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health anxiety
hello ☺️ I got diagnosed with stage 2 Endo at the end of November and had the coil fitted during surgery. today I have had a total panic as I couldn’t feel my strings or cervix so had an emergency gp appointment - turns out everything was fine, in place as it should be and it’s quite normal to not
hello ☺️ I got diagnosed with stage 2 Endo at the end of November and had the coil fitted during surgery. today I have had a total panic as I couldn’t feel my strings or cervix so had an emergency gp appointment - turns out everything was fine, in place as it should be and it’s quite normal to not
nikogirl18
in
Endometriosis UK
6 months ago
Loss of service
Since being diagnosed with lymphoedema early this year as a result of surgery/trauma I have been trying various stockings and tights which wouldn't make my sensitive skin itch. I phoned my lymph team up today to discuss where to go from here and I have been told that they can no longer support Lymph
Since being diagnosed with lymphoedema early this year as a result of surgery/trauma I have been trying various stockings and tights which wouldn't make my sensitive skin itch. I phoned my lymph team up today to discuss where to go from here and I have been told that they can no longer support Lymph
1vern0n
in
LSN
6 months ago
Pred 5 mg blocked by GP until consultant letter produced!
As flagged up earlier, I am having a flare, so ordered more Pred 5mg as per usual. I had to put a message in to explain the request. I said that the consultant had advised the increase. It was cleared on line but then blocked by the time I got to the Pharmacist. A new salaried GP texted me -
As flagged up earlier, I am having a flare, so ordered more Pred 5mg as per usual. I had to put a message in to explain the request. I said that the consultant had advised the increase. It was cleared on line but then blocked by the time I got to the Pharmacist. A new salaried GP texted me -
Motida
in
PMRGCAuk
6 months ago
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Dienogest?
I've finally seen a specialist and he's told me I haven't got deep infiltrating endo as it's not showing up on scans but I could have mild so has put me onto the list for surgery (which is a relief) but he also wants me to start dienogest. I've never mentally reacted well to birth control but was willing
I've finally seen a specialist and he's told me I haven't got deep infiltrating endo as it's not showing up on scans but I could have mild so has put me onto the list for surgery (which is a relief) but he also wants me to start dienogest. I've never mentally reacted well to birth control but was willing
Lavenderpetal
in
Endometriosis UK
6 months ago
Mini maze update.
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
Apologies I know I promised to post updates and haven't. I had my mini maze surgery back in September with the wonderful Mr Hunter on the NHS. I've been in NSR ever since which is amazing as I had moved to persistant Afib and I felt pretty awful all the time before surgery. I am soooo grateful to Mr
waveylines
in
Atrial Fibrillation Support
6 months ago
Exercise post surgery
Hi, I appreciate there are other more serious matters of concern but I would just like to know what types of exercise and when you started after lung surgery. I am bored with physio and less motivated to walk everyday!
Hi, I appreciate there are other more serious matters of concern but I would just like to know what types of exercise and when you started after lung surgery. I am bored with physio and less motivated to walk everyday!
GGoyster
in
The Roy Castle Lung Cancer Foundation
3 months ago
Help with MRI results / treatment pathway (inc bowel endo)
Hi all - Please can you have a look at my MRI findings below. Any help on other people's experiences or what my surgery/treatment pathway might look like I would really appreciate it. I'm trying to decide whether I should wait it out for NHS surgery and what that might look like or bite the bullet
Hi all - Please can you have a look at my MRI findings below. Any help on other people's experiences or what my surgery/treatment pathway might look like I would really appreciate it. I'm trying to decide whether I should wait it out for NHS surgery and what that might look like or bite the bullet
Scoutybob
in
Endometriosis UK
6 months ago
Update on my father
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Radtech40
in
Advanced Prostate Cancer
6 months ago
Inflammation — this stuff works?
Added 1/26/24: I had sleep issues and had to quit 299v. I can’t rule out placebo, but sleep could also be B1 break (I was on day 4 of the break. I quit 299v on day 22 of the B1.) Could the effects of B1 being cleared from my body be responsible for any improvements and/or any problems? I believe 299v
Added 1/26/24: I had sleep issues and had to quit 299v. I can’t rule out placebo, but sleep could also be B1 break (I was on day 4 of the break. I quit 299v on day 22 of the B1.) Could the effects of B1 being cleared from my body be responsible for any improvements and/or any problems? I believe 299v
Gcf51
in
Cure Parkinson's
6 months ago
helpful YouTube yoga channel
I just wanted to share this . It’s a YouTuber called Yoga with Joy . She has a whole series of gentle yoga specifically for post hysterectomy/post abdominal surgery recovery. I have found it helpful and it’s good that it’s very specific. Anyway just wanted to share. I’ll put one link here but she
I just wanted to share this . It’s a YouTuber called Yoga with Joy . She has a whole series of gentle yoga specifically for post hysterectomy/post abdominal surgery recovery. I have found it helpful and it’s good that it’s very specific. Anyway just wanted to share. I’ll put one link here but she
Batwoman3
in
Endometriosis UK
6 months ago
Infertility and endo options
Currently starting second round of IVF (x2 embryos in round 1 with x1 negative pregnancy test and x1 embryo left frozen) with endo still on uterosacral ligaments, pelvis and bowel vaginal wall. Been trying to find consistent & clear guidance whether to have remaining endo removed before further embryo
Currently starting second round of IVF (x2 embryos in round 1 with x1 negative pregnancy test and x1 embryo left frozen) with endo still on uterosacral ligaments, pelvis and bowel vaginal wall. Been trying to find consistent & clear guidance whether to have remaining endo removed before further embryo
