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Welcome to Stage Denial
Greetings, fellow warriors fighting prostate cancer. Mababa here, with a funny-sounding username that's a joining of my first name initial with the last part of the name of the city where I was born: Addis Ababa, seventy-one years and six months ago. Actually, I'm not quite in the fight yet, so I can't
Greetings, fellow warriors fighting prostate cancer. Mababa here, with a funny-sounding username that's a joining of my first name initial with the last part of the name of the city where I was born: Addis Ababa, seventy-one years and six months ago. Actually, I'm not quite in the fight yet, so I can't
mababa
in
Advanced Prostate Cancer
6 months ago
After Radiation, what should PSA be?
intermediate pc, with 3+4, 3+4, and 4+3. PSMA clean. Went through SBRT, am on Lupron. Seven months in. usual side effects, especially exhaustion. I went for a PSA and testosterone test today. Should my PSA be undetectable?
intermediate pc, with 3+4, 3+4, and 4+3. PSMA clean. Went through SBRT, am on Lupron. Seven months in. usual side effects, especially exhaustion. I went for a PSA and testosterone test today. Should my PSA be undetectable?
Photographerhere
in
Prostate Cancer Network
6 months ago
I would like to update my dad's situation (type 4 prostate cancer and bone metastasis) - LIMA PERU
Good afternoon, I thank everyone for the answers you gave me in my previous post. I would like to update my dad's situation (type 4 prostate cancer and bone metastasis) perhaps it will serve someone's experience later and your advice will help me a lot. The medications you take: Omeprazole 7 AM Predisona
Good afternoon, I thank everyone for the answers you gave me in my previous post. I would like to update my dad's situation (type 4 prostate cancer and bone metastasis) perhaps it will serve someone's experience later and your advice will help me a lot. The medications you take: Omeprazole 7 AM Predisona
DiegoFerruaPE
in
Advanced Prostate Cancer
6 months ago
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Back pain
I’m getting rear rib pain that I largely feel when lying down and in certain body movement. I do have a little spread to my front ribs. Not sure if this is something to worry about or yet another consequence of the PC and/or medication. My PSA is creeping up though my oncologist it not concerned at the
I’m getting rear rib pain that I largely feel when lying down and in certain body movement. I do have a little spread to my front ribs. Not sure if this is something to worry about or yet another consequence of the PC and/or medication. My PSA is creeping up though my oncologist it not concerned at the
FortyWinks
in
Advanced Prostate Cancer
6 months ago
ideal biochemistry monitoring
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
SimMartin
in
Advanced Prostate Cancer
11 months ago
my life is miserable life due to hormone treatment (eligard) want to quit asap . questions to ask ? /experiences ?
Im a very active 61 - had zero symptoms - no peeing in the night etc and 15 PSA was only flagged while doing pre op for a hip replacement in January. Next PSA was 17 in March so in for biopsy - 8 positive biopsy samples of 48 taken but only one of concern with Gleason of 8. PET scan indicated borderline
Im a very active 61 - had zero symptoms - no peeing in the night etc and 15 PSA was only flagged while doing pre op for a hip replacement in January. Next PSA was 17 in March so in for biopsy - 8 positive biopsy samples of 48 taken but only one of concern with Gleason of 8. PET scan indicated borderline
moon1878
in
Prostate Cancer Network
6 months ago
Poor Conversion T4 to T3 update and supplement advice (Magnesium, Vit B complex, Vit C)
Nearly two months after my Medichecks blood tests and c5 weeks after GP blood test results (see previous posts) I've managed to get an answer from my GP - he has consulted the Endo at local hospital who says I'm a poor converter... Apparently current NHS guidance is to increase the amount of T4 I'm
Nearly two months after my Medichecks blood tests and c5 weeks after GP blood test results (see previous posts) I've managed to get an answer from my GP - he has consulted the Endo at local hospital who says I'm a poor converter... Apparently current NHS guidance is to increase the amount of T4 I'm
Rambling9
in
Thyroid UK
1 year ago
Wait or start docetaxel?
Currently taking Nubeqa and Orgovyx but PSA doubling time is only 7 weeks and PSMA scan shows activity in abdominal lymph nodes, 2 vertebrae and 2 ribs. MO suggested DORA Clinical trial (everyone gets docetaxel, half get radium) but the head of a trial I was previously in at NIH feels that unless a CT
Currently taking Nubeqa and Orgovyx but PSA doubling time is only 7 weeks and PSMA scan shows activity in abdominal lymph nodes, 2 vertebrae and 2 ribs. MO suggested DORA Clinical trial (everyone gets docetaxel, half get radium) but the head of a trial I was previously in at NIH feels that unless a CT
AllenMarco
in
Advanced Prostate Cancer
6 months ago
WHAT ARE THE CURRENT EFFECTIVE SALVAGE TREATMENTS IN CASE OF A REOCCURRENCE IF YOU HAVE HAD SBRT,IMRT, WITH PLACEMENT OF GOLD BARS?
