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update
just wanted to share the latest. You remember when I last posted I was going to Dallas for an mri/mre after a different hepatologist did a fibroscan and said stage 4 fibrosis. My regular hepatologist was in disagreement and sent me to Dallas. Radiology report said possible early cirrhosis. Scared me
just wanted to share the latest. You remember when I last posted I was going to Dallas for an mri/mre after a different hepatologist did a fibroscan and said stage 4 fibrosis. My regular hepatologist was in disagreement and sent me to Dallas. Radiology report said possible early cirrhosis. Scared me
gwillistexas
in
PBC Foundation
1 year ago
Spider Nevi
Former drinker. So I have noticed some red blemishes on my upper back. They are small but are not going away. I can't really see any blood vessels branching out from the blemish. Does spider nevi due to cirrhosis usually occur on the back? I have about three of them. I had slightly high liver enzymes
Former drinker. So I have noticed some red blemishes on my upper back. They are small but are not going away. I can't really see any blood vessels branching out from the blemish. Does spider nevi due to cirrhosis usually occur on the back? I have about three of them. I had slightly high liver enzymes
pizza07110711
in
British Liver Trust
7 months ago
Worried about blood tests
Hi, I have had mildly elevated liver enzymes since 2019. I am female, 45, BMI 24.6 and I suffer from fibroids that cause me to have extremely heavy periods and I am often anaemic. I don’t drink or do drugs. High LFTs were first picked up during routine blood tests and my doctor said not to worry about
Hi, I have had mildly elevated liver enzymes since 2019. I am female, 45, BMI 24.6 and I suffer from fibroids that cause me to have extremely heavy periods and I am often anaemic. I don’t drink or do drugs. High LFTs were first picked up during routine blood tests and my doctor said not to worry about
Jeninthesouth
in
British Liver Trust
1 year ago
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Anyone else have weird symptoms from cirrhosis?
Recently diagnosed with F3 fibrosis/cirrhosis. I do not yet have ascites, jaundice or esophageal bleeding, which I understand are the signs of decompensated liver. I do have extreme fatigue and weakness and dull pains in upper abdomen. I also have other weird pains everywhere. Pain in lower back, feet
Recently diagnosed with F3 fibrosis/cirrhosis. I do not yet have ascites, jaundice or esophageal bleeding, which I understand are the signs of decompensated liver. I do have extreme fatigue and weakness and dull pains in upper abdomen. I also have other weird pains everywhere. Pain in lower back, feet
FlippinOut
in
British Liver Trust
1 year ago
varices
I would like to thank all the people who replied the variety of experiences made me do more research and I found that Carvedilol and omeprazole are just as effective as banding, however I will ask for a further Gastroscopy in a year or two. As I’ve had a serious bleed before probably over reacted. Once
I would like to thank all the people who replied the variety of experiences made me do more research and I found that Carvedilol and omeprazole are just as effective as banding, however I will ask for a further Gastroscopy in a year or two. As I’ve had a serious bleed before probably over reacted. Once
oap74
in
British Liver Trust
7 months ago
Update on hubby
Partner had his colonoscopy today and they gave confirmed he has Bowel cancer now too. How this hasn't been picked up earlier after all tests he's had I really don't know! But how will this affect his liver? Nobody has mentioned his liver since the tumour was found, they were talking about referring
Partner had his colonoscopy today and they gave confirmed he has Bowel cancer now too. How this hasn't been picked up earlier after all tests he's had I really don't know! But how will this affect his liver? Nobody has mentioned his liver since the tumour was found, they were talking about referring
123toyouto
in
British Liver Trust
1 year ago
Fibromyalgia help! Please
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
sunflower022
in
Fibromyalgia Action UK
10 months ago
elevate ALT post transplant
Hi I had my liver transplant 6 months ago and have felt fantastic ever since. No issues after transplant and blood tests at 5 months showed my liver function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated. Put me back on
Hi I had my liver transplant 6 months ago and have felt fantastic ever since. No issues after transplant and blood tests at 5 months showed my liver function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated. Put me back on
Bantam2
in
British Liver Trust
1 year ago
How are my levels back to normal?
I heard this can happen with advancing liver disease mainly cirrhosis for a short period of time liver enzymes return to normal do to the liver being unable to simply make the enzymes as much. A little background info im 33 I have been a daily drinker since 2017 of about 6-15 beers a night with
I heard this can happen with advancing liver disease mainly cirrhosis for a short period of time liver enzymes return to normal do to the liver being unable to simply make the enzymes as much. A little background info im 33 I have been a daily drinker since 2017 of about 6-15 beers a night with
jebus22
in
British Liver Trust
1 year ago
Ibrutinib and Hepatitis B
Hello, my 72yo dad was recently diagnosed and he’s supposed to start treatment with Ibrutinib today. He had HepB as a child and I know that is a major red flag. The doctor is not very transparent about the risks and we’re freaking out. Does anyone have experience and suggestions with this? Also what
Hello, my 72yo dad was recently diagnosed and he’s supposed to start treatment with Ibrutinib today. He had HepB as a child and I know that is a major red flag. The doctor is not very transparent about the risks and we’re freaking out. Does anyone have experience and suggestions with this? Also what
Dianaaaaaaaa
in
CLL Support
1 year ago
A coarse liver?
