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Gallium 68 PSMA-11
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First blood tests since starting Abi.
Yesterday I saw the MO and when he entered the room he had a bid smile. My Psa that had climbed from 6.6 in March to 19.14 on Sept. 5 had dropped to 4.74 yesterday. ALP was 141 Sept 5 and down to 114 yesterday. I started taking low dose Abi on Sept 9 so total treatment was 24 days. To say he was happy
Yesterday I saw the MO and when he entered the room he had a bid smile. My Psa that had climbed from 6.6 in March to 19.14 on Sept. 5 had dropped to 4.74 yesterday. ALP was 141 Sept 5 and down to 114 yesterday. I started taking low dose Abi on Sept 9 so total treatment was 24 days. To say he was happy
Professorgary
in
Advanced Prostate Cancer
9 months ago
Castration resistant in just a year? Normal or not? Provenge in my future.
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
Gl448
in
Advanced Prostate Cancer
9 months ago
prednisolone - calcium
Hi ! yes I was on 60 mg prednisolone it’s taken me 3 years to reduce I’m now steroid free 👍 I’m now taking calci D and a bone tablet once a week as it has left me with weaker bones but I was on a high dose so may be a call to the GP for advise ( good luck with that ) take care x
Hi ! yes I was on 60 mg prednisolone it’s taken me 3 years to reduce I’m now steroid free 👍 I’m now taking calci D and a bone tablet once a week as it has left me with weaker bones but I was on a high dose so may be a call to the GP for advise ( good luck with that ) take care x
Touting
in
PMRGCAuk
1 year ago
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Is HT Treatment necessary after Orchiectomey?
Its been a while since I sent you gentlemen an update. I did go for Keytruda, started it in March of 2022, but stopped in September because of pretty significant skin reaction. My PSA went from 3.31 in February 2022 to 0.09 3 months ago, so it definitely worked. In the meantime I have gone through with
Its been a while since I sent you gentlemen an update. I did go for Keytruda, started it in March of 2022, but stopped in September because of pretty significant skin reaction. My PSA went from 3.31 in February 2022 to 0.09 3 months ago, so it definitely worked. In the meantime I have gone through with
Bdale
in
Advanced Prostate Cancer
9 months ago
Need for Calcium supplements?
I have been on prednisolone for 10 months for PMR, recent flare at 7mg so now on 10mg until resolved. My Dexa scans show no significant bone loss, currently not taking any supplements. Should I commence them as still have some way to go on this journey!
I have been on prednisolone for 10 months for PMR, recent flare at 7mg so now on 10mg until resolved. My Dexa scans show no significant bone loss, currently not taking any supplements. Should I commence them as still have some way to go on this journey!
Flinders61
in
PMRGCAuk
1 year ago
PsA and maybe PMR
Started on methotrexate 3 weeks ago. Did 20 mg first 2 weeks. Did 1 week so far on 15 mg and do to do 15 again this week. Then start 20 mg per week and stay at that. In the meantime my Rheumatologist has me reducing my prednisone 1 mg a week. Started this at 15 mg prednisone and now 13 mg and due
Started on methotrexate 3 weeks ago. Did 20 mg first 2 weeks. Did 1 week so far on 15 mg and do to do 15 again this week. Then start 20 mg per week and stay at that. In the meantime my Rheumatologist has me reducing my prednisone 1 mg a week. Started this at 15 mg prednisone and now 13 mg and due
Seal49
in
PMRGCAuk
9 months ago
PSA SCREEN VS SYMPTOMATIC
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
6357axbz
in
Advanced Prostate Cancer
9 months ago
Bisoprolol alternative to avoid cold extremities
Afternoon all, Despite 2 ablations my AFib episodes returned a year ago. Bisoprolol and flecainide seem to control it well, but I really struggled this winter with cold extremities. Despite plenty of layers, woollen socks, thick long skiing gloves I still have very cold fingers and toes. I tried
Afternoon all, Despite 2 ablations my AFib episodes returned a year ago. Bisoprolol and flecainide seem to control it well, but I really struggled this winter with cold extremities. Despite plenty of layers, woollen socks, thick long skiing gloves I still have very cold fingers and toes. I tried
kitenski
in
AF Association
1 year ago
Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
9 months ago
Emotional lability and LT ADT
At certain times of extra stress, like awaiting a PSA test result, I have gotten into wrist-slap trouble by making awkward humor and remarks to Clinic staff. They get PO'ed and tattle to my MO. It's really not like me and the latest incident prompted me to look into ADT and emotional SE's. Bingo!
At certain times of extra stress, like awaiting a PSA test result, I have gotten into wrist-slap trouble by making awkward humor and remarks to Clinic staff. They get PO'ed and tattle to my MO. It's really not like me and the latest incident prompted me to look into ADT and emotional SE's. Bingo!
