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Trying to get B12D sorted & want to know what to ask/say to Dr. Loading x5 Sept '18, just had blood test & I think low again.
Hi from UK. Trying to be brief. I was really poorly for about a year from Sept '17 with a plethora of 'unexplained' symptons (which I now know all fit under pretfy much every possibility for B12D). Was not able to work & really debilitated by it all physically & mentally/emotionally. I had a couple
Hi from UK. Trying to be brief. I was really poorly for about a year from Sept '17 with a plethora of 'unexplained' symptons (which I now know all fit under pretfy much every possibility for B12D). Was not able to work & really debilitated by it all physically & mentally/emotionally. I had a couple
eclilley
in
Pernicious Anaemia Society
5 years ago
Hypothyroid or not?!?! Do I need Medication? Please Help
Hello, I'm only 22 and in my second year at university and struggling so much and feel it's hard to get people (GP and families) to understand the extent to how bad I feel (lethargic/tired, mood swings, zoned out, poor memory, aching neck/shoulders). I'd appreciate some opinions of the experience
Hello, I'm only 22 and in my second year at university and struggling so much and feel it's hard to get people (GP and families) to understand the extent to how bad I feel (lethargic/tired, mood swings, zoned out, poor memory, aching neck/shoulders). I'd appreciate some opinions of the experience
1966sll
in
Thyroid UK
5 years ago
b12 jabs stopped!
i really need some advice, had a nitemare with nursey at the surgery today, she was refusing to give me my jab,as she is saying i do not need it anymore, and that they will be stopped,as my parental cells was negative, but they still have to get the intrinsic factor test done as ive not had that, and
i really need some advice, had a nitemare with nursey at the surgery today, she was refusing to give me my jab,as she is saying i do not need it anymore, and that they will be stopped,as my parental cells was negative, but they still have to get the intrinsic factor test done as ive not had that, and
lizalily
in
Pernicious Anaemia Society
5 years ago
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Hi, I’m new on here.
I was diagnosed with low B12 and no intrinsic factor (so I presume pernicious anaemia) last October. I’m 73, so age is a major factor here. I’ve also used proton pump inhibitors for some years, had eating disorders and have other auto immune disorders and been vegetarian for over 40 years, so no great
I was diagnosed with low B12 and no intrinsic factor (so I presume pernicious anaemia) last October. I’m 73, so age is a major factor here. I’ve also used proton pump inhibitors for some years, had eating disorders and have other auto immune disorders and been vegetarian for over 40 years, so no great
Dragonwalker
in
Pernicious Anaemia Society
5 years ago
Private B12 injections in London please?
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
Hello, Does anyone know of a private GP in the London area or Kent who will give B12 injections please? I have had my loading dose of 6 just over 2 weeks ago, some symptoms went away but dizzyness and strange tiredness after walking for more 10 minutes were still there. I told this to my GP. But now
GastritisB12
in
Pernicious Anaemia Society
5 years ago
Advice on what to do next
Morning all, I posted before Christmas regarding my new diagnosis. My doctor found antibodies by chance when she was checking for reumatroid arthritis antibodies after I'd gone to her with fatigue, headaches and joint pain mainly in my knees. She said it was intrinsic factor antibodies and she would
Morning all, I posted before Christmas regarding my new diagnosis. My doctor found antibodies by chance when she was checking for reumatroid arthritis antibodies after I'd gone to her with fatigue, headaches and joint pain mainly in my knees. She said it was intrinsic factor antibodies and she would
Emmapemma
in
Pernicious Anaemia Society
5 years ago
Daughter starts treatment
My daughter recently diagnosed with RA after birth of second baby. Aches in knees which progressed to feet, hands and now shoulders. Had blood test and no signs of inflammation but Rheumatoid Factor of 31. CCR and CCP came back normal and had ultra sound scan on hands and no inflammation showing.
