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A warrior’s journey, QOL, wisdom?
From initial diagnosis through every lab test, imaging study, and treatment decision, this journey took enormous physical, emotional and spiritual fortitude. No matter the course or the length, hold your loved ones close, continue to plan adventures, and never give up hope. My husband used to say “
From initial diagnosis through every lab test, imaging study, and treatment decision, this journey took enormous physical, emotional and spiritual fortitude. No matter the course or the length, hold your loved ones close, continue to plan adventures, and never give up hope. My husband used to say “
MaxWife
in
Advanced Prostate Cancer
5 months ago
Anecdotal, but running could boost immunity
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
PeggySusi
Graduate
in
Couch to 5K
5 months ago
additional comments on second pathology
Hello, I just received additional comments on second opinion surgical pathology. I was wondering if you can provide feedback because I don’t understand. I am seeing PA on Friday so I need to ask the right questions. Please help me understand this. I have Gleason 3+4 (40% 4) plus intraductal. Negative
Hello, I just received additional comments on second opinion surgical pathology. I was wondering if you can provide feedback because I don’t understand. I am seeing PA on Friday so I need to ask the right questions. Please help me understand this. I have Gleason 3+4 (40% 4) plus intraductal. Negative
Granolaberry
in
Prostate Cancer Network
5 months ago
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Suboxone works!
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023, my sleep study doctor, at The University of Michigan, prescribed Suboxone. Also known as Buprenorphine and Naloxone 2 mg/0.5 mg. It is a sublingual
Happygrandmother
in
Restless Legs Syndrome
5 months ago
In vivo: nanocarriers to deliver precision chemotherapy
A bit premature, but... Tests verified the ATP-modified PLGA nanoparticles were well tolerated in mice upon multiple systemic injections. They were able to recruit dendritic cells, the immune cells that recognize tumor antigens and bring specialized immune cells to fight off tumors. "Moreover, the
A bit premature, but... Tests verified the ATP-modified PLGA nanoparticles were well tolerated in mice upon multiple systemic injections. They were able to recruit dendritic cells, the immune cells that recognize tumor antigens and bring specialized immune cells to fight off tumors. "Moreover, the
Maxone73
in
Advanced Prostate Cancer
5 months ago
Accuracy of PSMA PET scan?
What would you venture to guess is the accuracy of the PSMA PET scan? How many of you showed "no spread" with your PSMA scan, but then learned via surgery or otherwise that there WAS spread which wasn't detected with the PSMA scan? And, how much better is the new Posluma scan vs Pylarify? My husband
What would you venture to guess is the accuracy of the PSMA PET scan? How many of you showed "no spread" with your PSMA scan, but then learned via surgery or otherwise that there WAS spread which wasn't detected with the PSMA scan? And, how much better is the new Posluma scan vs Pylarify? My husband
Adendino
in
Advanced Prostate Cancer
5 months ago
I am terminal
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Pumpkininja
in
My Ovacome
3 months ago
Post Op
Done my liver resection on 14 March 2024 coz found tumour in it since 2023. Went through Y90 treatment to shrink the tumour. Doc removed the tumour via keyhole with a drainage wound. After the op, stayed in hospital for 7 days till I’m stable and independent enough to walk on my own so wouldn’t be
Done my liver resection on 14 March 2024 coz found tumour in it since 2023. Went through Y90 treatment to shrink the tumour. Doc removed the tumour via keyhole with a drainage wound. After the op, stayed in hospital for 7 days till I’m stable and independent enough to walk on my own so wouldn’t be
SunnyShoe
in
British Liver Trust
5 months ago
Pluvicto Question
Hi Fellow Warriors! Six months of Taxotere failed miserably. After 8 rounds, I was done. After chemo, my second PSMA-PET showed additional bone mets and a spread to the lymph nodes. My MO told me I was a good candidate for Pluvicto, so, three months after finishing Taxotere, I started that therapy
Hi Fellow Warriors! Six months of Taxotere failed miserably. After 8 rounds, I was done. After chemo, my second PSMA-PET showed additional bone mets and a spread to the lymph nodes. My MO told me I was a good candidate for Pluvicto, so, three months after finishing Taxotere, I started that therapy
MJCA
in
Advanced Prostate Cancer
5 months ago
Dutasteride Reduces Tumor Volume by 30% after 6 months.
