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Slow to get a rheumy appointment
My husband started feeling unwell in January this year. He ended up having a month off work. He is 53. Meanwhile the GP did various tests and a chest X Ray, he was even sent to A&E due to the pains in his chest. All checks ok. By July I suggested asking the GP for a lupus blood test, as I researched
My husband started feeling unwell in January this year. He ended up having a month off work. He is 53. Meanwhile the GP did various tests and a chest X Ray, he was even sent to A&E due to the pains in his chest. All checks ok. By July I suggested asking the GP for a lupus blood test, as I researched
Broseley
in
LUPUS UK
3 years ago
Pressure on eye while reading and watching tv , is common in GCA ?
My wife 71 on actemra and prednisone from last 3 months for GCA . On watching tv or reading , she get pressure on eye and ear . Eye are checked by two eye dr it seems normal . Is this can be due to GCA ? Is this normally experienced by GCA patients ? What other main irritable symptoms continue and experience
My wife 71 on actemra and prednisone from last 3 months for GCA . On watching tv or reading , she get pressure on eye and ear . Eye are checked by two eye dr it seems normal . Is this can be due to GCA ? Is this normally experienced by GCA patients ? What other main irritable symptoms continue and experience
Rajuguide
in
PMRGCAuk
3 years ago
“Shriveling” and losing fat and muscle
Hello everyone, In the last few months I’ve gotten a lot more wrinkly and my extremities are beginning to resemble toothpicks. Especially noticeable in my thighs and rear. I’ve had trouble with healthy eating during this pandemic and with filling up if I don’t eat carbs. I’ve lost a few pounds
Hello everyone, In the last few months I’ve gotten a lot more wrinkly and my extremities are beginning to resemble toothpicks. Especially noticeable in my thighs and rear. I’ve had trouble with healthy eating during this pandemic and with filling up if I don’t eat carbs. I’ve lost a few pounds
Mstiles
in
PMRGCAuk
3 years ago
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Thyroid or PMR
I am hyperthyroid since possibly July. First tested July 28th. T4 2.00. I was taking 112mcg. Levothyroxine. Reduced to 100mcg. I am having terrible symptoms. I also have PMR and taking 24mgs. prednisolone. My symptoms of really bad blurry vision, extreme fatigue, weakness, tooth pain, insomnia
I am hyperthyroid since possibly July. First tested July 28th. T4 2.00. I was taking 112mcg. Levothyroxine. Reduced to 100mcg. I am having terrible symptoms. I also have PMR and taking 24mgs. prednisolone. My symptoms of really bad blurry vision, extreme fatigue, weakness, tooth pain, insomnia
pomeranion
in
Thyroid UK
3 years ago
Would you recommend EMDR therapy?
I haven’t gone to therapy in awhile. I believe I’ve only tried Cognitive Behavioral Therapy (CBT). I’d love to hear from anyone on your experience or recommendations.
I haven’t gone to therapy in awhile. I believe I’ve only tried Cognitive Behavioral Therapy (CBT). I’d love to hear from anyone on your experience or recommendations.
PastelPink20
in
Anxiety and Depression Support
3 years ago
Statins for Graves' orbitopathy (STAGO): a phase 2, open-label, adaptive, single centre, randomised clinical trial
https://www.thelancet.com/journals/landia/article/PIIS2213-8587(21)00238-2/fulltext PAID ACCESS ARTICLES Statins for Graves' orbitopathy: a new tool for prevention and treatment? https://www.thelancet.com/journals/landia/article/PIIS2213-8587(21)00268-0/fulltext Statin Use Associated with Lower Incidence
https://www.thelancet.com/journals/landia/article/PIIS2213-8587(21)00238-2/fulltext PAID ACCESS ARTICLES Statins for Graves' orbitopathy: a new tool for prevention and treatment? https://www.thelancet.com/journals/landia/article/PIIS2213-8587(21)00268-0/fulltext Statin Use Associated with Lower Incidence
ling
in
Thyroid UK
3 years ago
HU & breathlessness
I’ve been on HU for 7!years and I noticed after about 9 months I was getting very slightly breathless. However, 7 years down the line I am extremely breathless . Walking from room to room I am slightly breathing heavy. Going upstairs I am very breathless and also just plain walking I get breathless.
