New to this group/been dealing with FND for a few years

[eclipsetucker]

Hi! I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a Functional Neurological Disorder/Functional Movement Disorder diagnosis. I am now in Cognitive Behavioral Therapy to re-train my brain and Physical Therapy to address the physical side of things and it is going well. I am done with pitty and negativity and am looking for encouraging peers to move forward with my new life. I would also like to inform people about FND so that it is accepted and understood. The most difficult journey was the medical field not understanding and dismissing me as psych or wanting attention. This made me doubt myself and blame myself. Now that I have an amazing team of medical providers and therapists, I can finally move forward and be the best me!

[Lady4]

Hi Angie. So glad you have found a competent team who can validate you and help you on this journey.

[Tankie4691]

CBT & EMDR

Hi, I have gone through CBT to help deal with my PTSD, it was useful at trying to put things into an order, as if your clothes, then putting all the bad thoughts or poor ideas away. We were taught to find something small that reminds you of a good experience, a small stone from a favourite place, if you don’t have anything like that try a fidget spinner. These help to take your mind away from the negative thoughts that reach into your mind making you doubt yourself, I used foam shaped as a rugby ball/American football ball, which when driving as I became agitated I used to throw it at them inside my car; not an open topped one 😁😁, whilst it scared the bejesus out of the others at times it certainly helped my anger. You will in time begin to roll with the punches you take from this FND, you will find by using the techniques you are taught to help you through.

I suffer not only from FND dysphagia and gait, but also have other problems not related to FND , but a lot of things relating to my military service which is being treated by EMDR, you may get offered this, it is nothing to worry about, it seems to be a follow on from CBT.

I wish you all the best going forward and hope you have smooth passage through the treatment and please feel free to contact me for a chat, but we are in different time zones.

[tenderfeet]

Cheers Anjie and to moving forward. I am happy to have seen your post today!

we are not our neurological disorder...Well, Im working on it! 😁 Self blame and self doubt are the most harmful suffering we can do to ourselves and let others.

As hard as it was to dig at my self suffering....the first break through and a glimps of peace, I felt good about the work I was doing for myself. I declared I would would take care of myself and be strong through adversity. I do the work for me, I benefit greatly and so do others around me. Be kind and compassionate to myself means I can pass it on to others.

I lost self independance in a single moment and the weight of guilt that dropped on me over the following years was heavy. At the same time different medical professionals doing test and no conclusive results caused self doubt in myself. Such nasty business all that. "I will no longer accept invalidation from my thoughts or others" followed by "I allow myself to acknowledge and relinguish feelings of fear and guilt".

I had a break down at one year and six months, I didn't know how to cope with what I was being told, how i felt physically, emotionally. I got the help I needed and the recovery road on all counts is slow. My journey continues to be fluid and I'm learning to accept this new reality still after 5.5 years.

Thank you! May you recieve back tenfold.