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Feeling like Chemo is too Hard
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
delia2
in
My Ovacome
5 months ago
First blood test after starting Peg 17/12/2023
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Carol0925
in
MPN Voice
7 months ago
Mutations
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
Healthplus1
in
SHARE Metastatic Breast Cancer
7 months ago
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Ovarian cancer advice
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
Diagnosed 2 years ago chemo every 3 weeks for 5 months rest good for 18 months iincureablle stage 4 serious had op blockage removed part bowel husband had heart attack passed that very hard still greaving come back on ovary and spleen part bowel had another 4 sessins chemo lost hair again they
PaumicB123
in
My Ovacome
7 months ago
new model for bone marrow behavior is a hope for finding bone metastasis remedies!
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
”What results were found from your investigation? It did mimic the effects that we see in the clinical scenario. It has been exciting. The other nice thing about this model is it doesn't have to only be utilized for bone sarcomas and creates the microenvironment from which a bone sarcoma might arise
Maxone73
in
Advanced Prostate Cancer
7 months ago
Newly diagnosed Stage 4
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
hello I’m new here I’m very happy to be there. I read a lot of stories about people with Metastase breast cancer. Thank you so much you give me a lot of hope. Thanks again I’m 33, Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy,
life2990
in
SHARE Metastatic Breast Cancer
7 months ago
How to Know When Disimpaction is Complete
I'm doing disimpaction for my 7 year old. She's been constipated and on laxatives for years. I did 2 weeks of the sachet schedule and then 6 days adding bisacodyl tablet at night & suppository morning. She's had very watery stool (sometimes clear or light brown with just tiny bits spraying out, sometimes
I'm doing disimpaction for my 7 year old. She's been constipated and on laxatives for years. I did 2 weeks of the sachet schedule and then 6 days adding bisacodyl tablet at night & suppository morning. She's had very watery stool (sometimes clear or light brown with just tiny bits spraying out, sometimes
Maplelover
in
ERIC
5 months ago
worried
Hi there, I’ve been struggling with constipation for a few years but recently every 2-3 weeks when I actually need to go I get shocking pains that feel like I’m in labour but am constipated for ages and then awful runs that have blood. I have a niggly right hand pain, feel full very quick and not eating
Hi there, I’ve been struggling with constipation for a few years but recently every 2-3 weeks when I actually need to go I get shocking pains that feel like I’m in labour but am constipated for ages and then awful runs that have blood. I have a niggly right hand pain, feel full very quick and not eating
Sarah1611
in
Crohn's and Colitis Support
5 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Prostate Cancer Network
7 months ago
Exciting Announcement
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator Cancer Copilot -- https
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
which steroids and what dosage.
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Don’t know if the steroid Dexamethosone would be appropriate for brain cancer but your doctor should know. It is given to me every 21 days at Docetaxel chemo infusion for PCa and absolutely eliminates pains. Can last for 12-18 hours. Ask your doc about it. Mike Seattle
Leader4077
in
Advanced Prostate Cancer
7 months ago
ibs an a wee rant
Hi, it’s been a while since I last posted re ibs. It’s been 20 odd years that I’ve gradually suffered (more) with what I thought and was told was ibs. I’ve tried various diets/ over counter meds/ prescribed meds, basically spent a small fortune trying out various things. Over the last few years my diarrhoea
Hi, it’s been a while since I last posted re ibs. It’s been 20 odd years that I’ve gradually suffered (more) with what I thought and was told was ibs. I’ve tried various diets/ over counter meds/ prescribed meds, basically spent a small fortune trying out various things. Over the last few years my diarrhoea
BaneOfRagnar
in
IBS Network
5 months ago
Confusing CT scan results
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
My PSA has been rising slowly after prostate removal two years ago. Was at zero months after and slowly rising at .02,.03. .05, .06. .09 and then .13. My doctor ordered CT and bone scans. Bone scan came back clear and then CT scan showed a few things in bones and a nonspecific mass outside the liver
Jens99
in
Advanced Prostate Cancer
7 months ago
T4 and integrin receptors
I've come across integrin receptors mentioned in a few papers recently where t4 seems to have some activity (generally its assumed t4 is not an active hormone), so was interested to read the following paper. This is yet another good reason for t3/t4 combination treatment. "Preliminary clinical evidence
I've come across integrin receptors mentioned in a few papers recently where t4 seems to have some activity (generally its assumed t4 is not an active hormone), so was interested to read the following paper. This is yet another good reason for t3/t4 combination treatment. "Preliminary clinical evidence
Forestgarden
in
Thyroid UK
7 months ago
Diagnosed today with an acoustic Neuroma.
Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in Manchester. Can anyone tell me what to expect now ? Did anyone have any treatment for it ? Thank you.
Reddington__
in
Acoustic Neuroma Support
7 months ago
Inulin
Hi AllLooking for some advice on Inulin...dietary fibre. Wondering wether to give it a go reading about it, seems to benefit just about everything!! Is it good for us 'Thyroids' though? Has anyone tried it? And does it cause bloatedness/flatulance/diarrhoea? If it helps constipation, cholesterol, belly
Hi AllLooking for some advice on Inulin...dietary fibre. Wondering wether to give it a go reading about it, seems to benefit just about everything!! Is it good for us 'Thyroids' though? Has anyone tried it? And does it cause bloatedness/flatulance/diarrhoea? If it helps constipation, cholesterol, belly
MissDemeanour191
in
Thyroid UK
5 months ago
Latest results - 6 weeks pregnant
Hello friends 😊 Following my last tests (a bit over 2 months ago), I added vitamin b12 drops 3 days a week, have cut down my B complex to 1 capsule, and I taking a separate Folate supplement as this was getting quite high, and it was pointed out to me that it is a "Goldilocks vitamin" when trying to
Hello friends 😊 Following my last tests (a bit over 2 months ago), I added vitamin b12 drops 3 days a week, have cut down my B complex to 1 capsule, and I taking a separate Folate supplement as this was getting quite high, and it was pointed out to me that it is a "Goldilocks vitamin" when trying to
Molly161018
in
Thyroid UK
5 months ago
Update: opinions please
Juat been told I have liw vitamin D.Could this be a reason my b12 was also low? I've read low vit D can effect B12 absorbtion. Is that correct?
Juat been told I have liw vitamin D.Could this be a reason my b12 was also low? I've read low vit D can effect B12 absorbtion. Is that correct?
Popcorn12345
in
Pernicious Anaemia Society
5 months ago
hole in windpipe
I’m 3 years post Ivor Lewis, 2023 scan showed cancer in lymph node in neck had chemo and radiation, the radiation has now caused a hole in my windpipe that makes my saliva go down wrong pipe, causing chest infections just out of hospital after phenomena. Constant coughing . They first said could put
I’m 3 years post Ivor Lewis, 2023 scan showed cancer in lymph node in neck had chemo and radiation, the radiation has now caused a hole in my windpipe that makes my saliva go down wrong pipe, causing chest infections just out of hospital after phenomena. Constant coughing . They first said could put
Von66
in
Oesophageal & Gastric Cancer
5 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
4 months ago
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