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After bicalutimide and a high testosterone level is pre treatment T just guess work?
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
SimMartin
in
Prostate Cancer Network
8 months ago
Divergent second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
Cali3
in
Advanced Prostate Cancer
8 months ago
New possible treatment being researched
Just read an interesting article about some research at Trent University that says there's hope for a new PCa treatment. It's a naturally occurring molecule called carnosine and seems to indicate much fewer side effects. As I've written before, I think ADT is too harsh and takes away too much, so I
Just read an interesting article about some research at Trent University that says there's hope for a new PCa treatment. It's a naturally occurring molecule called carnosine and seems to indicate much fewer side effects. As I've written before, I think ADT is too harsh and takes away too much, so I
Shamrock46
in
Advanced Prostate Cancer
8 months ago
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Update on Head/neck pressure post from a few days ago
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
Murphysmum
in
Thyroid UK
8 months ago
Foot Cramps
Can anyone suggest anything I can take for foot cramps. I am currently taking 600mg pregablin, ramipril, hrt, zapain and naproxen aswell as iron, calcium and magnesium. The cramps are becoming more and more frequent and my Gp said to eat bananas and rub magnesium into my feet. Last night was unbearable
Can anyone suggest anything I can take for foot cramps. I am currently taking 600mg pregablin, ramipril, hrt, zapain and naproxen aswell as iron, calcium and magnesium. The cramps are becoming more and more frequent and my Gp said to eat bananas and rub magnesium into my feet. Last night was unbearable
UpsideDownInsideOut
in
Restless Legs Syndrome
8 months ago
How My Phobia of the Dark Helped Me Treat My OCD
I used to be afraid to leave the comfort of my bed nighttime for a fear of being attacked by supernatural beings. This was ridiculous. I prided myself in having a scientific mind. How could I be afraid of ghosts nighttime when I walked out of my comfort zone? I was pretty sure that ghosts didn’t exist
I used to be afraid to leave the comfort of my bed nighttime for a fear of being attacked by supernatural beings. This was ridiculous. I prided myself in having a scientific mind. How could I be afraid of ghosts nighttime when I walked out of my comfort zone? I was pretty sure that ghosts didn’t exist
deValentin
in
My OCD Community
8 months ago
Zoladex experience
Hey there 👋 I'm just wondering if anyone has had a negative experience with zoladex? I am due to have my 4th injection next week, was supposed to be yesterday but appointment got cancelled. I'm also on Estradot patches and utrogestan tablets. I've never felt so shit in all my life and the only thing
Hey there 👋 I'm just wondering if anyone has had a negative experience with zoladex? I am due to have my 4th injection next week, was supposed to be yesterday but appointment got cancelled. I'm also on Estradot patches and utrogestan tablets. I've never felt so shit in all my life and the only thing
x_b_x
in
Endometriosis UK
8 months ago
The Dark Time Came Again: Dealing with MDD and ECT/TMS Decision
I have been well for a while, but recently, my depression hit again like it hasn't hit for some time. My doctor is suggesting either TMS or ECT, as my medicine is not working as well as I would want. I have a dual diagnosis of bipolar disorder and borderline, and I have been seeing doctors since college
I have been well for a while, but recently, my depression hit again like it hasn't hit for some time. My doctor is suggesting either TMS or ECT, as my medicine is not working as well as I would want. I have a dual diagnosis of bipolar disorder and borderline, and I have been seeing doctors since college
SilentWiseman
in
Major Depressive Disorder (MDD) Support
10 months ago
5Rhythms Challenge - Week 1 of 3
We’re getting started with the 5-Rhythms! As some of you may know, 5Rhythms is a movement meditation practice devised by Gabrielle Roth in the late 1970s. It is said to put the body in motion, in order to still the mind. The five rhythms (in order) are
Flowing, Staccato, Chaos, Lyrical
We’re getting started with the 5-Rhythms! As some of you may know, 5Rhythms is a movement meditation practice devised by Gabrielle Roth in the late 1970s. It is said to put the body in motion, in order to still the mind. The five rhythms (in order) are
Flowing, Staccato, Chaos, Lyrical
CBDB
Administrator
in
Strength & Flex
11 months ago
Red-Light Therapy - To Wait, or Not to Wait?