Derf4223
in
Advanced Prostate Cancer
9 months ago
The Use of Low Dose Estradiol to Ameliorate the Effects of ADT on Bone Mass Density
I have been conducting a long-term n of 1 trial since January 23, 2021 using lose dose estradiol (E2) gel to counteract the effects of androgen deprivation therapy (ADT) on bone mass density (BMD). I believe that I now have sufficient data to report that low dose transdermal E2, along with exercise and
I have been conducting a long-term n of 1 trial since January 23, 2021 using lose dose estradiol (E2) gel to counteract the effects of androgen deprivation therapy (ADT) on bone mass density (BMD). I believe that I now have sufficient data to report that low dose transdermal E2, along with exercise and
PhilipSZacarias
in
Advanced Prostate Cancer
1 year ago
Can a new drug mimic the effects of exercise on bone and muscle?
Looks like this is something we should look forward to and keep an eye out for approval. Researchers have recently discovered that a new drug called locamidazole may help to prevent loss of bone density and muscle mass during periods of inactivity, but it’s no substitute for all of the benefits of exercise
Looks like this is something we should look forward to and keep an eye out for approval. Researchers have recently discovered that a new drug called locamidazole may help to prevent loss of bone density and muscle mass during periods of inactivity, but it’s no substitute for all of the benefits of exercise
Scout4answers
in
Advanced Prostate Cancer
1 year ago
Possible Cure
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
groth12345
in
Advanced Prostate Cancer
9 months ago
GS8 in one core Brachy boost and no HT
Six years ago I was diagnosed with PC. Only one core of 13 showed GS8 ie. 4mm in a 10mm core. I wasn't willing to undergo HT and fortunately that was optional at BCCA with my PSA of 5.2 and only one core with cancer. I had all the side effects like fatigue, frequent urinating and the worst being the
Six years ago I was diagnosed with PC. Only one core of 13 showed GS8 ie. 4mm in a 10mm core. I wasn't willing to undergo HT and fortunately that was optional at BCCA with my PSA of 5.2 and only one core with cancer. I had all the side effects like fatigue, frequent urinating and the worst being the
deMarco
in
Prostate Cancer Network
9 months ago
Obtaining EpiSwitch PSE
Oxford Biodynamics (UK) has announced a new blood test, EpiSwitch PSE, with claimed accuracy, specificity and sensitivity >= 94%. The test uses PSA along with several genetic markers for prostate cancer detection, which is a marked improvement over 4K in specificity. Does anyone have info on getting
Oxford Biodynamics (UK) has announced a new blood test, EpiSwitch PSE, with claimed accuracy, specificity and sensitivity >= 94%. The test uses PSA along with several genetic markers for prostate cancer detection, which is a marked improvement over 4K in specificity. Does anyone have info on getting
ElLayhiker
in
Prostate Cancer Network
9 months ago
Feeling very hopeless at this point.
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
Judymin
in
Advanced Prostate Cancer
9 months ago
CHAMP Trial/Small Cell Chemo Update
If you don’t feel like reading my bio, I’ll give a synopsis: My dad is only 53 with advanced metastatic PC that spread to his liver earlier this year. His PSA had been undetectable so it really threw us for a loop. My dad finished 6 sessions of carbo & etoposide chemo about 3 weeks ago. He is still randomly
If you don’t feel like reading my bio, I’ll give a synopsis: My dad is only 53 with advanced metastatic PC that spread to his liver earlier this year. His PSA had been undetectable so it really threw us for a loop. My dad finished 6 sessions of carbo & etoposide chemo about 3 weeks ago. He is still randomly
antisocialsocialwrkr
in
Advanced Prostate Cancer
9 months ago
Need Help with Next Gen ADT
I haven't updated my bio for awhile but I am still hormone sensitive MPCA. My PSA last month was undetectable. I had a bilateral orchiectomy in February but was also on Erleada which I stayed on until recently. So what's changed is that I also have Stage I Multiple Myeloma. Erleada and Xandti are
I haven't updated my bio for awhile but I am still hormone sensitive MPCA. My PSA last month was undetectable. I had a bilateral orchiectomy in February but was also on Erleada which I stayed on until recently. So what's changed is that I also have Stage I Multiple Myeloma. Erleada and Xandti are
swwags
in
Advanced Prostate Cancer
9 months ago
So unsure what to do...
Hello all. I am a 53 year old gay man and I have had raised PSA since 2020. My urologist performed a DRE and felt nothing and decided that we should watch the number and see what happens. 1 year later, the urologist decided to send me for an MRI and it showed no signs of cancer. Feeling relieved, I
Hello all. I am a 53 year old gay man and I have had raised PSA since 2020. My urologist performed a DRE and felt nothing and decided that we should watch the number and see what happens. 1 year later, the urologist decided to send me for an MRI and it showed no signs of cancer. Feeling relieved, I
SadandScared
in
Prostate Cancer And Gay Men
9 months ago
Full circle with metastatic prostate cancer
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
Islandboy2021
in
Advanced Prostate Cancer
9 months ago
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