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Accept nothing question everything...with the proviso that you are well informed
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Mmrr
in
NRAS
11 days ago
Low red cell count but eat lots of red meat!
Hello again, just wanted to check this out with people as I do get quite tired in the afternoon and need to rest. Is this anaemia and so do I supplement with iron? Is there a good one for people with hashimotos?I have been told I have weak digestion and I feel I don't absorb things like iron very well
Hello again, just wanted to check this out with people as I do get quite tired in the afternoon and need to rest. Is this anaemia and so do I supplement with iron? Is there a good one for people with hashimotos?I have been told I have weak digestion and I feel I don't absorb things like iron very well
Pinkpetite
in
Thyroid UK
11 days ago
people with parents of lupus
hey!! im a teen living with a mum struggling with lupus + bipolar and i would love to learn more about lupus and what it affects so i can easily help my mum better !! if anyone could help and give tips thats so so appreciated :)
hey!! im a teen living with a mum struggling with lupus + bipolar and i would love to learn more about lupus and what it affects so i can easily help my mum better !! if anyone could help and give tips thats so so appreciated :)
b99lover
in
LUPUS UK
12 days ago
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Gulten free diet with lupus
Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested to hear peoples experiences. Thank you
Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested to hear peoples experiences. Thank you
Flows
in
LUPUS UK
12 days ago
Rise in Testosterone but not PSA?
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
ThisIsForMyMom
in
Advanced Prostate Cancer
5 months ago
New lupus treatment trial recruiting now
This post has been sponsored by Bristol Myers Squibb. A new trial is assessing whether a type of immunosuppressant is safe and effective for people with SLE (systemic lupus erythematosus). This trial is recruiting now. You can find out more information about the trial in our article here: https://lupusuk.org.uk
This post has been sponsored by Bristol Myers Squibb. A new trial is assessing whether a type of immunosuppressant is safe and effective for people with SLE (systemic lupus erythematosus). This trial is recruiting now. You can find out more information about the trial in our article here: https://lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
12 days ago
Thyroid Scan
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis I’m curious to know what would show up on the scan to indicate autoimmune thyroid disease as opposed to it being caused by subacute thyroiditis.
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis I’m curious to know what would show up on the scan to indicate autoimmune thyroid disease as opposed to it being caused by subacute thyroiditis.
Dizzy444
in
Thyroid UK
13 days ago
I made another MS video….
Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust! https://youtu.be/ocsFgWVw9rA
Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust! https://youtu.be/ocsFgWVw9rA
irhunter
in
My MSAA Community
13 days ago
Arthritis and P.A
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Suesue246
in
Pernicious Anaemia Society
13 days ago
Too much b12?
As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in the other months and take Clean b12 tablets daily. As I thought your body can’t overdose I’ve been taking two b12 at night instead of one, and
As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in the other months and take Clean b12 tablets daily. As I thought your body can’t overdose I’ve been taking two b12 at night instead of one, and
Palum
in
Pernicious Anaemia Society
14 days ago
post prostatectomy psa
hello. I Had surgery June 13 2023 biopsy showed Gleason 8. Psa 13 perineal invasion seminal vesicle invasion post surgery pathology Gleason 7. First two ultra sensitive psa came back with less than symbol 0.02. Then my last ultra sensitive psa came back 0.02 without the less than symbol. Is this something
hello. I Had surgery June 13 2023 biopsy showed Gleason 8. Psa 13 perineal invasion seminal vesicle invasion post surgery pathology Gleason 7. First two ultra sensitive psa came back with less than symbol 0.02. Then my last ultra sensitive psa came back 0.02 without the less than symbol. Is this something
Elkguide
in
Advanced Prostate Cancer
5 months ago
Seronegative arthritis
Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?
Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?
PurpleDuckie
in
PMRGCAuk
14 days ago
1600 to 100 and counting
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Whiskeyriver
in
Advanced Prostate Cancer
6 months ago
please some help here, end stage liver cancer.
Dear BLT people, I hope you are all doing reasonably well. After my story 1.5 year ago about my misdiagnosed liver cirrhosis its kind of weird to say that I found out that my dad was diagnosed with liver cancer today. (he was never a drinker or fat or what so ever, he is quite old though, he is
Dear BLT people, I hope you are all doing reasonably well. After my story 1.5 year ago about my misdiagnosed liver cirrhosis its kind of weird to say that I found out that my dad was diagnosed with liver cancer today. (he was never a drinker or fat or what so ever, he is quite old though, he is
Jimmy777
in
British Liver Trust
6 months ago
Sleep issues and melatonin
Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain autoimmune issues, although it doesn't mention PA or Hashimoto's specifically. Any advice would be helpful as my sleep or should I say lack of
Hi everyone, has anyone sound information regarding the use of melatonin with autoimmune disease. I am reading conflicting advice about using it with certain autoimmune issues, although it doesn't mention PA or Hashimoto's specifically. Any advice would be helpful as my sleep or should I say lack of
Helliborous
in
Pernicious Anaemia Society
16 days ago
Naproxen
morning!I have Rheumatoid Arthritis and I’m on 500 Naproxen twice daily I have been on this dose for nearly two years because my RA isn’t yet under control is anyone else on this dose and have been on it at long?I have regular blood monitoring and my consultant know Im on it. Any feedback would be greatly
morning!I have Rheumatoid Arthritis and I’m on 500 Naproxen twice daily I have been on this dose for nearly two years because my RA isn’t yet under control is anyone else on this dose and have been on it at long?I have regular blood monitoring and my consultant know Im on it. Any feedback would be greatly
Mybirthday1975
in
NRAS
17 days ago
Inflammatory arthritis & worse circulation
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
Hi, was diagnosed with seronegative inflammatory arthritis in April. I have noticed that my fingers and toes are permanently cold and can turn white.Many years ago so was told I had Raynauds . But other than in very cold conditions it has been quite settled. Does Raynauds flare up more with arthritis
hazelcats
in
NRAS
17 days ago
Take part in the PLAN-HERACLES survey
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Researchers at Cardiff University are looking for people living with Rheumatoid Arthritis to provide thoughts on a proposed weekly disease activity monitoring tool that they hope to develop through future funded research. They would like you to complete the survey in the link below. For more information
Aribah-NRAS
NRAS
in
NRAS
17 days ago
The Wren Project
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
TUKOffice
Thyroid UK
in
Thyroid UK
17 days ago
Bas Bloem: “Is there an upside to having PD?“
https://www.mediflix.com/topics/parkinsons-disease/video/silver-linings-with-pd https://m.facebook.com/mediflixtv/videos/bas-bloem-md-phd-silver-lining-mediflix-news/ A team of researchers, including four individuals with lived experience and two scientists, posted a call on social media for experiences
https://www.mediflix.com/topics/parkinsons-disease/video/silver-linings-with-pd https://m.facebook.com/mediflixtv/videos/bas-bloem-md-phd-silver-lining-mediflix-news/ A team of researchers, including four individuals with lived experience and two scientists, posted a call on social media for experiences
Esperanto
in
Cure Parkinson's
6 months ago
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