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Low B12, TPO antibodies but doctors insisting it's MS
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was
Mirandarr
in
Pernicious Anaemia Society
6 years ago
TPO antibodies, Low B12 but doctors still insisting MS
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was without
Hi all - new here You guys know so much so I'm hoping for your take on what's going on with me. Any advice on what I should do going forward i.e. getting B12 injections from GP when I'm "in range". Doctors found some demyelination on my brain MRI. Immediately the doctor said MS (probably). This was without
Mirandarr
in
Thyroid UK
6 years ago
4 months of treatment and no better off, is it really PA?
I am debating with my doctor whether my neuropsychiatric symptoms are truly the result of Pernicious Anemia (I have tested "abnormal high" for Intrinsic Factor antibodies). After 4 months I am not responding well to B12 treatment (after an initial few months of perceiving improvement), so she seems
I am debating with my doctor whether my neuropsychiatric symptoms are truly the result of Pernicious Anemia (I have tested "abnormal high" for Intrinsic Factor antibodies). After 4 months I am not responding well to B12 treatment (after an initial few months of perceiving improvement), so she seems
teebeevee
in
Pernicious Anaemia Society
6 years ago
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PA with no antibodies?
Hi all. My b12 level was tested back in May 2018 and was 197 (180 was classed as low so wasn’t treated at the time) and when I had it rechecked last month it had dropped to 150. My GP then checked for intrinsic factor and parietal cell antibodies and then put me on the loading doses of b12 injections
Hi all. My b12 level was tested back in May 2018 and was 197 (180 was classed as low so wasn’t treated at the time) and when I had it rechecked last month it had dropped to 150. My GP then checked for intrinsic factor and parietal cell antibodies and then put me on the loading doses of b12 injections
Katier92
in
Pernicious Anaemia Society
6 years ago
Graves’ disease, in remission since May 2018 but in lots of pain
In the spring of 2016, I started to feel unwell and to display various of the symptoms of hyperthyroidism. The first symptom I experienced was physical pain. In May 2017, I was diagnosed with Graves hyperthyroidism and started taking medication. By the autumn of 2017, my thyroid levels were back within
In the spring of 2016, I started to feel unwell and to display various of the symptoms of hyperthyroidism. The first symptom I experienced was physical pain. In May 2017, I was diagnosed with Graves hyperthyroidism and started taking medication. By the autumn of 2017, my thyroid levels were back within
SolSun
in
Thyroid UK
6 years ago
B12 defficient can it cause palpitations
Hi all I have had a low B12 result, 127 after symptoms of pins and needles in hands and feet, heart palpitations tight chest, periods of vertigo when walking. Can these symptoms realy be B12 deficiency? They say i dont have anemia as my red blood count is normal but have not had any other blood test
Hi all I have had a low B12 result, 127 after symptoms of pins and needles in hands and feet, heart palpitations tight chest, periods of vertigo when walking. Can these symptoms realy be B12 deficiency? They say i dont have anemia as my red blood count is normal but have not had any other blood test
Suzie0505
in
Pernicious Anaemia Society
6 years ago
Help re B12 and folate treatment please...
i am here supporting my daughter who has been struggling with low B12 and folate for about 18 months. She was, before diagnosis, very poorly and ended up in hospital age 17 years. Her B12 levels were about 180 and her folate about 1.8. Despite this she was not treated for the condition until we moved
i am here supporting my daughter who has been struggling with low B12 and folate for about 18 months. She was, before diagnosis, very poorly and ended up in hospital age 17 years. Her B12 levels were about 180 and her folate about 1.8. Despite this she was not treated for the condition until we moved
hhelen
in
Pernicious Anaemia Society
6 years ago
Confused with my Intrinsic Factor Antibody test results
Hi lovely members! I was told that my B12 was normal, and my Intrinsic Factor antibodies were normal. So I was relieved. But reading into the results, I am less confident in their opinion. In short my antibody level is 1.9 u/mL. Is this just "unit per mililitre"? I have read that anything above 1.53
Hi lovely members! I was told that my B12 was normal, and my Intrinsic Factor antibodies were normal. So I was relieved. But reading into the results, I am less confident in their opinion. In short my antibody level is 1.9 u/mL. Is this just "unit per mililitre"? I have read that anything above 1.53
emvj
in
Pernicious Anaemia Society
6 years ago
Blood test results needing help with please......
So as an update I had hemithyroidectomy 12th October, really struggled to feel myself since. I have had symptoms for 2 years when we decovered I had a lump on left side of thyroid. Confirmed after operation as multinoduler goitre. I have already been for blood after my operation as was feeling so poorly
So as an update I had hemithyroidectomy 12th October, really struggled to feel myself since. I have had symptoms for 2 years when we decovered I had a lump on left side of thyroid. Confirmed after operation as multinoduler goitre. I have already been for blood after my operation as was feeling so poorly
Df92rt
in
Thyroid UK
6 years ago
Do the oral B12 sprays definitely work for patients with positive anti-body for intrinsic factor?
Hi All Super quick question to see if anyone has been using the B12 oral spray's and its resulted in absorption and health/symptom benefits? I am definitely not planning to switch from the injections but if its an effective way to supplement then I will happily stock up. Thanks in advance.
Hi All Super quick question to see if anyone has been using the B12 oral spray's and its resulted in absorption and health/symptom benefits? I am definitely not planning to switch from the injections but if its an effective way to supplement then I will happily stock up. Thanks in advance.
Katyluisa
in
Pernicious Anaemia Society
6 years ago
No PA or B12 deficiency but I am still going to supplement with oral B12 - should i get any other tests before this to rule out for sure?
