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Gallium 68 PSMA-11
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Myoglobin
I think i over done my muscles on left side from the waist down, did far too much walking and walking on uneven surfaces and diving in sand dunes while on uk holiday. I came home and 4 days later it looked like my urine had turned into ribena, doctors diagnoised myoglobin and said its caused from damaged
I think i over done my muscles on left side from the waist down, did far too much walking and walking on uneven surfaces and diving in sand dunes while on uk holiday. I came home and 4 days later it looked like my urine had turned into ribena, doctors diagnoised myoglobin and said its caused from damaged
misscaz01
in
Foggy's "Invisible Illness" Support
1 year ago
waiting for the result of a 24 urine test as possible hypercalcaemia
I am waiting for the result of a 24 hour urine test. I have previously had above the normal range calcium tests. This has been going on for about a year. I’m guessing that the culprit is lithium but I’m wondering whether steroids can cause this ?
I am waiting for the result of a 24 hour urine test. I have previously had above the normal range calcium tests. This has been going on for about a year. I’m guessing that the culprit is lithium but I’m wondering whether steroids can cause this ?
Elizabethjane7861
in
PMRGCAuk
1 year ago
liver Mets, Pluvicto failed
diagnosed 2021, spread to distant lymph nodes. Castrate resistant within 6 months. Had platinum based chemo. Stabilized for bit. 4 Pluvicto treatments. PSA went from 4 to 70. Latest scans show new mets to liver. Genetic testing shows ATM mutation. Where to go from here?
diagnosed 2021, spread to distant lymph nodes. Castrate resistant within 6 months. Had platinum based chemo. Stabilized for bit. 4 Pluvicto treatments. PSA went from 4 to 70. Latest scans show new mets to liver. Genetic testing shows ATM mutation. Where to go from here?
mysticmini
in
Advanced Prostate Cancer
5 months ago
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Focal therapy ?
I'm a patient at MSK in NY, though I live in CT. Am an active healthy 80 yr old who is still working and runs on a treadmill 2-3 miles a day. Briefly, have been on active surveillance since Fall, 2019 with periodic MRIs, biopsies (Gleason 6), etc. Also have BPH (last MRI 95cc). Last Spring PSA started
I'm a patient at MSK in NY, though I live in CT. Am an active healthy 80 yr old who is still working and runs on a treadmill 2-3 miles a day. Briefly, have been on active surveillance since Fall, 2019 with periodic MRIs, biopsies (Gleason 6), etc. Also have BPH (last MRI 95cc). Last Spring PSA started
Whitby2
in
Prostate Cancer Network
5 months ago
Update on PSA spike after radiation.
A quick update. Was diagnosed April 2023 PSA of 9. Had Cyberknife in November. 1st PSA (at 60 days was 11.96). This alarmed me. They told me to wait another 6weeks and test. Today it was 9.1. I'm considering this a win for now. Am I wrong?
A quick update. Was diagnosed April 2023 PSA of 9. Had Cyberknife in November. 1st PSA (at 60 days was 11.96). This alarmed me. They told me to wait another 6weeks and test. Today it was 9.1. I'm considering this a win for now. Am I wrong?
Chasbearcat999
in
Prostate Cancer Network
5 months ago
some not great news/ still a lot unknown
I’ve posted before about my first introductions to prostate cancer: primarily significantly increased PSA yr to yr (3 to 6+). Did the EXODX urine test and score came back 25.9 out of 100 (15.9 being the cut off to keep from proceeding with biopsy, so I figured I’d at least need to do that. ) Finally
I’ve posted before about my first introductions to prostate cancer: primarily significantly increased PSA yr to yr (3 to 6+). Did the EXODX urine test and score came back 25.9 out of 100 (15.9 being the cut off to keep from proceeding with biopsy, so I figured I’d at least need to do that. ) Finally
Willie51
in
Prostate Cancer And Gay Men
5 months ago
What is my best treatment option?
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
davidw777
in
Advanced Prostate Cancer
5 months ago
Help, bad Decipher results, this changes everything, please advise (NE WI area but will travel)
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
AliceinW57
in
Prostate Cancer Network
5 months ago
Surgery vs SBRT Cyberknife
I posted this in the Advanced PC group and shouldn't have, as my Hubs is not in an advanced stage. Posting here in hopes of more input! I apologize if you are in the other group and have already seen this! Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first
I posted this in the Advanced PC group and shouldn't have, as my Hubs is not in an advanced stage. Posting here in hopes of more input! I apologize if you are in the other group and have already seen this! Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first
Pride123
in
Prostate Cancer Network
5 months ago
2 or 3 yrs ADT
I was diagnosed im Jan 2022 with Gleason 9. PSA was 5.68. Prostatectomy in April 2022. The post surgical pathology showed 1 of 9 lymph nodes was positive, positive margins and one seminal vesical positive. Started Eligard in June 22 and abiraterone with predisone in July 2022. Radiation (34 days, 68
I was diagnosed im Jan 2022 with Gleason 9. PSA was 5.68. Prostatectomy in April 2022. The post surgical pathology showed 1 of 9 lymph nodes was positive, positive margins and one seminal vesical positive. Started Eligard in June 22 and abiraterone with predisone in July 2022. Radiation (34 days, 68
snugrose
in
Advanced Prostate Cancer
5 months ago
Blood in stool..
