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Finally a little light!
Many of you have been kind in giving me advice and support over the last year, especially when I was 'wading through treacle'. A few weeks ago I had another steroid injection and leflunomide added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so
Many of you have been kind in giving me advice and support over the last year, especially when I was 'wading through treacle'. A few weeks ago I had another steroid injection and leflunomide added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so
HeadInASpin
in
NRAS
2 months ago
clinical trial vyd222 monoclonal AB against covid update science 37
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
bachplayer13
in
CLL Support
7 months ago
COVID-19 Infection effect on Urinary Incontinence and Mirabegron.
Dear Simon Foundation, I'm an old member of HU as a CLL type Leukaemia patient in the UK, but only just discovered your Simon foundation. Now I've always had poor bladder control and that could be due to bladder sensitivity, BPH, or damaged nerves in my lower back or all three, or more. I've gone through
Dear Simon Foundation, I'm an old member of HU as a CLL type Leukaemia patient in the UK, but only just discovered your Simon foundation. Now I've always had poor bladder control and that could be due to bladder sensitivity, BPH, or damaged nerves in my lower back or all three, or more. I've gone through
Ernest2
in
The Simon Foundation for Continence
7 months ago
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A return of the dreaded mongrel .......... ?????
'mornin' guys and gals ................... well it's almost 02.00 am for the second day in a row ..... funny feelings in the chest ............. my squadron of pet butterflies has returned - fluttering around in combat....... just like the olden days of mid 2010. Missed you ................ NOT !
'mornin' guys and gals ................... well it's almost 02.00 am for the second day in a row ..... funny feelings in the chest ............. my squadron of pet butterflies has returned - fluttering around in combat....... just like the olden days of mid 2010. Missed you ................ NOT !
BenHall1
in
Atrial Fibrillation Support
2 months ago
high amh levels
I’ve been told my AMH levels are 67.1, way out of the normal range. Have PCOS and thin lining which is likely due to high AMH. I have a cycle of 33-35 days but light periods. Having a hycosy this week. Is ovulation induction unlikely to be an option? Thanks
I’ve been told my AMH levels are 67.1, way out of the normal range. Have PCOS and thin lining which is likely due to high AMH. I have a cycle of 33-35 days but light periods. Having a hycosy this week. Is ovulation induction unlikely to be an option? Thanks
tarka123
in
Fertility Network UK
2 months ago
Pes Anserine Bursitis - steroid injection offered.
On Thursday I had an appointment with a rheumatologist who had previously been quite impatient and dismissive of me. I made up my mind to give him the briefest details of my woes over the last 9 months. (This is a 6 monthly appointment 😂). He was happy for me to continue with my slow tapering and then
On Thursday I had an appointment with a rheumatologist who had previously been quite impatient and dismissive of me. I made up my mind to give him the briefest details of my woes over the last 9 months. (This is a 6 monthly appointment 😂). He was happy for me to continue with my slow tapering and then
Sukydee
in
PMRGCAuk
2 months ago
I am nervous
Today was a rough day and I do t know what I am going to do in two weeks I’m so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didn’t work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Today was a rough day and I do t know what I am going to do in two weeks I’m so nervous. For the past month or so I have been getting injections done on my back it started out with steroid injections that didn’t work.. After a couple of them the Dr. switched them up and decided to do the arthritic
Dolphfan47
in
Anxiety and Depression Support
2 months ago
Covid vax and AFIB
just as an FYI, I had a Covid vaccination (Pfizer) a couple of days ago and I developed AFIB within a few hours. It did resolve itself overnight after I took extra metoprolol.
just as an FYI, I had a Covid vaccination (Pfizer) a couple of days ago and I developed AFIB within a few hours. It did resolve itself overnight after I took extra metoprolol.
Awksom
in
CLL Support
7 months ago
Pegasys is applying for formal approval in MPN treatment
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
TimothyHLuff
in
MPN Voice
5 months ago
Anti viral?
Does anyone know if they're still giving anti viral medication for a positive covid patient? I'm on rituximab and azathioprine aswell as prednisolone. I've not yet done a test but have been feeling breathless and coughing more than normal. I'm not allowed to have my covid or flu vaccinations due to
Does anyone know if they're still giving anti viral medication for a positive covid patient? I'm on rituximab and azathioprine aswell as prednisolone. I've not yet done a test but have been feeling breathless and coughing more than normal. I'm not allowed to have my covid or flu vaccinations due to
Vqueen
in
Vasculitis UK
7 months ago
Mumps contact 😷
Hi Peeps 🙂 I hope this post finds you as well as can be 🫠 I am writing to ask about contact with mumps. I have RA and my main meds are Tocilizumab (injection), Methotrexate (injection) and Sulphasalazine. Do I have to be particularly careful that I do not come in contact with a child who possibly has
Hi Peeps 🙂 I hope this post finds you as well as can be 🫠 I am writing to ask about contact with mumps. I have RA and my main meds are Tocilizumab (injection), Methotrexate (injection) and Sulphasalazine. Do I have to be particularly careful that I do not come in contact with a child who possibly has
Moomin8
in
NRAS
6 months ago
pneumonia jab
hi , I’ve booked to have a jab privately as I wasn’t having any luck requesting it from the gp. Is this definitely safe for me to have with liver disease. Thanks
hi , I’ve booked to have a jab privately as I wasn’t having any luck requesting it from the gp. Is this definitely safe for me to have with liver disease. Thanks
Etymolog
in
British Liver Trust
6 months ago
Tuberculosis
I have been talking medication for lymph node tb for 4 months now, however i have been developing fever and night sweats for the past few day. Is it common to have fever and nights sweats 4 months into the treatment? My lymph node is secreting pus and is very itchy.