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
GoingthruTreacle
in
Pernicious Anaemia Society
6 years ago
Follow up from Dr Hughes appointment
Well I must say I had a very successful appointment yesterday with Rod Hughes. A long way to travel from Edinburgh but well worth it. Summarised my symptoms to date and he explained in comprehensible language where he thinks I am at and suggested a plan for me to hopefully move forward. He noted my regularly
Well I must say I had a very successful appointment yesterday with Rod Hughes. A long way to travel from Edinburgh but well worth it. Summarised my symptoms to date and he explained in comprehensible language where he thinks I am at and suggested a plan for me to hopefully move forward. He noted my regularly
Lochy
in
PMRGCAuk
6 years ago
Blood test results and some folate advice needed!
Hello! I've got some blood test results and I'm hoping you guys can make some suggestions on the direction I should be looking to go in now. I'm currently taking 100mcg and 75mcg Levothyroxine on alternate days. I take 20,000 D3 once a week, magnesium oil every night and for the last month have been
Hello! I've got some blood test results and I'm hoping you guys can make some suggestions on the direction I should be looking to go in now. I'm currently taking 100mcg and 75mcg Levothyroxine on alternate days. I take 20,000 D3 once a week, magnesium oil every night and for the last month have been
Sick-and-Tired
in
Thyroid UK
6 years ago
Severe Calf Pain after loading B12
Hi I'm new here (posting) reading for months. Back in June I was tested for B12 due to extreme fatigue and tiredness. Results were as follows. B12 : 90 ng/L Folate: 3.6 ng/L Ferritin: 112 ng/L Intrinsic factor: negative I was put on loading doses of b12 injections and have had
Hi I'm new here (posting) reading for months. Back in June I was tested for B12 due to extreme fatigue and tiredness. Results were as follows. B12 : 90 ng/L Folate: 3.6 ng/L Ferritin: 112 ng/L Intrinsic factor: negative I was put on loading doses of b12 injections and have had
dda123
in
Pernicious Anaemia Society
6 years ago
Lucentis injection but no bleed?
Hello! I received a Lucentis injection in August, but have held off on any additional injections because I was no longer bleeding and I am breastfeeding. I am in the process of weaning now, and my retina specialist has discussed getting another injection just for additional protection. Has anyone else
Hello! I received a Lucentis injection in August, but have held off on any additional injections because I was no longer bleeding and I am breastfeeding. I am in the process of weaning now, and my retina specialist has discussed getting another injection just for additional protection. Has anyone else
besottedblue
in
Macular Society
6 years ago
Does low b12 mean I have Pernicious Anemia ?
Hi everyone, I visited my GP after suffering for along time with symptoms of constant Nausea , fatigue , swollen fingers and weight loss (10lb in 6 weeks) I had put all this down to IBS / Psoriasis but after a blood test was told my b12 was 154 even though I have a good diet and have taken b12 in
Hi everyone, I visited my GP after suffering for along time with symptoms of constant Nausea , fatigue , swollen fingers and weight loss (10lb in 6 weeks) I had put all this down to IBS / Psoriasis but after a blood test was told my b12 was 154 even though I have a good diet and have taken b12 in
Angelic82
in
Pernicious Anaemia Society
6 years ago
Advice on active B12 levels and symptoms please
Hello I’ve been suffering with many of the symptoms associated with anaemia for at least a year now (extreme tiredness, aches and pains, dizziness, nausea, tingling legs etc). I’ve recently found out that my active b12 levels are slightly low: 34.7 pmol/l (reference range 37.5 - 188) but I’m not sure
Hello I’ve been suffering with many of the symptoms associated with anaemia for at least a year now (extreme tiredness, aches and pains, dizziness, nausea, tingling legs etc). I’ve recently found out that my active b12 levels are slightly low: 34.7 pmol/l (reference range 37.5 - 188) but I’m not sure
Piperh
in
Pernicious Anaemia Society
6 years ago
Confused after conflicting tests, diagnoses, etc.?
I've posted on here a few other times and have honestly felt like the advice I've received here has been more helpful than many of my doctors' appointments! Quick summary: Went to a new GP in a new city in July with immense fatigue, joint pain, difficulty concentrating, etc. As I am a vegetarian, I
I've posted on here a few other times and have honestly felt like the advice I've received here has been more helpful than many of my doctors' appointments! Quick summary: Went to a new GP in a new city in July with immense fatigue, joint pain, difficulty concentrating, etc. As I am a vegetarian, I
hummingbird88
in
Pernicious Anaemia Society
6 years ago
IF high values
Hi. I have been diagnosed with pernicious anaemia in February 2018. I receive injection every 3 months, although i feel i need them monthly. Just tested my Intrinsic Factor and the results are 38.5 , and normal is <6 can't seem to find anything online about what these results, so if anyone knows anything
Hi. I have been diagnosed with pernicious anaemia in February 2018. I receive injection every 3 months, although i feel i need them monthly. Just tested my Intrinsic Factor and the results are 38.5 , and normal is <6 can't seem to find anything online about what these results, so if anyone knows anything
Gumball77
in
Pernicious Anaemia Society
6 years ago
Prednisolone
Hi Went back to GP as still having joint pain. My rheumatologist thought it was OA but when I went for ultrasound nothing was found. My GP has now put me on prednisolone 6 a day for 3 days to see if this helps. I'm still awaiting a diagnosis. My inflammatory markers were normal last time apart from the
Hi Went back to GP as still having joint pain. My rheumatologist thought it was OA but when I went for ultrasound nothing was found. My GP has now put me on prednisolone 6 a day for 3 days to see if this helps. I'm still awaiting a diagnosis. My inflammatory markers were normal last time apart from the
Nomoney2018
in
NRAS
6 years ago
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