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Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
maley2711
in
Advanced Prostate Cancer
24 days ago
Saliva Cortisol results, the investigation continues...
Hi everyone š, Me again! My investigations continue and this is my most recent test to try to piece together what's going on. Any input most welcome please š Backstory since joining HU last November - Iron deficiency anaemia now corrected and ferritin getting close to optimal. All other vitamins
Hi everyone š, Me again! My investigations continue and this is my most recent test to try to piece together what's going on. Any input most welcome please š Backstory since joining HU last November - Iron deficiency anaemia now corrected and ferritin getting close to optimal. All other vitamins
Bertiepuss
in
Thyroid UK
24 days ago
Addition of an ARSI to standard ADT significantly increases the risk of fractures and falls in men with prostate cancer
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Jones C, Gray S, Brown M, et al. Risk of fractures and falls in men with advanced or metastatic prostate cancer receiving androgen deprivation therapy and treated with novel androgen receptor signalling inhibitors: a systematic review and meta-analysis of randomised controlled trials. Eur Urol Oncol.
Graham49
in
Advanced Prostate Cancer
24 days ago
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Starting clinical trial of AVR-766
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
Today I start a clinical trial for ARV-766, an AR degrader. I'm coming in at phase 2, and they are only accepting men who have one of 4 point mutations in the AR - I have two. I've been randomized to 300 mg pill, once a day. The other dose is 100mg. I've failed ADT, chemo. Keytruda & Pluvicto. Hoping
rsgdmd
in
Advanced Prostate Cancer
24 days ago
Sporadically fall backwards with no warning
3 weeks into new dose of 100 levothyroxine (on waking) + 2 doses of 7.5 t3 (one on waking and one at 3pm - [built up gradually]). Back to suddenly, out of nowhere just falling backwards and fatigue beyond all comprehension. This falling symptom only started after my 15 days off levothyroxine, nearly
3 weeks into new dose of 100 levothyroxine (on waking) + 2 doses of 7.5 t3 (one on waking and one at 3pm - [built up gradually]). Back to suddenly, out of nowhere just falling backwards and fatigue beyond all comprehension. This falling symptom only started after my 15 days off levothyroxine, nearly
woofa27
in
Thyroid UK
25 days ago
Constantly bleeding / zoladex
I'm coming to to my 3rd shot of zoladex next week but for the last 5 weeks I've had 3 periods and all have been a week long. I had 5 days respite between 2 and my current period. I'm currently on day 7 and is not letting up, so don't know how much longer this 3rd will go on for. They aren't light,
I'm coming to to my 3rd shot of zoladex next week but for the last 5 weeks I've had 3 periods and all have been a week long. I had 5 days respite between 2 and my current period. I'm currently on day 7 and is not letting up, so don't know how much longer this 3rd will go on for. They aren't light,
Aino26
in
Endometriosis UK
25 days ago
Is there any evidence that ADT deteriorates the myelin insulating neuropathways?
That's the question.
That's the question.
Eadgbe
in
Advanced Prostate Cancer
25 days ago
Rising PCA - on ADT Holiday
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no āevidence of diseaseā. Continued to do bloodwork quarterly and PSA remained at 0. Until
Diagnosed Stage 4 oligometastatic (low volume) PCA in 2021. Gleason 7, 4+3 . Completed RT and 18 months on ADT (Nubeqa) paused the ADT in September after PSA non detectable and a fresh set of scans showed no āevidence of diseaseā. Continued to do bloodwork quarterly and PSA remained at 0. Until
Kkash
in
Advanced Prostate Cancer
25 days ago
Reassurance please
Hi, I have a diagnosis of an autoimmune thyroid condition. Went privately as NHS tests all within range on tests. Waiting on further bloods, which has been difficult to get done, so I can have follow up appointment with private GP for thyroid treatment. Appointment in July. In the interim I did see NHS
Hi, I have a diagnosis of an autoimmune thyroid condition. Went privately as NHS tests all within range on tests. Waiting on further bloods, which has been difficult to get done, so I can have follow up appointment with private GP for thyroid treatment. Appointment in July. In the interim I did see NHS
Fizzwhizz
in
Thyroid UK
25 days ago
Urinary urgency after treatment .. occasional
One side effect Iāve noticed is an occasional sudden need to urinate. Like when you were a young kid stuck on a school bus and had to really really go. This doesnāt happen all the time but maybe 20% of the time so several times a day. Iāve had brachytherapy (5 months ago), external radiation (3 months
One side effect Iāve noticed is an occasional sudden need to urinate. Like when you were a young kid stuck on a school bus and had to really really go. This doesnāt happen all the time but maybe 20% of the time so several times a day. Iāve had brachytherapy (5 months ago), external radiation (3 months
Yokohama2023
in
Prostate Cancer Network
25 days ago
Impact of brief CBT on chronic pain and anxiety
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
audreycosta
in
Pain Concern
26 days ago
Does this sound like Hashimoto's please?
