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ET: Changing from HU to Jakafi or an Interferon treatment
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Hello everyone, I'd be really grateful for any guidance / advice on the following: ET / JAK2 were diagnosed 10 years ago following a stroke (fortunately without serious consequences) and I was put on HU plus Aspirin. Amazingly I had no side-effects (apart from a 'rash' on my lower legs after about
Bodensee
in
MPN Voice
5 months ago
My IBS
I wonder if anyone can tell me have they suffered extreme stomach pressure due to ibs which realy restricts their mobility to move around and also to relax,my gp has recently told me she thinks I have ibs as I have all the symptoms a distended stomach which makes me look heavily pregnant,constipation
I wonder if anyone can tell me have they suffered extreme stomach pressure due to ibs which realy restricts their mobility to move around and also to relax,my gp has recently told me she thinks I have ibs as I have all the symptoms a distended stomach which makes me look heavily pregnant,constipation
Green1967
in
IBS Network
7 days ago
Radiation side effects
The good news is that my husband sailed thru the Orgovyx with no problems whatsoever, now is in his 6th month and is due to complete that treatment at the end of June. The bad news is that he has had 22 sessions of salvage RT. He is supposed to have a total of 38 however, he has developed severe cramping
The good news is that my husband sailed thru the Orgovyx with no problems whatsoever, now is in his 6th month and is due to complete that treatment at the end of June. The bad news is that he has had 22 sessions of salvage RT. He is supposed to have a total of 38 however, he has developed severe cramping
shihtzu124
in
Advanced Prostate Cancer
7 days ago
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New but familiar
Hello, I was diagnosed with IBS in 2018. My symptoms were abdominal pain with diarrhea which turned into constipation. Started the low fodmap diet in 2021, and stopped eating gluten, and cut out sugar. My symptoms improved until recently. Now I'm having daily abdominal pain and I'm not passing as much
Hello, I was diagnosed with IBS in 2018. My symptoms were abdominal pain with diarrhea which turned into constipation. Started the low fodmap diet in 2021, and stopped eating gluten, and cut out sugar. My symptoms improved until recently. Now I'm having daily abdominal pain and I'm not passing as much
Hidden
in
IBS Network
8 days ago
Foot surgery
Hi. Has anyone used a lady wee after having non weight baring surgery. If so, do you have any recommendations. Thank you
Hi. Has anyone used a lady wee after having non weight baring surgery. If so, do you have any recommendations. Thank you
Lematt
in
NRAS
8 days ago
When to take meds
I have been on levothyroxine 75mg for few years now I have to take alendronic acid and adcal d3 for my bones. I now read you should not take aa and levo at same time been prescribed to take in morn. The adcal d3 at night wondered if anyone on same how they take them. Has anyone got side effects from
I have been on levothyroxine 75mg for few years now I have to take alendronic acid and adcal d3 for my bones. I now read you should not take aa and levo at same time been prescribed to take in morn. The adcal d3 at night wondered if anyone on same how they take them. Has anyone got side effects from
bellsjet
in
Thyroid UK
8 days ago
Lower Right Abdominal Pain
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
bianco9685
in
IBS Network
4 months ago
B12 deficiency treated before folate deficiency
Please could someone post a link supporting the importance of this fact for PhonixGrace . Explaining B12 and folate are tested together normally for a good reason. If folate is supplemented before B12 . The b12 deficiency can be masked/ missed. Nerve/neurological damage can occur . Once B12 injections
Please could someone post a link supporting the importance of this fact for PhonixGrace . Explaining B12 and folate are tested together normally for a good reason. If folate is supplemented before B12 . The b12 deficiency can be masked/ missed. Nerve/neurological damage can occur . Once B12 injections
Nackapan
in
Pernicious Anaemia Society
9 days ago
IBS ok with daily loperamide
Male, for the Last 4 years have suffered from IBS -D ( mainly diarrhoea )diagnosis after colonoscopy & associated blood tests I was advised by a specialist to take Imodium (loperamide) daily after first poo, I follow the FODMAP diet & LOW insoluble fibre. And try to eat Prebiotic foods e.g Oats, also
Male, for the Last 4 years have suffered from IBS -D ( mainly diarrhoea )diagnosis after colonoscopy & associated blood tests I was advised by a specialist to take Imodium (loperamide) daily after first poo, I follow the FODMAP diet & LOW insoluble fibre. And try to eat Prebiotic foods e.g Oats, also
Kestrel66
in
IBS Network
9 days ago
Bisacodyl
Taken Senna, Fybogel and Laxido and haven’t had any bowel movements. I’ve seen people say to take Bisacodyl as this is quite strong. What are people’s experiences with this? Does it work? When is the best time to take it?
Taken Senna, Fybogel and Laxido and haven’t had any bowel movements. I’ve seen people say to take Bisacodyl as this is quite strong. What are people’s experiences with this? Does it work? When is the best time to take it?
HI1237
in
IBS Network
10 days ago
does having endo mean I am at high risk for ovarian cancer?