I’ve been on HU for 7!years and I noticed after about 9 months I was getting very slightly breathless. However, 7 years down the line I am extremely breathless . Walking from room to room I am slightly breathing heavy. Going upstairs I am very breathless and also just plain walking I get breathless.
130396
in
MPN Voice
3 years ago
dry eyes vs tearing eyes
My husband who has PSP, has been experiencing tears flowing from his eyes and he is not crying. He also complains of eye discomfort. Eye Dr has prescribed moisturizing drops as he said tears can be an indication of dry eyes that are irritated . Anyone else dealing with similar problem? Do I use moisturizing
My husband who has PSP, has been experiencing tears flowing from his eyes and he is not crying. He also complains of eye discomfort. Eye Dr has prescribed moisturizing drops as he said tears can be an indication of dry eyes that are irritated . Anyone else dealing with similar problem? Do I use moisturizing
ncgardener799
in
PSP Association
3 years ago
Eylea
I have been diagnosed with severe wet amd with severe vision lost. Had my first eylea injection. Am wondering if anyone else with severe vision loss had any success with Eylea treatments.
I have been diagnosed with severe wet amd with severe vision lost. Had my first eylea injection. Am wondering if anyone else with severe vision loss had any success with Eylea treatments.
GailGail
in
Macular Society
3 years ago
Eylea injection
I have wet amd with severe vision loss in one eye..Just had my first injection. Has anyone had severe loss with any success in treatment?
I have wet amd with severe vision loss in one eye..Just had my first injection. Has anyone had severe loss with any success in treatment?
GailGail
in
Macular Society
3 years ago
MRI Scan
Hi all. Off tomorrow for a much waiting scan on head. I have had no sign of pmr in 9 months now except for dreadfull head and eye problem. Optitian said eyes OK and 111 sent me to hospital for a check they said all ok. Rheumatologist suggested to dr to send me for a scan so after 11 weeks I am
Hi all. Off tomorrow for a much waiting scan on head. I have had no sign of pmr in 9 months now except for dreadfull head and eye problem. Optitian said eyes OK and 111 sent me to hospital for a check they said all ok. Rheumatologist suggested to dr to send me for a scan so after 11 weeks I am
Cosmos22Marigold
in
PMRGCAuk
3 years ago
Worries over new drug treatment : Infliximab
Experience requests please. Due to continuing inflammation, my RA has suggested that I stay on low dose Prednisolone (5mg) and MTX injections (15mg) but also start receiving infusions every 8weeks of Infliximab. The side effects I read on this drug seem worse than my regular aches and pains and I’m
Experience requests please. Due to continuing inflammation, my RA has suggested that I stay on low dose Prednisolone (5mg) and MTX injections (15mg) but also start receiving infusions every 8weeks of Infliximab. The side effects I read on this drug seem worse than my regular aches and pains and I’m
K9910
in
NRAS
3 years ago
Drinking alcohol and Macular Degeneration.
Hello good people, Have any of you given up drinking because of MD. Dad said that he shouldn’t because of his liver. When I spoke to Dr about him she said everything was fine, blood, liver etc. Just wondered. Thanks.
Hello good people, Have any of you given up drinking because of MD. Dad said that he shouldn’t because of his liver. When I spoke to Dr about him she said everything was fine, blood, liver etc. Just wondered. Thanks.
