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Gorlin syndrome
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Increased Methotrexate causing bloody urine/stools.
This time next week we'll be waiting to board the plane! Yesterday I notice what I think is frank blood in my urine and stools. Today it's still there and after telling Mark I've done a little online research and think the answer is my recent increase in Mt injection. I've been alternating between
This time next week we'll be waiting to board the plane! Yesterday I notice what I think is frank blood in my urine and stools. Today it's still there and after telling Mark I've done a little online research and think the answer is my recent increase in Mt injection. I've been alternating between
IdasMum
in
PMRGCAuk
1 year ago
Sintrom
I have been on Sintrom for 6 weeks now and it is really getting me down. I am vegetarian and have been told to watch my diet for Vitamin K (found mainly in green veg), no citrus fruits, berries, coffee, garlic, also not too much of certain other veg, chickpeas, beans, peanuts, there is a long list
I have been on Sintrom for 6 weeks now and it is really getting me down. I am vegetarian and have been told to watch my diet for Vitamin K (found mainly in green veg), no citrus fruits, berries, coffee, garlic, also not too much of certain other veg, chickpeas, beans, peanuts, there is a long list
RaquelSpain
in
British Heart Foundation
1 year ago
RLS Lymphodema and MLD
I have severe RLS and severe PLMD I am currently on 0.5 clonazepam,250 pregabalin and 2mg neupro patches In march i had a knee replacement operation and after this my leg swelled up and I have been diagnosed with lymphodema. I have been prescribed Manual Lymphatic Drainage (MLD) massage therapy I
I have severe RLS and severe PLMD I am currently on 0.5 clonazepam,250 pregabalin and 2mg neupro patches In march i had a knee replacement operation and after this my leg swelled up and I have been diagnosed with lymphodema. I have been prescribed Manual Lymphatic Drainage (MLD) massage therapy I
thorp
in
Restless Legs Syndrome
10 months ago
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i have severe RLS and i take Methadone daily for this. I have recently been put on Eliquis and Spironolactone . Would either of these aggravate my RLS? Thanks for your help.
i have severe RLS and i take Methadone daily for this. I have recently been put on Eliquis and Spironolactone . Would either of these aggravate my RLS? Thanks for your help.
wairoa36
in
Restless Legs Syndrome
10 months ago
Restless Legs Syndrome
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
Longwaytoofar
in
Restless Legs Syndrome
10 months ago
Short walk Saturday
Just a short dog walk along the river this evening, the day has been full of shopping, cooking and a bit of gardening, flipping wild garlic, dig, bend, pull, shake, in the compost bin, back feels it. .happy weekend all
Just a short dog walk along the river this evening, the day has been full of shopping, cooking and a bit of gardening, flipping wild garlic, dig, bend, pull, shake, in the compost bin, back feels it. .happy weekend all
SueAppleRun
in
Active 10
1 year ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
10 months ago
Link between dry eyes and throat and PMRGCA? Any ideas?
This is my first post, so it’s a bit long-winded, as I’ve included some context and background. Context: • About 20 years ago, when I was in my mid-50s, I developed dry eyes and dry throat. This was eventually diagnosed as ‘dry eye/dry throat syndrome’. I had my tear ducts plugged to minimise loss
This is my first post, so it’s a bit long-winded, as I’ve included some context and background. Context: • About 20 years ago, when I was in my mid-50s, I developed dry eyes and dry throat. This was eventually diagnosed as ‘dry eye/dry throat syndrome’. I had my tear ducts plugged to minimise loss
allofaquandry
in
PMRGCAuk
10 months ago
CARBIDOPA 25/LEVODOPA 100MG TAB For RLS
I know this drug was talked about in relation to Parkinson's. My doctor has prescribed it for my RLS when I travel in an airplane. I am only to take no more than 3 tablets per week. Has anyone used this for traveling? Any help? Side effects? Comments, please.
I know this drug was talked about in relation to Parkinson's. My doctor has prescribed it for my RLS when I travel in an airplane. I am only to take no more than 3 tablets per week. Has anyone used this for traveling? Any help? Side effects? Comments, please.