My daughter recently diagnosed with RA after birth of second baby. Aches in knees which progressed to feet, hands and now shoulders. Had blood test and no signs of inflammation but Rheumatoid Factor of 31. CCR and CCP came back normal and had ultra sound scan on hands and no inflammation showing.
twinks1954
in
NRAS
5 years ago
MMA test after injections
Hi have started self injections alternate days I’ve had 20 so far, I was not diagnosed B12d deficient but after feeling so unwell for so long with crushing fatigue lethargic, zero energy weakness dizziness I decided to get a copy of my blood results and found my B12d at its lowest was 265 and last test
Hi have started self injections alternate days I’ve had 20 so far, I was not diagnosed B12d deficient but after feeling so unwell for so long with crushing fatigue lethargic, zero energy weakness dizziness I decided to get a copy of my blood results and found my B12d at its lowest was 265 and last test
B12jab
in
Pernicious Anaemia Society
5 years ago
New to this site
I have had OA for about 10 years, it accelerated with the onset of menopause. The combination of lower back and fingers caused me to take early retirement coming up to 2 years ago. Just coming out of a really bad spell of a flare, have spent a few months thinking it was RA as had raised rheumatoid factor
I have had OA for about 10 years, it accelerated with the onset of menopause. The combination of lower back and fingers caused me to take early retirement coming up to 2 years ago. Just coming out of a really bad spell of a flare, have spent a few months thinking it was RA as had raised rheumatoid factor
Sewnso
in
Osteoarthritis Action
5 years ago
Not RA
So seen the rheumatologist today, all the aching disformed joints are osteoarthritis, dry mouth, throat, cough & 1 dry eye to drink water, get eye drops. The raised rheumatoid factor he wasn't worried about or the raised pv. So good news in a way as do not require dmards, but still in pain and nothing
So seen the rheumatologist today, all the aching disformed joints are osteoarthritis, dry mouth, throat, cough & 1 dry eye to drink water, get eye drops. The raised rheumatoid factor he wasn't worried about or the raised pv. So good news in a way as do not require dmards, but still in pain and nothing
Sewnso
in
NRAS
5 years ago
B12 INJECTIONS
Hi- I am a 26 year old female and I recently found out that I have low b12. My labs showed 210 pg/mL and normal range was 232-1245 pg/mL. I did not begin experiencing symptoms of what I hope is only b12 deficiency until I was given Prednisone/antibiotics for a sinus issue (had a horrible horrible horrible
Hi- I am a 26 year old female and I recently found out that I have low b12. My labs showed 210 pg/mL and normal range was 232-1245 pg/mL. I did not begin experiencing symptoms of what I hope is only b12 deficiency until I was given Prednisone/antibiotics for a sinus issue (had a horrible horrible horrible
kjl3
in
Pernicious Anaemia Society
5 years ago
New diagnosis
Hi, I have been going to my GP for over a year with fatigue, headaches, blurry vision and joint pain. She said you are a working mum, what do you expect. I pushed for vitamin tests and I thought I had reumatoid arthritis so asked for antibody testing. She phoned me with the results to say I didn't have
Hi, I have been going to my GP for over a year with fatigue, headaches, blurry vision and joint pain. She said you are a working mum, what do you expect. I pushed for vitamin tests and I thought I had reumatoid arthritis so asked for antibody testing. She phoned me with the results to say I didn't have
Emmapemma
in
Pernicious Anaemia Society
6 years ago
Confused about megabolostic anaemia
My hb is 13. my folate 9 . Potassium and magnesium in range. If my Hb is normal does that mean I do not have megoblastic anaemia? My vit D is 60 I had more bloods done on Monday and having g ferritin leveks folate and full blood count as some were out of range. White blood count up a bit and infkamarory
My hb is 13. my folate 9 . Potassium and magnesium in range. If my Hb is normal does that mean I do not have megoblastic anaemia? My vit D is 60 I had more bloods done on Monday and having g ferritin leveks folate and full blood count as some were out of range. White blood count up a bit and infkamarory
Nackapan
in
Pernicious Anaemia Society
6 years ago
MMA and homocysteine testing - have I already messed it up by supplementing?