Garfield33
in
Macular Society
3 years ago
EMDR Therapy
41 year old, dx almost 3 years ago. My symptoms are pretty mild.Married, 2 kids and own a family tractor dealership with awesome employees that allow me to whatever I want. Everything in my life except PD is great! Pd dx nearly killed me. I forgot how to live. As soon as I thought it was PD while
41 year old, dx almost 3 years ago. My symptoms are pretty mild.Married, 2 kids and own a family tractor dealership with awesome employees that allow me to whatever I want. Everything in my life except PD is great! Pd dx nearly killed me. I forgot how to live. As soon as I thought it was PD while
38yroldmale
in
Cure Parkinson's
3 years ago
Advice on Bronchiectasis diagnosis please
Hi everyone I’ve been lurking in the background for a while but havnt introduced myself properly. Please bear with me as it’s a bit long winded & confusing. Basically I don’t know what to do & need some advice please. I have RA diagnosed over 20 years ago & in November 2017 on screening for new Biologics
Hi everyone I’ve been lurking in the background for a while but havnt introduced myself properly. Please bear with me as it’s a bit long winded & confusing. Basically I don’t know what to do & need some advice please. I have RA diagnosed over 20 years ago & in November 2017 on screening for new Biologics
Otto11
in
Lung Conditions Community Forum
3 years ago
Question on Heart Size
Hello I know I have a generous heart or so I am told !!! Just looking at a very recent Chest X ray and it says " Lungs appear Clear " " Heart Size is at the Upper Limit of Normal " I wonder what that means and why was it on the report, anyone know the answer to this ??? Regards
Hello I know I have a generous heart or so I am told !!! Just looking at a very recent Chest X ray and it says " Lungs appear Clear " " Heart Size is at the Upper Limit of Normal " I wonder what that means and why was it on the report, anyone know the answer to this ??? Regards
Prada47
in
British Heart Foundation
3 years ago
Update ... flare has nicely abated...not on methotrexate YET! what do I do when medical insurance stops my cover for PMR?
Sorry for long post ... I took jinasc's advice and went up to 15mg Pred (rather than 12.5 for 2 weeks suggested by rheumie) for 5 days, then dropped by 10% to 13.5 for 5 days and now on 13 which has stopped the pain. Told rheumie about my decision as 12.5mg didn't do the trick. He was keen for me
Sorry for long post ... I took jinasc's advice and went up to 15mg Pred (rather than 12.5 for 2 weeks suggested by rheumie) for 5 days, then dropped by 10% to 13.5 for 5 days and now on 13 which has stopped the pain. Told rheumie about my decision as 12.5mg didn't do the trick. He was keen for me
Sufferinginsilence
in
PMRGCAuk
3 years ago
Glaucoma and Cataract Surgery
Hi everyone, I know this is such a helpful forum and just wondered about other people’s experience of having cataract surgery when also having Glaucoma (I have open angle glaucoma)? I had my right cataract removed last week and my left this week and had lenses put in for my extremely bad near sightedness
Hi everyone, I know this is such a helpful forum and just wondered about other people’s experience of having cataract surgery when also having Glaucoma (I have open angle glaucoma)? I had my right cataract removed last week and my left this week and had lenses put in for my extremely bad near sightedness
Spanieldoglover
in
Glaucoma UK
3 years ago
New GP
Recently moved and saw a new GP yesterday. He was bewildered that I had been having headaches, blurred and double vision for months before and following my pmr diagnosis and no one thought a biopsy was urgently needed. Referred me to a surgeon to rule out GCA. Also referred to a new rheumy, so feeling
Recently moved and saw a new GP yesterday. He was bewildered that I had been having headaches, blurred and double vision for months before and following my pmr diagnosis and no one thought a biopsy was urgently needed. Referred me to a surgeon to rule out GCA. Also referred to a new rheumy, so feeling
Stickgal316
in
PMRGCAuk
3 years ago
Twirling "fans" in periphery
Does anyone experience pulsating lights (dim) in their peripheral vision? Similar to a twirling fan? I first experience this following cataract and vitreous replacement surgery last year. It disappeared shortly after, but has returned recently . It is mostly in my lower vision and I notice it more
Does anyone experience pulsating lights (dim) in their peripheral vision? Similar to a twirling fan? I first experience this following cataract and vitreous replacement surgery last year. It disappeared shortly after, but has returned recently . It is mostly in my lower vision and I notice it more
Ikansea
in
Macular Society
3 years ago
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