Hello, My thyroid has been under suspicion for many years but I cannot seem to get any answers. Postnatally, (four months after giving birth), some fifteen years ago, my TSH was tested and was 12.6. Nothing was done about this. ( I have only just seen this on my NHS app). Fast forward to eight years
Hello, My thyroid has been under suspicion for many years but I cannot seem to get any answers. Postnatally, (four months after giving birth), some fifteen years ago, my TSH was tested and was 12.6. Nothing was done about this. ( I have only just seen this on my NHS app). Fast forward to eight years
Gyrosgirl
in
Thyroid UK
26 days ago
Tibolone HRT offered for pain relief of Pudendal Nueralgia alongside 3 injections of Zoladex into the abdominal wall?
Hi everyone, I had a gynecologist offer me Tibolone HRT tablets alongside 3 injections of Zoladex into the abdominal wall 4x weekly. Looking these medications up I've seen a ton of side effects like most meds. The gynaecologist agreed I had normal hormones and no gyno problems or endometriosis but being
Hi everyone, I had a gynecologist offer me Tibolone HRT tablets alongside 3 injections of Zoladex into the abdominal wall 4x weekly. Looking these medications up I've seen a ton of side effects like most meds. The gynaecologist agreed I had normal hormones and no gyno problems or endometriosis but being
Jobie18
in
Pelvic Pain Support Network
26 days ago
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Suffering_sunny
in
Pernicious Anaemia Society
26 days ago
Affect of Alendronic acid if needing dental work?
This aspect bothers me as well as the implications of taking Alendronic acid. At age 81 after taking AA for about 18 months, I stopped it after I was prescribed HRT patches for another problem . Whilst HRT protects bones to a certain extent , I believe it doesn't increase bone density as does AA.
This aspect bothers me as well as the implications of taking Alendronic acid. At age 81 after taking AA for about 18 months, I stopped it after I was prescribed HRT patches for another problem . Whilst HRT protects bones to a certain extent , I believe it doesn't increase bone density as does AA.
moconnolly
in
PMRGCAuk
26 days ago
High TSH and High T4
Hi all! Hoping someone can answer this for me. The last week I have been getting serious symptoms with bradycardia, PVCs, and then Tachycardia, sweating, chest pressure/tightness, severe arm and leg aches. I finally ended up going to emergency. They kept me for observation and checked my heart which
Hi all! Hoping someone can answer this for me. The last week I have been getting serious symptoms with bradycardia, PVCs, and then Tachycardia, sweating, chest pressure/tightness, severe arm and leg aches. I finally ended up going to emergency. They kept me for observation and checked my heart which
brethor9
in
Thyroid UK
27 days ago
Spot Radiation before Pluvicto?
Havenāt posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
Havenāt posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
spouse21
in
Advanced Prostate Cancer
28 days ago
Help please
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
Zolap
in
Thyroid UK
28 days ago
HRT related
Hello š· Please may I ask how much HRT are ladies on? Last night I accidentally left my old Evorel patch on (1 put a new one on every 3.5 days instead of the 3 day /4 day combo) and put on the new one. I realised it this morning and took the old one off. I guess it was still giving me oestrogen because
Hello š· Please may I ask how much HRT are ladies on? Last night I accidentally left my old Evorel patch on (1 put a new one on every 3.5 days instead of the 3 day /4 day combo) and put on the new one. I realised it this morning and took the old one off. I guess it was still giving me oestrogen because
Amazon07
in
Thyroid UK
29 days ago
Is this low B12 / folate?
Hi all! Curious if anyone can advise please- I am fatigued (really struggle at work), brain fog, aches and pains - have been taking HRT for few months but not cured it! Also stable levothyroxine for many years and have Psoriasis although mild. Wondering if I should ask GP for further investigation
Hi all! Curious if anyone can advise please- I am fatigued (really struggle at work), brain fog, aches and pains - have been taking HRT for few months but not cured it! Also stable levothyroxine for many years and have Psoriasis although mild. Wondering if I should ask GP for further investigation
Ajom
in
Thyroid UK
1 month ago
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