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Drowning
I haven't been here for a while. But hey im just confused life has been ehh I stop taking my meds for a while because they weren't working. But they changed them and life was looking up. But as soon as it does everything crumbles and I feel I cant tell anybody I tell my partner part of it but I don't
I haven't been here for a while. But hey im just confused life has been ehh I stop taking my meds for a while because they weren't working. But they changed them and life was looking up. But as soon as it does everything crumbles and I feel I cant tell anybody I tell my partner part of it but I don't
Joss_465
in
Anxiety and Depression Support
3 years ago
Until what age can someone be qualified to have a kidney transplant? My nephro told me until 70 and takes 8 yrs on the waiting list?
How long does one have to be on the waiting list for a deceased donor kidney transplant?
How long does one have to be on the waiting list for a deceased donor kidney transplant?
Dina0210
in
Kidney Disease
3 years ago
Night sweats
Hello I had a liver transplant 5 years ago next April I've been grand since but 7 or 8 weeks ago my tac level shot up to 25.5 so the QE reduced my medication down from 5mg daily to 2 mg daily it is coming down slowly last time it was 9 so getting better no reason for it to shoot up like that so a bit
Hello I had a liver transplant 5 years ago next April I've been grand since but 7 or 8 weeks ago my tac level shot up to 25.5 so the QE reduced my medication down from 5mg daily to 2 mg daily it is coming down slowly last time it was 9 so getting better no reason for it to shoot up like that so a bit
Treeclimber62
in
British Liver Trust
3 years ago
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Hernia and Liver
I have been off my work for last couple of days because of my umbilical hernia giving me pain I was at GP with it she gave me phone number for the liver transplant referral at hospital I phoned them and got phoned back saying I could go to them ans there was a cancellation this where I found out reason
I have been off my work for last couple of days because of my umbilical hernia giving me pain I was at GP with it she gave me phone number for the liver transplant referral at hospital I phoned them and got phoned back saying I could go to them ans there was a cancellation this where I found out reason
Delboytrotter
in
British Liver Trust
3 years ago
Rambler 64
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Rambler64
in
Restless Legs Syndrome
3 years ago
LVH / HCM After Renal Transplant
Hi - I’m 55. I had a kidney transplant in 2014. Transplanted kidney has done amazingly well. However, almost immediately after I starting prograf I complained of rapid heart rate and have consistently done so for years. Fast forward to 2021, a physician’s assistant finally listened and I was referred
Hi - I’m 55. I had a kidney transplant in 2014. Transplanted kidney has done amazingly well. However, almost immediately after I starting prograf I complained of rapid heart rate and have consistently done so for years. Fast forward to 2021, a physician’s assistant finally listened and I was referred
Denise-80
in
Kidney Disease
3 years ago
How bad does it have to be before...
Oxygen. Thing is I have severe COPD (emphysema and bronchiectasis) at stage four. Last FEV1 32%. I am 78. Now I have also had arrhythmia and some oedema so I was diagnosed with congestive heart failure as well. But two echo- cardiograms showed a healthy heart, two E CGs have showed the rhythm is now
Oxygen. Thing is I have severe COPD (emphysema and bronchiectasis) at stage four. Last FEV1 32%. I am 78. Now I have also had arrhythmia and some oedema so I was diagnosed with congestive heart failure as well. But two echo- cardiograms showed a healthy heart, two E CGs have showed the rhythm is now
Timberman
in
Lung Conditions Community Forum
3 years ago
Help make a drug to treat post-transplant CMV available to patients in Canada
If you have experienced Cytomegalovirus (CMV) following your Allogeneic Stem-Cell Transplant, you can help Canadian patients gain access to this treatment by completing our survey! You do not need to live in Canada to complete this survey. CLL Canada is working with a coalition of blood cancer patient
If you have experienced Cytomegalovirus (CMV) following your Allogeneic Stem-Cell Transplant, you can help Canadian patients gain access to this treatment by completing our survey! You do not need to live in Canada to complete this survey. CLL Canada is working with a coalition of blood cancer patient
CLL_Canada_Group
in
CLL Support
2 years ago
Post Kasai and Need for Liver Transplant
My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mgdl and after 2months of Kasai it is 4.7mgdl. GGT was around 3000 earlier and come down around 1400 now. His stool is pigmented yellow, orange and sometimes pale yellow. Surgeon told liver was hard while kasai but all Ultrasound
My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mgdl and after 2months of Kasai it is 4.7mgdl. GGT was around 3000 earlier and come down around 1400 now. His stool is pigmented yellow, orange and sometimes pale yellow. Surgeon told liver was hard while kasai but all Ultrasound
manhealth
in
Children's Liver Disease Foundation
3 years ago
Anyone been prescribed a drug to lower heart rate for procedure to see if you have narrow arteries?