That is the question. I've spent several mornings researching RLT and while I've found a few small clinical trials and descriptions of various kinds of light therapy (see https://www.apdaparkinson.org/article/light-therapy-for-parkinsons-disease/), as well as self-promoting ads by device producers
That is the question. I've spent several mornings researching RLT and while I've found a few small clinical trials and descriptions of various kinds of light therapy (see https://www.apdaparkinson.org/article/light-therapy-for-parkinsons-disease/), as well as self-promoting ads by device producers
Alock2020
in
Cure Parkinson's
11 months ago
New Developments in My Husband's PCA Journey
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
103532
in
Advanced Prostate Cancer
8 months ago
RP & T3B
Those who had RP and T3b with no ADT/SRT yet, how are you doing and when was your RP?
Those who had RP and T3b with no ADT/SRT yet, how are you doing and when was your RP?
tn12
in
Advanced Prostate Cancer
8 months ago
Blood test time - still no better
Hello I'm posting again to get views on my latest blood tests, although I think it's probably same as last time. I just don't get anywhere with my doctor. Last time some of you were saying that I possibly had poor conversion and I think my results this time are showing similar sort of numbers. My doctor
Hello I'm posting again to get views on my latest blood tests, although I think it's probably same as last time. I just don't get anywhere with my doctor. Last time some of you were saying that I possibly had poor conversion and I think my results this time are showing similar sort of numbers. My doctor
Loopnova
in
Thyroid UK
8 months ago
PSA suppression
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
pca2004
in
Fight Prostate Cancer
8 months ago
Cognition issues
Any suggestions for help regarding memory issues etc as a result of ADT ???
Any suggestions for help regarding memory issues etc as a result of ADT ???
JolleySprings
in
Advanced Prostate Cancer
8 months ago
Questions
I saw my PSA suddenly rise to 3.67 in January 2023. My PMD was not overly concerned as it was under 4. His plan was to repeat it in 6 months. I will also not I was on Tamsulosin and Finasteride for some time at that point for urinary frequency. That started several years before (at that time I was
I saw my PSA suddenly rise to 3.67 in January 2023. My PMD was not overly concerned as it was under 4. His plan was to repeat it in 6 months. I will also not I was on Tamsulosin and Finasteride for some time at that point for urinary frequency. That started several years before (at that time I was
Cleantop
in
Advanced Prostate Cancer
8 months ago
Low T3
Hello Everybody I am 39 years old and I was diagnosed with Graves in feb 2022. I was put on ADT . I’m currently on 5mg Carbimazole daily and I take selenium 100 daily. I also take Vitamin b complex. Until have been on top of my blood regularly but only t4 and tsh was being tested. My Endo has only
Hello Everybody I am 39 years old and I was diagnosed with Graves in feb 2022. I was put on ADT . I’m currently on 5mg Carbimazole daily and I take selenium 100 daily. I also take Vitamin b complex. Until have been on top of my blood regularly but only t4 and tsh was being tested. My Endo has only
KD786
in
Thyroid UK
8 months ago
Fet drugs
I'm due to start my frozen medicated embryo tranfer has anyone taken buselin prior to HRT
I'm due to start my frozen medicated embryo tranfer has anyone taken buselin prior to HRT
Leaphil
in
Fertility Network UK
8 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
7 months ago
NY Proton Center and Cyberknife at NYU Langone.
Hi Everyone, You were all so kind when I had a bit of a meltdown learning about my diagnosis and then finding this forum. Thank you all from the bottom of my heart. I took everyone’s advice. Slowing things down and doing my homework. I just wanted to mention a couple of items. I met with a very well
Hi Everyone, You were all so kind when I had a bit of a meltdown learning about my diagnosis and then finding this forum. Thank you all from the bottom of my heart. I took everyone’s advice. Slowing things down and doing my homework. I just wanted to mention a couple of items. I met with a very well
LBRV711
in
Prostate Cancer Network
11 months ago
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