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Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
1 month ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
1 month ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
1 month ago
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How maternal lupus affects the child
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
gabriele_klim
in
LUPUS UK
1 month ago
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day?
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Shewulf
Administrator
in
LDN Research Trust
1 month ago
Alcohol home detox
hi everyone my daughter is an alcoholic and has many health issues related to her drinking. She is waiting to do a home detox which is being arranged through turning point. (She doesn’t want to go to a clinic) She was previously given a date for this but was told by the doctor at turning point that
hi everyone my daughter is an alcoholic and has many health issues related to her drinking. She is waiting to do a home detox which is being arranged through turning point. (She doesn’t want to go to a clinic) She was previously given a date for this but was told by the doctor at turning point that
Bellabinx
in
British Liver Trust
6 months ago
What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
6 months ago
Diabetes cirrhosis and HCC
Hi All. I need an honest opinion. i have posted on here a few times regarding my partner. He has compensated Cirrhosis and hcc 2cm tumor and awaitng results of biopsy to establish which treatment he will have. He has now developed diabetes and have read that this can affect mortality greatly. Does
Hi All. I need an honest opinion. i have posted on here a few times regarding my partner. He has compensated Cirrhosis and hcc 2cm tumor and awaitng results of biopsy to establish which treatment he will have. He has now developed diabetes and have read that this can affect mortality greatly. Does
pussycat66
in
British Liver Trust
6 months ago
Celiac and CKD
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
ZenPDX
in
Kidney Dialysis
6 months ago
Hello
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
Hello :) My name is Jon and i am a 54 year old man living with Palindromic rheumatism and also now recently diagnosed with Rheumatoid Arthritis as well. I have started taking steroids and naproxen but still struggle in the mornings and wake up in the night with severe pain in my hands and ankle's.
StOsyths1970
in
NRAS
1 month ago
Malar rash caused by heat?
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Hello, just wondering if this looks like a malar rash, and if so, can be triggered by heat as opposed to sunlight? I'm suspected of having cutaneous lupus (awaiting further biopsy) but when I'm very hot e.g. out of the bath, in a warm building, my face will flush. I'm careful in the sun anyway - hats
Nome11
in
LUPUS UK
1 month ago
treatment or no treatment?
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
Reacher2023
in
Advanced Prostate Cancer
6 months ago
6 years post tah bso awaiting surgery for extensive adhesions and endo .
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
endoaftertahbso
in
Endometriosis UK
6 months ago
Newly diagnosed metastatic PC treatment options
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
ShorePine
in
Advanced Prostate Cancer
6 months ago
newbie
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
Northernsouthener31
in
British Liver Trust
1 month ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
1 month ago
high alp. Very worried
hello. I posted before but I need to clarify a few points. I had blood test recently which came back Alp 177 and Alt 50. Everything else ok. I do not currently have a diagnosis of liver disease…..well not yet! I am not on any medication. Over the years I have drunk too much white wine but never
hello. I posted before but I need to clarify a few points. I had blood test recently which came back Alp 177 and Alt 50. Everything else ok. I do not currently have a diagnosis of liver disease…..well not yet! I am not on any medication. Over the years I have drunk too much white wine but never
Watersk
in
British Liver Trust
6 months ago
Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
1 month ago
blood results
can you help with my latest result please. As usual come back normal. Levothyroxine reduced 6 months ago from 125 to 100. I have Hashimotos. Sjrogren TSH. 4.6 T4 11.6 serum creatine kinase. 81
can you help with my latest result please. As usual come back normal. Levothyroxine reduced 6 months ago from 125 to 100. I have Hashimotos. Sjrogren TSH. 4.6 T4 11.6 serum creatine kinase. 81
Elaine22
in
Thyroid UK
6 months ago
Liver Palms
Hi everyone. I have been diagnosed with fatty liver and have the red "Liver palms" I have been told this is a warning sign for a damaged liver. I have been abstaining for 2 weeks now.Can anyone tell me roughly how long this will last or does it only go away when my liver is back to normal? Thanks in
Hi everyone. I have been diagnosed with fatty liver and have the red "Liver palms" I have been told this is a warning sign for a damaged liver. I have been abstaining for 2 weeks now.Can anyone tell me roughly how long this will last or does it only go away when my liver is back to normal? Thanks in
Betsy5
in
British Liver Trust
6 months ago
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