Canadian website for FND in video format

[Shimmyaway]

vjneurology.com/subject/fun...

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[Lady4]

Thanks for sharing, watched one of the videos but don't necessary agree its neurological and psychiatric*. I think its neurological, psychological and social.

* I think by Neurology professionals highlighting it as psychotic just keeps it in the DSM-5 and it becomes a barrier for some for effective treatment.

[Van604 in reply to Lady4]

I agree. I was at the 2022 FNDS conference (online) and the US psychiatrists and neuro-psychiatrists said they can't get paid for their work with FND patients if they don't have a DSM code to charge it to. So they are adamant that it should be kept in, no matter what the research says.

[Lady4 in reply to Van604]

That barrier needs to be removed too.

My son couldn't get "talking therapy" following a Neurologist appt, because he needed to have another condition (I guess one that had a pay packet behind it).

Wish someone would wake up and see this condition needs a multi-disciplinary rehabilitation holistic mind/body approach and in a timely manner, before these symptoms and the CNS becomes so unbalanced which makes it harder (not impossible - just takes longer) to recover from.

[GreenCottage]

Thanks for posting.

[Van604]

Thanks for posting. It's odd that the site is based in the UK (Oxford), but none of the FND videos are by UK experts like John Stone and Mark Edwards, just US and Canadian doctors who have more of a psychiatric bias. Also, the Editorial Board does not include a single UK doctor either. Personally, I'm not a fan of Sarah Lidstone - she quickly diagnosed me with FND when she was a resident (student) neurologist in Toronto, using the rule-out method, which they say you shouldn't do. She tried to "cure" me over the space of five days in the hospital and, when it didn't work, she changed the diagnosis on my chart to a very vague "weakness" and discharged me, even though I couldn't walk and had to be literally flopped into a wheelchair so my insurance company could fly me back home. The insurance company nurse was furious because they had been told I was ok. She even stayed with me at my home until I could find someone to come and take care of me. I later found out that Lidstone was writing a research paper on her special "cure" and that's why she kept me there for all that time and videoed everything I did. She didn't disclose that to me or ask my permission though, which I believe is the standard protocol.

[Lady4 in reply to Van604]

Did you follow up? Maybe students are more protected for errors. I am not sure when the "rule in" diagnostic criteria came into force.