going from 48 to 1.2 in 12weeks is too fast for someone with APS.
Theomom
in
Hughes Syndrome APS Forum
7 years ago
Another baby update
Aspirin and
heparin
continue to be true miracle drugs! They are even letting me go to full term this time. An almost 'normal' pregnancy. Thank goodness for modern medicine and knowledge! Anyone out there want any advice and info about my journey - never hesitate to get in touch. #nevergiveup
Aspirin and
heparin
continue to be true miracle drugs! They are even letting me go to full term this time. An almost 'normal' pregnancy. Thank goodness for modern medicine and knowledge! Anyone out there want any advice and info about my journey - never hesitate to get in touch. #nevergiveup
Hopingforababy
in
Hughes Syndrome APS Forum
7 years ago
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