This chart compares prostate cancer tumor volume measured by MRI, at baseline and at 6 months, comparing placebo to Dutasteride. This was a randomized, double-blind, placebo-controlled clinical trial. The cohort included Low and Intermediate Risk men, GS-6-7, baseline PSA = 6-7, median age 64 y.o,
This chart compares prostate cancer tumor volume measured by MRI, at baseline and at 6 months, comparing placebo to Dutasteride. This was a randomized, double-blind, placebo-controlled clinical trial. The cohort included Low and Intermediate Risk men, GS-6-7, baseline PSA = 6-7, median age 64 y.o,
janebob99
in
Prostate Cancer Network
5 months ago
CGA and urogram
Hi All good advisers. Have been on pred for CGA since July 2023, starting at 60mg. now at 12 mg with very slow taper. I am having a kidney urogram this April. I am also on metformin 3 x daily 500 mg. I have read that I should stop taking metformin before this procedure. How many days before should
Hi All good advisers. Have been on pred for CGA since July 2023, starting at 60mg. now at 12 mg with very slow taper. I am having a kidney urogram this April. I am also on metformin 3 x daily 500 mg. I have read that I should stop taking metformin before this procedure. How many days before should
Groda
in
PMRGCAuk
5 months ago
Ashwagandha 1,000 mg
Hi everyone,I've been suffering from bad fatigue for months, as well as having prostate cancer last year, psa is good on last test, hot sweats reduced! I have purchased Ashwagandha from amazon, read lots of Google good and bads about it, but worried as quite a lot mentioned if on thyroid medication or
Hi everyone,I've been suffering from bad fatigue for months, as well as having prostate cancer last year, psa is good on last test, hot sweats reduced! I have purchased Ashwagandha from amazon, read lots of Google good and bads about it, but worried as quite a lot mentioned if on thyroid medication or
Tracy99
in
Thyroid UK
5 months ago
How do you contact your Rheumatologist?
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
Hi lovely Lupies. Just a quick question to people in the UK regarding how you make contact with your Rheumy? I have never tried to contact my Rheumy here in `wales previously but at my last two appointments he said if you are struggling with flares contact me. Well since coming out if hospital I am
CecilyParsley
in
LUPUS UK
5 months ago
borderline tumor
Hi, my consultant can see a 2.2cm cyst on my ovary that he said might be a borderline tumor. Needless to say I am worried, what are the chances of the tumor being actual cancer? Does anyone know how accurate an ultrasound is? They are doing an MRI soon but I am going out of my mind with worry.
Hi, my consultant can see a 2.2cm cyst on my ovary that he said might be a borderline tumor. Needless to say I am worried, what are the chances of the tumor being actual cancer? Does anyone know how accurate an ultrasound is? They are doing an MRI soon but I am going out of my mind with worry.
Scared-88
in
My Ovacome
5 months ago
Faslodex et ses effets secondaire
J'ai été opérée d'un cancer du sein en 2018 et traitée par chimio et radiothérapie ensuite, j'ai reçu de l'anastrozol pour 7 ans. Malheureusement, j'ai rechuté au bout de 5 ans, j'ai de nombreuses métastases osseuses sur la colonne, le bassin et la voute crânienne. Au départ j'ai eu Verzenios pendant
J'ai été opérée d'un cancer du sein en 2018 et traitée par chimio et radiothérapie ensuite, j'ai reçu de l'anastrozol pour 7 ans. Malheureusement, j'ai rechuté au bout de 5 ans, j'ai de nombreuses métastases osseuses sur la colonne, le bassin et la voute crânienne. Au départ j'ai eu Verzenios pendant
irisF
in
SHARE Metastatic Breast Cancer
5 months ago
Bilateral frontal calvarial metastases
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
kklott01
in
Advanced Prostate Cancer
5 months ago
Herceptin Perjeta and Faslodex advice?? And sadly bye bye Ibrance
Hi ladies , I’m reposting a briefer message from yesterday since it has 0 replies . Ibrance stopped working and I’m going on those 3 combinations - ty for all the earlier comments/tips I’ve read about Faslodex shots I’m looking for anyone who has done these three combinations and your symptoms . Guessing
Hi ladies , I’m reposting a briefer message from yesterday since it has 0 replies . Ibrance stopped working and I’m going on those 3 combinations - ty for all the earlier comments/tips I’ve read about Faslodex shots I’m looking for anyone who has done these three combinations and your symptoms . Guessing
Georgelila
in
SHARE Metastatic Breast Cancer
5 months ago
Scared of the Future.....
My husband (42M) has been having the feeling of needing to use the bathroom 7-10 times a day, and it always comes out as gas or diarrhea, loose watery stools. I had him to our primary doctor and get some tests run. All of his bloodwork has come back ok, his platelets are a little high, but his iFOBT
My husband (42M) has been having the feeling of needing to use the bathroom 7-10 times a day, and it always comes out as gas or diarrhea, loose watery stools. I had him to our primary doctor and get some tests run. All of his bloodwork has come back ok, his platelets are a little high, but his iFOBT
MisSchulte
in
Colon Cancer Connected
3 months ago
xeloda
I take 3000 a day and I weigh 135 lbs. My regime is 7 days on and 7 days off. However I started with 3500 and that really affected my hands and they lowered my dosage. I am still having challenges with my hands but it’s not bad. They get extremely dry and crack, so I try to keep them moisturized
I take 3000 a day and I weigh 135 lbs. My regime is 7 days on and 7 days off. However I started with 3500 and that really affected my hands and they lowered my dosage. I am still having challenges with my hands but it’s not bad. They get extremely dry and crack, so I try to keep them moisturized
Kofipuppy
in
SHARE Metastatic Breast Cancer
5 months ago
Temporary stoppage of Ibrutinib
I need to stop IB one week pre/post surgery. Today is day 3. Has anyone started feeling reversal symptoms? I’m feeling more fatigued. Hoping my lymph nodes issues don’t return. Just curious.
I need to stop IB one week pre/post surgery. Today is day 3. Has anyone started feeling reversal symptoms? I’m feeling more fatigued. Hoping my lymph nodes issues don’t return. Just curious.
CoBubby
in
CLL Support
5 months ago
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