Sorry for the Poo talk but here goes.. About a week and a half ago, i was wiping and noticed pink on the paper. When i was done i got the flashlight on and saw a red blood streak along the turd. On the outside of it. It went away so i thought it’s a one-off. then the last couple days three more
Sorry for the Poo talk but here goes.. About a week and a half ago, i was wiping and noticed pink on the paper. When i was done i got the flashlight on and saw a red blood streak along the turd. On the outside of it. It went away so i thought it’s a one-off. then the last couple days three more
groundhogy
in
Advanced Prostate Cancer
5 months ago
biopsy - fragmented cores and progression risk
I had 3 biopsies from January 2020 to July 2022. The first two almost identical being Gleason 3+4 with <10% 4. However 6 months post HIFU it was Gleason 9 with 4+5 with 10% 5 and 70% 5 (see below). I am curious as the cores are fragmented and so it’s hard to know what this means and if it makes any
I had 3 biopsies from January 2020 to July 2022. The first two almost identical being Gleason 3+4 with <10% 4. However 6 months post HIFU it was Gleason 9 with 4+5 with 10% 5 and 70% 5 (see below). I am curious as the cores are fragmented and so it’s hard to know what this means and if it makes any
SimMartin
in
Advanced Prostate Cancer
5 months ago
Rising PSA
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
JolleySprings
in
Advanced Prostate Cancer
5 months ago
new to methotrexate: will my MTX fatigue fade or continue?
I'm just a beginner here, having received an RA diagnosis in December on the basis of blood tests (I have no joint pain or problems, but my blood markers agree with the RA diagnosis; elevated RA and anti-CCP). I also have three other diagnoses: PSA (psoriatic arthritis), PMR (polymyalgia rheumatica),
I'm just a beginner here, having received an RA diagnosis in December on the basis of blood tests (I have no joint pain or problems, but my blood markers agree with the RA diagnosis; elevated RA and anti-CCP). I also have three other diagnoses: PSA (psoriatic arthritis), PMR (polymyalgia rheumatica),
benhemp
in
NRAS
5 months ago
Trying to stay positive when I dont "get" it
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
QueenVic1952
in
Pelvic Pain Support Network
1 year ago
Pluvicto (lutetium Lu 177
Questions Just got done with Gallium-68 showed limp nodes, spine, Arms and crown of head 1. Does Medicare approve Pluvicto (lutetium Lu 177? 2. I’ve had Radiation, And 24 months of Lupron and xtandi. And now my PSA is rising. Are you required to do Chemo before they approve? Thanks 👍
Questions Just got done with Gallium-68 showed limp nodes, spine, Arms and crown of head 1. Does Medicare approve Pluvicto (lutetium Lu 177? 2. I’ve had Radiation, And 24 months of Lupron and xtandi. And now my PSA is rising. Are you required to do Chemo before they approve? Thanks 👍
anonymoose2
in
Advanced Prostate Cancer
5 months ago
Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
5 months ago
Rising PSA -
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
MPCSUX
in
Advanced Prostate Cancer
5 months ago
Radium 223 offered
Hi everyone Husband diagnosed nearly 51/2 years ago. Stage 4 with mets to spine and hip (4 in total) none to organs etc. Had Chemo five years ago ,Zytiga +Pred for 2 1/2 years (now failing ) as PSA is up to 37. We are in UK as some of you know, and Clint has been offered Radium 223 for his bone mets
Hi everyone Husband diagnosed nearly 51/2 years ago. Stage 4 with mets to spine and hip (4 in total) none to organs etc. Had Chemo five years ago ,Zytiga +Pred for 2 1/2 years (now failing ) as PSA is up to 37. We are in UK as some of you know, and Clint has been offered Radium 223 for his bone mets
16starsky
in
Advanced Prostate Cancer
5 months ago
My Story
H Everyone, I have been following along for some time, but have never really told my story. I’m in the U.S., in California, and belong to a few inline PMR support groups, but yours is by far the best I have found. I am a 65-year old female of northern European descent. Prior to PMR, I felt I was
H Everyone, I have been following along for some time, but have never really told my story. I’m in the U.S., in California, and belong to a few inline PMR support groups, but yours is by far the best I have found. I am a 65-year old female of northern European descent. Prior to PMR, I felt I was
Lenore58
in
PMRGCAuk
1 year ago
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