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Experiences with
Gaucher disease type 3 (GD3)
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Slow Heart Rate
Does anyone else get episodes when their heart rate goes very low? I’m in AF the whole time and the only medication I’m on is propranolol. Since being AF my heart rate has increased but not massively and I tend to be around 80bpm. As far as I can tell my heart rate never goes above 100 unless with
Does anyone else get episodes when their heart rate goes very low? I’m in AF the whole time and the only medication I’m on is propranolol. Since being AF my heart rate has increased but not massively and I tend to be around 80bpm. As far as I can tell my heart rate never goes above 100 unless with
Peakoverload
in
Atrial Fibrillation Support
5 months ago
Nuelasta shot after Jevtana and Carboplatin treatment
I get a nuelasta shot 24 hours after receiving my Jevtana and Carboplatin iinfusion. I'm having major body aches for 2 to 3 days after receiving the shot to boost my white blood counts. None of my various pain medications works. Anyone have this problem or have an answer to help with the pain? Believe
I get a nuelasta shot 24 hours after receiving my Jevtana and Carboplatin iinfusion. I'm having major body aches for 2 to 3 days after receiving the shot to boost my white blood counts. None of my various pain medications works. Anyone have this problem or have an answer to help with the pain? Believe
robert570
in
Advanced Prostate Cancer
8 months ago
Heart Rate Monitors
This may be a silly question but I'm a little confused. Whenever I see a doctor I'm often asked if I have a heart rate monitor and a blood pressure machine that can deal with AF. My BP machine can't detect AF but seems to be accurate otherwise when compared to readings at my GP. When it comes to heart
This may be a silly question but I'm a little confused. Whenever I see a doctor I'm often asked if I have a heart rate monitor and a blood pressure machine that can deal with AF. My BP machine can't detect AF but seems to be accurate otherwise when compared to readings at my GP. When it comes to heart
Peakoverload
in
Atrial Fibrillation Support
5 months ago
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road to diagnosis
Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so far. It all started when I started getting redness and discolouration in both feet. My GP did a blood test and referred me to my rheumatologist for further assessment. My rheumatologist felt that my feet getting red was
Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so far. It all started when I started getting redness and discolouration in both feet. My GP did a blood test and referred me to my rheumatologist for further assessment. My rheumatologist felt that my feet getting red was
RA_123
in
LUPUS UK
6 months ago
A difficult journey
Hi people. I’d like to thank all the contributors here, all posts, whether the particular run/walk was successful or not so much, invoke positive and inspiring replies, and it is this that has prompted me to also drop a post. Back in October I had my second heart attack which, again, compounded my
Hi people. I’d like to thank all the contributors here, all posts, whether the particular run/walk was successful or not so much, invoke positive and inspiring replies, and it is this that has prompted me to also drop a post. Back in October I had my second heart attack which, again, compounded my
Num29
in
Couch to 5K
5 months ago
GCA diagnostic dilemma
Thank you everyone who has helped so far. Last night I had a message from Rheumy saying I should go to the hospital for an emergency biopsy, with the headache and unusual severe temporal pain being the driver. He said that U/S was so ‘operator sensitive’ as to be unreliable in this ‘locality’. The
Thank you everyone who has helped so far. Last night I had a message from Rheumy saying I should go to the hospital for an emergency biopsy, with the headache and unusual severe temporal pain being the driver. He said that U/S was so ‘operator sensitive’ as to be unreliable in this ‘locality’. The
Predderman2020
in
PMRGCAuk
8 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
1st question re cardioversion
Hello everyone - I'm 68 and have had AF for about 2 years. Apart from a brief conversation re cardioversion and ablation when I was 1st diagnosed, none of the cardiologists I have seen have suggested that I should have cardioversion. I am currently taking 10mg of Bisoprolol a day in two 5mg tablets,
Hello everyone - I'm 68 and have had AF for about 2 years. Apart from a brief conversation re cardioversion and ablation when I was 1st diagnosed, none of the cardiologists I have seen have suggested that I should have cardioversion. I am currently taking 10mg of Bisoprolol a day in two 5mg tablets,
AFresearcher
in
AF Association
5 months ago
Bob Mortimer
Bob has brought Rheumatoid Arthritis into the conversation with the Christmas special I knew he had health issues but didn't know Arthritis until he mentioned on the programme. I read his autobiography which is good poignant and funny. Arthritis is not mentioned. He says diagnosed in 20s but he was
Bob has brought Rheumatoid Arthritis into the conversation with the Christmas special I knew he had health issues but didn't know Arthritis until he mentioned on the programme. I read his autobiography which is good poignant and funny. Arthritis is not mentioned. He says diagnosed in 20s but he was
welsh12
in
NRAS
6 months ago
Do you know the difference between a sudden cardiac arrest (SCA) and a heart attack?
Would you be able to tell the difference between a Sudden Cardiac Arrest (SCA) and a Heart Attack? If so, would you know what to do? A sudden cardiac arrest is often misunderstood to be the same as a heart attack.
They are not the same.
They are both an emergency situation. To learn more
Would you be able to tell the difference between a Sudden Cardiac Arrest (SCA) and a Heart Attack? If so, would you know what to do? A sudden cardiac arrest is often misunderstood to be the same as a heart attack.
They are not the same.
They are both an emergency situation. To learn more
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
5 months ago
Do you know your heart rhythm?
Do you or a friend or family member experience chest pain, palpitations, shortness or breath or light-headedness? Do you know if you pulse is too fast, too slow or irregular? Did you know a simple pulse check only takes 30 seconds?
