Search
Search
About
Log in
Join
Experiences with
Flector
Posts
Communities
1,477 public posts
Filter results
Natural remedies and food supplements
This is mainly a personal view of the usefulness of these for RLS, but is based on some reading. I hope it is a balanced view. Hopefully it offers some guidance for when you're choosing remedies. The 3 main things you should find out about when choosing a remedy. 1) EFFECTIVENESS : does it actually
This is mainly a personal view of the usefulness of these for RLS, but is based on some reading. I hope it is a balanced view. Hopefully it offers some guidance for when you're choosing remedies. The 3 main things you should find out about when choosing a remedy. 1) EFFECTIVENESS : does it actually
Elffindoe
in
Restless Legs Syndrome
3 years ago
Interesting summary of PA on nhs website
I read the following paragraph to a nutritionist and I think they didnt believe it. I have PA but also suspected chronic pancreatitis in spite of healthy pancreas in scans, no pain, bloating or weight change. I want to supplement with acid in a healthy way with their advice. They've said - do not take
I read the following paragraph to a nutritionist and I think they didnt believe it. I have PA but also suspected chronic pancreatitis in spite of healthy pancreas in scans, no pain, bloating or weight change. I want to supplement with acid in a healthy way with their advice. They've said - do not take
Luac
in
Pernicious Anaemia Society
3 years ago
Ouch !!!!!
Good morning all ! First time posting on here …. But need some advice if poss . Will attempt to post pic of my hand , but this is the 5 th time it has happened in exactly the same place . I have no diagnosis , but have had positive ANA , and rheumatoid factor high . I do have pernicious anaemia and folate
Good morning all ! First time posting on here …. But need some advice if poss . Will attempt to post pic of my hand , but this is the 5 th time it has happened in exactly the same place . I have no diagnosis , but have had positive ANA , and rheumatoid factor high . I do have pernicious anaemia and folate
SarahLou2
in
LUPUS UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Possible explanation for lack of hepatic B12 storage
I've seen a few posts on this forum regarding the seemingly inexplicable variations in B12 dosing schedules needed to keep different individuals from experiencing signs of deficiency. Furthermore, it seems that every MD believes one should store enough B12 in the liver for lengthy periods of time without
I've seen a few posts on this forum regarding the seemingly inexplicable variations in B12 dosing schedules needed to keep different individuals from experiencing signs of deficiency. Furthermore, it seems that every MD believes one should store enough B12 in the liver for lengthy periods of time without
USmedsyssucks
in
Pernicious Anaemia Society
3 years ago
Low B12 after oral tablets
Hi all, first time here needing some advice on my B12 results and how to approach this with my GP. I was first diagnosed with B12 deficiency Jan 20 and my GP prescribed B12 & iron tablets. Tests done B12 187 Ferritin 6 Anti intrinsic factor Negative Gastric anti parietal Negative From those test
Hi all, first time here needing some advice on my B12 results and how to approach this with my GP. I was first diagnosed with B12 deficiency Jan 20 and my GP prescribed B12 & iron tablets. Tests done B12 187 Ferritin 6 Anti intrinsic factor Negative Gastric anti parietal Negative From those test
MissyY
in
Pernicious Anaemia Society
3 years ago
Help please
Hi. I recently had B12 result of 189 (180-700 range). I have tingly feet and hands, Tiredness, visual disturbance and muscle aches. My father and brother both have pernicious anaemia . Intrinsic factor and parietal were negative and Hb and MCV ok. Saw GP yesterday ( young locum) who did full neuro
Hi. I recently had B12 result of 189 (180-700 range). I have tingly feet and hands, Tiredness, visual disturbance and muscle aches. My father and brother both have pernicious anaemia . Intrinsic factor and parietal were negative and Hb and MCV ok. Saw GP yesterday ( young locum) who did full neuro
Lunadoo
in
Pernicious Anaemia Society
3 years ago
Intrinsic factor test
Hello all. I have found a very reasonably priced intrinsic factor private lab test. Do I have to stop B12 injections before taking this test? I SI EOD which has saved me from being totally bed ridden, which I was for three months. Thank you
Hello all. I have found a very reasonably priced intrinsic factor private lab test. Do I have to stop B12 injections before taking this test? I SI EOD which has saved me from being totally bed ridden, which I was for three months. Thank you
WorkingProgress
in
Pernicious Anaemia Society
3 years ago
Intrinsic factor and parietal cell antibody positive but MMA normal is it PA?