DogBella
in
Restless Legs Syndrome
10 months ago
Ropinirole withdrawal
Hi all, newbie here. I was prescribed Ropinirole about 6 months ago, in May my ankles started to swell and got burning sensation in my feet. Saw GP again and he said it is probably diabetic neuropathy but my sugars are well controlled, anyway he put me on amitriptyline. Either of these meds was making
Hi all, newbie here. I was prescribed Ropinirole about 6 months ago, in May my ankles started to swell and got burning sensation in my feet. Saw GP again and he said it is probably diabetic neuropathy but my sugars are well controlled, anyway he put me on amitriptyline. Either of these meds was making
Mikamydog
in
Restless Legs Syndrome
10 months ago
Acid reflux
Log history of repeated chest infections that keep coming back.Cough that lasts forever. Just started to have acid reflux not helped by having garlic and onion!I have recently started coughing when eating which then sends me into a mega coughing episode Still waiting for a Respiratory review I have had
Log history of repeated chest infections that keep coming back.Cough that lasts forever. Just started to have acid reflux not helped by having garlic and onion!I have recently started coughing when eating which then sends me into a mega coughing episode Still waiting for a Respiratory review I have had
Janny1
in
Asthma Community Forum
1 year ago
Changing brands
My Pharmacy has been messing around with my ropinirole. The last batch I collected was in a small round container and the pills were so tiny. I take 0.5mg x 5 tablets per night (total 2.5g) the normal round pills worked just fine. Now these weeny little ones are making my rls bad again, I fail to
My Pharmacy has been messing around with my ropinirole. The last batch I collected was in a small round container and the pills were so tiny. I take 0.5mg x 5 tablets per night (total 2.5g) the normal round pills worked just fine. Now these weeny little ones are making my rls bad again, I fail to
mickeyrose
in
Restless Legs Syndrome
10 months ago
HCG Levels Taken on 11dp5dt
Update Beta HCG: 11dp5dt - 486 18dp5dt - 5,199 Hi Guys So my blood test taken on Monday, 11dp5dt came back as 486. I think this is a really good number. What are your thoughts? What were your HCG numbers at this stage ? Will now wait for other result to ensure its doubling and increasing as it
Update Beta HCG: 11dp5dt - 486 18dp5dt - 5,199 Hi Guys So my blood test taken on Monday, 11dp5dt came back as 486. I think this is a really good number. What are your thoughts? What were your HCG numbers at this stage ? Will now wait for other result to ensure its doubling and increasing as it
OurMiracleBabies
in
Fertility Network UK
1 year ago
DBS in restless legs syndrome: a new therapeutic approach
has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
thorp
in
Restless Legs Syndrome
10 months ago
transition from pramipexole to gabapentin
My GP initially prescribed me pramipexole which I have been taking for the last two months (one 88 microgram tablet) around 10 pm. This successfully stop my restless legs but, through this forum, I learned of the danger of augmentation. Having drawn this to the attention of my GP he agreed to switch
My GP initially prescribed me pramipexole which I have been taking for the last two months (one 88 microgram tablet) around 10 pm. This successfully stop my restless legs but, through this forum, I learned of the danger of augmentation. Having drawn this to the attention of my GP he agreed to switch
countryboy111
in
Restless Legs Syndrome
10 months ago
A post trip run
I don’t find it easy to get off a train after being away for a few days and get out and run. I do find it easy to make excuses and put it off! This time I pulled on my shorts and top and got out and started running, just to see what I could manage. It went alright and the sunshine and lovely trees
I don’t find it easy to get off a train after being away for a few days and get out and run. I do find it easy to make excuses and put it off! This time I pulled on my shorts and top and got out and started running, just to see what I could manage. It went alright and the sunshine and lovely trees
Oldlady64
in
Bridge to 10K
1 year ago
Ropinirole, Pramipexole and etc
Hi community, It's been years since I last wrote here as my RLS is quite mild. Few years ago it was quite under control even mild episodes. I used to take 0.25mg of Ropinirole (Adartel) in case of episode and it would work very well. I moved from London to Finland few years ago, and last year I started
Hi community, It's been years since I last wrote here as my RLS is quite mild. Few years ago it was quite under control even mild episodes. I used to take 0.25mg of Ropinirole (Adartel) in case of episode and it would work very well. I moved from London to Finland few years ago, and last year I started
kika82
in
Restless Legs Syndrome
10 months ago
Bit by bit
Yesterday I had a half hour session with my medical qigong teacher and he took me through all the organ health practice forms that I already know to show me modifications for my new heart condition. Also gave me two practices that will be helpful to my lungs and heart. This morning I'll be teaching my
Yesterday I had a half hour session with my medical qigong teacher and he took me through all the organ health practice forms that I already know to show me modifications for my new heart condition. Also gave me two practices that will be helpful to my lungs and heart. This morning I'll be teaching my
Kuya
in
British Heart Foundation
1 year ago
please share your thoughts
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
Lluvinlife
in
Restless Legs Syndrome
10 months ago
Buprenorphine
see a neurologist Wednesday and I'm going to talk about this medication currently I'm on 150mg pregabalin and 30mg codeine phosphate at lunch time and 300mgs plus 2 x 30mgs of codeine phosphate at bed time if the neurologist agrees has any one got thoughts on dates I should be dropping etc
see a neurologist Wednesday and I'm going to talk about this medication currently I'm on 150mg pregabalin and 30mg codeine phosphate at lunch time and 300mgs plus 2 x 30mgs of codeine phosphate at bed time if the neurologist agrees has any one got thoughts on dates I should be dropping etc
nick-the-turk
in
Restless Legs Syndrome
10 months ago
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