Pickle1988
in
Endometriosis UK
6 months ago
End of life information for heart disease sufferers
I have severe LMS coronary artery disease, cannot have surgery, have had five PCI interventions, am on 18 diffrerent medications and am now probably out of options. No-one is willing to discuss with me what my final time will be like tnor what can be done to ease it, hough one doctor did say that dying
I have severe LMS coronary artery disease, cannot have surgery, have had five PCI interventions, am on 18 diffrerent medications and am now probably out of options. No-one is willing to discuss with me what my final time will be like tnor what can be done to ease it, hough one doctor did say that dying
Jessica37
in
British Heart Foundation
6 months ago
lung volume reduction operation
I have been told cannot have the valves fitted into my lungs as severity of my emphysema however another heart/chest surgeon says he will carry out the volume reduction surgery. Has anybody else had this procedure, what was your outcome, how much improvement in breathing and anything else you can tell
I have been told cannot have the valves fitted into my lungs as severity of my emphysema however another heart/chest surgeon says he will carry out the volume reduction surgery. Has anybody else had this procedure, what was your outcome, how much improvement in breathing and anything else you can tell
Vinny5
in
Lung Conditions Community Forum
6 months ago
Latest blood test results
Happy New Year!A bit of a long post so please accept my apologies. Firstly thanks for the previous advice on taking vitamins to help with my Hashi diagnosis, which l got last September. I received my blood results from Medichecks this afternoon. Bloods were done 24 hrs after my last levo at 9.30 am
Happy New Year!A bit of a long post so please accept my apologies. Firstly thanks for the previous advice on taking vitamins to help with my Hashi diagnosis, which l got last September. I received my blood results from Medichecks this afternoon. Bloods were done 24 hrs after my last levo at 9.30 am
DitzyGrandma
in
Thyroid UK
6 months ago
Gyne Referral Made
Hi, after years of painful periods, painful sex, I decided to go to my GP to ask for a referral for a possible endometriosis diagnosis. My GP did a pelvic exam today and I have been sore ever since on the left side (feels like it's the left ovary). My fertility consultant during a stimulation cycle
Hi, after years of painful periods, painful sex, I decided to go to my GP to ask for a referral for a possible endometriosis diagnosis. My GP did a pelvic exam today and I have been sore ever since on the left side (feels like it's the left ovary). My fertility consultant during a stimulation cycle
TheBeachBabe
in
Endometriosis UK
6 months ago
Referral to gyno possible endometriosis
Hi everyone, first time posting. I had a scan and internal scan on 23rd Dec where I was told at the time I have a chocolate cyst on my right ovary and 3 small fibroids. The next day I received a text message from the doctors surgery to say I have been referred to a gynecologist. Since this I have
Hi everyone, first time posting. I had a scan and internal scan on 23rd Dec where I was told at the time I have a chocolate cyst on my right ovary and 3 small fibroids. The next day I received a text message from the doctors surgery to say I have been referred to a gynecologist. Since this I have
Cherrycat32
in
Endometriosis UK
6 months ago
Holding very low stable usPSA - 0.03X range for six years; no ADT, no chemo.
Eight years ago this month had RP after considerable investigation - nadir 0.050. Eleven months later had salvage RT; done at 0.10. Then after a year of pondering ADT and chemo, when my usPSA was back up to 0.10, I went to Europe for Ferrotran nano-MRI combined with Ga68 PSMA. The nanoMRI lite up
Eight years ago this month had RP after considerable investigation - nadir 0.050. Eleven months later had salvage RT; done at 0.10. Then after a year of pondering ADT and chemo, when my usPSA was back up to 0.10, I went to Europe for Ferrotran nano-MRI combined with Ga68 PSMA. The nanoMRI lite up
NanoMRI
in
Advanced Prostate Cancer
6 months ago
Pale skin during flare ups
Does anyone else get a really washed out, pale almost grey skin during flare ups? My Mum often comments on me looking very pale but I caught sight of myself in the mirror yesterday and my eyes were dark underneath (despite having had a long nap), skin so pale with an almost greenish grey tint. Not very
Does anyone else get a really washed out, pale almost grey skin during flare ups? My Mum often comments on me looking very pale but I caught sight of myself in the mirror yesterday and my eyes were dark underneath (despite having had a long nap), skin so pale with an almost greenish grey tint. Not very
Lily1986
in
Endometriosis UK
3 months ago
Ruptured Aorta Recovery
I have recently bee discharged from hospital following a ruptured abdominal aorta aneurysm. I spent 10 days in the HDU and was discharged from hospital after a few days in a vascular ward. After approximately 1 week the operation developed a leak from the aorta and was readmitted to hospital and underwent
I have recently bee discharged from hospital following a ruptured abdominal aorta aneurysm. I spent 10 days in the HDU and was discharged from hospital after a few days in a vascular ward. After approximately 1 week the operation developed a leak from the aorta and was readmitted to hospital and underwent
saltyuke
in
ICUsteps
6 months ago
Private IVF Assessment - Worried about results
Just wondering of anyone has any experience of this. I went for a first private assessment for IVF yesterday. I am 36 years old and live in Northern Ireland. I met the BMI parameters (which I was please about!) however the issue came with the vaginal scan. I was diagnosed with severe endometriosis
Just wondering of anyone has any experience of this. I went for a first private assessment for IVF yesterday. I am 36 years old and live in Northern Ireland. I met the BMI parameters (which I was please about!) however the issue came with the vaginal scan. I was diagnosed with severe endometriosis
Behind_Hazel_Eyes
in
Endometriosis UK
6 months ago
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