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Gallium 68 PSMA-11
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Latest PSA! Undetectable
My latest (11/8) PSA was <0.1 ng/mL. This is my third in a row that was undetectable since finishing chemotherapy and radiation. All of my other labs look excellent and my Hemoglobin A1c was 5.4% Consistent exercise has contributed to that greatly and also how well I’m feeling I am feeling
My latest (11/8) PSA was <0.1 ng/mL. This is my third in a row that was undetectable since finishing chemotherapy and radiation. All of my other labs look excellent and my Hemoglobin A1c was 5.4% Consistent exercise has contributed to that greatly and also how well I’m feeling I am feeling
AlvinSD
in
Advanced Prostate Cancer
7 months ago
PSMA pet scan negative
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
Rfs1975
in
Advanced Prostate Cancer
7 months ago
Bone Pain
I have been having significant bone pain in my shoulder that keeps me awake at night. I thought that maybe I was just being a hypochondriac and assuming that every ache or pain was due to "my cancer". Or maybe I fell but forgot about it. Well it has been getting a lot worse and I just had a PSMA scan
I have been having significant bone pain in my shoulder that keeps me awake at night. I thought that maybe I was just being a hypochondriac and assuming that every ache or pain was due to "my cancer". Or maybe I fell but forgot about it. Well it has been getting a lot worse and I just had a PSMA scan
spencoid2
in
Advanced Prostate Cancer
7 months ago
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PSA & T is up
We started this journey in June 2022 and hit this PC with triple therapy to stop the cancer that had already attacked his whole skeleton. My husband has now developed a cancerous tumor in his head in the sinus cavity and behind his eye which has caused him double vision and pain. It’s wrapped around
We started this journey in June 2022 and hit this PC with triple therapy to stop the cancer that had already attacked his whole skeleton. My husband has now developed a cancerous tumor in his head in the sinus cavity and behind his eye which has caused him double vision and pain. It’s wrapped around
Izzygirl1
in
Advanced Prostate Cancer
7 months ago
Post Transplant psoriatic arthritis treatment
So, here goes! I'm 48 and just "celebrated" 3 years Kidney-versary September 14th! I have PKD and was having a lot of pain and other issues before, so even though I was still around 17% function I was listed for transplant. I was very fortunate though to have a living donor come forward to donate and
So, here goes! I'm 48 and just "celebrated" 3 years Kidney-versary September 14th! I have PKD and was having a lot of pain and other issues before, so even though I was still around 17% function I was listed for transplant. I was very fortunate though to have a living donor come forward to donate and
PKDPostXplant2020
in
Kidney Transplant
7 months ago
Treatment options
Hi- I have posted a few times about my brother who was diagnosed in March 2021. For 18 months he did really well on Abiterone. His PSA went from his initial diagnosis of 52 to under 0.03 for several months. He has Kaiser HMO and unfortunately his oncologist retired at the time his PSA starting trending
Hi- I have posted a few times about my brother who was diagnosed in March 2021. For 18 months he did really well on Abiterone. His PSA went from his initial diagnosis of 52 to under 0.03 for several months. He has Kaiser HMO and unfortunately his oncologist retired at the time his PSA starting trending
TerryR123
in
Advanced Prostate Cancer
7 months ago
UCLA RO says that since it's been only 4 mo since stop of 4 ms RT & 4ms orgo and my T is 80 - more t than baseline (286) may trigger cancer
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
JWS13
in
Advanced Prostate Cancer
7 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
7 months ago
Need help finding Diet App for tracking dietary intake
Hi. I have been monitoring my intake but no formal or efficient way to track daily intake: protein, sodium, potassium, calcium, phosphorous, sugar, fat, calories, etc.I also track water intake, which is much easier. I've been writing down what I eat, but this is so time consuming. Does anyone know of
Hi. I have been monitoring my intake but no formal or efficient way to track daily intake: protein, sodium, potassium, calcium, phosphorous, sugar, fat, calories, etc.I also track water intake, which is much easier. I've been writing down what I eat, but this is so time consuming. Does anyone know of
Dana66CKD
in
Kidney Disease
1 year ago
Clarity Pharmaceuticals achieves recruitment target for phase II SAR-Bombesin prostate cancer trial
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
Maxone73
in
Advanced Prostate Cancer
8 months ago
Quite happy with ADT
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
EBBEFLUT
in
Advanced Prostate Cancer
8 months ago
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
8 months ago
24 hour Urine Cortisol Results
Hello I have posted before on my daughter but wasn't sure if i had to post there or a new post. Apologies if i have it wrong. You were all helpful last time. Thanks again After a high cortisol result from Blue Horizon we finally managed to get the doctor to do a 24 Hour urine cortisol test. I have
Hello I have posted before on my daughter but wasn't sure if i had to post there or a new post. Apologies if i have it wrong. You were all helpful last time. Thanks again After a high cortisol result from Blue Horizon we finally managed to get the doctor to do a 24 Hour urine cortisol test. I have
Joliplace
in
Thyroid UK
1 year ago
What to do ?