Hello there, As a bit of background, I'm 30 years old and I've been suffering from a range of symptoms including fatigue, headaches and tingling for over a decade. With no interest from any GPs I ordered tests from Blue Horizon a couple of years ago which showed I have hashimotos (although the doctors
Hello there, As a bit of background, I'm 30 years old and I've been suffering from a range of symptoms including fatigue, headaches and tingling for over a decade. With no interest from any GPs I ordered tests from Blue Horizon a couple of years ago which showed I have hashimotos (although the doctors
Sick-and-Tired
in
Pernicious Anaemia Society
6 years ago
Anti VEGF injections
I am having injections into my right eye every 4 weeks. My next appointment came yesterday and is actually 6 weeks since the last injection. Will 6 weeks be okay or should I try to change it? Many thanks for your advice Jane
I am having injections into my right eye every 4 weeks. My next appointment came yesterday and is actually 6 weeks since the last injection. Will 6 weeks be okay or should I try to change it? Many thanks for your advice Jane
Koalajane
in
Macular Society
5 years ago
How long does it take for a result of blood test for Intrinisc Factor in UK
I had blood taken on 7th December for Intrinsic Factor, no results were back ten days later when I saw my doctor on 17th, should it take so long for results ? I have neurological symptoms due to be wrongly diagnosed as suffering from ME/CFS in 2000 after attending my GP in 1990 with same symptoms, which
I had blood taken on 7th December for Intrinsic Factor, no results were back ten days later when I saw my doctor on 17th, should it take so long for results ? I have neurological symptoms due to be wrongly diagnosed as suffering from ME/CFS in 2000 after attending my GP in 1990 with same symptoms, which
InBardo
in
Pernicious Anaemia Society
6 years ago
Got the shots down to 10 weeks from 12 with GP, still massively struggling! Should I self-inject?
Hello, first post here! I was diagnosed with Pernicious Anaemia and lack of intrinsic factor over a year ago and was given the loading shots and then put on a 12 weekly B12 injection. A few months ago I went back to the GP and begged to be given them more often, and they agreed to do it every 10 weeks
Hello, first post here! I was diagnosed with Pernicious Anaemia and lack of intrinsic factor over a year ago and was given the loading shots and then put on a 12 weekly B12 injection. A few months ago I went back to the GP and begged to be given them more often, and they agreed to do it every 10 weeks
trevthedog
in
Pernicious Anaemia Society
6 years ago
Pernicious aneamia test
On reading posts it seems to be common that doctors don't give us reasons for B12 defiency. I understand about absorption problems. I've been told I've not got megoblastic aneamia Hb 13 folate 9 ferriton level 60. No antibody to intrinsic factor . Thyroid ok. Not got celilac disease. When I asked
On reading posts it seems to be common that doctors don't give us reasons for B12 defiency. I understand about absorption problems. I've been told I've not got megoblastic aneamia Hb 13 folate 9 ferriton level 60. No antibody to intrinsic factor . Thyroid ok. Not got celilac disease. When I asked
Nackapan
in
Pernicious Anaemia Society
6 years ago
Update - one step closer!
Hello everyone Thankyou all for your support and guidance! I’d just like to update everybody, I managed to get an appointment with my GP today, I was sent to the hospital to rule out a blood clot on the lung I had a blood test (Ddimer) which thankfully came back negative. While I was in the doctors with
Hello everyone Thankyou all for your support and guidance! I’d just like to update everybody, I managed to get an appointment with my GP today, I was sent to the hospital to rule out a blood clot on the lung I had a blood test (Ddimer) which thankfully came back negative. While I was in the doctors with
Chaz1226
in
LUPUS UK
6 years ago
Me again
I’m a bit upset as I’ve just received a copy from Consultant about my last appointment. The first thing I noticed was she now says I’m seronegative when I’ve always been seropositve. It seems my inflammatory markers are normal ESR is 11 CRP 4 and Rheumatoid factor and anti-CCP antibodies are negative
I’m a bit upset as I’ve just received a copy from Consultant about my last appointment. The first thing I noticed was she now says I’m seronegative when I’ve always been seropositve. It seems my inflammatory markers are normal ESR is 11 CRP 4 and Rheumatoid factor and anti-CCP antibodies are negative
barbieg
in
NRAS
6 years ago
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