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Erleada or Xtandi vs Seizure Risk
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
vintage42
in
Advanced Prostate Cancer
4 months ago
Chemotherapy
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
I had metastatic breast cancer in 2014. I had a breast removed, and my lymph nodes removed. Followed by 6 Fec-T Chemotherapy Sessions and 15 Radiotherapy Sessions. Whilst the chemotherapy is a dreadful treatment to have to endure and can have lasting permanent effects (I have neuropathy in my legs
Petalka32
in
SHARE Metastatic Breast Cancer
4 months ago
Chocolatemilk44
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
Diagnosed with ovarian stage 4 in may. I have had 8 rounds of chemo with hysterectomy. Maintenance drug is avastin.
chocolatemilk44
in
My Ovacome
4 months ago
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Signatera tumor dna test
Has anyone heard of using the Signatera test from Natera to detect the presence of prostate cancer recurrence when PSA is rising but the PSMA PET scan is negative?
Has anyone heard of using the Signatera test from Natera to detect the presence of prostate cancer recurrence when PSA is rising but the PSMA PET scan is negative?
shihtzu124
in
Advanced Prostate Cancer
6 months ago
PSA Dropped after 22 days of Zytiga
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
On Nov 1, my cancer was diagnosed as castrate resistant. Abiraterone and Prednisone was added to Lupron. On November 3 I had a Lupron shot and started Abiraterone and Prednisone on November 10. Today I had a PSA test. My PSA dropped from 0.8 on November 1 to 0.44 today. I was not expecting such dramatic
dac500
in
Advanced Prostate Cancer
6 months ago
16cm Fibroid
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Hi all, I have just had a phone call from my doctor advising I have a large mass in my pelvic, 16cm which looks like a fibroid. I’ve had pain and bloating for the last few months which is why I had the scan. It’s caused me a lot of worry as the doctor said ‘they think it’s a fibroid’ so now I’m googling
Dem92
in
Pelvic Pain Support Network
4 months ago
Liquid Biopsy
Has anyone had experience with having a Liquid Biopsy done? It is a blood test that can identify cells in the body which may show cancer, then enabling doctors to target therapies that can help. It’s recently been approved by FDA, so insurance can pay. I just had this done at Stanford Hospital (California
Has anyone had experience with having a Liquid Biopsy done? It is a blood test that can identify cells in the body which may show cancer, then enabling doctors to target therapies that can help. It’s recently been approved by FDA, so insurance can pay. I just had this done at Stanford Hospital (California
RedwoodLady
in
SHARE Metastatic Breast Cancer
4 months ago
CA 27.29 Blood test
My new oncologist wants to add a new tumor marker test to my regular tests for CA15 and CEA. I know these guys all have widely varying ideas on which ones - if any - mean anything. So just looking to see if you all have any experience with this. My Ca15 has always been an accurate indicator and predictor
My new oncologist wants to add a new tumor marker test to my regular tests for CA15 and CEA. I know these guys all have widely varying ideas on which ones - if any - mean anything. So just looking to see if you all have any experience with this. My Ca15 has always been an accurate indicator and predictor
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
4 months ago
Hemorrhagic vasculitis treatment
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Egorka
in
Vasculitis UK
4 months ago
Colostomy
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
DIYdiva
in
SHARE Ovarian Cancer Support
4 months ago
Coping with chemo side effects
Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & currently struggling so much with chemo side effects & wondering how it has been for others.. I had my 1st chemo 2 Jan (carboplatin paclitaxel and bevacizumab) 8 hour infusion. I didn't know how I would react and although I had
Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & currently struggling so much with chemo side effects & wondering how it has been for others.. I had my 1st chemo 2 Jan (carboplatin paclitaxel and bevacizumab) 8 hour infusion. I didn't know how I would react and although I had
Kazzh
in
My Ovacome
4 months ago
hope + action
thought it befitting to share on World Cancer Day. the latest (yearly) PET/CT scan was 29 January. thankFULL it was another NEAD result; the initial dx was Oct 2011, and the mBC dx was July 2015. the aforementioned scan is eight years of mBC NEAD scans. and, after the scan we discussed stopping Ibrance
thought it befitting to share on World Cancer Day. the latest (yearly) PET/CT scan was 29 January. thankFULL it was another NEAD result; the initial dx was Oct 2011, and the mBC dx was July 2015. the aforementioned scan is eight years of mBC NEAD scans. and, after the scan we discussed stopping Ibrance
hurricaneheather
in
SHARE Metastatic Breast Cancer
4 months ago
Blood biopsy
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
sevoia
in
SHARE Metastatic Breast Cancer
4 months ago
Would you like to give feedback on a new "healthy eating with lupus" booklet for Lupus UK?
A team at University College London (UCL) have been working hard on a new version of Lupus UK's diet & healthy eating booklet. They have a first draft and want to hear what people think so they can make sure it has all the information people want, presented in the way that's most helpful to them.
A team at University College London (UCL) have been working hard on a new version of Lupus UK's diet & healthy eating booklet. They have a first draft and want to hear what people think so they can make sure it has all the information people want, presented in the way that's most helpful to them.
Debbie_kinsey
Administrator
in
LUPUS UK
8 months ago
M&S Ground Coffee - Coeliac Symptoms
Hi, I've joined up to ask the bizarre question if anyone else has been made ill by the most banal and unlikely of things, i.e. ground coffee? I normally use Lavazza or Taylors, or even local Co-Ops own brand, and all have been entirely fine. For years coffee is the one thing I have been able to trust
Hi, I've joined up to ask the bizarre question if anyone else has been made ill by the most banal and unlikely of things, i.e. ground coffee? I normally use Lavazza or Taylors, or even local Co-Ops own brand, and all have been entirely fine. For years coffee is the one thing I have been able to trust
Hidden
in
Gluten Free Guerrillas
8 months ago
Can sibo cause bloody stools
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Sooty712
in
IBS Network
4 months ago
NZ made nutrient rescue.
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
Facebook keeps recommending this product to me. It’s made in NZ so might give it a shot as todays story was about a guy from NZ who has Parkinson’s and lives here in Christchurch! https://nutrientrescue.nz/ingredients “ When I was diagnosed 10 years ago, I was referred to a specialist in Oregon. Dr
LAJ12345
in
Cure Parkinson's
6 months ago
Good news
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Evening ..some if you may know I've been on this site for a couple of years..I was on and off a drinker wine etc ..normal for spain.Anyway 2.5 years ago during the pandemic I knew that I wasn't right had a blood test ..not good . Fast tracked specialist apt . Different tests set up ..fatty liver diagnosed
Spiff
in
British Liver Trust
6 months ago
Risk vs reward in clinical trials
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Pmann
in
Advanced Prostate Cancer
4 months ago
What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
4 months ago
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