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
I have intrinsic factor abs and anti parietal cells but methylmalonic acid level is normal. B12,folate, hb are all in range.I have Hashis and a range of B12 deficiency systems Could anyone please advise if there is ever a situation when a GP would not prescribe B12 given the ap and IFabs? I am beginning
Aumshantii
in
Pernicious Anaemia Society
3 years ago
More advice needed.
I wrote to the practice manager as advised, about the lack of treatment. Ive just had a text message saying i dont have b12 deficiency anaemia as my haemoglobin and mcv levels are normal, and the guidlines i quoted pre date covid, and they have been told tratment has to be oral cyanocobalamin. She
I wrote to the practice manager as advised, about the lack of treatment. Ive just had a text message saying i dont have b12 deficiency anaemia as my haemoglobin and mcv levels are normal, and the guidlines i quoted pre date covid, and they have been told tratment has to be oral cyanocobalamin. She
Calypsoplus
in
Pernicious Anaemia Society
3 years ago
Advice please
MY B12 result 183 (range 180-640) all else OK incl intrinsic factor. GP won't treat unless B12 lower than 150, despite my having neurological symptoms, muscle fatigue and lack of appetite. I feel really quite unwell and not sure what to do. I've started B12 sublingual myself at 1000mcg. Father and
MY B12 result 183 (range 180-640) all else OK incl intrinsic factor. GP won't treat unless B12 lower than 150, despite my having neurological symptoms, muscle fatigue and lack of appetite. I feel really quite unwell and not sure what to do. I've started B12 sublingual myself at 1000mcg. Father and
Lunadoo
in
Pernicious Anaemia Society
3 years ago
Hi I am new to this. I have intrinsic factor abs, GP is refusing B12 injections until gastro confirm PA Where can I buy these in the London?
B12injections London
B12injections London
Aumshantii
in
Pernicious Anaemia Society
3 years ago
Test for intrinsic factor antibodies - when to do?
Quick questions, I hope! My doctor has agreed to this test but said we should wait until after 4 weeks after a third monthly injection of b12. I don't really see the point in waiting, because if it confirms a Pernicious Anemia diagnosis, that would hopefully mean I could start on more frequent loading
Quick questions, I hope! My doctor has agreed to this test but said we should wait until after 4 weeks after a third monthly injection of b12. I don't really see the point in waiting, because if it confirms a Pernicious Anemia diagnosis, that would hopefully mean I could start on more frequent loading
fireflymairi
in
Pernicious Anaemia Society
3 years ago
B12 levels are high but.......
Hi - I’m new to this, but will try to write my query. Got diagnosed with PA by a gastroenterologist about 6 years ago ( I don’t have the intrinsic factor) B12 injections every 3 months until about 3 years ago, then down to every 2 months. But at 6 weeks, I go downhill fast. This past year, it’s been
Hi - I’m new to this, but will try to write my query. Got diagnosed with PA by a gastroenterologist about 6 years ago ( I don’t have the intrinsic factor) B12 injections every 3 months until about 3 years ago, then down to every 2 months. But at 6 weeks, I go downhill fast. This past year, it’s been
Space69
in
Pernicious Anaemia Society
3 years ago
How long before an oral B12 tablet affects your Active/Serum B12 level?