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
hi! I an 26 and I have recently been diagnosed with moderate endometriosis. I am having a hard time coming to terms with it all and I consulted dr Google. I came across studies that show endo is a precursor to ovarian cancer and increases risk. I already have health anxiety however now I have gotten
JS1001
in
Endometriosis UK
5 months ago
New (to me) symptom of severe iron deficiency
I'd never heard of this before and thought it might be useful to somebody... People who are severely iron deficient can have the whites of their eyes (the "sclera") develop a blue tinge. https://www.semanticscholar.org/paper/Blue-sclera-secondary-to-severe-iron-deficiency-Hassen-Chirurgi/0ae45491752fa575014a5dce5588c7acdcd2f4a7
I'd never heard of this before and thought it might be useful to somebody... People who are severely iron deficient can have the whites of their eyes (the "sclera") develop a blue tinge. https://www.semanticscholar.org/paper/Blue-sclera-secondary-to-severe-iron-deficiency-Hassen-Chirurgi/0ae45491752fa575014a5dce5588c7acdcd2f4a7
humanbean
in
Thyroid UK
10 days ago
Stomach cramps
Hi lovely ladies! My mum is 6 weeks post primary debulking surgery, and bowel resection and is still having some bowel issues. She's had pretty bad stomach cramping all day today. Is this normal? Does anyone have any tips? She's still on laxatives and drinking peppermint tea for gas. Would love to hear
Hi lovely ladies! My mum is 6 weeks post primary debulking surgery, and bowel resection and is still having some bowel issues. She's had pretty bad stomach cramping all day today. Is this normal? Does anyone have any tips? She's still on laxatives and drinking peppermint tea for gas. Would love to hear
georgiageorgia182
in
My Ovacome
11 days ago
Diverticulitis
Just been diagnosed with diverticulitis after colonoscopy, luckily no cancer found. Unfortunately I’m having to wear pads as I am experiencing “leaking” after a bowel movement. Any help with diet or tips, I would appreciate, as I am reluctant to take Loperamide on a regular basis.
Just been diagnosed with diverticulitis after colonoscopy, luckily no cancer found. Unfortunately I’m having to wear pads as I am experiencing “leaking” after a bowel movement. Any help with diet or tips, I would appreciate, as I am reluctant to take Loperamide on a regular basis.
Sinnelg
in
British Liver Trust
11 days ago
Dienogest
Hi all, My 17 year old daughter has just had her follow up post op appointment following a laparoscopy which she had last October. She has confirmed Endometriosis and all the surface (that they could see) Endo was removed. Unfortunately her pain has not improved and she says it's the same as before the
Hi all, My 17 year old daughter has just had her follow up post op appointment following a laparoscopy which she had last October. She has confirmed Endometriosis and all the surface (that they could see) Endo was removed. Unfortunately her pain has not improved and she says it's the same as before the
Welshpearl
in
Endometriosis UK
11 days ago
Breakthrough with the cause of IBD - may lead to similar discoveries with other autoimmune diseases?
Just spotted this on my BBC News notifications. BBC News - Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo It's written in layman's language, but seems to say they have found that there is a genetic link and that they have drugs already that might treat
Just spotted this on my BBC News notifications. BBC News - Major cause of inflammatory bowel disease found https://www.bbc.com/news/articles/c1wwdd6v2wjo It's written in layman's language, but seems to say they have found that there is a genetic link and that they have drugs already that might treat
Broseley
in
PMRGCAuk
11 days ago
Managing Pudendal Neuralgia pain
Hi all, I joined this forum to remain on top of developments around the complex pelvic floor issues affecting women and to seek support from others. In my experience these are generally poorly understood by doctors in the UK especially at consultant level and there is an absence of multi agency support
Hi all, I joined this forum to remain on top of developments around the complex pelvic floor issues affecting women and to seek support from others. In my experience these are generally poorly understood by doctors in the UK especially at consultant level and there is an absence of multi agency support
Elfcreature
in
Pelvic Pain Support Network
11 days ago
Bloating
Hey guys, quick question, I have pernicious anemia/ gastritis and recently no matter what I eat or drink even it's only a probiotic drink or an apple and water for that day my stomach bloats up so big and tight but when morning comes, I go to the restroom and my stomach goes back down until I drink
Hey guys, quick question, I have pernicious anemia/ gastritis and recently no matter what I eat or drink even it's only a probiotic drink or an apple and water for that day my stomach bloats up so big and tight but when morning comes, I go to the restroom and my stomach goes back down until I drink
25092
in
Pernicious Anaemia Society
11 days ago
Lft test confusion
Hi, Not my test but my brothers for family court.He's passed all his hair tests and blood tests. He's had issues with drink but has slowed down to mainly binge drinking for the last few years. He last had spirits 3 weeks before the tests were taken, his cdt came back within range at 1.4 however his lft
Hi, Not my test but my brothers for family court.He's passed all his hair tests and blood tests. He's had issues with drink but has slowed down to mainly binge drinking for the last few years. He last had spirits 3 weeks before the tests were taken, his cdt came back within range at 1.4 however his lft
Dolly101010
in
British Liver Trust
11 days ago
Lightheaded
Haven't been diagnosed with ibs yet but everything is pointing towards this being my problem. Had all tests blood,stool,ct,colonscopy,endoscopy and ultrasound all clear so been referred to gastroenterologist. I have all the symptoms left side pain radiating up the back,blosting, wind exactly. Butvthe
Haven't been diagnosed with ibs yet but everything is pointing towards this being my problem. Had all tests blood,stool,ct,colonscopy,endoscopy and ultrasound all clear so been referred to gastroenterologist. I have all the symptoms left side pain radiating up the back,blosting, wind exactly. Butvthe
Cleof
in
IBS Network
12 days ago
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