I have been talking medication for lymph node tb for 4 months now, however i have been developing fever and night sweats for the past few day. Is it common to have fever and nights sweats 4 months into the treatment? My lymph node is secreting pus and is very itchy.
Premika
in
TB Alert
6 months ago
B12 Ampoules
Hello everyone. I hope you are all keeping well 🙏 I am slowly recovering from Covid which I caught 6 weeks ago. I had the booster vaccine- the 4th vaccine-It takes 2 weeks to become effective and I managed to catch Covid before the vaccine kicked in. Just my luck ! 🙄Wish I could be so lucky with
Hello everyone. I hope you are all keeping well 🙏 I am slowly recovering from Covid which I caught 6 weeks ago. I had the booster vaccine- the 4th vaccine-It takes 2 weeks to become effective and I managed to catch Covid before the vaccine kicked in. Just my luck ! 🙄Wish I could be so lucky with
dollcat
in
Pernicious Anaemia Society
7 months ago
What is classed as a flare?
Hi, I was diagnosed in November, had a steroid injection and started on MTX, once the steroid started wearing off the pain and swelling in my knees returned straight away but not in my hands, they have been great. Had a load of fluid sucked out of my knee and another steroid injection about 6 weeks ago
Hi, I was diagnosed in November, had a steroid injection and started on MTX, once the steroid started wearing off the pain and swelling in my knees returned straight away but not in my hands, they have been great. Had a load of fluid sucked out of my knee and another steroid injection about 6 weeks ago
Cat-E
in
NRAS
2 months ago
steroid injection in the joint
hi all It’s good to be back 😊I do look in here from time to time but have been too busy tone really active on the forum … I now have a quick query which I feel sure people on here can help me with. I have been referred to the MSK service for severe shoulder arthritis and they want to give me a steroid
hi all It’s good to be back 😊I do look in here from time to time but have been too busy tone really active on the forum … I now have a quick query which I feel sure people on here can help me with. I have been referred to the MSK service for severe shoulder arthritis and they want to give me a steroid
Nextoneplease
in
PMRGCAuk
2 months ago
enlarged lymp node
I had a ct scan yesterday and got the results today. I have enlarged left axillary lymph nodes, largest measuring 19x14 mm, previously subcentimeter and measured 10x8.5. Enlarged left subpectoral lymph nodes are identified. Nothing on the right side. I had a covid vacine about 2-3 weeks ago. The
I had a ct scan yesterday and got the results today. I have enlarged left axillary lymph nodes, largest measuring 19x14 mm, previously subcentimeter and measured 10x8.5. Enlarged left subpectoral lymph nodes are identified. Nothing on the right side. I had a covid vacine about 2-3 weeks ago. The
DianeSH
in
CLL Support
7 months ago
Covid
Hello, everyone I have severe emphysema and I did a test yesterday and I got covid 😱 I am scared it gonna attack my lungs, my chest feeling tighter.Anyone else had covid with emphysema, how did you take care of yourself to stop it going to the lungs.
Hello, everyone I have severe emphysema and I did a test yesterday and I got covid 😱 I am scared it gonna attack my lungs, my chest feeling tighter.Anyone else had covid with emphysema, how did you take care of yourself to stop it going to the lungs.
Madonna1
in
COPD Friends
7 months ago
Pituitary gland not producing TSH
Oct 14, 2022 I had a 3rd Covid Booster shot. The next day I had the "normal" flu symptoms. Oct 20, six days later, I felt I had been hit by a bus, hurting literally from head to toe with different kinds of pain along with heartburn and leg swelling. I figured this was just a reaction that would subside
Oct 14, 2022 I had a 3rd Covid Booster shot. The next day I had the "normal" flu symptoms. Oct 20, six days later, I felt I had been hit by a bus, hurting literally from head to toe with different kinds of pain along with heartburn and leg swelling. I figured this was just a reaction that would subside
Cricket-mas
in
Thyroid UK
7 months ago
Exercise and PMR
I am posting an update and a question. Since discovering I have PMR in Sept 2023 and starting on Pred at 15 mg, I have had a slightly bumpy start to my PMR journey. Was getting used to being on Pred when I had a visit from the Covid fairy which took a couple of weeks to clear, but I still feel I have
I am posting an update and a question. Since discovering I have PMR in Sept 2023 and starting on Pred at 15 mg, I have had a slightly bumpy start to my PMR journey. Was getting used to being on Pred when I had a visit from the Covid fairy which took a couple of weeks to clear, but I still feel I have
Indigo2417
in
PMRGCAuk
7 months ago
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