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Gallium 68 PSMA-11
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Importance of ADT
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
vintage42
in
Advanced Prostate Cancer
7 months ago
Next steps after PBRT
Hi all - First and foremost, Happy Holidays. I had my prostate removed 8/22, with subsequent Proton Beam treatment ending 4/23 (after PSA did not drop to undetectable) brought upon after a mild uptake (during a Petscan) in an obturator lymph node. I’m on Orgovyx and Xtandi, with a plan to stay on them
Hi all - First and foremost, Happy Holidays. I had my prostate removed 8/22, with subsequent Proton Beam treatment ending 4/23 (after PSA did not drop to undetectable) brought upon after a mild uptake (during a Petscan) in an obturator lymph node. I’m on Orgovyx and Xtandi, with a plan to stay on them
Vp7174
in
Advanced Prostate Cancer
7 months ago
How do we determine if cancer is in remission
Just had my fourth of five Cyber Knife treatments and my doctor said everything has been going "great." It turns out that means when the treatment was performed my bladder was full and my rectum was empty. When I asked if another Petscan was on the horizon he told me that it was unlikely that my insurer
Just had my fourth of five Cyber Knife treatments and my doctor said everything has been going "great." It turns out that means when the treatment was performed my bladder was full and my rectum was empty. When I asked if another Petscan was on the horizon he told me that it was unlikely that my insurer
GrantB47
in
Advanced Prostate Cancer
7 months ago
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What testosterone test should I get in my final blood test prior to HT starting?
Hi All, I intend on getting my own blood test that will form the baseline for how the future HT is working. When it comes to getting testosterone tests, I note there are a few to select from. Which one should I get from the following list? 1: Testosterone Free/Total + SHBG 2: Testosterone Total
Hi All, I intend on getting my own blood test that will form the baseline for how the future HT is working. When it comes to getting testosterone tests, I note there are a few to select from. Which one should I get from the following list? 1: Testosterone Free/Total + SHBG 2: Testosterone Total
CJ1958
in
Prostate Cancer Network
7 months ago
Remission
In remission since May 2018. All PSA testing from oncologist has ranged from .04 to .05. Why not have my internist take my PSA yearly? Or is going to my oncologist for testing the better way to go?
In remission since May 2018. All PSA testing from oncologist has ranged from .04 to .05. Why not have my internist take my PSA yearly? Or is going to my oncologist for testing the better way to go?
Coupe31
in
Advanced Prostate Cancer
7 months ago
still here
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Apollo123
in
Advanced Prostate Cancer
7 months ago
Trying to stay positive when I dont "get" it
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
QueenVic1952
in
Pelvic Pain Support Network
1 year ago
Myoglobin
I think i over done my muscles on left side from the waist down, did far too much walking and walking on uneven surfaces and diving in sand dunes while on uk holiday. I came home and 4 days later it looked like my urine had turned into ribena, doctors diagnoised myoglobin and said its caused from damaged
I think i over done my muscles on left side from the waist down, did far too much walking and walking on uneven surfaces and diving in sand dunes while on uk holiday. I came home and 4 days later it looked like my urine had turned into ribena, doctors diagnoised myoglobin and said its caused from damaged
misscaz01
in
Foggy's "Invisible Illness" Support
1 year ago
waiting for the result of a 24 urine test as possible hypercalcaemia
I am waiting for the result of a 24 hour urine test. I have previously had above the normal range calcium tests. This has been going on for about a year. I’m guessing that the culprit is lithium but I’m wondering whether steroids can cause this ?
I am waiting for the result of a 24 hour urine test. I have previously had above the normal range calcium tests. This has been going on for about a year. I’m guessing that the culprit is lithium but I’m wondering whether steroids can cause this ?
Elizabethjane7861
in
PMRGCAuk
1 year ago
PSA trippled since last Lupron infusion
My PSA was 0.05 between February 2023 and June 2023, then in September it ticked higher to 0.06 and at yesterday's Lupron injection it was 0.17. Should I be concerned? Anybody with similar experience: what did you do? Am I CR or still CS? Should I ask for Lu-177/Pluvicto ASAP? Thanks for reading.
My PSA was 0.05 between February 2023 and June 2023, then in September it ticked higher to 0.06 and at yesterday's Lupron injection it was 0.17. Should I be concerned? Anybody with similar experience: what did you do? Am I CR or still CS? Should I ask for Lu-177/Pluvicto ASAP? Thanks for reading.
