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Gallbladder and bile duct diseases
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when to test child for CD?
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Those of you with CD diagnosed in adulthood but with children - is there any evidence to suggest it’s beneficial to limit gluten in the diet? A fellow coeliac recently told me age 4 is when to get tested but he couldn’t recall where he got that info from. My daughter has no obvious signs and we haven
Anj1a
in
Gluten Free Guerrillas
8 months ago
hyperthyroidism
hi I have hyperthyroidism and have Graves’ disease. I have my consultant appointment next week. I got very ill a few weeks back don’t know if it was the case as I was told to come off my meds 5 months ago. Any tips or advice what diet I should follow ? I have lost so much weight due to my thyroid
hi I have hyperthyroidism and have Graves’ disease. I have my consultant appointment next week. I got very ill a few weeks back don’t know if it was the case as I was told to come off my meds 5 months ago. Any tips or advice what diet I should follow ? I have lost so much weight due to my thyroid
Gee14
in
Thyroid UK
6 months ago
Bilateral frontal calvarial metastases
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
Has anyone in the forum experienced bilateral frontal calvarial metastases associated with their PCa? I recently had a brain MRI where this metastases was identified. The assessing physicians impression was that there is no worrisome parenchymal or leptomeningeal enhancement and did not recommend any
kklott01
in
Advanced Prostate Cancer
3 months ago
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Herceptin Perjeta and Faslodex advice?? And sadly bye bye Ibrance
Hi ladies , I’m reposting a briefer message from yesterday since it has 0 replies . Ibrance stopped working and I’m going on those 3 combinations - ty for all the earlier comments/tips I’ve read about Faslodex shots I’m looking for anyone who has done these three combinations and your symptoms . Guessing
Hi ladies , I’m reposting a briefer message from yesterday since it has 0 replies . Ibrance stopped working and I’m going on those 3 combinations - ty for all the earlier comments/tips I’ve read about Faslodex shots I’m looking for anyone who has done these three combinations and your symptoms . Guessing
Georgelila
in
SHARE Metastatic Breast Cancer
3 months ago
Father has had PBC for 16 years - Odd complications since COVID?
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Kylewillmott
in
PBC Foundation
6 months ago
blood test to identify neuroendocrine cancer asap
ok I repost this mainly because the University of Trento is one hour from here and I got good friends there (working on CRISPR)…together with Dana-Farber they have developed a blood test to identify if there is an endocrine prostate cancer and the subtype https://medriva.com/cancer/a-breakthrough-in-prostate-cancer-treatment-new-blood-test-identifies-neuroendocrine-subtype
ok I repost this mainly because the University of Trento is one hour from here and I got good friends there (working on CRISPR)…together with Dana-Farber they have developed a blood test to identify if there is an endocrine prostate cancer and the subtype https://medriva.com/cancer/a-breakthrough-in-prostate-cancer-treatment-new-blood-test-identifies-neuroendocrine-subtype
Maxone73
in
Advanced Prostate Cancer
6 months ago
elevated Liver Enzymes
Hello, I am in need of advice. I have had mildly elevated liver enzymes and can’t figure out the cause of it. I have been tested for everything and anything related to the liver (autoimmune, hepatitis, liver diseases) I have had a normal ultra sound and fibroscan. All lab work is normal except AST and
Hello, I am in need of advice. I have had mildly elevated liver enzymes and can’t figure out the cause of it. I have been tested for everything and anything related to the liver (autoimmune, hepatitis, liver diseases) I have had a normal ultra sound and fibroscan. All lab work is normal except AST and
Lresinger
in
British Liver Trust
6 months ago
xeloda
I take 3000 a day and I weigh 135 lbs. My regime is 7 days on and 7 days off. However I started with 3500 and that really affected my hands and they lowered my dosage. I am still having challenges with my hands but it’s not bad. They get extremely dry and crack, so I try to keep them moisturized
I take 3000 a day and I weigh 135 lbs. My regime is 7 days on and 7 days off. However I started with 3500 and that really affected my hands and they lowered my dosage. I am still having challenges with my hands but it’s not bad. They get extremely dry and crack, so I try to keep them moisturized
Kofipuppy
in
SHARE Metastatic Breast Cancer
3 months ago
Temporary stoppage of Ibrutinib
I need to stop IB one week pre/post surgery. Today is day 3. Has anyone started feeling reversal symptoms? I’m feeling more fatigued. Hoping my lymph nodes issues don’t return. Just curious.
I need to stop IB one week pre/post surgery. Today is day 3. Has anyone started feeling reversal symptoms? I’m feeling more fatigued. Hoping my lymph nodes issues don’t return. Just curious.