Assuming for a moment that you don't have PA, and that you can successfully absorb oral B12 tablets like a healthy person (who may just have a very poor diet): 1) How long does it take an oral B12 tablet to be absorbed, such that it raises an Active B12 blood test result (or failing that, a Serum B12
Assuming for a moment that you don't have PA, and that you can successfully absorb oral B12 tablets like a healthy person (who may just have a very poor diet): 1) How long does it take an oral B12 tablet to be absorbed, such that it raises an Active B12 blood test result (or failing that, a Serum B12
Katanaqui
in
Pernicious Anaemia Society
3 years ago
Active B12 testing
Hi all, I have held off SI this month as I was trying to work out what might be causing skin flushing that I’ve been having. My neuro symptoms and stiff and achey joints are back although I’ve been waiting to hear from my GP about whether they will test for anti- intrinsic factor antibodies again and
Hi all, I have held off SI this month as I was trying to work out what might be causing skin flushing that I’ve been having. My neuro symptoms and stiff and achey joints are back although I’ve been waiting to hear from my GP about whether they will test for anti- intrinsic factor antibodies again and
Alpaca24
in
Pernicious Anaemia Society
3 years ago
Positive rheumatoid factor
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
Kels1974
in
NRAS
3 years ago
Thyroid Results advice and are private tests accurate?
I wonder if anyone can help I have got aches and pains in my joints I’m taking 1000 Vitamin D per day (Dr just said take it but not how much!) and sunbathing whenever possible as was told I’m slightly deficient. Here are my latest result with no change in medication 25 micro grams Levothyroxine (previous
I wonder if anyone can help I have got aches and pains in my joints I’m taking 1000 Vitamin D per day (Dr just said take it but not how much!) and sunbathing whenever possible as was told I’m slightly deficient. Here are my latest result with no change in medication 25 micro grams Levothyroxine (previous
HealthySam
in
Thyroid UK
3 years ago
Help and thoughts please!
Hi,I’m new to this site! I have scleroderma, PBC, Sjögrens and hypothyroidism and fairly bad osteoarthritis. The scleroderma has left me particularly unwell. For the past 2 months I have had a positive rheumatoid factor in my blood work, and am waiting for the results of my anti ccp antibody test. I
Hi,I’m new to this site! I have scleroderma, PBC, Sjögrens and hypothyroidism and fairly bad osteoarthritis. The scleroderma has left me particularly unwell. For the past 2 months I have had a positive rheumatoid factor in my blood work, and am waiting for the results of my anti ccp antibody test. I
MissusTee
in
NRAS
3 years ago
A bit about me
I worked in a Haematology laboratory for over 40 years until retirement. In that time I saw the introduction of automation into Blood Counting, Coagulation testing, and later, B12, Folate, Ferritin, Intrinsic Factor antibodies and Erythropoietin assays. In addition to routine laboratory work, I participated
I worked in a Haematology laboratory for over 40 years until retirement. In that time I saw the introduction of automation into Blood Counting, Coagulation testing, and later, B12, Folate, Ferritin, Intrinsic Factor antibodies and Erythropoietin assays. In addition to routine laboratory work, I participated
FlipperTD
in
Pernicious Anaemia Society
3 years ago
Low stomach acid tests
I asked some questions about B12 and Diarrhoea here: https://healthunlocked.com/pasoc/posts/145437733/vit-b12-and-diarrhoea Some people came back suggesting that low stomach acid (hypochlorhydria or achlorhydria) is a cause of stomach acid. I did the sodium bicarbonate "burp" test and it seems I might
I asked some questions about B12 and Diarrhoea here: https://healthunlocked.com/pasoc/posts/145437733/vit-b12-and-diarrhoea Some people came back suggesting that low stomach acid (hypochlorhydria or achlorhydria) is a cause of stomach acid. I did the sodium bicarbonate "burp" test and it seems I might
mickeymouse42
in
Pernicious Anaemia Society
3 years ago
1
...
14
15
16
...
74
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
860 results
Thyroid UK
244 results
NRAS
151 results
View top 10 communities
Sort by
Most Relevant
Newest