Hi there, i was diagnosed with oligometastatic pca 6 years ago,51 yo psa was 25, tried to go on a curative path and went for prostatectomy followed with radiotherapy +sbrt to ilium bone suspicion for bone met and pelvic lymph nodes +adt and abiraterone for 24 months.I have refused to chemo along the way and prefer to save it to further stages of my journey.
Stopped treatment after 2 years as planned, after few months testosterone went up and sadly so did the psa,pet psma showed involvement of supracalvicular lymph node went back on orgovyx+ abirateron, psa dropped to 0.01 .
After few months psa started rising very slowly and now after 18 months psa is 0.37, i know its pretty low but it looks like doubling time is 110 days. went through another pet psma scan and now 3-4 lesions in lymph nodes in both lungs and the supracalvicular node doubled its size to 1.4 cm.
Pet diagnosis says that there is a chance that the lung lesions are nsclc secondary lung cancer and not prostate cancer.
I have to go through biopsy to determine which one is it.
I think it's a rare combination and prefer to belive that they are prostate mets.
Is there any members of the group with PC with mets to lungs? What's your treatment protocol or options?
I'll be glade to hear some thoughts and advice how to go from here.
Have to mention that I have tried few alternatives along the way
Like Rick Simpson oil, coc protocol ,various off label drugs and supplements.
Thx