I had an ultrasound liver scan - as my liver was damaged by taking azaphoprine that treated my ulcerative colitis. After liver biopsy They had diagnosed liver cirrhosis 4 months ago, but now ‘a coarse liver in keeping with chronic liver disease’ What does this mean? Do I still have liver cirrhosis
I had an ultrasound liver scan - as my liver was damaged by taking azaphoprine that treated my ulcerative colitis. After liver biopsy They had diagnosed liver cirrhosis 4 months ago, but now ‘a coarse liver in keeping with chronic liver disease’ What does this mean? Do I still have liver cirrhosis
Bucket13
in
British Liver Trust
1 year ago
Advice for treatment of liver metastases.
Hi Ladies I finished chemo in February for second recurrence. Unfortunately my CA125 was rising, was 9 the 27 now 55 and it's a good indicator for me that something is happening. Had a CT and it shows one tumor 2.4cms in my liver. All clear otherwise. Lots of emotions. Disappointed but relieved it's
Hi Ladies I finished chemo in February for second recurrence. Unfortunately my CA125 was rising, was 9 the 27 now 55 and it's a good indicator for me that something is happening. Had a CT and it shows one tumor 2.4cms in my liver. All clear otherwise. Lots of emotions. Disappointed but relieved it's
Seedlings
in
My Ovacome
1 year ago
Involvement Opportunity for those diagnosed with Alcohol Related Liver Disease (ARLD) and fibrosis (UK)
Opportunity for those diagnosed with Alcohol Related Liver Disease and fibrosis to take part in the Boehringer Ingelheim 1366-0021 clinical research study
We know that healthy changes can be extremely difficult to make and maintain even when determined. Liver damage caused by alcohol can lead
Opportunity for those diagnosed with Alcohol Related Liver Disease and fibrosis to take part in the Boehringer Ingelheim 1366-0021 clinical research study
We know that healthy changes can be extremely difficult to make and maintain even when determined. Liver damage caused by alcohol can lead
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
FibroScan - how many probe flicks for an accurate reading?
Hello, my lovely friends! I’ve been around here for over a year, but have not posted much - just observing other posts to find answers to my questions… First of all, thank you all for contributing to this forum, your help is much appreciated. My storey in short. I am 43, been misusing alcohol for
Hello, my lovely friends! I’ve been around here for over a year, but have not posted much - just observing other posts to find answers to my questions… First of all, thank you all for contributing to this forum, your help is much appreciated. My storey in short. I am 43, been misusing alcohol for
serhiy19k
in
British Liver Trust
1 year ago
Dad has stage 4 cirrhosis
Hi everyone, I have recently found out my dad has stage 4 liver cirrhosis. He isn't eligle for a liver transplant the doctors said he wouldn't be a candidate ( I think this may be because he has COPD) . I'm just so heart broken and so is my Dad. I'm trying to understand what this means for him though.Can
Hi everyone, I have recently found out my dad has stage 4 liver cirrhosis. He isn't eligle for a liver transplant the doctors said he wouldn't be a candidate ( I think this may be because he has COPD) . I'm just so heart broken and so is my Dad. I'm trying to understand what this means for him though.Can
Lplplp14
in
British Liver Trust
1 year ago
Any alcohol?
hi all I’ve been diagnosed with NAFLD. I had a fibroscan which showed a reading of 20 so possible borderline cirrhosis. However my gastro consultant said he didnt feel this was entirely accurate and it’s maybe not progressed that far yet, please god. My question is, and I think I know the answer
hi all I’ve been diagnosed with NAFLD. I had a fibroscan which showed a reading of 20 so possible borderline cirrhosis. However my gastro consultant said he didnt feel this was entirely accurate and it’s maybe not progressed that far yet, please god. My question is, and I think I know the answer
Honeysuckle123
in
British Liver Trust
1 year ago
Cirrhosis and elevated reticulocytes
Hi, has anyone with Cirrhosis had a blood test showing a high reticulocyte count ?
Hi, has anyone with Cirrhosis had a blood test showing a high reticulocyte count ?
Cat1218
in
British Liver Trust
1 year ago
Binge Drinking with mild fatty liver leading to RUQ discomfort and nausea - help!
I posted 2 months ago in relation to being a very heavy drinker who had tried to become sober after an ultrasound showed mild fatty infiltration which was reversible earlier this year but I then lapsed and was terrified of having caused further damage. I was lucky to have a blood tests and an ultrasound
I posted 2 months ago in relation to being a very heavy drinker who had tried to become sober after an ultrasound showed mild fatty infiltration which was reversible earlier this year but I then lapsed and was terrified of having caused further damage. I was lucky to have a blood tests and an ultrasound
LeWabbit
in
British Liver Trust
8 months ago
Liver transplant advice - missing IVC vein.
Hello everyone! It has been some time since I last visited this forum, but I wanted to reach out for some advice. Any reply no matter how small would appreciated. My wife has been experiencing liver pain for almost 8 years. About a year ago, she underwent a fibro scan, which showed a reading of
Hello everyone! It has been some time since I last visited this forum, but I wanted to reach out for some advice. Any reply no matter how small would appreciated. My wife has been experiencing liver pain for almost 8 years. About a year ago, she underwent a fibro scan, which showed a reading of
RAAN88
in
British Liver Trust
1 year ago
Defenestration or detouring of cysts in PLD
Recently went to King’s London for possible liver transplant tests due to a large polycystic liver and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
Recently went to King’s London for possible liver transplant tests due to a large polycystic liver and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
PostivelyJo
in
British Liver Trust
1 year ago
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