CoQ10 dosage and when to take ?

[janvog]

I have CLL and my hematologist approved CoQ10. CoQ10 is recommended in Mayo litererature, for those with no counter-indications. But I lack good information about how many mg CoQ10 that I could ingest daily, and when to take the cap or caps . Thus, I would appreciate guidance. Also suggestions about brands.

[cllady01 Former Volunteer]

janvog, That would be an excellent question for your Dr. who approved it for you as he/she knows your specific health situation and evidently has experience with that particular supplement in CLL patients.

[janvog in reply to cllady01]

Excellent idea ! Thanks

[JEEA]

My husband takes CoQ10 daily for muscle ache, originally associated with statins. He says that it gets rid of lactic acid build up in muscles. I am curious how it is supposed to be of use with CLL?

[janvog in reply to JEEA]

The CoQ10 seems to have some cardio benefits which obviously help a CLL patient's total health. CoQ10 does not seem to be mentioned for treatment of CLL.

[Big_Dee]

Hello janvog

My GP recommended that I take CoQ10 years ago before I was ever diagnosed with CLL. A lot of doctors have suggested CoQ10 for general cardio health. My H/O told me shortly after being diagnosed with CLL not to take anything that would alter my blood. I discontinued the C0Q10 and fish oil. The fish oil causes platelets to clump. When I started CLL treatment, one of the things I was told not to take was CoQ10 which is a powerful anti-oxidant.

[Vlaminck in reply to Big_Dee]

Weird doctor comment--not to take anything that alters blood? Assuming this is pre-treatment, all the stranger. I mean, anything can alter blood in some way or another, I would think. So don't take vitamins, don't take coffee, don't take water.

[wizzard166]

Janvog

I've been taking CoQ10 for many years, after reading the supposed miracle cure it provided for a heart muscle disease. Supposedly a woman walked into her doctor's office years after she was supposed to already have died from a deteriorating heart muscle disease. I then read as much as I could about it, was convinced it couldn't hurt and might actually help, and never stopped. I started taking 100mg a day and then increased to 250, and then tried a version with Ubiquinol which supposedly increases the absorption rate of it.

My youngest Son had a Cardiovascular surgical procedure on his second day of birth survived that, and then survived a second full reconstruction of his heart and immediate vascular system at age 12, I began to look into it for him. On a visit with his Pediatric Cardiovascular Specialist, at a top major teaching medical center, I raised the subject of his taking CoQ10. She was all in favor of it, and said it could have some incredible positive effects. He has been taking it since and he is now 39.

I researched it further before I suggested it to that Specialist, and found an eye opening study printed on Mayo Clinics web site about it. After a five year study, they found it helped with arrythmias, and it helped to increase injection fractions. This substance is stone cold incredible.

I have no idea about taking it and CLL, but its only affect is on Cardiovascular issues. If your CLL doctor said its fine, then if I were you I'd go with it. I've been of the opinion for many years, that everyone over the age of fifty should be taking it.

This link to information on Mayo Clinic's web site is not that five year study, but even reading this information should be enough to make anyone even over 40 be taking it.

mayoclinic.org/drugs-supple...

Carl

[janvog in reply to wizzard166]

Yes, Mayo recommends it: I found CoQ10 recommended in MAYO CLINIC "The Integrative Guide to Good Health". My hematologist (he has two Ph.D. titles) allows me to take it. Mayo writes "CoQ10 may be beneficial for treating conditions such as congestive heart failure, high blood pressure and Parkinson's disease". Then in the quote from MAYO by wizzard 166, MAYO states that CoQ10 does not have a beneficial effect on Parkinson's . I have CLL and since taking CoQ10 my monthly CBC seems to have slightly improved. Last month, my CBC was in "remission" normal. However after starting CoQ10 about a year ago, I have also added to the IMBRUVICA, recommended by my hematologist , since a half a year FolivaneCapPlus (iron plus vitamins) and increased Vitamin D3 . Important: I took the original initiative and asked my hematologist about CoQ10. (It seems that physicans may not suggest it, because insurance may not cover it and the daily dosage adds to monthly expenses). I also asked my hematologist about daily FoliovanePlusCap after he had once prescribed it for a short period. There again, my insurance does not cover it and I pay the $ 22 per month. Both the QoQ10 and the Folivane cost about $ 50 a month and are not covered by my insurance. But both supplements seem to have produced some inprovement im my CBC. I also seem to feel more energetic.

[SofiaDeo]

CoQ 10 is critical for the mitochondria in our cells to function optimally. It's ability to improve immune function is of recent interest. It decreases as we age, so a number of docs and studies are looking at the effect supplementation has.

healthline.com/nutrition/co...

pubmed.ncbi.nlm.nih.gov/340...

mayoclinic.org/drugs-supple...

Since US supplements aren't regulated, do some homework before purchasing. Don't just go to Walgreens or Costco and pick something off the shelf. Reputable companies will provide recent testing and quality control data. These brands cost more, but it's the only way to be sure you are getting controlled amounts without contaminants.

[wizzard166 in reply to SofiaDeo]

I've been a member of lifeextension.com; its a free membership, and they mail their monthly magazine to you. The Monthly magazine I've found to have some great articles and research information, so those unfamiliar with it should check it out.

They have what I believe to be high grade products, so those interested in CoQ10 (and other things) might want to check it out.

Carl

[janvog in reply to wizzard166]

Good idea ! Will follow up.