CoBubby
in
CLL Support
3 months ago
Advice? Anyone taking Herceptin Perjeta and Faslodex? And bye Ibrance
Hi everyone. My onc switched me off ibrance and Exemastane bc initial breast tumor is growing and has become resistant to these meds. I knew like all of us here that first line of treatment would end sometime (almost 4 years) but I’m really nervous about this new normal I’m entering into with 3 week
Hi everyone. My onc switched me off ibrance and Exemastane bc initial breast tumor is growing and has become resistant to these meds. I knew like all of us here that first line of treatment would end sometime (almost 4 years) but I’m really nervous about this new normal I’m entering into with 3 week
Georgelila
in
SHARE Metastatic Breast Cancer
3 months ago
Researchers Develop "Two-Headed" Drug to treat Parkinson's Disease
Although the following research is in its infancy, it has merit and looks promising. In particular that they want to try and make it a oral bio-active medicine. Researchers have created a ‘two-headed’ drug that prevents the production of the toxic protein linked to Parkinson’s disease before destroying
Although the following research is in its infancy, it has merit and looks promising. In particular that they want to try and make it a oral bio-active medicine. Researchers have created a ‘two-headed’ drug that prevents the production of the toxic protein linked to Parkinson’s disease before destroying
Baron1
in
Cure Parkinson's
6 months ago
Princess of Wales
Many of you will have seen the Princess of Wales is having preventative chemotherapy for cancer. It must have been very difficult for her to speak about when still trying to digest the information herself. I rarely tell anyone I am suffering from a cancer, I usually say I have a bone marrow disease.
Many of you will have seen the Princess of Wales is having preventative chemotherapy for cancer. It must have been very difficult for her to speak about when still trying to digest the information herself. I rarely tell anyone I am suffering from a cancer, I usually say I have a bone marrow disease.
lizzziep
in
MPN Voice
3 months ago
Thoughts?
Hello, Decided to ring the liver trust nurses today . I spoke to a lovely lady who went through stuff with me but as she said didn’t know my medical details but encouraged or questioned should I be asking my consultant about my prognosis. Am I alone with now being scared to death that if I should ask
Hello, Decided to ring the liver trust nurses today . I spoke to a lovely lady who went through stuff with me but as she said didn’t know my medical details but encouraged or questioned should I be asking my consultant about my prognosis. Am I alone with now being scared to death that if I should ask
Etymolog
in
British Liver Trust
6 months ago
Abdomen pain - IBS
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
I have suffered with IBS since for 35 years and the pain was always on the left hand side and lower bowel. Had alternating constipation and diarrhoea but managed with occasional use of fybogel. For the last couple of years however have had terrible upper abdomen pain and bloating too. Have had gastroscopy
Wobbies
in
IBS Network
5 months ago
Human Betaretrovirus and PBC - can antiretrovirals fix us?
Hello all What do people think please about the research on PBC as an infectious disease and the potential of antiretroviral drugs? There was a flurry of reports back in 2015/6 identifying persistent betaretrovirus in people with PBC and then some small clinical trials of antiretroviral drugs.
Hello all What do people think please about the research on PBC as an infectious disease and the potential of antiretroviral drugs? There was a flurry of reports back in 2015/6 identifying persistent betaretrovirus in people with PBC and then some small clinical trials of antiretroviral drugs.
Wilderswimmer
in
PBC Foundation
1 year ago
Update on my father
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Radtech40
in
Advanced Prostate Cancer
6 months ago
I am the delivery man these days! Optimizing existing therapies!
The study explores a new method for cancer treatment combining light-activated therapy with a special drug that targets low-oxygen areas in tumors. This approach uses tiny tiny tiny capsules to deliver both the light-sensitive agent and the drug directly to the tumor, enhancing the treatment's effectiveness
The study explores a new method for cancer treatment combining light-activated therapy with a special drug that targets low-oxygen areas in tumors. This approach uses tiny tiny tiny capsules to deliver both the light-sensitive agent and the drug directly to the tumor, enhancing the treatment's effectiveness
Maxone73
in
Advanced Prostate Cancer
3 months ago
Gastro Appointment
hi everyone, I promised I would update you after my gastro appointment, there is not a lot to say really, he told me the past ct scan showed diffuse fatty liver and the ultrasound showed severe liver impairment, he then told me that the fibroscan done by them showed significant scarring, then showed
hi everyone, I promised I would update you after my gastro appointment, there is not a lot to say really, he told me the past ct scan showed diffuse fatty liver and the ultrasound showed severe liver impairment, he then told me that the fibroscan done by them showed significant scarring, then showed
Sophia1968
in
British Liver Trust
6 months ago
Flare or Adrenal Crisis
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
Belfastman
in
PMRGCAuk
6 months ago
Decipher Results
I now know I’m in the 10% worst category for genomic results. 20% chance of Mets in 10 years 25% chance of death in 15. Not happy. It’s out of my hands. They will ADT me then prostate bed and lymph node radiation. I guess I kinda always knew. I’m assuming someone has determined these steps are required
I now know I’m in the 10% worst category for genomic results. 20% chance of Mets in 10 years 25% chance of death in 15. Not happy. It’s out of my hands. They will ADT me then prostate bed and lymph node radiation. I guess I kinda always knew. I’m assuming someone has determined these steps are required
Elbers123
in
Advanced Prostate Cancer
3 months ago
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