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UK Covid Enquiry
Well, the Public Enquiry is throwing up some interesting evidence. By definition, most of us with CLL are over 60 (not all, I know) and we are classed, whatever our age, as clinically extremely vulnerable. Our Government is reported as having said, according to Sir Patrick Vallance, "The PM says
Well, the Public Enquiry is throwing up some interesting evidence. By definition, most of us with CLL are over 60 (not all, I know) and we are classed, whatever our age, as clinically extremely vulnerable. Our Government is reported as having said, according to Sir Patrick Vallance, "The PM says
SERVrider
in
CLL Support
8 months ago
Warts and all
I consider myself fortunate, now in year 12 on BTK inhibitors with low, but adequate blood counts and a reasonably good quality of life that includes travel and a range of physical activities like biking and kayaking. This after Fludarabine/Cytoxan/Rituximab x 5 with only a brief response. Starting
I consider myself fortunate, now in year 12 on BTK inhibitors with low, but adequate blood counts and a reasonably good quality of life that includes travel and a range of physical activities like biking and kayaking. This after Fludarabine/Cytoxan/Rituximab x 5 with only a brief response. Starting
Bluesinthenight
in
CLL Support
2 months ago
Covid /flu season
How is everybody making it through this cold flu and covid season starting everybody around me is sick in my office my husband was sick I wear masks all the time but the last 2 days I feel like crap like I'm getting something and I just don't know what to do I talked to my transplant team they're just
How is everybody making it through this cold flu and covid season starting everybody around me is sick in my office my husband was sick I wear masks all the time but the last 2 days I feel like crap like I'm getting something and I just don't know what to do I talked to my transplant team they're just
Parkerbarker
in
Kidney Transplant
8 months ago
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possible asthma after chest infection not treated
In feb I had a chest infection and sinusitis I had antibiotics for the sinusitis but not the chest infection anyway since then I’ve had this cough where I’m nearly sick I’ve pulled muscles the lot. It’s a non productive cough and sounds like I’m barking. I visited the doctor and they’ve prescribed a
In feb I had a chest infection and sinusitis I had antibiotics for the sinusitis but not the chest infection anyway since then I’ve had this cough where I’m nearly sick I’ve pulled muscles the lot. It’s a non productive cough and sounds like I’m barking. I visited the doctor and they’ve prescribed a
Samapril26
in
Asthma Community Forum
18 days ago
ET following Covid Vaccination
I developed Essential Thrombocythemia immediately following my Covid Vaccination and first Booster - lost 1 1/2 stone and platelet count shot through the roof to 1,000. Immediately put on Aspirin a day andHydroxycarbamide. My life changed from then - awful symptoms but not sure if the drugs or the
I developed Essential Thrombocythemia immediately following my Covid Vaccination and first Booster - lost 1 1/2 stone and platelet count shot through the roof to 1,000. Immediately put on Aspirin a day andHydroxycarbamide. My life changed from then - awful symptoms but not sure if the drugs or the
Happydolphin
in
MPN Voice
8 months ago
FDA Warning: Covid & Flu Vaccines
[u]The following is from CNN's Health Report[/u]: A new study of Medicare claims by the FDA finds that vaccines for Covid-19 and influenza may slightly increase the risk of strokes caused by blood clots in the brains of seniors, particularly when the two vaccines are given at the same time, and when
[u]The following is from CNN's Health Report[/u]: A new study of Medicare claims by the FDA finds that vaccines for Covid-19 and influenza may slightly increase the risk of strokes caused by blood clots in the brains of seniors, particularly when the two vaccines are given at the same time, and when
DM0329
in
My MSAA Community
8 months ago
bursitis of hip
After many X-rays and scans b’cos of hip pain and mobility problems I was told I had osteoarthritis and would need hip op, now after visit to MSK clinic I have tranch ??? Bursitis of hip and an op would not make any difference! I am now waiting for a steroid injection and more painkillers And on list
After many X-rays and scans b’cos of hip pain and mobility problems I was told I had osteoarthritis and would need hip op, now after visit to MSK clinic I have tranch ??? Bursitis of hip and an op would not make any difference! I am now waiting for a steroid injection and more painkillers And on list
Margie21
in
Osteoarthritis Action
4 months ago
Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
2 months ago
Buprenorphine transition from patch to tablets
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
RiversW
in
Restless Legs Syndrome
2 months ago
COVID vaccine side effects
I have been on 11 1/2 mg of Prednisone and have been holding my own. Last Thursday I had my 7 th Moderna COVID booster. Since then I have been in terrible pain all over my body. When I take a Tylenol it does help ( which is not usually the case for me, normally). I really do not like taking Tylenol
I have been on 11 1/2 mg of Prednisone and have been holding my own. Last Thursday I had my 7 th Moderna COVID booster. Since then I have been in terrible pain all over my body. When I take a Tylenol it does help ( which is not usually the case for me, normally). I really do not like taking Tylenol