Know Your Pulse to Know Your Heart Rhythm -
[i]
It could
Do you or a friend or family member experience chest pain, palpitations, shortness or breath or light-headedness? Do you know if you pulse is too fast, too slow or irregular? Did you know a simple pulse check only takes 30 seconds?
Know Your Pulse to Know Your Heart Rhythm -
[i]
It could
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
5 months ago
Started simple stretching today.
I'm 67, have a bad hip, first stage hypertension, am overweight (though have lost 10kg !) And am as stiff as a board. I had a complete knee replacement 18 months ago.I've started simple stretching today, with a view to continuing daily. This is a prelude to commencing an exercise routine, probably at
I'm 67, have a bad hip, first stage hypertension, am overweight (though have lost 10kg !) And am as stiff as a board. I had a complete knee replacement 18 months ago.I've started simple stretching today, with a view to continuing daily. This is a prelude to commencing an exercise routine, probably at
Jeffjones297
in
Couch to 5K
5 months ago
Multiple chemical sensitivity (MCS)
Hi everyone, I hope this post finds everyone as well as they can be right now. I need your help. I have Multiple Chemical Sensitivity (MCS) I have lung disease, as a result of Lupus. I also have diabetes, hyperparathyroidism and high blood pressure. Having MCS makes me hypersensitive to almost everything
Hi everyone, I hope this post finds everyone as well as they can be right now. I need your help. I have Multiple Chemical Sensitivity (MCS) I have lung disease, as a result of Lupus. I also have diabetes, hyperparathyroidism and high blood pressure. Having MCS makes me hypersensitive to almost everything
field
in
LUPUS UK
5 months ago
Spontaneous Subdural Hematoma
I am 58 years old. A few months I started to develop headaches and neck pain that gradually increased in severity. I eventually went to the ER and was diagnosed with a minor subdural hematoma (SDH) based upon a CT Scan and was sent home for follow-up with a neurosurgeon. I have had no recent head
I am 58 years old. A few months I started to develop headaches and neck pain that gradually increased in severity. I eventually went to the ER and was diagnosed with a minor subdural hematoma (SDH) based upon a CT Scan and was sent home for follow-up with a neurosurgeon. I have had no recent head
TWF64
in
Headway
8 months ago
Worried
I am now extremely worried about having had a ct scan with contrast. I knew nothing about the contrast as I was just feeling very ill at the time. I am now petrified that this is going to cause me all sorts of problems with my hypothyroidism. I've not been feeling great with various issues going on with
I am now extremely worried about having had a ct scan with contrast. I knew nothing about the contrast as I was just feeling very ill at the time. I am now petrified that this is going to cause me all sorts of problems with my hypothyroidism. I've not been feeling great with various issues going on with
Catlover3
in
Thyroid UK
5 months ago
Have you downloaded the AF Discussion Guide?
If you have recently been diagnosed with atrial fibrillation (AF), or have been living with AF for sometime, or maybe just have a follow up medical appointment with your Dr? To provide a greater understanding of AF or offer guidance on what questions to ask at the appointment, download our AF Discussion
If you have recently been diagnosed with atrial fibrillation (AF), or have been living with AF for sometime, or maybe just have a follow up medical appointment with your Dr? To provide a greater understanding of AF or offer guidance on what questions to ask at the appointment, download our AF Discussion
TracyAdmin
Partner
in
AF Association
5 months ago
CATCH Up CORNER...WEEK 4... Time to kick off the running shoes, and Slow things down...
Hello.... Welcome to the Corner... It is warm and cosy and hopefully, many of you will have escaped the reaches of the latest storm! It is so good to be here welcoming you all, for another week of running... or if you are unlucky enough to be out if it for a while ,another day or so of. Self care
Hello.... Welcome to the Corner... It is warm and cosy and hopefully, many of you will have escaped the reaches of the latest storm! It is so good to be here welcoming you all, for another week of running... or if you are unlucky enough to be out if it for a while ,another day or so of. Self care
Oldfloss
Administrator
in
Couch to 5K
5 months ago
Kardiamobile says sinus rhythm but Galaxy watch says AFib
Just wondering if anyone's had this experience I have both the Kardia mobile and a Samsung smartwatch Samsung says afib but kardiamobile normal. heart rate in the 70s does anyone know one could be trusted more than the other
Just wondering if anyone's had this experience I have both the Kardia mobile and a Samsung smartwatch Samsung says afib but kardiamobile normal. heart rate in the 70s does anyone know one could be trusted more than the other
easygoer13
in
Atrial Fibrillation Support
5 months ago
Possible over treatment with Levothyroxine
Hi everyone, I’m new to the site. It was suggested that I make a post following a comment I made replying to another post as I may benefit from some guidance on my current treatment. I was diagnosed with an underactive thyroid 9 years ago. I have been treated with Levothyroxine throughout. Since 2020
Hi everyone, I’m new to the site. It was suggested that I make a post following a comment I made replying to another post as I may benefit from some guidance on my current treatment. I was diagnosed with an underactive thyroid 9 years ago. I have been treated with Levothyroxine throughout. Since 2020
Vizslaaddict
in
Thyroid UK
6 months ago
LCHF / IF for August?
Hi all The title means Low Carbohydrate High Fat / Intermittent fasting. Both are ways of eating that can help people loose weight without the need to count calories or eat less and without the need to go hungry. Both ways of eating can also help to ease several health conditions. IF and LCHF work
Hi all The title means Low Carbohydrate High Fat / Intermittent fasting. Both are ways of eating that can help people loose weight without the need to count calories or eat less and without the need to go hungry. Both ways of eating can also help to ease several health conditions. IF and LCHF work
Professor-Yaffle
Visitor
in
Weight Loss Support
11 months ago
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