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Gaucher disease type 1 (GD1)
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Mr Alan M
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
TillySyd
in
British Liver Trust
6 months ago
Multiple Sclerosis Predicted by Autoantibody Signature
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
BettysMom
in
My MSAA Community
3 months ago
Survey about patient care
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
zoe69
Vasculitis UK
in
Vasculitis UK
3 months ago
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Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
Help us develop a new information resource on lupus and the menopause
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
High-Dose Vitamin B1 / Thiamine and Fat Soluble Benfotiamine Form
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
jazj
in
Advanced Prostate Cancer
6 months ago
Anti-Androgen Therapy and Bone Tumors in Prostate Cancer
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
85745
in
Advanced Prostate Cancer
6 months ago
1st consult questions to ask please
hi, please can someone guide me on which questions to ask? My brother has got his first appointment at Leeds liver Unit next week. He’s got Class C liver cirrhosis, was diagnosed in July as he was decompensated with ascites and hepatic encephalopathy and almost died. He’s seen gastro ONCE since being
hi, please can someone guide me on which questions to ask? My brother has got his first appointment at Leeds liver Unit next week. He’s got Class C liver cirrhosis, was diagnosed in July as he was decompensated with ascites and hepatic encephalopathy and almost died. He’s seen gastro ONCE since being
MrsAlien
in
British Liver Trust
6 months ago
The Flare That Keeps on Giving
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
Donna5658
in
PMRGCAuk
3 months ago
sudden fast heart rate help
Dear all I need some advice please. had my ablation 18months ago and still in SR all good. However today I was climbing a steep ramp at a station and at the top set off fast heart rate. It was over 102 which I know some might say isn’t dire but I felt AWFUL sitting waiting for my train. Got out and
Dear all I need some advice please. had my ablation 18months ago and still in SR all good. However today I was climbing a steep ramp at a station and at the top set off fast heart rate. It was over 102 which I know some might say isn’t dire but I felt AWFUL sitting waiting for my train. Got out and
foxglove1
in
Atrial Fibrillation Support
7 hours ago
Getting bombarded with ads for RA treatment Honey bee venom cream?.
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
Amazing too good to be true claims for this but there seems to be a few bits of research on it being anti inflammatory. Anyone tried it ? Still taking the meds....
welsh12
in
NRAS
6 months ago
When to take PIP flecainide?
Unfortunately my paroxysmal AF has significantly worsened lately and I am awaiting an ablation. In the meantime my consultant has put me back on flecainide 50mg bi daily plus an additional up to 100mg as PIP if AF kicks in. I’m now in AF almost every week for a few hours. Before it starts I frequently
Unfortunately my paroxysmal AF has significantly worsened lately and I am awaiting an ablation. In the meantime my consultant has put me back on flecainide 50mg bi daily plus an additional up to 100mg as PIP if AF kicks in. I’m now in AF almost every week for a few hours. Before it starts I frequently
Daisy2908
in
Atrial Fibrillation Support
11 hours ago
My Wife had a recent AF episode
My Wife woke up early morning 1am when her heart went into AF (I knew the symptom as I have suffered in the past with this but unrelated to hers) After several hours later a trip to A&E was suggested by 111. NHS were totally brilliant and within two hour was given a cardioversion which put her back into
My Wife woke up early morning 1am when her heart went into AF (I knew the symptom as I have suffered in the past with this but unrelated to hers) After several hours later a trip to A&E was suggested by 111. NHS were totally brilliant and within two hour was given a cardioversion which put her back into
minchern
in
Atrial Fibrillation Support
1 day ago
Coq10/Ubiquinol- is it ok or not ok to take ?
Dad takes coq10 as he also takes low dose statin since many years. I read someone on this Board write this on an earlier post - “I was advised not to take CQ10 since it helps the cancer cell recycle glutathione(GHS). Excess GSH promotes tumor progression, where elevated levels correlate with increased
Dad takes coq10 as he also takes low dose statin since many years. I read someone on this Board write this on an earlier post - “I was advised not to take CQ10 since it helps the cancer cell recycle glutathione(GHS). Excess GSH promotes tumor progression, where elevated levels correlate with increased
Tinkudi
in
Advanced Prostate Cancer
2 days ago
question/new info/latest
Helllo! Hoping everyone is doing ok and hanging in there. I had a positive echo stress test. My insurance denied the oncologists request so had an echo and the. A stress test. I failed it so they fought for the echo stress test. Now I need a catheterization because my heart isn’t pumping the way
Helllo! Hoping everyone is doing ok and hanging in there. I had a positive echo stress test. My insurance denied the oncologists request so had an echo and the. A stress test. I failed it so they fought for the echo stress test. Now I need a catheterization because my heart isn’t pumping the way
MPNJunebug
in
MPN Voice
2 days ago
Do you know your pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
2 days ago
When to call doctor
Hi all. I was diagnosed with afib last July. I had a cardioversion and was prescribed Eliqiuis and propofenone (a heart rhythm regulator). I had no problems until I drank a little too much wine at a wedding . Now, my heart rate is somewhat erratic and can jump to 160 periodically. It has been like
Hi all. I was diagnosed with afib last July. I had a cardioversion and was prescribed Eliqiuis and propofenone (a heart rhythm regulator). I had no problems until I drank a little too much wine at a wedding . Now, my heart rate is somewhat erratic and can jump to 160 periodically. It has been like
Elainemae
in
Atrial Fibrillation Support
3 days ago
No symptoms but.....?
I was diagnosed with afib about three years ago but with absolutely no symptoms and had an arthritis operation shortly afterwards which went very easily. I now have very slight breathlessness if I go up a steep hill and I do feel a bit tired in the middle of the afternoon but at 73 I'm thinking that's
I was diagnosed with afib about three years ago but with absolutely no symptoms and had an arthritis operation shortly afterwards which went very easily. I now have very slight breathlessness if I go up a steep hill and I do feel a bit tired in the middle of the afternoon but at 73 I'm thinking that's
scout70
in
Atrial Fibrillation Support
3 days ago
High cholesterol & triglycerides
Has anyone one tried taking Benecol butter and drinks to try to lower Cholesterol ,have tried cutting out red meat more excersise etc but just wondered if anyone has had any success with these or Omega 3 supplements.
Has anyone one tried taking Benecol butter and drinks to try to lower Cholesterol ,have tried cutting out red meat more excersise etc but just wondered if anyone has had any success with these or Omega 3 supplements.
bevgt
in
Early CKD Support
3 days ago
My GP to do annual AF tests to detect asymptomatic patients
I've just had a letter from my local surgery saying following my suggestion they will now take the pulse of people who attend for annual exams (blood pressure, diabetes etc) to see if they are asymptomatic AF sufferers. A positive result to then be referred for ECG etc. A small victory.
I've just had a letter from my local surgery saying following my suggestion they will now take the pulse of people who attend for annual exams (blood pressure, diabetes etc) to see if they are asymptomatic AF sufferers. A positive result to then be referred for ECG etc. A small victory.
Omniscient1
in
Atrial Fibrillation Support
3 days ago
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