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Zencor & XmAb
My MO discussed a clinical trial for me today if I qualify with the required genetic markers. My most recent PSMA scan showed further progression of metastasis in bone and lymph nodes and my PSA has increased fairly rapidly. Currently taking both Orgovyx & Nubeqa. I'm hoping some of the smart and
My MO discussed a clinical trial for me today if I qualify with the required genetic markers. My most recent PSMA scan showed further progression of metastasis in bone and lymph nodes and my PSA has increased fairly rapidly. Currently taking both Orgovyx & Nubeqa. I'm hoping some of the smart and
AllenMarco
in
Advanced Prostate Cancer
9 months ago
Anxiety
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Rajlover
in
Anxiety and Depression Support
4 months ago
is there any hope for me
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
I haven’t posted much about my journey. I am in the USA. I have never been in true remission. I am braca neg, her2 negative, folate on at 60 % HGS. No mutations in cancer tumor or me. Diagnosed Dec 2019 stage 3c now stage 4 metastasis Here is how much I have fought: Dec2019 full debunking surgery
Summergold2
in
My Ovacome
9 months ago
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Alicia Morgans, MD, on PCa in Older Men – Determining frailty or fitness will help guide treatment decisions, MedPageToday, 11/27/2023
Those who dig deep into research methodologies know well the inherent biases that riddle much scientific and medical research. [i](See my postscript reference below) [/i]Clinical trials are not exceptions to these biases and, as drug companies look to produce the best outcomes for their clinical trials
Those who dig deep into research methodologies know well the inherent biases that riddle much scientific and medical research. [i](See my postscript reference below) [/i]Clinical trials are not exceptions to these biases and, as drug companies look to produce the best outcomes for their clinical trials
cujoe
in
Fight Prostate Cancer
9 months ago
Stay positive
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Diagnosed march 2021. Debunking surgery 12 rounds chemo. Then onto Zedula . All good until November 2022 more chemo for recurrence then Avastin . My Ca125 stable but just crept up to 36 so need scan and if any signs perhaps more chemo.I have coped really well no real side effects just inally lost
Guenivere
in
My Ovacome
9 months ago
calprotectin level 2000
hi looking for some support, I have always had a sensitive tummy but during pregnancy I got really poorly and had so much stomach pain fatigue etc nothing was ever pin pointed until about 6 months after having my daughter where I had another agonising flare up, I did the tests they asked for and my calprotectin
hi looking for some support, I have always had a sensitive tummy but during pregnancy I got really poorly and had so much stomach pain fatigue etc nothing was ever pin pointed until about 6 months after having my daughter where I had another agonising flare up, I did the tests they asked for and my calprotectin
Onestressedlady
in
Crohn's and Colitis Support
7 months ago
Positive ANA and Symptoms
Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:1280 This was never really followed up & I didn't understand it as I was only young then, but in thr last 5 years I've been experiencing symptoms. I have had more blood tests just from a GP who said ANA aas positive and explained
Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:1280 This was never really followed up & I didn't understand it as I was only young then, but in thr last 5 years I've been experiencing symptoms. I have had more blood tests just from a GP who said ANA aas positive and explained
JCM1992
in
LUPUS UK
6 months ago
Terrys nails
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
hi there, I’m just wondering if anyone with PBC has experience with Terrys nails? I have it on 5 of my finger nails (2 on one hand and 3 on another). My liver bloods are normal just now except for GGT (112) and my last fibroscan was 5.7 with CAP score of 233. Both AMA and ANA positive but my hepatoligist
FarahS
in
PBC Foundation
6 months ago
Finally diagnosed after twenty years!
I have finally got a diagnosis of IBS after at least twenty years of endoscopies, colonoscopies, scans, investigations, etc, etc. Strangely I feel much better even though they say it's a lifelong condition with no cure. My problem today is that it's after half past six in the evening, I have had one
I have finally got a diagnosis of IBS after at least twenty years of endoscopies, colonoscopies, scans, investigations, etc, etc. Strangely I feel much better even though they say it's a lifelong condition with no cure. My problem today is that it's after half past six in the evening, I have had one
Merry_Widow
in
IBS Network
7 months ago
Raised Liver Markers - Octasa/ Mesalamine?
