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IVIG Infusions
I have been on Revolade for six months with no positive results. I have an IVIG every three weeks to boost my platelet count. Does anyone else have IVIG on a regular basis and how long can you keep doing this before having to have your spleen removed? Thank you
I have been on Revolade for six months with no positive results. I have an IVIG every three weeks to boost my platelet count. Does anyone else have IVIG on a regular basis and how long can you keep doing this before having to have your spleen removed? Thank you
Bradyella
in
ITP Support Association
3 years ago
Low Levels of IgA, IgG and IgM - What Triggers IGIV?
Greetings from your UN-mutated colleague! The blood work from last week's visit to oncology revealed (besides the other troubling CLL indicators) that my Ig levels (which were already low), have dropped since first being diagnosed in February 2020. I've dealt with early-winter, chronic bronchitis on
Greetings from your UN-mutated colleague! The blood work from last week's visit to oncology revealed (besides the other troubling CLL indicators) that my Ig levels (which were already low), have dropped since first being diagnosed in February 2020. I've dealt with early-winter, chronic bronchitis on
Jungle-Jim
in
CLL Support
3 years ago
Veggie Burger 🍔 and Greek Yogurt: Dinner 🍦
Tonight, I had a Veggie Burger made from pea protein and has no wheat in it. I had a gluten free hamburger bun with sweet relish and yellow mustard. For dessert, I had a peach Greek yogurt that was lower sugar. The total carbs. for the meal was: 60. What did you have for dinner tonight?😀👍
Tonight, I had a Veggie Burger made from pea protein and has no wheat in it. I had a gluten free hamburger bun with sweet relish and yellow mustard. For dessert, I had a peach Greek yogurt that was lower sugar. The total carbs. for the meal was: 60. What did you have for dinner tonight?😀👍
Activity2004
Administrator
in
Healthy Eating
3 years ago
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The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
As a valued member of The Leukemia & Lymphoma Society’s National Patient Registry, a project of the Michael J. Garil Patient Data Collective, we wanted you to be among the first to know about COVID-19 vaccination antibody results we published today (Greenberg et al., 2021). https://i7.t.hubspotemail.net
lankisterguy
Volunteer
in
CLL Support
3 years ago
Changes
I wish I had done everything differently and been more consistent with the effort I put into changing myself to be a better more
healthy
of me. Now I am
living
on pins and needles as I wait to find out if there is anything left I can save of this relationship with her.
I wish I had done everything differently and been more consistent with the effort I put into changing myself to be a better more
healthy
of me. Now I am
living
on pins and needles as I wait to find out if there is anything left I can save of this relationship with her.
Dragon3695
in
Mental Health Support
3 years ago
Changes
I wish I had done everything differently and been more consistent with the effort I put into changing myself to be a better more
healthy
of me. Now I am
living
on pins and needles as I wait to find out if there is anything left I can save of this relationship with her.
I wish I had done everything differently and been more consistent with the effort I put into changing myself to be a better more
healthy
of me. Now I am
living
on pins and needles as I wait to find out if there is anything left I can save of this relationship with her.
Dragon3695
in
Anxiety and Depression Support
3 years ago
Lunch and Hot Tea
Hi everyone! For lunch today, I had a cheese sandwich with mustard and gluten free bread with Cheddar and Muenster Cheeses. I also had a lemon meringue Greek yogurt and hot tea on the side. There were 43 total carbs. in the entire lunch. Really great and delicious.
Hi everyone! For lunch today, I had a cheese sandwich with mustard and gluten free bread with Cheddar and Muenster Cheeses. I also had a lemon meringue Greek yogurt and hot tea on the side. There were 43 total carbs. in the entire lunch. Really great and delicious.
Activity2004
Administrator
in
Healthy Eating
3 years ago
KIR or LAD tests for recurrent implantation failure
Hi - does anyone have any experiences with these tests? I’ve got history of recurrent implantation failure with PGS normal embryos and high NKC. We have one embryo left and starting a protocol with humiera added to IVIG but consultant just rang and recommended these tests at another clinic. Should I
Hi - does anyone have any experiences with these tests? I’ve got history of recurrent implantation failure with PGS normal embryos and high NKC. We have one embryo left and starting a protocol with humiera added to IVIG but consultant just rang and recommended these tests at another clinic. Should I
Gabriella89
in
Fertility Network UK
3 years ago
The Value of Healthy Living
Now, a college student, I'm writing a paper on
healthy
living
as this is a great topic of interest to me. But beyond that- it is my way of life! I'm just wondering what motivated you guys to start your health journeys? I'd love to hear what
healthy
living
MEANS to you!
Now, a college student, I'm writing a paper on
healthy
living
as this is a great topic of interest to me. But beyond that- it is my way of life! I'm just wondering what motivated you guys to start your health journeys? I'd love to hear what
healthy
living
MEANS to you!
petitey24
in
Healthy Eating
3 years ago
DR FREI. FACE MASK WITH VALVE - RECALL
My wife has just had a fascinating morning with Amazon as we received 6 e mails yesterday asking for these to be returned as it has been found they only have 5% instead of 95% efficacy as found in Iceland - the country not the shop. I just want to let you know that you can contact Amazon customer services
My wife has just had a fascinating morning with Amazon as we received 6 e mails yesterday asking for these to be returned as it has been found they only have 5% instead of 95% efficacy as found in Iceland - the country not the shop. I just want to let you know that you can contact Amazon customer services
Desanthony
in
Advanced Prostate Cancer
3 years ago
I'm a troubled child who made it big!
