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Gaucher disease type 3 (GD3)
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Multiple chemical sensitivity (MCS)
Hi everyone, I hope this post finds everyone as well as they can be right now. I need your help. I have Multiple Chemical Sensitivity (MCS) I have lung disease, as a result of Lupus. I also have diabetes, hyperparathyroidism and high blood pressure. Having MCS makes me hypersensitive to almost everything
Hi everyone, I hope this post finds everyone as well as they can be right now. I need your help. I have Multiple Chemical Sensitivity (MCS) I have lung disease, as a result of Lupus. I also have diabetes, hyperparathyroidism and high blood pressure. Having MCS makes me hypersensitive to almost everything
field
in
LUPUS UK
5 months ago
Worried
I am now extremely worried about having had a ct scan with contrast. I knew nothing about the contrast as I was just feeling very ill at the time. I am now petrified that this is going to cause me all sorts of problems with my hypothyroidism. I've not been feeling great with various issues going on with
I am now extremely worried about having had a ct scan with contrast. I knew nothing about the contrast as I was just feeling very ill at the time. I am now petrified that this is going to cause me all sorts of problems with my hypothyroidism. I've not been feeling great with various issues going on with
Catlover3
in
Thyroid UK
5 months ago
Have you downloaded the AF Discussion Guide?
If you have recently been diagnosed with atrial fibrillation (AF), or have been living with AF for sometime, or maybe just have a follow up medical appointment with your Dr? To provide a greater understanding of AF or offer guidance on what questions to ask at the appointment, download our AF Discussion
If you have recently been diagnosed with atrial fibrillation (AF), or have been living with AF for sometime, or maybe just have a follow up medical appointment with your Dr? To provide a greater understanding of AF or offer guidance on what questions to ask at the appointment, download our AF Discussion
TracyAdmin
Partner
in
AF Association
5 months ago
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Possible over treatment with Levothyroxine
Hi everyone, I’m new to the site. It was suggested that I make a post following a comment I made replying to another post as I may benefit from some guidance on my current treatment. I was diagnosed with an underactive thyroid 9 years ago. I have been treated with Levothyroxine throughout. Since 2020
Hi everyone, I’m new to the site. It was suggested that I make a post following a comment I made replying to another post as I may benefit from some guidance on my current treatment. I was diagnosed with an underactive thyroid 9 years ago. I have been treated with Levothyroxine throughout. Since 2020
Vizslaaddict
in
Thyroid UK
6 months ago
Time for you all to take another bow.
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
CATCH Up CORNER...WEEK 4... Time to kick off the running shoes, and Slow things down...
Hello.... Welcome to the Corner... It is warm and cosy and hopefully, many of you will have escaped the reaches of the latest storm! It is so good to be here welcoming you all, for another week of running... or if you are unlucky enough to be out if it for a while ,another day or so of. Self care
Hello.... Welcome to the Corner... It is warm and cosy and hopefully, many of you will have escaped the reaches of the latest storm! It is so good to be here welcoming you all, for another week of running... or if you are unlucky enough to be out if it for a while ,another day or so of. Self care
Oldfloss
Administrator
in
Couch to 5K
5 months ago
Using AI to understand what is the best treatment for each patient
https://www.urologytimes.com/view/study-applies-ai-tool-to-stampede-data-in-prostate-cancer "We already know that there are various variables that get reported as part of routine histology reporting, which have a degree of prognostic impact, particularly in the early stage of the disease. But these
https://www.urologytimes.com/view/study-applies-ai-tool-to-stampede-data-in-prostate-cancer "We already know that there are various variables that get reported as part of routine histology reporting, which have a degree of prognostic impact, particularly in the early stage of the disease. But these
Maxone73
in
Advanced Prostate Cancer
8 months ago
Kardiamobile says sinus rhythm but Galaxy watch says AFib
Just wondering if anyone's had this experience I have both the Kardia mobile and a Samsung smartwatch Samsung says afib but kardiamobile normal. heart rate in the 70s does anyone know one could be trusted more than the other
Just wondering if anyone's had this experience I have both the Kardia mobile and a Samsung smartwatch Samsung says afib but kardiamobile normal. heart rate in the 70s does anyone know one could be trusted more than the other
easygoer13
in
Atrial Fibrillation Support
5 months ago
Not Cirrhosis
So many of you have watched my journey of the misdiagnosis of my wonderful wife. In the end, we now know a combination of Antibiotics destroyed her kidneys. Due to thinking she had cirrhosis, they had dosage values wrong...etc..etc. She had high billis, which was due to a medication reaction, and
So many of you have watched my journey of the misdiagnosis of my wonderful wife. In the end, we now know a combination of Antibiotics destroyed her kidneys. Due to thinking she had cirrhosis, they had dosage values wrong...etc..etc. She had high billis, which was due to a medication reaction, and
Wolivere
in
British Liver Trust
8 months ago
Excessive Nasal Mucous
I have been treated for underactive thyroid for around 30 years. The past decade I keep experiencing what is like very severe cold symptoms on a regular basis. My body produces excess amounts of thick green slimy sticky mucous, my sinuses get blocked, I have endless nasal drip/cough and it makes me really