I started taking Octasa for Crohns in October 23. Just had blood tests (for another issue) and dr called to say that my liver enzyme markers were raised (ALT 255, AST 99, ALP 239, GT 334.. all substantially above the top end of normal) and they want to do an ultrasound to check my liver. The only difference
I started taking Octasa for Crohns in October 23. Just had blood tests (for another issue) and dr called to say that my liver enzyme markers were raised (ALT 255, AST 99, ALP 239, GT 334.. all substantially above the top end of normal) and they want to do an ultrasound to check my liver. The only difference
VV_1990
in
Crohn's and Colitis Support
7 months ago
Recently started Acalabrutinib
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Healthgiddy
in
CLL Support
4 months ago
confused about bowels
Hi everyone so was just wondering if anyone had similar symptoms. Iv had 3 children in less then 5 years, after my second born in 2021 i started getting piles every month. after my baby boy was born in May 2023 I also got the piles but probably once every few months , I was on iron tablets while pregnant
Hi everyone so was just wondering if anyone had similar symptoms. Iv had 3 children in less then 5 years, after my second born in 2021 i started getting piles every month. after my baby boy was born in May 2023 I also got the piles but probably once every few months , I was on iron tablets while pregnant
Purplelover3
in
Bowel Disease Support
7 months ago
Buprenorphine and Nausea
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
davchar23
in
Restless Legs Syndrome
4 months ago
Salofalk foam enema - should I feel it?
Thanks in advance if anyone has experience using foam enemas - in particular, Salofalk. I just had colonoscopy and endoscopy 2 days ago after suffering a UC flare up as a result of COVID with intestinal symptoms in November. Was very shocked and disappointed to learn that my ulcerative proctitis has
Thanks in advance if anyone has experience using foam enemas - in particular, Salofalk. I just had colonoscopy and endoscopy 2 days ago after suffering a UC flare up as a result of COVID with intestinal symptoms in November. Was very shocked and disappointed to learn that my ulcerative proctitis has
Bunnygirl1
in
Crohn's and Colitis Support
7 months ago
Sigmoidoscopy
Had a ct scan with contrast dye last year and nothing was found. Was given antibiotics for suspected giardia and everything settled down for 7 months then Christmas came had a few foods that may have caused some issues as I'm lactose intolerant and other foods can cause problems at times too also had
Had a ct scan with contrast dye last year and nothing was found. Was given antibiotics for suspected giardia and everything settled down for 7 months then Christmas came had a few foods that may have caused some issues as I'm lactose intolerant and other foods can cause problems at times too also had
Sooty712
in
Crohn's and Colitis Support
7 months ago
Purpura and b12 deficiency, Query
Does anyone else suffer with purpura on here and have a b12 deficiency or low iron? Im just trying to figure out if theyre linked or not? Thanx
Does anyone else suffer with purpura on here and have a b12 deficiency or low iron? Im just trying to figure out if theyre linked or not? Thanx
jadeite11
in
Pernicious Anaemia Society
7 months ago
BCG - intravesical immunotherapy - Update.
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Got a letter this morning giving me dates for this treatment. 7th December - 14th December and 21st December. While I am pleased to finally have got my dates, I remain uneasy as normally the outcome of biopsies are in the letter. For the first time since my diagnosis, i do not know the findings of
Ern007
in
Lung Conditions Community Forum
9 months ago
Lactose intolerant
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
Karen-Eleanor
in
Thyroid UK
7 months ago
worried and anxious
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
My lung cancer growth is small and operable. I just feel so worried and anxious it’s spread. As well as the operation to remove the growth with lower lung they are going to take lymph node sampling. I wondered if this is usual and would love to hear from anyone who has had this done. I’m planning to
Sally789
in
The Roy Castle Lung Cancer Foundation
9 months ago
b12 injections making me worse
Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on b12 injections. I have had 3 out of 6 so far, but instead of feeling better my symptoms seem to be getting worse. I can't think straight and missed my 4th b12 injection today because I thought it was at a different time
Hi, My bloods came back as having a serum b12 of 73 so my doctor started me on b12 injections. I have had 3 out of 6 so far, but instead of feeling better my symptoms seem to be getting worse. I can't think straight and missed my 4th b12 injection today because I thought it was at a different time
hc918
in
Pernicious Anaemia Society
7 months ago
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