But I'm here today with a good career, in a good marriage, with two beautiful and
healthy
children.
living
middle-class life in a beautiful sunny Los Angeles neighborhood.
But I'm here today with a good career, in a good marriage, with two beautiful and
healthy
children.
living
middle-class life in a beautiful sunny Los Angeles neighborhood.
Ramster001
in
CHADD's Adult ADHD Support
3 years ago
IVIG treatment
I just had my first of 6 IVIG treatments due to low immunity. The treatment went well but about 24 hours later I got a raging headache, leg cramps and aching in shoulders and neck area. This has continued. Anyone else go through this? I have taken Tylenol for the intense headache but it isn’t working
I just had my first of 6 IVIG treatments due to low immunity. The treatment went well but about 24 hours later I got a raging headache, leg cramps and aching in shoulders and neck area. This has continued. Anyone else go through this? I have taken Tylenol for the intense headache but it isn’t working
Rivergoddess
in
CLL Support
3 years ago
Covid antibodies
I have great antibodies from my Covid vaccine. I am very immunosuppressed, getting IVIG infusions every 6 weeks. I had the finger prick test which showe no antibodies then I had the blood draw test Covid IGg spike protein test and I had 4 times the positive rate for the test. Please don’t let someone
I have great antibodies from my Covid vaccine. I am very immunosuppressed, getting IVIG infusions every 6 weeks. I had the finger prick test which showe no antibodies then I had the blood draw test Covid IGg spike protein test and I had 4 times the positive rate for the test. Please don’t let someone
LDPCLL
in
Vasculitis UK
3 years ago
Help with newly diagnosed ITP husband
Where do I start? 11 days ago my husband woke up feeling unwell with a rash over his body and having nosebleeds. He was rushed to hospital and said his platelets were at 1. This was new to us. And they said it was probably ITP. He was also feeling unwell with fevers. They started him on steroids and
Where do I start? 11 days ago my husband woke up feeling unwell with a rash over his body and having nosebleeds. He was rushed to hospital and said his platelets were at 1. This was new to us. And they said it was probably ITP. He was also feeling unwell with fevers. They started him on steroids and
Dominiquegriff
in
ITP Support Association
3 years ago
Healthy eating to improve live of people living with MS
Hi there, I'm new here and very much interested in healthy eating. Healing hugs xx
Hi there, I'm new here and very much interested in healthy eating. Healing hugs xx
PaitaPreta
in
Vegan Foods for Life
3 years ago
Would you go for Intralipid or IVIg?
Hi lovely people, I have elevated NK cell level (29.7) and my consultant recommends immunotherapy either with Intralipids (would bring my NK level to 18-21) or IVIg (bring level to 14.9) he said steroids were not being offered during the pandemic. I want the best chances for my next transfer which means
Hi lovely people, I have elevated NK cell level (29.7) and my consultant recommends immunotherapy either with Intralipids (would bring my NK level to 18-21) or IVIg (bring level to 14.9) he said steroids were not being offered during the pandemic. I want the best chances for my next transfer which means
Clar-bear
in
Fertility Network UK
3 years ago
IVIG
Dr said there is a still a cancer risk with kesimpta as it is essentially the same thing as ocrevas. She suggested IVIG. Does anyone have any experience with it?
Dr said there is a still a cancer risk with kesimpta as it is essentially the same thing as ocrevas. She suggested IVIG. Does anyone have any experience with it?
Tulip77
in
My MSAA Community
3 years ago
Where to get IVIG drip
Hi Can someone please recommend where I can get IVIG admistered in the UK or abroad at a reasonable price. The fertility clinic I'm with at the moment are charging £2000 for this! I would greatly appreciate any advice and suggestions. Thank you in advance.
Hi Can someone please recommend where I can get IVIG admistered in the UK or abroad at a reasonable price. The fertility clinic I'm with at the moment are charging £2000 for this! I would greatly appreciate any advice and suggestions. Thank you in advance.
weekitty
in
Fertility Network UK
3 years ago
Gluten free apple tart
Hi everyone, I made this apple tart with the base made with cooked wild rice mixed with an egg and then blind baked it for about 15 mins before I covered 3 Bramley apples lightly stewed with chia seeds and a little brown sugar. I put flaked almonds on top and baked for another 20 mins and am looking
Hi everyone, I made this apple tart with the base made with cooked wild rice mixed with an egg and then blind baked it for about 15 mins before I covered 3 Bramley apples lightly stewed with chia seeds and a little brown sugar. I put flaked almonds on top and baked for another 20 mins and am looking
Hidden
Administrator
in
Healthy Eating
3 years ago
Testicular Pain Since Vasectomy
I love in the USA - I had a vasectomy a couple years ago. I was in immense paint throughout the whole procedure. I could feel them burn me (make incision) and it was awful. I have had to take antibiotics 2 times for swollen tube... can’t recall what they called it. I am sitting on a couch now - laid
I love in the USA - I had a vasectomy a couple years ago. I was in immense paint throughout the whole procedure. I could feel them burn me (make incision) and it was awful. I have had to take antibiotics 2 times for swollen tube... can’t recall what they called it. I am sitting on a couch now - laid
SamuelLMa
in
Men's Health Forum
3 years ago
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