I have been treated for underactive thyroid for around 30 years. The past decade I keep experiencing what is like very severe cold symptoms on a regular basis. My body produces excess amounts of thick green slimy sticky mucous, my sinuses get blocked, I have endless nasal drip/cough and it makes me really
OzMan
in
Thyroid UK
6 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Advice on cholesterol blood test
Good afternoon lovely people, my GP has moaned at me that my cholesterol is too high and has advised healthy eating, well i do eat healthy and have told them that. I have stated if its too high its because of my thyroidectomy. My reults are as follows all mmol/l Serum cholesterol 6.8 Serum triglycerides
Good afternoon lovely people, my GP has moaned at me that my cholesterol is too high and has advised healthy eating, well i do eat healthy and have told them that. I have stated if its too high its because of my thyroidectomy. My reults are as follows all mmol/l Serum cholesterol 6.8 Serum triglycerides
Soaping
in
Thyroid UK
9 months ago
‘Normal’ results but feeling terrible
Hi, I have an underactive thyroid (35f) and was diagnosed 5 years ago. I think my Dad (60m) does too, in April 2021 I persuaded him to get a medichecks test done. I have attached a screenshot of those results. I have persuaded him to get another medichecks done to see if his results are different. He
Hi, I have an underactive thyroid (35f) and was diagnosed 5 years ago. I think my Dad (60m) does too, in April 2021 I persuaded him to get a medichecks test done. I have attached a screenshot of those results. I have persuaded him to get another medichecks done to see if his results are different. He
ZDA23
in
Thyroid UK
6 months ago
Waiting for ablation
I started in Afib June 2022 after covid, was diagnosed in August and put on Edoxaban and bisoprolol by my GP. In October I was seen by a specialist and put on Amiodarone (I've mentioned the side effects before.. thanks for the responses) and put on the waiting list for a cardioversion. That was done
I started in Afib June 2022 after covid, was diagnosed in August and put on Edoxaban and bisoprolol by my GP. In October I was seen by a specialist and put on Amiodarone (I've mentioned the side effects before.. thanks for the responses) and put on the waiting list for a cardioversion. That was done
JoDogBlue
in
Atrial Fibrillation Support
5 months ago
Coma or Vegetative state
Hi - My brother has been in an induced coma following a stroke for 3 weeks. Every time they try to wake him they say he gets “agitated”. Also, today his case manager told me he is able to open his eyes, but when they did the light in the eyes test, there was no reflex. What does that mean? Is he officially
Hi - My brother has been in an induced coma following a stroke for 3 weeks. Every time they try to wake him they say he gets “agitated”. Also, today his case manager told me he is able to open his eyes, but when they did the light in the eyes test, there was no reflex. What does that mean? Is he officially
mamo23
in
ICUsteps
8 months ago
Private Health care for second opinion
Has anyone used private health care for a second opinion? I’m 7 weeks post Fibroscan and still nothing in writing. I had a call from a hepatologist last week. He hadn’t seen the scan either but said based on my memory of it I have Cirrhosis. I want someone to give me a proper diagnosis. Bupa have agreed
Has anyone used private health care for a second opinion? I’m 7 weeks post Fibroscan and still nothing in writing. I had a call from a hepatologist last week. He hadn’t seen the scan either but said based on my memory of it I have Cirrhosis. I want someone to give me a proper diagnosis. Bupa have agreed
Pinkglitter93
in
British Liver Trust
8 months ago
ESMO 2023: PSMAfore Phase 3 Trial of [177Lu]Lu-PSMA-617 in Taxane-Naive Patients with Metastatic Castration Resistant Prostate Cancer
Apologies if this was already posted: https://www.urotoday.com/conference-highlights/esmo-2023/esmo-2023-prostate-cancer/147587-esmo-2023-psmafore-phase-3-trial-of-177lu-lu-psma-617-in-taxane-naive-patients-with-mcrpc.html
Apologies if this was already posted: https://www.urotoday.com/conference-highlights/esmo-2023/esmo-2023-prostate-cancer/147587-esmo-2023-psmafore-phase-3-trial-of-177lu-lu-psma-617-in-taxane-naive-patients-with-mcrpc.html
swwags
in
Advanced Prostate Cancer
8 months ago
PSA Follow up
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Had an appointment with my urologist today. PSA is still 0.00. Obviously I’m thrilled. He said that since I’m 3 years out from RT and 4 years from RP, he’s comfortable with seeing me annually because my PSA has been stable at 0.00 for three years. I told him I thought I’d feel better waiting until
Jmr11820
in
Advanced Prostate Cancer
8 months ago
PSA raise
Hello once again. My father completed 6 courses of docetaxel chemotherapy (last one on 23/05/2023) and he is getting Zoladex injections every 3 months. Last PSA result was 0.89 (14/07/2023). But as he was getting better and the effects of chemotherapy (mainly neuropathy) were subsiding, the PSA test
Hello once again. My father completed 6 courses of docetaxel chemotherapy (last one on 23/05/2023) and he is getting Zoladex injections every 3 months. Last PSA result was 0.89 (14/07/2023). But as he was getting better and the effects of chemotherapy (mainly neuropathy) were subsiding, the PSA test
gio2x
in
Advanced Prostate Cancer
8 months ago
My turn to go to A&E
Well what a day i had yesterday, at about 4am i woke up in a right state as couldn't breathe. It took quite a while for me t get back to sleep. When i woke up i didn't feel well at all. It was as much as i wanted to do just to get up and go to the loo before coming downstairs to get myself a cup of tea
Well what a day i had yesterday, at about 4am i woke up in a right state as couldn't breathe. It took quite a while for me t get back to sleep. When i woke up i didn't feel well at all. It was as much as i wanted to do just to get up and go to the loo before coming downstairs to get myself a cup of tea
sylvi
in
NRAS
5 months ago
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