Hi All , I wonder if you have any any insight to this ? my husband started chemo (Docetaxel on the 9/10/23 and is coming up to his 3rd treatment due on 20/11/23 he has tolerated the chemo well and is still working which is great . he was dehydrated and his haemoglobin was quite low so they gave him a
Hi All , I wonder if you have any any insight to this ? my husband started chemo (Docetaxel on the 9/10/23 and is coming up to his 3rd treatment due on 20/11/23 he has tolerated the chemo well and is still working which is great . he was dehydrated and his haemoglobin was quite low so they gave him a
palser1
in
Advanced Prostate Cancer
8 months ago
Seal49
Started with pmr diagnosed and Rheumatologist decided it is PsA. HD it since April. Started prednisone at 25 mg and reducing. Now at 10 mg and started on methotrexate to speed up the prednisone reduction. Rheumatologist wants it done asap. Most days ok but still some leg thighs, neck and shoulders
Started with pmr diagnosed and Rheumatologist decided it is PsA. HD it since April. Started prednisone at 25 mg and reducing. Now at 10 mg and started on methotrexate to speed up the prednisone reduction. Rheumatologist wants it done asap. Most days ok but still some leg thighs, neck and shoulders
Seal49
in
NRAS
8 months ago
canceling zoledronic acid infusion because of ppi use.
hi,I think I will be canceling my zoledronic acid infusion because of increased fracture with my use of lansoprazole 30mgs and not absorbing calcium with ppi, has anyone safely had a infusion while taking ppis,
hi,I think I will be canceling my zoledronic acid infusion because of increased fracture with my use of lansoprazole 30mgs and not absorbing calcium with ppi, has anyone safely had a infusion while taking ppis,
Radars
in
Bone Health and Osteoporosis UK
1 year ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
8 months ago
QoLmost like being in Love. PSA steady at 2.9!
What a day it has been... https://youtu.be/DRVpLut8oCw?si=if9UYuzKJRuOTtdW Busy QoLing weekend😂 Friday night in Bakersfield went to the Bakersfield Fox Theater to see the World Ballet Series performance of Cinderella. What an exquisite performance with sumptuous costumes, athletic dancers, and the
What a day it has been... https://youtu.be/DRVpLut8oCw?si=if9UYuzKJRuOTtdW Busy QoLing weekend😂 Friday night in Bakersfield went to the Bakersfield Fox Theater to see the World Ballet Series performance of Cinderella. What an exquisite performance with sumptuous costumes, athletic dancers, and the
dockam
in
Advanced Prostate Cancer
8 months ago
Things I Like About ADT
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
32Percenter
in
Advanced Prostate Cancer
8 months ago
History of my cancer becoming castrate resistant
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
dac500
in
Advanced Prostate Cancer
8 months ago
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