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MSA-C with ataxia rebound
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
rideabike
in
Multiple System Atrophy Trust
7 months ago
Recovery from colds/flu whilst on Adalimumab
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
UmaDaisy
in
Crohn's and Colitis Support
6 months ago
Osteoarthritis in knee
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
Hello I am new on this site and would like to thank admin for letting me on here. Going back about January 2024 time my left knee started to feel a little odd at the back (ham) think this is what it's name is, anyhow about 6/8 weeks ago plucked up enough courage to see a G.P at my local doctors, a
completely-zero654
in
Couch to 5K
2 months ago
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From Prednisone to Morphine
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s questioning my diagnosis of PMR & suggests the pain is due to “wear & tear”. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s questioning my diagnosis of PMR & suggests the pain is due to “wear & tear”. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
Chelseadog
in
PMRGCAuk
2 months ago
Covid has just hit our Thanksgiving plans!
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
PJBinMI
in
SHARE Metastatic Breast Cancer
7 months ago
When to restart Biologics after Covid Infection
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Intheend
in
NRAS
7 months ago
Mouth Ulcers and Taste issue
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
BigH63
in
ICUsteps
7 months ago
Tinnitus and Meniere's
Has anyone ever received Intratympanic steroid injection in their ear(s) for Tinnitus or Meniere's? I was just curious if it was worth it and made matters better. Is the injection painful or create other issues? My ENT has recommended it for my left ear which has a variety of issues. Thanks.
Has anyone ever received Intratympanic steroid injection in their ear(s) for Tinnitus or Meniere's? I was just curious if it was worth it and made matters better. Is the injection painful or create other issues? My ENT has recommended it for my left ear which has a variety of issues. Thanks.
MrGC314
in
Tinnitus UK
2 months ago
Finally a little light!
Many of you have been kind in giving me advice and support over the last year, especially when I was 'wading through treacle'. A few weeks ago I had another steroid injection and leflunomide added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so
Many of you have been kind in giving me advice and support over the last year, especially when I was 'wading through treacle'. A few weeks ago I had another steroid injection and leflunomide added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so
HeadInASpin
in
NRAS
2 months ago
A return of the dreaded mongrel .......... ?????
'mornin' guys and gals ................... well it's almost 02.00 am for the second day in a row ..... funny feelings in the chest ............. my squadron of pet butterflies has returned - fluttering around in combat....... just like the olden days of mid 2010. Missed you ................ NOT !
'mornin' guys and gals ................... well it's almost 02.00 am for the second day in a row ..... funny feelings in the chest ............. my squadron of pet butterflies has returned - fluttering around in combat....... just like the olden days of mid 2010. Missed you ................ NOT !
BenHall1
in
Atrial Fibrillation Support
2 months ago
high amh levels
I’ve been told my AMH levels are 67.1, way out of the normal range. Have PCOS and thin lining which is likely due to high AMH. I have a cycle of 33-35 days but light periods. Having a hycosy this week. Is ovulation induction unlikely to be an option? Thanks
I’ve been told my AMH levels are 67.1, way out of the normal range. Have PCOS and thin lining which is likely due to high AMH. I have a cycle of 33-35 days but light periods. Having a hycosy this week. Is ovulation induction unlikely to be an option? Thanks
tarka123
in
Fertility Network UK
2 months ago
Pes Anserine Bursitis - steroid injection offered.
On Thursday I had an appointment with a rheumatologist who had previously been quite impatient and dismissive of me. I made up my mind to give him the briefest details of my woes over the last 9 months. (This is a 6 monthly appointment 😂). He was happy for me to continue with my slow tapering and then
On Thursday I had an appointment with a rheumatologist who had previously been quite impatient and dismissive of me. I made up my mind to give him the briefest details of my woes over the last 9 months. (This is a 6 monthly appointment 😂). He was happy for me to continue with my slow tapering and then
Sukydee
in
PMRGCAuk
2 months ago
Pneumonia vaccine
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
mbr8076
in
MPN Voice
6 months ago
Covid antibodies
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
jbzm
in
NRAS
7 months ago
Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
7 months ago
Sharp pains in head - lupus related or something else?
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Treetop33
in
LUPUS UK
7 months ago
I am nervous
Today was a rough day and I do t know what I am going to do in two weeks I’m so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didn’t work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Today was a rough day and I do t know what I am going to do in two weeks I’m so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didn’t work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Dolphfan47
in
Anxiety and Depression Support
2 months ago
Peg and Ear infection
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Fabfam5
in
MPN Voice
6 months ago
COVID, Pneumonia and healthcare
Dear Community, I wanted to update you on my recent experience with COVID-19, pneumonia, and healthcare. I tested positive for COVID 20 days ago and remain symptomatic with cough, fever, chills, and body aches. After 3.5 days of Paxlovid (halted due to drug interactions), I completed five days of
Dear Community, I wanted to update you on my recent experience with COVID-19, pneumonia, and healthcare. I tested positive for COVID 20 days ago and remain symptomatic with cough, fever, chills, and body aches. After 3.5 days of Paxlovid (halted due to drug interactions), I completed five days of
shazie
in
CLL Support
4 months ago
Bloody Covid can sod off!
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Washo66
in
British Heart Foundation
7 months ago
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