Faith restored

[Bugsycat]

After an 8 month wait my appointment finally happened last week with a Neurologist. After meeting one in Exeter some 2/3 years ago who said on meeting him that he dealt with headaches and needed me to explain RLS I was somewhat dubious but he is now my Guardian Angel - or so my sister says!

I was down to .5 mg of Ropinirole having reduced from 4 mg but as Jools has often said this last bit is the worse. After letting me tell him my RLS journey he made a 4 stage plan. He identified that I was on Duloxitin and I’m now slowly withdrawing from that; to temporarily stop reducing Ropinirole whilst he prescribes buprenorphine as that will give me more help to come off the last bit. Then it will be to stop Ropinirole totally and to review with him after that to see if my RLS improves.

My appointment was also to determine if I had Myasthenia Gravis as my eyelids were beginning to close. After an examination he ruled that out but after listening to the whole me I have FND-functional neurological disorder and wants me to have therapy and not medication as most will affect my RLS. I’ve had CBT for 8 years ending 15 years ago following a vicious attack on me by a pupil and unfortunately the last 2 years have been awful, my son having life changing injuries following a road accident, two sisters dying, and moving home to be near our son and family.

I received his written report some 3 days later, an appointment made with my doctor who he has liaised with for the end of this week.

Fantastic

[Madlegs1]

That is so good to hear.

Great perseverance.👍💚☘️

[SueJohnson]

That's great! So pleased for you. I keep a list of good doctors so it would be great if you could give me his name as so few doctors are willing to prescribe buprenorphine

[Bugsycat in reply to SueJohnson]

Dr Graham Lennox

Locum Consultant in Neurology

He told me that he has had 41 years as a Neurologist but he had a lot of current information even about Fowlers Syndrome which I have. One of a very few who didn’t have to look anything up whilst listening to me

[SueJohnson in reply to Bugsycat]

Thank you.

As it turned out I already had his name as an excellent doctor. I'm so glad you found him.

[Joolsg]

I'm so pleased to hear you have found a good doctor.

[Jumpey]

Good news. Praying you go from strength to strength.