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
JWS13
in
Advanced Prostate Cancer
6 months ago
I like it, but not too much: Phase 2 trial of a DNA vaccine (pTVG-HP) and nivolumab in patients with nmHSPC
"No patients met the primary endpoint of complete PSA response; however, 4/19 (21%) patients had a PSA decline >50%. Median PSA doubling times were 5.9 months pretreatment, 25.6 months on-treatment (p=0.001), and 9.0 months in the subsequent year off-treatment. The overall median radiographic progression-free
"No patients met the primary endpoint of complete PSA response; however, 4/19 (21%) patients had a PSA decline >50%. Median PSA doubling times were 5.9 months pretreatment, 25.6 months on-treatment (p=0.001), and 9.0 months in the subsequent year off-treatment. The overall median radiographic progression-free
Maxone73
in
Advanced Prostate Cancer
6 months ago
Rising PSA
I had a prostatectomy almost 3 years ago. My PSA has been undetectable (<0.01) for all that time. This week it was .02 I’m going to redo the test to make sure. Then my urologist wants to refer me to a radiation oncologist. Has anyone had any experience with this. It’s really been hard trying to sort
I had a prostatectomy almost 3 years ago. My PSA has been undetectable (<0.01) for all that time. This week it was .02 I’m going to redo the test to make sure. Then my urologist wants to refer me to a radiation oncologist. Has anyone had any experience with this. It’s really been hard trying to sort
MJPH
in
Prostate Cancer And Gay Men
6 months ago
Should I be concernedPSA rising from 0.3 to 0.40
after being undetectable for ~ 5 years my PSA became detectable 0.10 in July. In October I was retested and my PSA was 0.30 . In early November I had a PSMA-Pet scan which was negative. Today I was retested with a result of 0.40. How soon should I followup with my MO? Any advice would be appreciated
after being undetectable for ~ 5 years my PSA became detectable 0.10 in July. In October I was retested and my PSA was 0.30 . In early November I had a PSMA-Pet scan which was negative. Today I was retested with a result of 0.40. How soon should I followup with my MO? Any advice would be appreciated
Rfs1975
in
Advanced Prostate Cancer
6 months ago
Declining psa #8
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Nfler
in
Advanced Prostate Cancer
6 months ago
combining standard PCA care with alternative care
In a three month period my PSA went from 58 to 70. Obviously my testosterone was producing more new cancer cells than my alternative treatment. I started the combination treatment on Dec 1 by taking 2 ORGOVYX. Dec 15 my PSA is 27.5 and I will take one more ORGOVYX today hoping to reduce PSA to 10
In a three month period my PSA went from 58 to 70. Obviously my testosterone was producing more new cancer cells than my alternative treatment. I started the combination treatment on Dec 1 by taking 2 ORGOVYX. Dec 15 my PSA is 27.5 and I will take one more ORGOVYX today hoping to reduce PSA to 10
agnut
in
Fight Prostate Cancer
6 months ago
PSA on the rise
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
JD-guy
in
Advanced Prostate Cancer
6 months ago
NHS Attitudes on Worth of Life
My deep apologies to everyone for this post but I think it’s going to be a long one. Partly about PA and partly on NHS attitudes I am encountering about the worth of life. Warning for sensitive members, this post might be shocking. So you will know me through my posts regarding seizures and both neurological
My deep apologies to everyone for this post but I think it’s going to be a long one. Partly about PA and partly on NHS attitudes I am encountering about the worth of life. Warning for sensitive members, this post might be shocking. So you will know me through my posts regarding seizures and both neurological
RoseFlowerDew
in
Pernicious Anaemia Society
1 year ago
PSA post Salvage Radiation
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Silverlings
in
Advanced Prostate Cancer
6 months ago
Do I need 6th Pluvicto infusion? PSA undetectable for 6 months.
I've been on the PSMAddition trial having had 5 of 6th infusions. PSA undetectable (<0.02) since June (it was 0.31 in early May when accepted into trial with relatively low burden PSMA-avid lesions). Aug 4 CT/bone scans showed significant reductions in size and activity of lesions (prior to 3rd treatment
I've been on the PSMAddition trial having had 5 of 6th infusions. PSA undetectable (<0.02) since June (it was 0.31 in early May when accepted into trial with relatively low burden PSMA-avid lesions). Aug 4 CT/bone scans showed significant reductions in size and activity of lesions (prior to 3rd treatment
LongTimeRunning
in
Advanced Prostate Cancer
6 months ago
A question about blood pressure
I recently had two episodes of a fast pulse rate following migraine and triptans taken to relieve it. With this came two readings of high blood pressure - - 181/98 and 179/110. I decided to contact the GP just to check on this and he agreed the fast heart rate could have been a reaction to the triptans
I recently had two episodes of a fast pulse rate following migraine and triptans taken to relieve it. With this came two readings of high blood pressure - - 181/98 and 179/110. I decided to contact the GP just to check on this and he agreed the fast heart rate could have been a reaction to the triptans
Miserere
in
PMRGCAuk
1 year ago
Has anybody used Immucura clinics ?
Hi All, Has anybody used this clinic.. https://sender3.zohoinsights.eu/ck1/13ef.4aba358de/52998e20-9a8f-11ee-ae28-5254002420aa/79e0e7dcd769f1a82f624b9a91845fe7611ef03f/1?e=veESl5RWLMzB2z2VdaUL3CUq0DH9HEX%2FaTvkyymfYCc%3D I'm looking for next stepping stone.. Had nanoknife in 2018, and although psa
Hi All, Has anybody used this clinic.. https://sender3.zohoinsights.eu/ck1/13ef.4aba358de/52998e20-9a8f-11ee-ae28-5254002420aa/79e0e7dcd769f1a82f624b9a91845fe7611ef03f/1?e=veESl5RWLMzB2z2VdaUL3CUq0DH9HEX%2FaTvkyymfYCc%3D I'm looking for next stepping stone.. Had nanoknife in 2018, and although psa
321adam
in
Advanced Prostate Cancer
6 months ago
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