Search
Search
About
Log in
Join
Experiences with
Gaucher disease type 3 (GD3)
Posts
Communities
46,459 public posts
Filter results
Graves in couples
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
hi, I have recently been diagnosed with Graves (I’m 42) and my husband was diagnosed in 2008 (age 29) and relapsed in 2018 (currently in remission). I have discovered that George and Barbara Bush also both had Graves and although the cause was investigated, it was never found why both got it. Their dog
Kari55
in
Thyroid UK
5 months ago
CAP score of 299, diagnosed with Cirrhosis
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
I am a 60 yr old male, and was recently diagnosed with liver cirrhosis. My fibroscan showed 19.6 LSM score and 299 CAP, with a grade 4 fatty liver. I have recently started cleaning up my diet and taking some medicine to reduce insulin resistance. I am extremely disturbed and nervous as I struggle with
Carblover8
in
British Liver Trust
5 months ago
Ultrasound
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Hi All, So I have ulcerative colitis and have had 2 raised alt levels. I paid for a private ultrasound yesterday and the results are severe hepatosteatosis. could anybody advise what I should be eating or doing ? I have a drs appointment but it’s not for another 2 weeks. Also had anybody reversed
Chicob29
in
British Liver Trust
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
"Impact of REM Sleep Behavior and Sleep Talking on Mortality in Parkinson's Disease" Rapid Eye Movement Behavior Disorder (RBD) & PD
Published January 19, 2024: "According to our study, frequent sleep talking (talking while asleep at least one night per week) is a risk factor for early mortality in PD. RBD with sleep talking (ST) was associated with increased mortality, while RBD without sleep talking was not. This too hints at the
Published January 19, 2024: "According to our study, frequent sleep talking (talking while asleep at least one night per week) is a risk factor for early mortality in PD. RBD with sleep talking (ST) was associated with increased mortality, while RBD without sleep talking was not. This too hints at the
JackBruce2024
in
Cure Parkinson's
5 months ago
Is a false-positive biopsy possible?
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
CBRD
in
Advanced Prostate Cancer
5 months ago
Casadex, on and off
I was on Casadex close to 3 years. During the last part of going on 3 years my psa started rising. They took me off Casadex and put me on Orgovyx which did not work so they put me on injections of lupron once a month. My psa again started rising on lupron injections. Now They have put me on nubeqa to
I was on Casadex close to 3 years. During the last part of going on 3 years my psa started rising. They took me off Casadex and put me on Orgovyx which did not work so they put me on injections of lupron once a month. My psa again started rising on lupron injections. Now They have put me on nubeqa to
woppaho
in
Advanced Prostate Cancer
5 months ago
Latest Update on PATCH
For those of us using tE2 as a primary therapy to control advanced prostate cancer, there is new information in Clinical Oncology, Vol 36, Issue 1 „“ A repurposing Programme Evaluating Transdermal Oestradial Patches for the Treatment of Prostate Cancer within the PATCH and STAMPEDE Trials“. It‘s a long
For those of us using tE2 as a primary therapy to control advanced prostate cancer, there is new information in Clinical Oncology, Vol 36, Issue 1 „“ A repurposing Programme Evaluating Transdermal Oestradial Patches for the Treatment of Prostate Cancer within the PATCH and STAMPEDE Trials“. It‘s a long
cam123
in
Advanced Prostate Cancer
5 months ago
Dose change - feeling AWFUL
As per my previous post, my TSH was over 4 on 50mcg, so I did a week on 62.5mcg and now a few days on 75mcg. I feel terrible. So tired, weak, muscles ache, headaches. I’m still on the Wockhardt brand as it suits me best. I read somewhere this can happen if your cortisol is low. I had low 9am readings
As per my previous post, my TSH was over 4 on 50mcg, so I did a week on 62.5mcg and now a few days on 75mcg. I feel terrible. So tired, weak, muscles ache, headaches. I’m still on the Wockhardt brand as it suits me best. I read somewhere this can happen if your cortisol is low. I had low 9am readings
RoseStar
in
Thyroid UK
5 months ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
5 months ago
PMR with type 2 diabetes
I had type two diabetes before I was diagnosed with PMR and I think this is why my GP wants me to get down as quickly as possible from prednisolone as it affects my blood sugar level. For the last three months I have been going up and down because I just cannot seem to get rid of the pain. I got as
I had type two diabetes before I was diagnosed with PMR and I think this is why my GP wants me to get down as quickly as possible from prednisolone as it affects my blood sugar level. For the last three months I have been going up and down because I just cannot seem to get rid of the pain. I got as
Elmadon
in
PMRGCAuk
9 months ago
over 40 conception
I’m 41 going through my first cycle. I wanted to try and improve my chances of success due to my age. So have been taking coenzyme q10, regularly, as well as low dose melatonin, and omega 3 oils, folic acid and multivitamins. Also undergoing acupuncture and light therapy to improve egg quality. I’ve
I’m 41 going through my first cycle. I wanted to try and improve my chances of success due to my age. So have been taking coenzyme q10, regularly, as well as low dose melatonin, and omega 3 oils, folic acid and multivitamins. Also undergoing acupuncture and light therapy to improve egg quality. I’ve
Coffeeone
in
Fertility Network UK
8 months ago
Prednisone and kidneys
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
Charlotteab
in
PMRGCAuk
5 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
reasons for bad balance/dizzziness
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
pmmargo
in
Cure Parkinson's
5 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
5 months ago
Wasting—losing muscle mass
I have lost almost 30 lbs since Nov, but I recently learned only 11 pounds were fat. My lower arms and legs are skin and bone at 146 lbs. Am on diabetes meds, and just got off Mounjaro. I am tapering steroids (arms and legs good and bruised). But I understand steroids can cause wasting. Any
I have lost almost 30 lbs since Nov, but I recently learned only 11 pounds were fat. My lower arms and legs are skin and bone at 146 lbs. Am on diabetes meds, and just got off Mounjaro. I am tapering steroids (arms and legs good and bruised). But I understand steroids can cause wasting. Any
Merryfield
in
PMRGCAuk
9 months ago
Is a Liquid biopsy of ctDNA with PSA = 6 and 4 bone mets, useful?
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Manilo
in
Advanced Prostate Cancer
5 months ago
adrenal crisis?
i have been on pred for almost 3 years trying to wean myself off. i never seem to get below 8mgs until the symptoms return. i found that having half my dosage early in the morning really helped so thanks for that advice. i now have managed to reduce to 6mgs. and was beginning to congratulate myself.
i have been on pred for almost 3 years trying to wean myself off. i never seem to get below 8mgs until the symptoms return. i found that having half my dosage early in the morning really helped so thanks for that advice. i now have managed to reduce to 6mgs. and was beginning to congratulate myself.
Reclus
in
PMRGCAuk
5 months ago
Specialist appointment
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Oasisman
in
British Liver Trust
5 months ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
5 months ago
1
...
37
38
39
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
6040 results
British Liver Trust
4483 results
Advanced Prostate Cancer
4435 results
View top 10 communities
Sort by
Most Relevant
Newest