Oldie68
in
Advanced Prostate Cancer
7 months ago
happy holidays …. And a quick update
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
PGDuan
in
Advanced Prostate Cancer
7 months ago
PSA after Radiation
Hi all, This is my first time posting and I wanted to say how grateful I am for this resource. My husband just finished his 28th session of EBRT yesterday, and the doctor did a PSA test after for a baseline. We just saw this morning that it is at 8.8! We were expecting it to be much lower. Is
Hi all, This is my first time posting and I wanted to say how grateful I am for this resource. My husband just finished his 28th session of EBRT yesterday, and the doctor did a PSA test after for a baseline. We just saw this morning that it is at 8.8! We were expecting it to be much lower. Is
LeenieC
in
Prostate Cancer Network
7 months ago
RA pain & inflammation causing terrible anxiety: pacing, insomnia
Experiencing terrible anxiety & insomnia when RA pain flares up- but gp & rheum won’t give sedatives. They act like I’m an addict; so I take a few glasses of wine & I don’t even like liquor. Am in the USA. These drs have no problem giving expensive, “big gun” RA meds & high dose prednisone - but
Experiencing terrible anxiety & insomnia when RA pain flares up- but gp & rheum won’t give sedatives. They act like I’m an addict; so I take a few glasses of wine & I don’t even like liquor. Am in the USA. These drs have no problem giving expensive, “big gun” RA meds & high dose prednisone - but
Hisue
in
NRAS
1 year ago
Phase 1 trial participation Nurix NX-1607
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
I have not been on any treatment since I stopped Docetaxel chemo last year except Prostap injections every 12 weeks. My PSA went up from ~9 to 20 from May to September. I have just been invited to take part in a phase 1a safety and tolerability study of NX-1607. It aims to inhibit CBL-B (Casitas B-lineage
konichiwa12
in
Advanced Prostate Cancer
7 months ago
`psa level
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
I have now been on Firmagon (hormone therapy) for 23 months .I have stage 4+4 with an original PSA of 375.I had 6 rounds of chemo which killed off the majority of the cancer in bones and lungs.Only a couple of tiny spots in the lungs. My professor tells me i have had a very good result on many trips
Brianne07
in
Advanced Prostate Cancer
7 months ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
7 months ago
Testosterone increase after injection
I recently had my 6 month dose of Camcevi 42mg and my testosterone went from 7 t0 55 rights after the injection. My PSA remained the same at 0.1 . Is this normal for my testosterone to jump 48 points. Oncologist says he is more concerned with my PSA. Also the injection of the Camcevi was in my lower
I recently had my 6 month dose of Camcevi 42mg and my testosterone went from 7 t0 55 rights after the injection. My PSA remained the same at 0.1 . Is this normal for my testosterone to jump 48 points. Oncologist says he is more concerned with my PSA. Also the injection of the Camcevi was in my lower
Shadoz
in
Advanced Prostate Cancer
7 months ago
Is inconsistent bowel and urine part of the Prostate cancer? Also almost like dementia?
The last two months my husband has wet himself many times and almost many more times in the last week he has solid himself 3 times when we were out. He doesn't have diarrhea he says he can't tell he has to go until he HAS to go than it's to late. Also in the last two months he has done things like point
The last two months my husband has wet himself many times and almost many more times in the last week he has solid himself 3 times when we were out. He doesn't have diarrhea he says he can't tell he has to go until he HAS to go than it's to late. Also in the last two months he has done things like point
Bo1948
in
Advanced Prostate Cancer
7 months ago
PSA Roller Coaster ride!
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
Back a couple days ago, I posted a question about my PSA being undectable since July 2022. (<0.01) then this month is up to 2.22. I asked what is next etc. I had an appointment with my MO on 19 Dec 2023, they generally do lab work at the cancer center before they give me lupron. I ask them if
JD-guy
in
Advanced Prostate Cancer
7 months ago
My Story
H Everyone, I have been following along for some time, but have never really told my story. I’m in the U.S., in California, and belong to a few inline PMR support groups, but yours is by far the best I have found. I am a 65-year old female of northern European descent. Prior to PMR, I felt I was
H Everyone, I have been following along for some time, but have never really told my story. I’m in the U.S., in California, and belong to a few inline PMR support groups, but yours is by far the best I have found. I am a 65-year old female of northern European descent. Prior to PMR, I felt I was
Lenore58
in
PMRGCAuk
1 year ago
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