Hello , just been told I’m going to be prescribed something ( not beta blockers) to make my heart rate under 60 then I’ll have an ECG to check , after that I’ll have a procedure of which I forgot the name to check my circulation for any narrowing etc Has anyone had this done and I wondered what happened
Hello , just been told I’m going to be prescribed something ( not beta blockers) to make my heart rate under 60 then I’ll have an ECG to check , after that I’ll have a procedure of which I forgot the name to check my circulation for any narrowing etc Has anyone had this done and I wondered what happened
Hazel1010
in
AF Association
3 years ago
Update
I’m getting released today from the hospital. I had my defibrillator wire removed this past Wednesday. A very delicate procedure considering the wire has been in for 17 years. The wire has damaged my Tricuspid valve in my heart allowing blood to back up into my liver and cause cardiac cirrhosis. Hopefully
I’m getting released today from the hospital. I had my defibrillator wire removed this past Wednesday. A very delicate procedure considering the wire has been in for 17 years. The wire has damaged my Tricuspid valve in my heart allowing blood to back up into my liver and cause cardiac cirrhosis. Hopefully
Bluegirl52
in
Living with Fatty Liver and NASH
3 years ago
Dr. Ondo have an appt with this dr in December. Can anyone tell me if they have seen him or had any experience with him and their thoughts
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
ESRDRLS
in
Restless Legs Syndrome
3 years ago
I need the rest
You sound exactly like a mirror of myself. I agree, the augmentation and withdrawal are horrible. I take Gabapentin, 600 mg. about 7 p.m. and 900 mg. at 9 p.m. About 8:30 I take 100 mg. Tramadol. I am weaning off my last .5 mg. Ropinirole and usually take that at 7:15 p.m. I had about 1 week of beautiful
You sound exactly like a mirror of myself. I agree, the augmentation and withdrawal are horrible. I take Gabapentin, 600 mg. about 7 p.m. and 900 mg. at 9 p.m. About 8:30 I take 100 mg. Tramadol. I am weaning off my last .5 mg. Ropinirole and usually take that at 7:15 p.m. I had about 1 week of beautiful
Agent54
in
Restless Legs Syndrome
3 years ago
7 months post kidney transplant. I’m up to 40 minutes of walking 3-4 times a week. Day after exercise tired , useless. Any others?
Tired day after exercise
Tired day after exercise
3KMa
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant Patient Support
3 years ago
Educating the public about the need for living kidney donors.
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Disease
3 years ago
Where are all the husbands talking about their wives and partners alcohol-related liver disease?
I had a most enjoyable coffee with a fellow liver transplantee this afternoon. I’ve not seen this lady (due to Covid) for almost two years, so it was nice to catch up. Her liver transplant was due to PBC (Primary biliary cholangitis). This poor lady does understandably get frustrated as she is often
I had a most enjoyable coffee with a fellow liver transplantee this afternoon. I’ve not seen this lady (due to Covid) for almost two years, so it was nice to catch up. Her liver transplant was due to PBC (Primary biliary cholangitis). This poor lady does understandably get frustrated as she is often
Richard-Allen
in
British Liver Trust
3 years ago
AM I ELIGIBLE FOR KIDNEY TRANSPLANT?
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
pigeonman
in
Early CKD Support
3 years ago
Jaw spasm & neck muscle problems?
Hi, I am new to this forum which I am now following on behalf of my husband. He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post stem cell transplant. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving
Hi, I am new to this forum which I am now following on behalf of my husband. He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post stem cell transplant. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving
AnnW22
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
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