Miacaro45
in
PMRGCAuk
8 months ago
I have been signed off from my care at hospital after 10 years of A fib and a stroke
I had a letter from my hospital that was dealing with my last ablation in 2019 , ECG ‘s etc . That they would no longer be looking after me - 2 weeks ago. I went back into A fib summer of 2020 during covid , I had to self assess my medication and my heart rate via my watch . I could see no one because
I had a letter from my hospital that was dealing with my last ablation in 2019 , ECG ‘s etc . That they would no longer be looking after me - 2 weeks ago. I went back into A fib summer of 2020 during covid , I had to self assess my medication and my heart rate via my watch . I could see no one because
01maxdog
in
AF Association
8 months ago
first orthotics
disappointed. The podiatrist hardly looked at the foot and spent most of the appointment typing then without any measurements or gait test said he’s ordered me a pair that would arrive by post in the fullness of time. I suspect these will be no better than the well known brand I ordered online and
disappointed. The podiatrist hardly looked at the foot and spent most of the appointment typing then without any measurements or gait test said he’s ordered me a pair that would arrive by post in the fullness of time. I suspect these will be no better than the well known brand I ordered online and
Stills
in
NRAS
4 months ago
Bechets support pip
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Tibz
in
Behçet's UK
2 months ago
covid booster
is anyone else worried about having a covid jab ? Is it better to risk the jab , or risk covid without ? can the jab cause problems ?
is anyone else worried about having a covid jab ? Is it better to risk the jab , or risk covid without ? can the jab cause problems ?
jhorsf
in
Lung Conditions Community Forum
8 months ago
Covid Positive
Wednesday evening saw me get a positive Covid test result after me thinking I was immune 🤦♂️. I’d previously been told I’d need antiviral medication ( as I’m on 8L of oxygen upon movement) so Thursday morning we rang the doctor and a paramedic was sent to our house . A lovely guy came out and because
Wednesday evening saw me get a positive Covid test result after me thinking I was immune 🤦♂️. I’d previously been told I’d need antiviral medication ( as I’m on 8L of oxygen upon movement) so Thursday morning we rang the doctor and a paramedic was sent to our house . A lovely guy came out and because
Rich1957
in
Lung Conditions Community Forum
8 months ago
I’m back again …5th cycle 🤞
It feels very daunting , been over a year. Not planned to wait this long but had so many set backs. I had my laporoscopy surgery in June (after been cancelled 3 times ) , recovery and then a week before I was meant to start next cycle , I caught covid. I had an appointment last week with miscarriage
It feels very daunting , been over a year. Not planned to wait this long but had so many set backs. I had my laporoscopy surgery in June (after been cancelled 3 times ) , recovery and then a week before I was meant to start next cycle , I caught covid. I had an appointment last week with miscarriage
Rol81
in
Fertility Network UK
8 months ago
Infection back again.
Been out of hospital for a week now after pneumonia and finding out I have a heart problem now. Ejection Fraction. Never heard of it before. Anyway, got home, started new meds for heart and now chest infection back. Feeling rather sorry for myself it's been ongoing about 9 weeks. I do like this forum
Been out of hospital for a week now after pneumonia and finding out I have a heart problem now. Ejection Fraction. Never heard of it before. Anyway, got home, started new meds for heart and now chest infection back. Feeling rather sorry for myself it's been ongoing about 9 weeks. I do like this forum
Cosychair
in
Asthma Community Forum
7 months ago
Combining the Influenza and COVID-19 vaccines.
I have read of some people who got both vaccines at the same time, and their experience was not good. However perhaps a different kind of Influenza vaccine combined with a COVID-19 vaccine might make things easier.? This approach is now being tested. Pfizer and BioNTech Announce Positive Topline
I have read of some people who got both vaccines at the same time, and their experience was not good. However perhaps a different kind of Influenza vaccine combined with a COVID-19 vaccine might make things easier.? This approach is now being tested. Pfizer and BioNTech Announce Positive Topline
Kwenda
in
CLL Support
8 months ago
Buprenorphine patch and swimming
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
RiversW
in
Restless Legs Syndrome
2 months ago
Back on the road
A while since my last post ... I did re-graduate C25K and then after two days I did a first post-grad run of just 20 minutes. Another couple of days and I did 25 minutes. Then I got ill. Probably just a cold as I tested negative for Covid. Took me a week to feel better. Gave it a few days and then tried
A while since my last post ... I did re-graduate C25K and then after two days I did a first post-grad run of just 20 minutes. Another couple of days and I did 25 minutes. Then I got ill. Probably just a cold as I tested negative for Covid. Took me a week to feel better. Gave it a few days and then tried
Gthants
in
Bridge to 10K
8 months ago
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