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Lupie Diary - International 4+Syamsi Dhuha Foundation
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
change of medication to Atenolol from Bisoprolol
I have been on Bisoprolol for a couple of weeks but I haven’t felt great. I felt tired and foggy most of the time, struggled to get my breath and my feet were freezing. I have spoken to the pharmacist at our surgery and he has changed my medication to Atenolol even though he said Bisoprolol was the preferred
I have been on Bisoprolol for a couple of weeks but I haven’t felt great. I felt tired and foggy most of the time, struggled to get my breath and my feet were freezing. I have spoken to the pharmacist at our surgery and he has changed my medication to Atenolol even though he said Bisoprolol was the preferred
Wilky57
in
Atrial Fibrillation Support
5 months ago
NZ made nutrient rescue.
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
LAJ12345
in
Cure Parkinson's
8 months ago
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Persistent AF
Hello, for the past couple of years I have had paroxysmal AF which has taken increasingly long times to convert to NSR. The last few have been 22 hours and usually every couple of weeks or so. This time I was quite pleased as I went 22 days without, the longest interval for 18 months. However it's now
Hello, for the past couple of years I have had paroxysmal AF which has taken increasingly long times to convert to NSR. The last few have been 22 hours and usually every couple of weeks or so. This time I was quite pleased as I went 22 days without, the longest interval for 18 months. However it's now
Spj57
in
Atrial Fibrillation Support
5 months ago
Good news
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Spiff
in
British Liver Trust
8 months ago
The Shelagh Cheesman Lupus Information Day - 16th March
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
michaellasmith
Administrator
in
LUPUS UK
6 months ago
Endo gave me private prescription
so, good news! The private Endo appointment went as I’d hoped and he was happy to let me try T3. I’m now trying to source it. I’ve had a no back from a couple of places on the list from Thyroid UK. Thing is, I just wanted to check as on the prescription it says triiodothyronine rather than liothyronine
so, good news! The private Endo appointment went as I’d hoped and he was happy to let me try T3. I’m now trying to source it. I’ve had a no back from a couple of places on the list from Thyroid UK. Thing is, I just wanted to check as on the prescription it says triiodothyronine rather than liothyronine
Loopnova
in
Thyroid UK
5 months ago
lupus and surgery
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
Shawna3g
in
LUPUS UK
6 months ago
Selbourn
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep after the Pred! But now OK but very tired all the time could be the ANCA or the meds who knows. I am also having very vivid bad dreams, is anyone
Selbourn
in
Vasculitis UK
5 months ago
Forum Updates from 29 February 2024
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
Hello I would like to share the news with you all that our Charity Forums have recently been rebranded and renamed to reflect the condition to which each Forum provides information and support with. The Health Unlocked Team have assured us that all existing members will be unaffected by these changes
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
5 months ago
Moderate Calcification
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
Good morning all, I was recently invited for a lung check and have been recalled as the scan showed moderate Calcification. As I like to be proactive and believe this is due to fatty diet, are there any recommendations for menus that will halt (improve?) This condition. My brother dies with this condition
1AnneMcC
in
Healthy Eating
5 months ago
Post Amiodarone and waiting for ablation
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
I was on Amiodarone for 12 months after diagnosis of persistent AF post Covid and stopped taking it in October '23. I had a cardioversion in June and as far as I'm aware I'm still in sinus rhythm. I'm on the list for an ablation at the John Radcliffe in Oxford. I had a couple of blood tests, at my
JoDogBlue
in
Atrial Fibrillation Support
5 months ago
Pressure onback causing AF
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
I lay on my left side today and nasty afib came on within a couple minutes same on back. I then tried lying on right side and i felt ok with my EMAY ecg saying bradycardia. I qent to GP and she will book me in for xray back and front.Colin
Alphakiwi
in
Atrial Fibrillation Support
5 months ago
Thyroid scan
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Flick9
in
Thyroid UK
6 months ago
Low Volume Low PSA Metastatic PC.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
NDJIM
in
Advanced Prostate Cancer
8 months ago
levothyroxine induced lupus erythematosus?
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Baker16
in
Thyroid UK
6 months ago
1st patient doesd in Phase 2 trial testing vaccine for Parkinson's
------------ The first patient has been dosed in a Phase 2 clinical trial testing AC Immune’s ACI-7104.056, an investigational vaccine targeting toxic alpha-synuclein forms to [u][i]
prevent nerve cell degeneration in Parkinson’s disease.
[/i][/u] AC Immune expects to complete the enrollment
------------ The first patient has been dosed in a Phase 2 clinical trial testing AC Immune’s ACI-7104.056, an investigational vaccine targeting toxic alpha-synuclein forms to [u][i]
prevent nerve cell degeneration in Parkinson’s disease.
[/i][/u] AC Immune expects to complete the enrollment
PDWarrior1900
in
Cure Parkinson's
8 months ago
multaq and increased heart beat
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
Hi everyone haven’t posted for a while,but reading the site daily. Had my third ablation in October 2023 mostly for atypical flutter,procedure wasn’t long but quite extensive judging from post procedure troponin elevations over 20,000.Placed on Multaq afterwards as I already failed all other meds and
55zuzanka61
in
AF Association
5 months ago
20 years of drinking and want to stop but don’t dare’nt get a liver test.!!
iv been drinking beer for 20 year's, 4 to 5 pints most evenings at home after work. I know I must have damaged my liver in some way, I’m not stupid.! But my problem is that I dare’nt go for a liver function test as I also suffer with heath anxiety which doesn’t help ? Not that anyone one has asked me
iv been drinking beer for 20 year's, 4 to 5 pints most evenings at home after work. I know I must have damaged my liver in some way, I’m not stupid.! But my problem is that I dare’nt go for a liver function test as I also suffer with heath anxiety which doesn’t help ? Not that anyone one has asked me
Jetcat
in
British Liver Trust
8 months ago
Results for fatty kidney
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Pekingese
in
CLL Support
8 months ago
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